A story about Joey with Storage disorder.

[Guest guest]

http://www.mpssociety.ca Three is the link that helped diagnose lithe .All the kids with this kind of metabolic disorder look alike after awhile so he fit the picture and it was easy.

Here are the list of the type of MPS disease

http://www.mpssociety.ca/diseases.php3

http://mpssociety.org/ American Site for this

http://www.capecodonline.com/cctimes/archives/2000/jan/30/familyinterrupted30.htm

This is the original story of BEFORE THEY knew he has San flippo

http://www.capecodonline.com/cctimes/archives/2000/sep/4/familystruggles4.htm

Story two after they found what he had.

Dr. Mark Korson, director of the metabolism service at Children's Hospital,

Re: Digest Number 493

Hi Sue,I was just wondering what you meant by get your daughter back to the way she use to be?you said she's 13 did she just recently start having problems?i live in ohio,and my daughter is almost three shes just finished all te hearing tests,and neuro tests today she had an sleep deprived eeg she already had the one where their awake.so far everythings come back normal.her eip teacher thinks that she is autisic so do i ,but not severe.shes getting ready to go through so test here at the ccdd clinic thats cincinnati center for developmental disorders i heard it is wonder their not only do they diagnose,but they help lead you in the right direction according to the findings.we have an autisim center here in ohio its called the kelly o'leary center,and the doctor is dr.patricia manning there is a 4 month waiting list to get in there,but shes coming to my daughters school next tuesday so you can bet i will be at that confrence getting info asking questions.if you or anyone you know may be interested in the # to the center let me know if nothing else maybe they can send you some info.dannilynn700231@...