Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Hi. Happy to help. I shall make this as brief as possible as it's O/T but we do have diabetics on this forum so I don't think I'm breaking too many rules. B-12 is a very large molecule. When we take a regular form of B-12 (known as Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to even say that the cyano stands for Cyanide, but that's another discussion. Anyway, the body has to convert that to Methylcobalimin. If, let's say we have normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl in the body), we might be absorbing MAYBE 100 of that molecule. Because it's a LARGE molecule. Now, because our bodies are converting it to Methyl, we diabetics might as well go for the Methyl B-12 (which is sold online (because I couldn't find it anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I was diagnosed with diabetic neuropathy, with the zipping and zapping and burning, (and because I attend a monthly metting of the Neuropathy Association and because I go on a Neurological forum), I knew that I should begin Methyl B-12. If I had had a brain in my head way back then, I should have already been taking this supplement but hey, I learned the hard way. So about 5 years ago when I began the burning in my feet, etc. etc, I went online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately after one week that I should go on the 5000. It's sublingual and you MUST take it on an empty stomach to make sure you absorb what you absorb. In a few months, because I was taking 5000 upon awakening every morning, I noticed all my neuropathy symptoms had abated. And the only time I get a slight burn in my feet is when the temperature drops in the same day by 25 or so degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh, by the way, my B-12 level is 2000). I don't need to take 5000 every morning anymore. I take 3000 every few days. It's all about getting your B-12 level to a good number. Four digits for us diabetics because we simply need it more than the average person. Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of information. I now get mine from Puritan's Pride because they have the Buy 2, get 3 free deals. You can't beat that. And anything that helps with diabetic neuropathy is okay in my book. Of course, the first and foremost thing, one must do to control one's diabetic neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take all the Methyl B-12 you want, it won't help. It goes hand in hand with controlling one's blood sugar. Remember, doctor's (god bless them), practice MEDICINE. They do not practice NUTRITION. And as a closing punchline here, I remember well, about 3 years ago, when I had been taking Methyl B-12 for quite a while and my symptoms abated, I was in my podiatrist's office when he had been called away and his partner was doing my feet (regular maintenance stuff like cutting toenails etc). He remarked. " you have diabetes??, your feet are very good " . I then began my speech on taking Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone except if they had anemia, I don't believe in that crap " . I said 'well, you are certainly entitled to your opinion " Exactly one year later, when I was at my regular appointment, he popped his head in and quietly asked " Melody mind if I ask you a question about that B-12 you are taking? " I said 'no problem, what's up? " He said " I just got diagnosed with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? " I gave him what he needed to know about it and that was that. See?? Even doctors can learn a thing or two. Sorry this was long but I wanted to be thorough in what I told you. Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Hi. Happy to help. I shall make this as brief as possible as it's O/T but we do have diabetics on this forum so I don't think I'm breaking too many rules. B-12 is a very large molecule. When we take a regular form of B-12 (known as Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to even say that the cyano stands for Cyanide, but that's another discussion. Anyway, the body has to convert that to Methylcobalimin. If, let's say we have normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl in the body), we might be absorbing MAYBE 100 of that molecule. Because it's a LARGE molecule. Now, because our bodies are converting it to Methyl, we diabetics might as well go for the Methyl B-12 (which is sold online (because I couldn't find it anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I was diagnosed with diabetic neuropathy, with the zipping and zapping and burning, (and because I attend a monthly metting of the Neuropathy Association and because I go on a Neurological forum), I knew that I should begin Methyl B-12. If I had had a brain in my head way back then, I should have already been taking this supplement but hey, I learned the hard way. So about 5 years ago when I began the burning in my feet, etc. etc, I went online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately after one week that I should go on the 5000. It's sublingual and you MUST take it on an empty stomach to make sure you absorb what you absorb. In a few months, because I was taking 5000 upon awakening every morning, I noticed all my neuropathy symptoms had abated. And the only time I get a slight burn in my feet is when the temperature drops in the same day by 25 or so degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh, by the way, my B-12 level is 2000). I don't need to take 5000 every morning anymore. I take 3000 every few days. It's all about getting your B-12 level to a good number. Four digits for us diabetics because we simply need it more than the average person. Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of information. I now get mine from Puritan's Pride because they have the Buy 2, get 3 free deals. You can't beat that. And anything that helps with diabetic neuropathy is okay in my book. Of course, the first and foremost thing, one must do to control one's diabetic neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take all the Methyl B-12 you want, it won't help. It goes hand in hand with controlling one's blood sugar. Remember, doctor's (god bless them), practice MEDICINE. They do not practice NUTRITION. And as a closing punchline here, I remember well, about 3 years ago, when I had been taking Methyl B-12 for quite a while and my symptoms abated, I was in my podiatrist's office when he had been called away and his partner was doing my feet (regular maintenance stuff like cutting toenails etc). He remarked. " you have diabetes??, your feet are very good " . I then began my speech on taking Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone except if they had anemia, I don't believe in that crap " . I said 'well, you are certainly entitled to your opinion " Exactly one year later, when I was at my regular appointment, he popped his head in and quietly asked " Melody mind if I ask you a question about that B-12 you are taking? " I said 'no problem, what's up? " He said " I just got diagnosed with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? " I gave him what he needed to know about it and that was that. See?? Even doctors can learn a thing or two. Sorry this was long but I wanted to be thorough in what I told you. Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Hi. Happy to help. I shall make this as brief as possible as it's O/T but we do have diabetics on this forum so I don't think I'm breaking too many rules. B-12 is a very large molecule. When we take a regular form of B-12 (known as Cyanocobalimin) (look in any store like CVS or Walgreens, pick up a bottle of B-12 supplements and you'll see that it's Cyanocobalimin), and I'm afraid to even say that the cyano stands for Cyanide, but that's another discussion. Anyway, the body has to convert that to Methylcobalimin. If, let's say we have normal absorption and we take 1000 of Cyanocobalin (which is converted to Methyl in the body), we might be absorbing MAYBE 100 of that molecule. Because it's a LARGE molecule. Now, because our bodies are converting it to Methyl, we diabetics might as well go for the Methyl B-12 (which is sold online (because I couldn't find it anywhere else), I got it initially at iherb.com from Jarrows. Years ago when I was diagnosed with diabetic neuropathy, with the zipping and zapping and burning, (and because I attend a monthly metting of the Neuropathy Association and because I go on a Neurological forum), I knew that I should begin Methyl B-12. If I had had a brain in my head way back then, I should have already been taking this supplement but hey, I learned the hard way. So about 5 years ago when I began the burning in my feet, etc. etc, I went online to iherb.com and got the 1000 of the Methyl B-12. I knew immediately after one week that I should go on the 5000. It's sublingual and you MUST take it on an empty stomach to make sure you absorb what you absorb. In a few months, because I was taking 5000 upon awakening every morning, I noticed all my neuropathy symptoms had abated. And the only time I get a slight burn in my feet is when the temperature drops in the same day by 25 or so degrees. So I'm affected by barimetric pressure. So .....for 5 years now, (oh, by the way, my B-12 level is 2000). I don't need to take 5000 every morning anymore. I take 3000 every few days. It's all about getting your B-12 level to a good number. Four digits for us diabetics because we simply need it more than the average person. Google Methyl B-12, nerve damage, diabetes, etc. You'll get loads of information. I now get mine from Puritan's Pride because they have the Buy 2, get 3 free deals. You can't beat that. And anything that helps with diabetic neuropathy is okay in my book. Of course, the first and foremost thing, one must do to control one's diabetic neuropathy is to CONTROL one's blood sugar. If one doesn't do that, you can take all the Methyl B-12 you want, it won't help. It goes hand in hand with controlling one's blood sugar. Remember, doctor's (god bless them), practice MEDICINE. They do not practice NUTRITION. And as a closing punchline here, I remember well, about 3 years ago, when I had been taking Methyl B-12 for quite a while and my symptoms abated, I was in my podiatrist's office when he had been called away and his partner was doing my feet (regular maintenance stuff like cutting toenails etc). He remarked. " you have diabetes??, your feet are very good " . I then began my speech on taking Methyl B-12. He looked at me and said " I would never prescribe B-12 for anyone except if they had anemia, I don't believe in that crap " . I said 'well, you are certainly entitled to your opinion " Exactly one year later, when I was at my regular appointment, he popped his head in and quietly asked " Melody mind if I ask you a question about that B-12 you are taking? " I said 'no problem, what's up? " He said " I just got diagnosed with diabetic neuropathy, WHAT'S THE INFO ON THAT B-12 YOU ARE ON??? " I gave him what he needed to know about it and that was that. See?? Even doctors can learn a thing or two. Sorry this was long but I wanted to be thorough in what I told you. Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Thanks . We all (each of us) have issues to deal with. It's how we cope with them that gets us through. I sprout and try to make him laugh every day. It's working. lol Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Thanks . We all (each of us) have issues to deal with. It's how we cope with them that gets us through. I sprout and try to make him laugh every day. It's working. lol Melody Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Dona: The only treatment for nerve pain (pain meds I mean) that works (in some people, not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried them, became deathly ill and will never go in that direction again. He has tried all the creams, some compounds (you might try them, have your doctor write a prescription for neuropathy compound creams, by looking this up on google), bring the prescription to a compound pharmacist and they'll make it up for you and you can spread it where you feel the burning. Also, if you have burning, try spraying a menthol spray on the skin. That seems to help Alan. CVS has one that is 16% menthol. Now one thing you must never try is the new Qtenza treatment that a friend of mine volunteered for. It was initially made for Shingles but it's devastating. It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some ridiculous amount). He went into the hospital to volunteer for this. They spread lidocain first on the legs. They gave him tylenol for the pain (THE TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it BURNS the nerves in the skin. they then spread the cream on his legs. He got up, almost punched the doctor and ran to the drugstore to get some opiate. The burning on his legs from that treatment almost did him in. The doctors are finding out that in some people (even though the treatment almost kills them), it will help with neuropathy for about 3 months. We were discussing this at the meeting last month. He says if he had known what it entailed, he would never have done it. It works for shingles, but then again, the treatment itself is horrendous. But what others have gotten relief for their neuropathy pain is the spinal cord stimulators (from Medtronic and other companies). Jerry had this done YEARS AGO because of his back pain. See...it also helps with neuropathy pain. Look into this also. You need a pain management specialist for this. If you want to discuss this privately just email me at eliz7212@... anytime. Glad to share what I know. (or actually the little I DO know about peripheral neuropathy). Melody > > > > Carolyn: > > > > We've been on a journey to find the cause of his neuropathy for over 20 years. At our monthly Neuropathy support group meetings, EVERYONE there has neuropathy. There are 20 million people in the USA who have neuropathy. > > > > Some causes?? > > > > diabets. > > Statin drugs > > Chemotherapy treatments > > Levaquin (or similar antibiotics) > > Pinched nerves in the lower back regions > > Genetics, inherited neuropathy from one's parents > > MS (Montel was discussing his main one day ontv) > > Auto-immune diseases > > And one can get neuropathy anywhere on the body, or INSIDE the body. > > > > Just a small explanation. We think Alan's spinal stenosis is the cause but we've been to countless back surgeons over the years and no one could pinpoint it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal stenosis, and lots of degeneration going on. " No one will touch his back, and because he has neuropathy in his feet (you could drive a nail into his foot and he wouldn't feel it) but the pain is between his toes and they burn (because neuropathy is nerve damage and that means mis-directed pain signals reach the brain. He has a foot ulcer for 6 years that comes back because he has a Exostosis (extra bony growth) under his foot. He wears special shoes (which don't help) because when he walks, it puts pressure on the ulcer). We are now AGAIN trying to find a foot surgeon to shave down the boney part under his foot. So far, no one will operate on his foot because as they put it. " His foot might fall apart " . > > > > So the man can barely walk, has such a bad back, a host of other ailments but he can manage to laugh when he sees my sprouts. Thank god for that!!! > > > > Melody > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Dona: The only treatment for nerve pain (pain meds I mean) that works (in some people, not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried them, became deathly ill and will never go in that direction again. He has tried all the creams, some compounds (you might try them, have your doctor write a prescription for neuropathy compound creams, by looking this up on google), bring the prescription to a compound pharmacist and they'll make it up for you and you can spread it where you feel the burning. Also, if you have burning, try spraying a menthol spray on the skin. That seems to help Alan. CVS has one that is 16% menthol. Now one thing you must never try is the new Qtenza treatment that a friend of mine volunteered for. It was initially made for Shingles but it's devastating. It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some ridiculous amount). He went into the hospital to volunteer for this. They spread lidocain first on the legs. They gave him tylenol for the pain (THE TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it BURNS the nerves in the skin. they then spread the cream on his legs. He got up, almost punched the doctor and ran to the drugstore to get some opiate. The burning on his legs from that treatment almost did him in. The doctors are finding out that in some people (even though the treatment almost kills them), it will help with neuropathy for about 3 months. We were discussing this at the meeting last month. He says if he had known what it entailed, he would never have done it. It works for shingles, but then again, the treatment itself is horrendous. But what others have gotten relief for their neuropathy pain is the spinal cord stimulators (from Medtronic and other companies). Jerry had this done YEARS AGO because of his back pain. See...it also helps with neuropathy pain. Look into this also. You need a pain management specialist for this. If you want to discuss this privately just email me at eliz7212@... anytime. Glad to share what I know. (or actually the little I DO know about peripheral neuropathy). Melody > > > > Carolyn: > > > > We've been on a journey to find the cause of his neuropathy for over 20 years. At our monthly Neuropathy support group meetings, EVERYONE there has neuropathy. There are 20 million people in the USA who have neuropathy. > > > > Some causes?? > > > > diabets. > > Statin drugs > > Chemotherapy treatments > > Levaquin (or similar antibiotics) > > Pinched nerves in the lower back regions > > Genetics, inherited neuropathy from one's parents > > MS (Montel was discussing his main one day ontv) > > Auto-immune diseases > > And one can get neuropathy anywhere on the body, or INSIDE the body. > > > > Just a small explanation. We think Alan's spinal stenosis is the cause but we've been to countless back surgeons over the years and no one could pinpoint it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal stenosis, and lots of degeneration going on. " No one will touch his back, and because he has neuropathy in his feet (you could drive a nail into his foot and he wouldn't feel it) but the pain is between his toes and they burn (because neuropathy is nerve damage and that means mis-directed pain signals reach the brain. He has a foot ulcer for 6 years that comes back because he has a Exostosis (extra bony growth) under his foot. He wears special shoes (which don't help) because when he walks, it puts pressure on the ulcer). We are now AGAIN trying to find a foot surgeon to shave down the boney part under his foot. So far, no one will operate on his foot because as they put it. " His foot might fall apart " . > > > > So the man can barely walk, has such a bad back, a host of other ailments but he can manage to laugh when he sees my sprouts. Thank god for that!!! > > > > Melody > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 Dona: The only treatment for nerve pain (pain meds I mean) that works (in some people, not all), is the anti-seizure meds. Lyrica and Neurontin are some. Alan tried them, became deathly ill and will never go in that direction again. He has tried all the creams, some compounds (you might try them, have your doctor write a prescription for neuropathy compound creams, by looking this up on google), bring the prescription to a compound pharmacist and they'll make it up for you and you can spread it where you feel the burning. Also, if you have burning, try spraying a menthol spray on the skin. That seems to help Alan. CVS has one that is 16% menthol. Now one thing you must never try is the new Qtenza treatment that a friend of mine volunteered for. It was initially made for Shingles but it's devastating. It's a VERY STRONG capsaicin cream that is like 75% capsaicin (or some ridiculous amount). He went into the hospital to volunteer for this. They spread lidocain first on the legs. They gave him tylenol for the pain (THE TREATMENT ITSELF almost did him in). Felt like 3rd degree burns, because it BURNS the nerves in the skin. they then spread the cream on his legs. He got up, almost punched the doctor and ran to the drugstore to get some opiate. The burning on his legs from that treatment almost did him in. The doctors are finding out that in some people (even though the treatment almost kills them), it will help with neuropathy for about 3 months. We were discussing this at the meeting last month. He says if he had known what it entailed, he would never have done it. It works for shingles, but then again, the treatment itself is horrendous. But what others have gotten relief for their neuropathy pain is the spinal cord stimulators (from Medtronic and other companies). Jerry had this done YEARS AGO because of his back pain. See...it also helps with neuropathy pain. Look into this also. You need a pain management specialist for this. If you want to discuss this privately just email me at eliz7212@... anytime. Glad to share what I know. (or actually the little I DO know about peripheral neuropathy). Melody > > > > Carolyn: > > > > We've been on a journey to find the cause of his neuropathy for over 20 years. At our monthly Neuropathy support group meetings, EVERYONE there has neuropathy. There are 20 million people in the USA who have neuropathy. > > > > Some causes?? > > > > diabets. > > Statin drugs > > Chemotherapy treatments > > Levaquin (or similar antibiotics) > > Pinched nerves in the lower back regions > > Genetics, inherited neuropathy from one's parents > > MS (Montel was discussing his main one day ontv) > > Auto-immune diseases > > And one can get neuropathy anywhere on the body, or INSIDE the body. > > > > Just a small explanation. We think Alan's spinal stenosis is the cause but we've been to countless back surgeons over the years and no one could pinpoint it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal stenosis, and lots of degeneration going on. " No one will touch his back, and because he has neuropathy in his feet (you could drive a nail into his foot and he wouldn't feel it) but the pain is between his toes and they burn (because neuropathy is nerve damage and that means mis-directed pain signals reach the brain. He has a foot ulcer for 6 years that comes back because he has a Exostosis (extra bony growth) under his foot. He wears special shoes (which don't help) because when he walks, it puts pressure on the ulcer). We are now AGAIN trying to find a foot surgeon to shave down the boney part under his foot. So far, no one will operate on his foot because as they put it. " His foot might fall apart " . > > > > So the man can barely walk, has such a bad back, a host of other ailments but he can manage to laugh when he sees my sprouts. Thank god for that!!! > > > > Melody > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2012 Report Share Posted June 8, 2012 I had severe neuropathy for many years. When I made the connection between my health and food allergies, eliminated my " triggers " and changed how I ate, the neuropathy and MOST of my other health issues completely resolved. The main triggers for me where wheat, soy and corn, with sensitivies to many other things, but those were the biggies. I was pleasantly surprised that the neuropathy cleared up completely. I still get some minor tingling in my feet if I am exposed to one of my allergens, but the years long numbness and tingling completely cleared up. > > > > Carolyn: > > > > We've been on a journey to find the cause of his neuropathy for over 20 years. At our monthly Neuropathy support group meetings, EVERYONE there has neuropathy. There are 20 million people in the USA who have neuropathy. > > > > Some causes?? > > > > diabets. > > Statin drugs > > Chemotherapy treatments > > Levaquin (or similar antibiotics) > > Pinched nerves in the lower back regions > > Genetics, inherited neuropathy from one's parents > > MS (Montel was discussing his main one day ontv) > > Auto-immune diseases > > And one can get neuropathy anywhere on the body, or INSIDE the body. > > > > Just a small explanation. We think Alan's spinal stenosis is the cause but we've been to countless back surgeons over the years and no one could pinpoint it. But now, at age 64, his latest MRI had one doctor say: 'Oh, you have spinal stenosis, and lots of degeneration going on. " No one will touch his back, and because he has neuropathy in his feet (you could drive a nail into his foot and he wouldn't feel it) but the pain is between his toes and they burn (because neuropathy is nerve damage and that means mis-directed pain signals reach the brain. He has a foot ulcer for 6 years that comes back because he has a Exostosis (extra bony growth) under his foot. He wears special shoes (which don't help) because when he walks, it puts pressure on the ulcer). We are now AGAIN trying to find a foot surgeon to shave down the boney part under his foot. So far, no one will operate on his foot because as they put it. " His foot might fall apart " . > > > > So the man can barely walk, has such a bad back, a host of other ailments but he can manage to laugh when he sees my sprouts. Thank god for that!!! > > > > Melody > > > Quote Link to comment Share on other sites More sharing options...
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