Guest guest Posted October 27, 2011 Report Share Posted October 27, 2011 I've just received a letter from 3 yr old sons paed with some test results including: urine for GAGS were normal so it is unlikely he has metabolic condition such as mucopolysaccharidosis. I had never heard of this so had a look at it - its enzyme deficiencies indicated in carbohydrate metabolism. This really made me think - Charlie biggest turnaround was giving no fenol which works by removing a carbohydrate group. Does anyone know if by using no fenol it would make a ormal poisitve test show normal results. Any one know any more about this. Thanks Alison R Quote Link to comment Share on other sites More sharing options...
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