Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hello: I don't think you understood how most people felt about each situation. The Bill Mahr situation was a little different from ER . Perhaps you have to feel a personal connection to each issue. In my own experience, I was more offended with Politically Incorrect than with ER. I have a sister with mental retardation as well as a child with autism. Regarding Mr. Mahr's comments, I was shocked that he could display such a callous attitude towards those people with mental disabilities. On the other hand, his show as well as the attitude disaplyed by ER speaks volumes, in my mind, on the state of society. Aren't we all concerned about our children's future and how they will function in society? If P.I. reflects that opinion, even if it is the opinion of a few, then we need to get to work and strive even harder to spread awareness and educate the public on what our children are capable of achieving. As to funding for treatments and programs, yes, we do need more help to secure these services for our children. However, if we sit idly by and do nothing while these public figures and immensely popular TV shows put forth such a biased, one-sided point-of-view and ridiculous statements, then WE are the ones who should feel guilty for not speaking up for what is morally and ethically right. I believe that one person can make a difference, and that society can change from within itself. I am not ashamed to take a stand for what I believe is right. Vickie N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hello: I don't think you understood how most people felt about each situation. The Bill Mahr situation was a little different from ER . Perhaps you have to feel a personal connection to each issue. In my own experience, I was more offended with Politically Incorrect than with ER. I have a sister with mental retardation as well as a child with autism. Regarding Mr. Mahr's comments, I was shocked that he could display such a callous attitude towards those people with mental disabilities. On the other hand, his show as well as the attitude disaplyed by ER speaks volumes, in my mind, on the state of society. Aren't we all concerned about our children's future and how they will function in society? If P.I. reflects that opinion, even if it is the opinion of a few, then we need to get to work and strive even harder to spread awareness and educate the public on what our children are capable of achieving. As to funding for treatments and programs, yes, we do need more help to secure these services for our children. However, if we sit idly by and do nothing while these public figures and immensely popular TV shows put forth such a biased, one-sided point-of-view and ridiculous statements, then WE are the ones who should feel guilty for not speaking up for what is morally and ethically right. I believe that one person can make a difference, and that society can change from within itself. I am not ashamed to take a stand for what I believe is right. Vickie N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hello: I don't think you understood how most people felt about each situation. The Bill Mahr situation was a little different from ER . Perhaps you have to feel a personal connection to each issue. In my own experience, I was more offended with Politically Incorrect than with ER. I have a sister with mental retardation as well as a child with autism. Regarding Mr. Mahr's comments, I was shocked that he could display such a callous attitude towards those people with mental disabilities. On the other hand, his show as well as the attitude disaplyed by ER speaks volumes, in my mind, on the state of society. Aren't we all concerned about our children's future and how they will function in society? If P.I. reflects that opinion, even if it is the opinion of a few, then we need to get to work and strive even harder to spread awareness and educate the public on what our children are capable of achieving. As to funding for treatments and programs, yes, we do need more help to secure these services for our children. However, if we sit idly by and do nothing while these public figures and immensely popular TV shows put forth such a biased, one-sided point-of-view and ridiculous statements, then WE are the ones who should feel guilty for not speaking up for what is morally and ethically right. I believe that one person can make a difference, and that society can change from within itself. I am not ashamed to take a stand for what I believe is right. Vickie N. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 > I just can't help but feel that you may be misdirecting lots of useful > energy. If people could spend 1/2 of the time they have been using > bitching at Bill > Mahr and ER and use that time to ensure their own child has funding > for a good, comprehensive therapy program, it wouldn't be 1/2 as hard > for those of us who are working on just such funding. Hi, , I take no offense at your comments!!! :-) I would like to make you aware that some of us would prefer expending positive energy with our children, rather than negative energy at the system, whether it be idiot TV personalities or the red-tape-bound bureaucracy of the school system! In our case, we decided to homeschool our daughter with autism (as well as our NT son) and work on creating autism awareness in a community of people not usually targetted (homeschoolers). We have moved three times since 1995, when we made the decision to homeschool our children, so it's not simply a mature of getting the ball rolling for funding and then being able to back off when word gets around that we mean business. Every time we moved we would have fought long and hard (except maybe in Connecticut which had a good reputation for services). I met a paraprofessional who specializes in autistic children the other day and she told me that very few people in our very rural county are trained to teach autistic children. So, do I let her languish in school with people who do not know what social stories, sensory integration, ABA, gf/cf diets, etc. are, while I fight to get funding for them to get trained (however long that takes)? Some research suggests children with autism need 1:1 teaching in a quiet, distraction free setting. Pamela gets that at home. In our case, we know how to apply many educational techniques for teaching autism and, if we are not the greatest at everything, we are more knowledgeable than a teacher who has no training on autism (either professionally or on their own). We are very active in our homeschool support group (the kids take karate, go swimming weekly, rehearse for a musical, etc.) in addition to other activities like 4-H and church. So, Pamela is getting the 1:1 attention she needs when it's time to learn AND she's fully included with her peers for non-academic classes. Homeschooling is not for everyone, but it's not simply a cop-out. I have done autism awareness training and learning disabilities workshops with every support group I've been in. Because I can reach both parent and child at homeschooling workshops, I have a greater chance to touch the hearts of children with my message as well as the source of their views (their parents). When people have concerns about their children's learning, they usually come to me and I have been able to identify 3 (possibly 4) children with sensory integration issues. I have been able to help those whose learning styles are unconventional (because my NT son has an unconventional learning style). The bottomline for me is that the drain of being with my kids 24/7 outweighs the drain of trying to work within the system. My kids are sweeter and much more fun, especially when they say the darnedest things! :-) We are all entitled to have our own views and thank you for sharing yours ! :-) -- Tammy G. " A parent's love perceives no limitations. " December narrations are done: http://home.earthlink.net/~tammyglaser798/ Check out our new features: guestbook and color-coded links page! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 > I just can't help but feel that you may be misdirecting lots of useful > energy. If people could spend 1/2 of the time they have been using > bitching at Bill > Mahr and ER and use that time to ensure their own child has funding > for a good, comprehensive therapy program, it wouldn't be 1/2 as hard > for those of us who are working on just such funding. Hi, , I take no offense at your comments!!! :-) I would like to make you aware that some of us would prefer expending positive energy with our children, rather than negative energy at the system, whether it be idiot TV personalities or the red-tape-bound bureaucracy of the school system! In our case, we decided to homeschool our daughter with autism (as well as our NT son) and work on creating autism awareness in a community of people not usually targetted (homeschoolers). We have moved three times since 1995, when we made the decision to homeschool our children, so it's not simply a mature of getting the ball rolling for funding and then being able to back off when word gets around that we mean business. Every time we moved we would have fought long and hard (except maybe in Connecticut which had a good reputation for services). I met a paraprofessional who specializes in autistic children the other day and she told me that very few people in our very rural county are trained to teach autistic children. So, do I let her languish in school with people who do not know what social stories, sensory integration, ABA, gf/cf diets, etc. are, while I fight to get funding for them to get trained (however long that takes)? Some research suggests children with autism need 1:1 teaching in a quiet, distraction free setting. Pamela gets that at home. In our case, we know how to apply many educational techniques for teaching autism and, if we are not the greatest at everything, we are more knowledgeable than a teacher who has no training on autism (either professionally or on their own). We are very active in our homeschool support group (the kids take karate, go swimming weekly, rehearse for a musical, etc.) in addition to other activities like 4-H and church. So, Pamela is getting the 1:1 attention she needs when it's time to learn AND she's fully included with her peers for non-academic classes. Homeschooling is not for everyone, but it's not simply a cop-out. I have done autism awareness training and learning disabilities workshops with every support group I've been in. Because I can reach both parent and child at homeschooling workshops, I have a greater chance to touch the hearts of children with my message as well as the source of their views (their parents). When people have concerns about their children's learning, they usually come to me and I have been able to identify 3 (possibly 4) children with sensory integration issues. I have been able to help those whose learning styles are unconventional (because my NT son has an unconventional learning style). The bottomline for me is that the drain of being with my kids 24/7 outweighs the drain of trying to work within the system. My kids are sweeter and much more fun, especially when they say the darnedest things! :-) We are all entitled to have our own views and thank you for sharing yours ! :-) -- Tammy G. " A parent's love perceives no limitations. " December narrations are done: http://home.earthlink.net/~tammyglaser798/ Check out our new features: guestbook and color-coded links page! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 > I just can't help but feel that you may be misdirecting lots of useful > energy. If people could spend 1/2 of the time they have been using > bitching at Bill > Mahr and ER and use that time to ensure their own child has funding > for a good, comprehensive therapy program, it wouldn't be 1/2 as hard > for those of us who are working on just such funding. Hi, , I take no offense at your comments!!! :-) I would like to make you aware that some of us would prefer expending positive energy with our children, rather than negative energy at the system, whether it be idiot TV personalities or the red-tape-bound bureaucracy of the school system! In our case, we decided to homeschool our daughter with autism (as well as our NT son) and work on creating autism awareness in a community of people not usually targetted (homeschoolers). We have moved three times since 1995, when we made the decision to homeschool our children, so it's not simply a mature of getting the ball rolling for funding and then being able to back off when word gets around that we mean business. Every time we moved we would have fought long and hard (except maybe in Connecticut which had a good reputation for services). I met a paraprofessional who specializes in autistic children the other day and she told me that very few people in our very rural county are trained to teach autistic children. So, do I let her languish in school with people who do not know what social stories, sensory integration, ABA, gf/cf diets, etc. are, while I fight to get funding for them to get trained (however long that takes)? Some research suggests children with autism need 1:1 teaching in a quiet, distraction free setting. Pamela gets that at home. In our case, we know how to apply many educational techniques for teaching autism and, if we are not the greatest at everything, we are more knowledgeable than a teacher who has no training on autism (either professionally or on their own). We are very active in our homeschool support group (the kids take karate, go swimming weekly, rehearse for a musical, etc.) in addition to other activities like 4-H and church. So, Pamela is getting the 1:1 attention she needs when it's time to learn AND she's fully included with her peers for non-academic classes. Homeschooling is not for everyone, but it's not simply a cop-out. I have done autism awareness training and learning disabilities workshops with every support group I've been in. Because I can reach both parent and child at homeschooling workshops, I have a greater chance to touch the hearts of children with my message as well as the source of their views (their parents). When people have concerns about their children's learning, they usually come to me and I have been able to identify 3 (possibly 4) children with sensory integration issues. I have been able to help those whose learning styles are unconventional (because my NT son has an unconventional learning style). The bottomline for me is that the drain of being with my kids 24/7 outweighs the drain of trying to work within the system. My kids are sweeter and much more fun, especially when they say the darnedest things! :-) We are all entitled to have our own views and thank you for sharing yours ! :-) -- Tammy G. " A parent's love perceives no limitations. " December narrations are done: http://home.earthlink.net/~tammyglaser798/ Check out our new features: guestbook and color-coded links page! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 , I am new on the list also. I too thought this is a waste of good energy. I did email NBC with my thoughts on their programs about vaccinations but that's as much time as I gave to it. I am implementing an extensive ABA program with my 4 year old along with many other interventions. I only have so much time to deal with other issues. When my daughter doesn't take so much of my time, I will be an advocate for all people with autism. But right now my focus is her. I agree with you. Dawn >From: tamer2620@... >Reply-To: Autism_in_Girls >To: Autism_in_Girls >Subject: a sort of bitter " hello.. " >Date: Tue, 06 Mar 2001 04:40:41 -0000 > >I am new to this list and have a daughter, age6, dx autism. While I >understand the MMR outcry, and I did cite Dr. Wakefield's study when >I decided not to vaccinate my youngest child, I just can't help but >feel that you may be misdirecting lots of useful energy. If people >could spend 1/2 of the time they have been using bitching at Bill >Mahr and ER and use that time to ensure their own child has funding >for a good, comprehensive therapy program, it wouldn't be 1/2 as hard >for those of us who are working on just such funding. I may be alone >on this list, but I'll gladly stand alone and whatch my daughters >continuing progress. My apologies to those I've offended.-- > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 My life is one big bitch becuase a bitch got my kids. (sorry if that offends, just my day). I however have been able to direct their lives in such a manner that I am able to get full supports, and be an advocate for vaccine safety at the same time. It empowers me, motivates me and helps me direct my energies thusly. I do both becuase both without the other is like a brass and tinkling symbol (faith without hope). I believe in order to get these children better, be it socially, medically, economically etc, we must find out what wierd thing happened for us to get here. Just now I got off the phone with the U of Utah talking to Dr Berger who is researching the c4b anulle, and it's link to my family. This information is not wasted information, far from. What it will do is prevent another tradgedy in the next generation of my NT kids! Who wouldn't want that? ly, that may mean one big class action suit in order to ascertain the truth (breach of consent) and or support for their entire lives, and also may mean research hitherto not ever before seen in the history of mankind. Much motivation can be had when your found out that you have created an epidemia of children with autism. For many and the few, I believe that started in utero with in utero poisining from mom (unknown viral compoenents and allergies and pesticide residuals) to the full scall regression after vaccinations (which is more the expression nowadays). I guess their are two camps, and although I appreciate the same motivation and love we have for our kids, frankly, I miss the normal child(ren) I had before vaccinations. If you have never met that child ever, then I also would miss what that child would have been as well. It's just human nature to do thusly, and I don't feel guilty that I feel that way. This however does not mean that I don't absolutely adore who they are, support them, and love them, and realize their constant struggles. And yes, they have a unique talent and ability to raise me up to a better person. Sometimes that person is ok to look at in the mirror, and somedays it isn't. But I am human so sue me? This is where the Godly design of the world is...we don't always get what we want, but with what we have, we make the best out of it. God would have that to be so, and I could not rise up to that challenge if I didn't have that perspective. I also have the perspective that when God takes them home, he will make all things perfect and right again. I believe that we shall then see the reasons why and converse with them face to face, spirit to spirit. The works of God are made manifest through them, through compassionate service, deference and love. We wouldn't be able to learn as much as we do if we had not been given the challenge. I don't so much question the why this happened, I question how it happened. When I do that, it motivates all the arenas of the problem, not just the vaccine issue, it is the entire picture, the quality of life, the quality of care, the quality of schooling, everything. Kathy a sort of bitter " hello.. " >I am new to this list and have a daughter, age6, dx autism. While I >understand the MMR outcry, and I did cite Dr. Wakefield's study when >I decided not to vaccinate my youngest child, I just can't help but >feel that you may be misdirecting lots of useful energy. If people >could spend 1/2 of the time they have been using bitching at Bill >Mahr and ER and use that time to ensure their own child has funding >for a good, comprehensive therapy program, it wouldn't be 1/2 as hard >for those of us who are working on just such funding. I may be alone >on this list, but I'll gladly stand alone and whatch my daughters >continuing progress. My apologies to those I've offended.-- > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 My life is one big bitch becuase a bitch got my kids. (sorry if that offends, just my day). I however have been able to direct their lives in such a manner that I am able to get full supports, and be an advocate for vaccine safety at the same time. It empowers me, motivates me and helps me direct my energies thusly. I do both becuase both without the other is like a brass and tinkling symbol (faith without hope). I believe in order to get these children better, be it socially, medically, economically etc, we must find out what wierd thing happened for us to get here. Just now I got off the phone with the U of Utah talking to Dr Berger who is researching the c4b anulle, and it's link to my family. This information is not wasted information, far from. What it will do is prevent another tradgedy in the next generation of my NT kids! Who wouldn't want that? ly, that may mean one big class action suit in order to ascertain the truth (breach of consent) and or support for their entire lives, and also may mean research hitherto not ever before seen in the history of mankind. Much motivation can be had when your found out that you have created an epidemia of children with autism. For many and the few, I believe that started in utero with in utero poisining from mom (unknown viral compoenents and allergies and pesticide residuals) to the full scall regression after vaccinations (which is more the expression nowadays). I guess their are two camps, and although I appreciate the same motivation and love we have for our kids, frankly, I miss the normal child(ren) I had before vaccinations. If you have never met that child ever, then I also would miss what that child would have been as well. It's just human nature to do thusly, and I don't feel guilty that I feel that way. This however does not mean that I don't absolutely adore who they are, support them, and love them, and realize their constant struggles. And yes, they have a unique talent and ability to raise me up to a better person. Sometimes that person is ok to look at in the mirror, and somedays it isn't. But I am human so sue me? This is where the Godly design of the world is...we don't always get what we want, but with what we have, we make the best out of it. God would have that to be so, and I could not rise up to that challenge if I didn't have that perspective. I also have the perspective that when God takes them home, he will make all things perfect and right again. I believe that we shall then see the reasons why and converse with them face to face, spirit to spirit. The works of God are made manifest through them, through compassionate service, deference and love. We wouldn't be able to learn as much as we do if we had not been given the challenge. I don't so much question the why this happened, I question how it happened. When I do that, it motivates all the arenas of the problem, not just the vaccine issue, it is the entire picture, the quality of life, the quality of care, the quality of schooling, everything. Kathy a sort of bitter " hello.. " >I am new to this list and have a daughter, age6, dx autism. While I >understand the MMR outcry, and I did cite Dr. Wakefield's study when >I decided not to vaccinate my youngest child, I just can't help but >feel that you may be misdirecting lots of useful energy. If people >could spend 1/2 of the time they have been using bitching at Bill >Mahr and ER and use that time to ensure their own child has funding >for a good, comprehensive therapy program, it wouldn't be 1/2 as hard >for those of us who are working on just such funding. I may be alone >on this list, but I'll gladly stand alone and whatch my daughters >continuing progress. My apologies to those I've offended.-- > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 , I have a 7 year old daughter with autism, and I've been a lurker on this list for a few months. I congratulate all the parents here for the information and shared experiences that I see here. I myself spend time (what's left of it - I work full time) trying to help others with newly diagnosed children, and keeping an eye out in the politics of all this. That is where some of my energy goes. I agree with you about the entertainment industry. It is what it is. PI is tongue and cheek. How many of us all laugh at a joke about fat people, ethnic differences, religious differences, etc. As far as ER is concerned, people aren't mistaking this for 60 minutes, or Dateline. A pat on the back for you, for your opinion. That's why we're all here. Michele Quote Link to comment Share on other sites More sharing options...
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