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Hi. Happy to help.

I shall make this as brief as possible as it's O/T but we do have diabetics on

this forum so I don't think I'm breaking too many rules.

B-12 is a very large molecule. When we take a regular form of B-12 (known as

Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of

B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to

even say that the cyano stands for Cyanide, but that's another discussion.

Anyway, the body has to convert that to Methylcobalimin. If, let's say we have

normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl

in the body), we might be absorbing MAYBE 100 of that molecule.

Because it's a LARGE molecule.

Now, because our bodies are converting it to Methyl, we diabetics might as well

go for the Methyl B-12 (which is sold online (because I couldn't find it

anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I

was diagnosed with diabetic neuropathy, with the zipping and zapping and

burning, (and because I attend a monthly metting of the Neuropathy Association

and because I go on a Neurological forum), I knew that I should begin Methyl

B-12. If I had had a brain in my head way back then, I should have already been

taking this supplement but hey, I learned the hard way.

So about 5 years ago when I began the burning in my feet, etc. etc, I went

online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately

after one week that I should go on the 5000. It's sublingual and you MUST take

it on an empty stomach to make sure you absorb what you absorb.

In a few months, because I was taking 5000 upon awakening every morning, I

noticed all my neuropathy symptoms had abated. And the only time I get a slight

burn in my feet is when the temperature drops in the same day by 25 or so

degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh,

by the way, my B-12 level is 2000). I don't need to take 5000 every morning

anymore. I take 3000 every few days.

It's all about getting your B-12 level to a good number. Four digits for us

diabetics because we simply need it more than the average person.

Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of

information.

I now get mine from Puritan's Pride because they have the Buy 2, get 3 free

deals. You can't beat that.

And anything that helps with diabetic neuropathy is okay in my book.

Of course, the first and foremost thing, one must do to control one's diabetic

neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take

all the Methyl B-12 you want, it won't help. It goes hand in hand with

controlling one's blood sugar.

Remember, doctor's (god bless them), practice MEDICINE. They do not practice

NUTRITION.

And as a closing punchline here, I remember well, about 3 years ago, when I had

been taking Methyl B-12 for quite a while and my symptoms abated, I was in my

podiatrist's office when he had been called away and his partner was doing my

feet (regular maintenance stuff like cutting toenails etc). He remarked. " you

have diabetes??, your feet are very good " . I then began my speech on taking

Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone

except if they had anemia, I don't believe in that crap " . I said 'well, you are

certainly entitled to your opinion "

Exactly one year later, when I was at my regular appointment, he popped his head

in and quietly asked " Melody mind if I ask you a question about that B-12 you

are taking? " I said 'no problem, what's up? " He said " I just got diagnosed

with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? "

I gave him what he needed to know about it and that was that.

See?? Even doctors can learn a thing or two.

Sorry this was long but I wanted to be thorough in what I told you.

Melody

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Hi. Happy to help.

I shall make this as brief as possible as it's O/T but we do have diabetics on

this forum so I don't think I'm breaking too many rules.

B-12 is a very large molecule. When we take a regular form of B-12 (known as

Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of

B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to

even say that the cyano stands for Cyanide, but that's another discussion.

Anyway, the body has to convert that to Methylcobalimin. If, let's say we have

normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl

in the body), we might be absorbing MAYBE 100 of that molecule.

Because it's a LARGE molecule.

Now, because our bodies are converting it to Methyl, we diabetics might as well

go for the Methyl B-12 (which is sold online (because I couldn't find it

anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I

was diagnosed with diabetic neuropathy, with the zipping and zapping and

burning, (and because I attend a monthly metting of the Neuropathy Association

and because I go on a Neurological forum), I knew that I should begin Methyl

B-12. If I had had a brain in my head way back then, I should have already been

taking this supplement but hey, I learned the hard way.

So about 5 years ago when I began the burning in my feet, etc. etc, I went

online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately

after one week that I should go on the 5000. It's sublingual and you MUST take

it on an empty stomach to make sure you absorb what you absorb.

In a few months, because I was taking 5000 upon awakening every morning, I

noticed all my neuropathy symptoms had abated. And the only time I get a slight

burn in my feet is when the temperature drops in the same day by 25 or so

degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh,

by the way, my B-12 level is 2000). I don't need to take 5000 every morning

anymore. I take 3000 every few days.

It's all about getting your B-12 level to a good number. Four digits for us

diabetics because we simply need it more than the average person.

Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of

information.

I now get mine from Puritan's Pride because they have the Buy 2, get 3 free

deals. You can't beat that.

And anything that helps with diabetic neuropathy is okay in my book.

Of course, the first and foremost thing, one must do to control one's diabetic

neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take

all the Methyl B-12 you want, it won't help. It goes hand in hand with

controlling one's blood sugar.

Remember, doctor's (god bless them), practice MEDICINE. They do not practice

NUTRITION.

And as a closing punchline here, I remember well, about 3 years ago, when I had

been taking Methyl B-12 for quite a while and my symptoms abated, I was in my

podiatrist's office when he had been called away and his partner was doing my

feet (regular maintenance stuff like cutting toenails etc). He remarked. " you

have diabetes??, your feet are very good " . I then began my speech on taking

Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone

except if they had anemia, I don't believe in that crap " . I said 'well, you are

certainly entitled to your opinion "

Exactly one year later, when I was at my regular appointment, he popped his head

in and quietly asked " Melody mind if I ask you a question about that B-12 you

are taking? " I said 'no problem, what's up? " He said " I just got diagnosed

with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? "

I gave him what he needed to know about it and that was that.

See?? Even doctors can learn a thing or two.

Sorry this was long but I wanted to be thorough in what I told you.

Melody

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Guest guest

Hi. Happy to help.

I shall make this as brief as possible as it's O/T but we do have diabetics on

this forum so I don't think I'm breaking too many rules.

B-12 is a very large molecule. When we take a regular form of B-12 (known as

Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of

B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to

even say that the cyano stands for Cyanide, but that's another discussion.

Anyway, the body has to convert that to Methylcobalimin. If, let's say we have

normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl

in the body), we might be absorbing MAYBE 100 of that molecule.

Because it's a LARGE molecule.

Now, because our bodies are converting it to Methyl, we diabetics might as well

go for the Methyl B-12 (which is sold online (because I couldn't find it

anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I

was diagnosed with diabetic neuropathy, with the zipping and zapping and

burning, (and because I attend a monthly metting of the Neuropathy Association

and because I go on a Neurological forum), I knew that I should begin Methyl

B-12. If I had had a brain in my head way back then, I should have already been

taking this supplement but hey, I learned the hard way.

So about 5 years ago when I began the burning in my feet, etc. etc, I went

online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately

after one week that I should go on the 5000. It's sublingual and you MUST take

it on an empty stomach to make sure you absorb what you absorb.

In a few months, because I was taking 5000 upon awakening every morning, I

noticed all my neuropathy symptoms had abated. And the only time I get a slight

burn in my feet is when the temperature drops in the same day by 25 or so

degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh,

by the way, my B-12 level is 2000). I don't need to take 5000 every morning

anymore. I take 3000 every few days.

It's all about getting your B-12 level to a good number. Four digits for us

diabetics because we simply need it more than the average person.

Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of

information.

I now get mine from Puritan's Pride because they have the Buy 2, get 3 free

deals. You can't beat that.

And anything that helps with diabetic neuropathy is okay in my book.

Of course, the first and foremost thing, one must do to control one's diabetic

neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take

all the Methyl B-12 you want, it won't help. It goes hand in hand with

controlling one's blood sugar.

Remember, doctor's (god bless them), practice MEDICINE. They do not practice

NUTRITION.

And as a closing punchline here, I remember well, about 3 years ago, when I had

been taking Methyl B-12 for quite a while and my symptoms abated, I was in my

podiatrist's office when he had been called away and his partner was doing my

feet (regular maintenance stuff like cutting toenails etc). He remarked. " you

have diabetes??, your feet are very good " . I then began my speech on taking

Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone

except if they had anemia, I don't believe in that crap " . I said 'well, you are

certainly entitled to your opinion "

Exactly one year later, when I was at my regular appointment, he popped his head

in and quietly asked " Melody mind if I ask you a question about that B-12 you

are taking? " I said 'no problem, what's up? " He said " I just got diagnosed

with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? "

I gave him what he needed to know about it and that was that.

See?? Even doctors can learn a thing or two.

Sorry this was long but I wanted to be thorough in what I told you.

Melody

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Thanks .

We all (each of us) have issues to deal with. It's how we cope with them that

gets us through. I sprout and try to make him laugh every day. It's working.

lol

Melody

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Thanks .

We all (each of us) have issues to deal with. It's how we cope with them that

gets us through. I sprout and try to make him laugh every day. It's working.

lol

Melody

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Guest guest

Dona:

The only treatment for nerve pain (pain meds I mean) that works (in some people,

not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried

them, became deathly ill and will never go in that direction again. He has

tried all the creams, some compounds (you might try them, have your doctor write

a prescription for neuropathy compound creams, by looking this up on google),

bring the prescription to a compound pharmacist and they'll make it up for you

and you can spread it where you feel the burning.

Also, if you have burning, try spraying a menthol spray on the skin. That seems

to help Alan. CVS has one that is 16% menthol.

Now one thing you must never try is the new Qtenza treatment that a friend of

mine volunteered for. It was initially made for Shingles but it's devastating.

It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some

ridiculous amount). He went into the hospital to volunteer for this. They

spread lidocain first on the legs. They gave him tylenol for the pain (THE

TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it

BURNS the nerves in the skin.

they then spread the cream on his legs. He got up, almost punched the doctor

and ran to the drugstore to get some opiate.

The burning on his legs from that treatment almost did him in.

The doctors are finding out that in some people (even though the treatment

almost kills them), it will help with neuropathy for about 3 months. We were

discussing this at the meeting last month. He says if he had known what it

entailed, he would never have done it.

It works for shingles, but then again, the treatment itself is horrendous.

But what others have gotten relief for their neuropathy pain is the spinal cord

stimulators (from Medtronic and other companies). Jerry had this done

YEARS AGO because of his back pain.

See...it also helps with neuropathy pain.

Look into this also. You need a pain management specialist for this.

If you want to discuss this privately just email me at eliz7212@...

anytime. Glad to share what I know. (or actually the little I DO know about

peripheral neuropathy).

Melody

> >

> > Carolyn:

> >

> > We've been on a journey to find the cause of his neuropathy for over 20

years. At our monthly Neuropathy support group meetings, EVERYONE there has

neuropathy. There are 20 million people in the USA who have neuropathy.

> >

> > Some causes??

> >

> > diabets.

> > Statin drugs

> > Chemotherapy treatments

> > Levaquin (or similar antibiotics)

> > Pinched nerves in the lower back regions

> > Genetics, inherited neuropathy from one's parents

> > MS (Montel was discussing his main one day ontv)

> > Auto-immune diseases

> > And one can get neuropathy anywhere on the body, or INSIDE the body.

> >

> > Just a small explanation. We think Alan's spinal stenosis is the cause but

we've been to countless back surgeons over the years and no one could pinpoint

it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal

stenosis, and lots of degeneration going on. " No one will touch his back, and

because he has neuropathy in his feet (you could drive a nail into his foot and

he wouldn't feel it) but the pain is between his toes and they burn (because

neuropathy is nerve damage and that means mis-directed pain signals reach the

brain. He has a foot ulcer for 6 years that comes back because he has a

Exostosis (extra bony growth) under his foot. He wears special shoes (which

don't help) because when he walks, it puts pressure on the ulcer). We are now

AGAIN trying to find a foot surgeon to shave down the boney part under his foot.

So far, no one will operate on his foot because as they put it. " His foot might

fall apart " .

> >

> > So the man can barely walk, has such a bad back, a host of other ailments

but he can manage to laugh when he sees my sprouts. Thank god for that!!!

> >

> > Melody

> >

>

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Dona:

The only treatment for nerve pain (pain meds I mean) that works (in some people,

not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried

them, became deathly ill and will never go in that direction again. He has

tried all the creams, some compounds (you might try them, have your doctor write

a prescription for neuropathy compound creams, by looking this up on google),

bring the prescription to a compound pharmacist and they'll make it up for you

and you can spread it where you feel the burning.

Also, if you have burning, try spraying a menthol spray on the skin. That seems

to help Alan. CVS has one that is 16% menthol.

Now one thing you must never try is the new Qtenza treatment that a friend of

mine volunteered for. It was initially made for Shingles but it's devastating.

It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some

ridiculous amount). He went into the hospital to volunteer for this. They

spread lidocain first on the legs. They gave him tylenol for the pain (THE

TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it

BURNS the nerves in the skin.

they then spread the cream on his legs. He got up, almost punched the doctor

and ran to the drugstore to get some opiate.

The burning on his legs from that treatment almost did him in.

The doctors are finding out that in some people (even though the treatment

almost kills them), it will help with neuropathy for about 3 months. We were

discussing this at the meeting last month. He says if he had known what it

entailed, he would never have done it.

It works for shingles, but then again, the treatment itself is horrendous.

But what others have gotten relief for their neuropathy pain is the spinal cord

stimulators (from Medtronic and other companies). Jerry had this done

YEARS AGO because of his back pain.

See...it also helps with neuropathy pain.

Look into this also. You need a pain management specialist for this.

If you want to discuss this privately just email me at eliz7212@...

anytime. Glad to share what I know. (or actually the little I DO know about

peripheral neuropathy).

Melody

> >

> > Carolyn:

> >

> > We've been on a journey to find the cause of his neuropathy for over 20

years. At our monthly Neuropathy support group meetings, EVERYONE there has

neuropathy. There are 20 million people in the USA who have neuropathy.

> >

> > Some causes??

> >

> > diabets.

> > Statin drugs

> > Chemotherapy treatments

> > Levaquin (or similar antibiotics)

> > Pinched nerves in the lower back regions

> > Genetics, inherited neuropathy from one's parents

> > MS (Montel was discussing his main one day ontv)

> > Auto-immune diseases

> > And one can get neuropathy anywhere on the body, or INSIDE the body.

> >

> > Just a small explanation. We think Alan's spinal stenosis is the cause but

we've been to countless back surgeons over the years and no one could pinpoint

it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal

stenosis, and lots of degeneration going on. " No one will touch his back, and

because he has neuropathy in his feet (you could drive a nail into his foot and

he wouldn't feel it) but the pain is between his toes and they burn (because

neuropathy is nerve damage and that means mis-directed pain signals reach the

brain. He has a foot ulcer for 6 years that comes back because he has a

Exostosis (extra bony growth) under his foot. He wears special shoes (which

don't help) because when he walks, it puts pressure on the ulcer). We are now

AGAIN trying to find a foot surgeon to shave down the boney part under his foot.

So far, no one will operate on his foot because as they put it. " His foot might

fall apart " .

> >

> > So the man can barely walk, has such a bad back, a host of other ailments

but he can manage to laugh when he sees my sprouts. Thank god for that!!!

> >

> > Melody

> >

>

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Share on other sites

Guest guest

Dona:

The only treatment for nerve pain (pain meds I mean) that works (in some people,

not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried

them, became deathly ill and will never go in that direction again. He has

tried all the creams, some compounds (you might try them, have your doctor write

a prescription for neuropathy compound creams, by looking this up on google),

bring the prescription to a compound pharmacist and they'll make it up for you

and you can spread it where you feel the burning.

Also, if you have burning, try spraying a menthol spray on the skin. That seems

to help Alan. CVS has one that is 16% menthol.

Now one thing you must never try is the new Qtenza treatment that a friend of

mine volunteered for. It was initially made for Shingles but it's devastating.

It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some

ridiculous amount). He went into the hospital to volunteer for this. They

spread lidocain first on the legs. They gave him tylenol for the pain (THE

TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it

BURNS the nerves in the skin.

they then spread the cream on his legs. He got up, almost punched the doctor

and ran to the drugstore to get some opiate.

The burning on his legs from that treatment almost did him in.

The doctors are finding out that in some people (even though the treatment

almost kills them), it will help with neuropathy for about 3 months. We were

discussing this at the meeting last month. He says if he had known what it

entailed, he would never have done it.

It works for shingles, but then again, the treatment itself is horrendous.

But what others have gotten relief for their neuropathy pain is the spinal cord

stimulators (from Medtronic and other companies). Jerry had this done

YEARS AGO because of his back pain.

See...it also helps with neuropathy pain.

Look into this also. You need a pain management specialist for this.

If you want to discuss this privately just email me at eliz7212@...

anytime. Glad to share what I know. (or actually the little I DO know about

peripheral neuropathy).

Melody

> >

> > Carolyn:

> >

> > We've been on a journey to find the cause of his neuropathy for over 20

years. At our monthly Neuropathy support group meetings, EVERYONE there has

neuropathy. There are 20 million people in the USA who have neuropathy.

> >

> > Some causes??

> >

> > diabets.

> > Statin drugs

> > Chemotherapy treatments

> > Levaquin (or similar antibiotics)

> > Pinched nerves in the lower back regions

> > Genetics, inherited neuropathy from one's parents

> > MS (Montel was discussing his main one day ontv)

> > Auto-immune diseases

> > And one can get neuropathy anywhere on the body, or INSIDE the body.

> >

> > Just a small explanation. We think Alan's spinal stenosis is the cause but

we've been to countless back surgeons over the years and no one could pinpoint

it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal

stenosis, and lots of degeneration going on. " No one will touch his back, and

because he has neuropathy in his feet (you could drive a nail into his foot and

he wouldn't feel it) but the pain is between his toes and they burn (because

neuropathy is nerve damage and that means mis-directed pain signals reach the

brain. He has a foot ulcer for 6 years that comes back because he has a

Exostosis (extra bony growth) under his foot. He wears special shoes (which

don't help) because when he walks, it puts pressure on the ulcer). We are now

AGAIN trying to find a foot surgeon to shave down the boney part under his foot.

So far, no one will operate on his foot because as they put it. " His foot might

fall apart " .

> >

> > So the man can barely walk, has such a bad back, a host of other ailments

but he can manage to laugh when he sees my sprouts. Thank god for that!!!

> >

> > Melody

> >

>

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Guest guest

I had severe neuropathy for many years. When I made the connection between my

health and food allergies, eliminated my " triggers " and changed how I ate, the

neuropathy and MOST of my other health issues completely resolved. The main

triggers for me where wheat, soy and corn, with sensitivies to many other

things, but those were the biggies. I was pleasantly surprised that the

neuropathy cleared up completely. I still get some minor tingling in my feet if

I am exposed to one of my allergens, but the years long numbness and tingling

completely cleared up.

> >

> > Carolyn:

> >

> > We've been on a journey to find the cause of his neuropathy for over 20

years. At our monthly Neuropathy support group meetings, EVERYONE there has

neuropathy. There are 20 million people in the USA who have neuropathy.

> >

> > Some causes??

> >

> > diabets.

> > Statin drugs

> > Chemotherapy treatments

> > Levaquin (or similar antibiotics)

> > Pinched nerves in the lower back regions

> > Genetics, inherited neuropathy from one's parents

> > MS (Montel was discussing his main one day ontv)

> > Auto-immune diseases

> > And one can get neuropathy anywhere on the body, or INSIDE the body.

> >

> > Just a small explanation. We think Alan's spinal stenosis is the cause but

we've been to countless back surgeons over the years and no one could pinpoint

it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal

stenosis, and lots of degeneration going on. " No one will touch his back, and

because he has neuropathy in his feet (you could drive a nail into his foot and

he wouldn't feel it) but the pain is between his toes and they burn (because

neuropathy is nerve damage and that means mis-directed pain signals reach the

brain. He has a foot ulcer for 6 years that comes back because he has a

Exostosis (extra bony growth) under his foot. He wears special shoes (which

don't help) because when he walks, it puts pressure on the ulcer). We are now

AGAIN trying to find a foot surgeon to shave down the boney part under his foot.

So far, no one will operate on his foot because as they put it. " His foot might

fall apart " .

> >

> > So the man can barely walk, has such a bad back, a host of other ailments

but he can manage to laugh when he sees my sprouts. Thank god for that!!!

> >

> > Melody

> >

>

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