Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Wanda I think that we should get our stories together of our Tricare stories and send them up the chain to the highest officals WIVES, and get their help. I have a email address of a lady who is lobbying Congress right now for the fact that Tricare says different things in different regions!! IF we can help eachother in any way let me know-- Pitchke -----Original Message-----From: Wanda Hoskins [mailto:mom2genna@...]Sent: Thursday, May 18, 2000 9:42 PMPlagiocephalyegroupsSubject: Re: Re: Hello EveryonePolly,Thank you! Thank you! Thank you!...I appreciate the help. Tricare is the only thing we have being in the military. I don't work anymore and we just can't afford civilian insurance. I am going to go through the paperwork with Tricare and even if I don't get some kind of approval I am taking this as far as I can. Maybe some serviceman's child in the future won't have to go through this. I think it sucks that Tricare will do tummy tucks and face lifts but won't shell out the money for necessary medical equipment for a child.Thanks againWanda>From: "Polly Janos" <pollyjanos@...>>Reply-Plagiocephalyegroups>Plagiocephalyegroups>Subject: Re: Hello Everyone>Date: Sat, 13 May 2000 15:02:38 -0000>>Hello Wanda,>>I think I might be able to help you. Please go to the Files section>of this site then click on to "sPictures". You will find a>couple of things that will be of help to you:>>1. Click on to the AMA resolution file (both 1 and 2) This will>assist you in your argument that cranial banding/helmet therapy is in>NO WAY cosmetic in nature.>>2. Click on to the UHCAppeal file. This is a copy of my appeal>letter that was successful in obtaining benefits for my son. Please>feel free to use it as a guide in your own personal appeal process.>>Another helpful place is http://www.cranialtech.com This site>contains alot of useful information and even has a parent's>discussion board (although sometimes they can get "rowdy" :-D)>>Finally, http://www.plagiocephaly.org has numerous>research/scientific based articles and links that will prove of>significant assistance in your appeal process.>>Did I forget anything?>>Good luck Wanda!>>Polly Janos>>PS LOVE the name Genevieve...it is my mother's middle name!>>--- In Plagiocephalyegroups, "Wanda Hoskins" <mom2genna@h...>>wrote:>>Please share your knowledge.> > I am currently fighting with the Navy to get them to pay for this.>They> > consider this cosmetic. From what the surgeon told me it isn't>cosmetic in> > children over 5 months of age. It is a medical condition that>requires the> > helmet to try to correct it but if it doesn't she will have to have>surgery.> >> > If anyone can point me in the right direction to find information>or share> > with me their experiences, I would appreciate it.> >> > Thanks> > Wanda> >>______________________________________________________________________>__> > Get Your Private, Free E-mail from MSN Hotmail at>http://www.hotmail.com>________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 I would love that e-mail address. I would like to share it with friends of mine who have had battles with Tricare. I have friends here and friends in California. Tricare does say different things in different areas. I am also going to my congressman and the CNO. Adm. Danzig says he has an open door policy and wants to hear from us when we have issues. I have enlisted friends and family to contact their congressmen about this also. Nothing will change unless we all speak up. I personally have had it with Tricare and their " policies " . I have diabetes and sometimes have to fight to see the specialists I need. I can deal with that but they are messing with my baby and the care she needs this time. Not acceptable. Do you know any other parents with plagio children in your area? I am going to look into support groups in this area. If I can find others it will help me handle this. But if I can find others who are military then I can get them involved too with getting their stories to the lobbyist. Wanda >From: " Pitchke " <CAPS2000@...> >Reply-Plagiocephalyegroups ><Plagiocephalyegroups> >Subject: RE: Tricare >Date: Thu, 18 May 2000 22:44:12 -0400 > >Wanda I think that we should get our stories together of our Tricare >stories >and send them up the chain to the highest officals WIVES, and get their >help. I have a email address of a lady who is lobbying Congress right now >for the fact that Tricare says different things in different regions!! IF >we can help eachother in any way let me know-- Pitchke > -----Original Message----- > From: Wanda Hoskins [mailto:mom2genna@...] > Sent: Thursday, May 18, 2000 9:42 PM > Plagiocephalyegroups > Subject: Re: Re: Hello Everyone > > > > Polly, > > Thank you! Thank you! Thank you!...I appreciate the help. Tricare is >the > only thing we have being in the military. I don't work anymore and we >just > can't afford civilian insurance. I am going to go through the paperwork > with Tricare and even if I don't get some kind of approval I am taking >this > as far as I can. Maybe some serviceman's child in the future won't have >to > go through this. I think it sucks that Tricare will do tummy tucks and >face > lifts but won't shell out the money for necessary medical equipment for >a > child. > > Thanks again > Wanda > > >From: " Polly Janos " <pollyjanos@...> > >Reply-Plagiocephalyegroups > >Plagiocephalyegroups > >Subject: Re: Hello Everyone > >Date: Sat, 13 May 2000 15:02:38 -0000 > > > >Hello Wanda, > > > >I think I might be able to help you. Please go to the Files section > >of this site then click on to " sPictures " . You will find a > >couple of things that will be of help to you: > > > >1. Click on to the AMA resolution file (both 1 and 2) This will > >assist you in your argument that cranial banding/helmet therapy is in > >NO WAY cosmetic in nature. > > > >2. Click on to the UHCAppeal file. This is a copy of my appeal > >letter that was successful in obtaining benefits for my son. Please > >feel free to use it as a guide in your own personal appeal process. > > > >Another helpful place is http://www.cranialtech.com This site > >contains alot of useful information and even has a parent's > >discussion board (although sometimes they can get " rowdy " :-D) > > > >Finally, http://www.plagiocephaly.org has numerous > >research/scientific based articles and links that will prove of > >significant assistance in your appeal process. > > > >Did I forget anything? > > > >Good luck Wanda! > > > >Polly Janos > > > >PS LOVE the name Genevieve...it is my mother's middle name! > > > >--- In Plagiocephalyegroups, " Wanda Hoskins " <mom2genna@h...> > >wrote: > > > >Please share your knowledge. > > > I am currently fighting with the Navy to get them to pay for this. > >They > > > consider this cosmetic. From what the surgeon told me it isn't > >cosmetic in > > > children over 5 months of age. It is a medical condition that > >requires the > > > helmet to try to correct it but if it doesn't she will have to have > >surgery. > > > > > > If anyone can point me in the right direction to find information > >or share > > > with me their experiences, I would appreciate it. > > > > > > Thanks > > > Wanda > > > > >______________________________________________________________________ > >__ > > > Get Your Private, Free E-mail from MSN Hotmail at > >http://www.hotmail.com > > > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > >---------------------------------------------------------------------------- >-- > > > >---------------------------------------------------------------------------- >-- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Well Wanda, on my group there are two of us that are military!! That is all I have found so far but I will talk to the lady here at the exceptional family member program and get that email address this afternoon. I really want to do something, this isn't fair!! P. -----Original Message-----From: Wanda Hoskins [mailto:mom2genna@...]Sent: Friday, May 19, 2000 6:06 AMPlagiocephalyegroupsSubject: RE: TricareI would love that e-mail address. I would like to share it with friends of mine who have had battles with Tricare. I have friends here and friends in California. Tricare does say different things in different areas. I am also going to my congressman and the CNO. Adm. Danzig says he has an open door policy and wants to hear from us when we have issues. I have enlisted friends and family to contact their congressmen about this also. Nothing will change unless we all speak up. I personally have had it with Tricare and their "policies". I have diabetes and sometimes have to fight to see the specialists I need. I can deal with that but they are messing with my baby and the care she needs this time. Not acceptable.Do you know any other parents with plagio children in your area? I am going to look into support groups in this area. If I can find others it will help me handle this. But if I can find others who are military then I can get them involved too with getting their stories to the lobbyist.Wanda>From: " Pitchke" <CAPS2000@...>>Reply-Plagiocephalyegroups><Plagiocephalyegroups>>Subject: RE: Tricare>Date: Thu, 18 May 2000 22:44:12 -0400>>Wanda I think that we should get our stories together of our Tricare >stories>and send them up the chain to the highest officals WIVES, and get their>help. I have a email address of a lady who is lobbying Congress right now>for the fact that Tricare says different things in different regions!! IF>we can help eachother in any way let me know-- Pitchke> -----Original Message-----> From: Wanda Hoskins [mailto:mom2genna@...]> Sent: Thursday, May 18, 2000 9:42 PM> Plagiocephalyegroups> Subject: Re: Re: Hello Everyone>>>> Polly,>> Thank you! Thank you! Thank you!...I appreciate the help. Tricare is>the> only thing we have being in the military. I don't work anymore and we>just> can't afford civilian insurance. I am going to go through the paperwork> with Tricare and even if I don't get some kind of approval I am taking>this> as far as I can. Maybe some serviceman's child in the future won't have>to> go through this. I think it sucks that Tricare will do tummy tucks and>face> lifts but won't shell out the money for necessary medical equipment for >a> child.>> Thanks again> Wanda>> >From: "Polly Janos" <pollyjanos@...>> >Reply-Plagiocephalyegroups> >Plagiocephalyegroups> >Subject: Re: Hello Everyone> >Date: Sat, 13 May 2000 15:02:38 -0000> >> >Hello Wanda,> >> >I think I might be able to help you. Please go to the Files section> >of this site then click on to "sPictures". You will find a> >couple of things that will be of help to you:> >> >1. Click on to the AMA resolution file (both 1 and 2) This will> >assist you in your argument that cranial banding/helmet therapy is in> >NO WAY cosmetic in nature.> >> >2. Click on to the UHCAppeal file. This is a copy of my appeal> >letter that was successful in obtaining benefits for my son. Please> >feel free to use it as a guide in your own personal appeal process.> >> >Another helpful place is http://www.cranialtech.com This site> >contains alot of useful information and even has a parent's> >discussion board (although sometimes they can get "rowdy" :-D)> >> >Finally, http://www.plagiocephaly.org has numerous> >research/scientific based articles and links that will prove of> >significant assistance in your appeal process.> >> >Did I forget anything?> >> >Good luck Wanda!> >> >Polly Janos> >> >PS LOVE the name Genevieve...it is my mother's middle name!> >> >--- In Plagiocephalyegroups, "Wanda Hoskins" <mom2genna@h...>> >wrote:> >> >Please share your knowledge.> > > I am currently fighting with the Navy to get them to pay for this.> >They> > > consider this cosmetic. From what the surgeon told me it isn't> >cosmetic in> > > children over 5 months of age. It is a medical condition that> >requires the> > > helmet to try to correct it but if it doesn't she will have to have> >surgery.> > >> > > If anyone can point me in the right direction to find information> >or share> > > with me their experiences, I would appreciate it.> > >> > > Thanks> > > Wanda> > >> >______________________________________________________________________> >__> > > Get Your Private, Free E-mail from MSN Hotmail at> >http://www.hotmail.com> >>> ________________________________________________________________________> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com>>>---------------------------------------------------------------------------->-->>>>---------------------------------------------------------------------------->--> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 Okay Wanda I talked to that lady and realized that I had the paper in my file drawer. They are The National Military Family Association and you can email Schwartz at schwartz@... I am going to email her again now that we are having these problems and she what she can do. I still think that things work better in numbers and what we can do as a group will be of great benefit. Hope to talk to you soon-- P. -----Original Message-----From: Wanda Hoskins [mailto:mom2genna@...]Sent: Friday, May 19, 2000 6:06 AMPlagiocephalyegroupsSubject: RE: TricareI would love that e-mail address. I would like to share it with friends of mine who have had battles with Tricare. I have friends here and friends in California. Tricare does say different things in different areas. I am also going to my congressman and the CNO. Adm. Danzig says he has an open door policy and wants to hear from us when we have issues. I have enlisted friends and family to contact their congressmen about this also. Nothing will change unless we all speak up. I personally have had it with Tricare and their "policies". I have diabetes and sometimes have to fight to see the specialists I need. I can deal with that but they are messing with my baby and the care she needs this time. Not acceptable.Do you know any other parents with plagio children in your area? I am going to look into support groups in this area. If I can find others it will help me handle this. But if I can find others who are military then I can get them involved too with getting their stories to the lobbyist.Wanda>From: " Pitchke" <CAPS2000@...>>Reply-Plagiocephalyegroups><Plagiocephalyegroups>>Subject: RE: Tricare>Date: Thu, 18 May 2000 22:44:12 -0400>>Wanda I think that we should get our stories together of our Tricare >stories>and send them up the chain to the highest officals WIVES, and get their>help. I have a email address of a lady who is lobbying Congress right now>for the fact that Tricare says different things in different regions!! IF>we can help eachother in any way let me know-- Pitchke> -----Original Message-----> From: Wanda Hoskins [mailto:mom2genna@...]> Sent: Thursday, May 18, 2000 9:42 PM> Plagiocephalyegroups> Subject: Re: Re: Hello Everyone>>>> Polly,>> Thank you! Thank you! Thank you!...I appreciate the help. Tricare is>the> only thing we have being in the military. I don't work anymore and we>just> can't afford civilian insurance. I am going to go through the paperwork> with Tricare and even if I don't get some kind of approval I am taking>this> as far as I can. Maybe some serviceman's child in the future won't have>to> go through this. I think it sucks that Tricare will do tummy tucks and>face> lifts but won't shell out the money for necessary medical equipment for >a> child.>> Thanks again> Wanda>> >From: "Polly Janos" <pollyjanos@...>> >Reply-Plagiocephalyegroups> >Plagiocephalyegroups> >Subject: Re: Hello Everyone> >Date: Sat, 13 May 2000 15:02:38 -0000> >> >Hello Wanda,> >> >I think I might be able to help you. Please go to the Files section> >of this site then click on to "sPictures". You will find a> >couple of things that will be of help to you:> >> >1. Click on to the AMA resolution file (both 1 and 2) This will> >assist you in your argument that cranial banding/helmet therapy is in> >NO WAY cosmetic in nature.> >> >2. Click on to the UHCAppeal file. This is a copy of my appeal> >letter that was successful in obtaining benefits for my son. Please> >feel free to use it as a guide in your own personal appeal process.> >> >Another helpful place is http://www.cranialtech.com This site> >contains alot of useful information and even has a parent's> >discussion board (although sometimes they can get "rowdy" :-D)> >> >Finally, http://www.plagiocephaly.org has numerous> >research/scientific based articles and links that will prove of> >significant assistance in your appeal process.> >> >Did I forget anything?> >> >Good luck Wanda!> >> >Polly Janos> >> >PS LOVE the name Genevieve...it is my mother's middle name!> >> >--- In Plagiocephalyegroups, "Wanda Hoskins" <mom2genna@h...>> >wrote:> >> >Please share your knowledge.> > > I am currently fighting with the Navy to get them to pay for this.> >They> > > consider this cosmetic. From what the surgeon told me it isn't> >cosmetic in> > > children over 5 months of age. It is a medical condition that> >requires the> > > helmet to try to correct it but if it doesn't she will have to have> >surgery.> > >> > > If anyone can point me in the right direction to find information> >or share> > > with me their experiences, I would appreciate it.> > >> > > Thanks> > > Wanda> > >> >______________________________________________________________________> >__> > > Get Your Private, Free E-mail from MSN Hotmail at> >http://www.hotmail.com> >>> ________________________________________________________________________> Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com>>>---------------------------------------------------------------------------->-->>>>---------------------------------------------------------------------------->--> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 , speaking of EFMP - did any of you have to enroll your babies ? Is Plagio a condition that they feel warrants it ? Also, do you know of anyone who applied to Army Emergency relief ( or Marine's or Navy) to help pay for the bands/ helmets ? I know they will cover other medical costs, plane tickets, rent/utilities, and car repair, etc...(depending on the situation). If they did, I'm just curious as to wether or not they were helped. --- In Plagiocephalyegroups, " Pitchke " <CAPS2000@g...> wrote: > Well Wanda, on my group there are two of us that are military!! That is all > I have found so far but I will talk to the lady here at the exceptional > family member program and get that email address this afternoon. I really > want to do something, this isn't fair!! P. > -----Original Message----- > From: Wanda Hoskins [mailto:mom2genna@h...] > Sent: Friday, May 19, 2000 6:06 AM > Plagiocephalyegroups > Subject: RE: Tricare > > > > > I would love that e-mail address. I would like to share it with friends > of > mine who have had battles with Tricare. I have friends here and friends > in > California. Tricare does say different things in different areas. I am > also going to my congressman and the CNO. Adm. Danzig says he has an > open > door policy and wants to hear from us when we have issues. I have > enlisted > friends and family to contact their congressmen about this also. Nothing > will change unless we all speak up. I personally have had it with Tricare > and their " policies " . I have diabetes and sometimes have to fight to see > the specialists I need. I can deal with that but they are messing with my > baby and the care she needs this time. Not acceptable. > > Do you know any other parents with plagio children in your area? I am > going > to look into support groups in this area. If I can find others it will > help > me handle this. But if I can find others who are military then I can get > them involved too with getting their stories to the lobbyist. > > Wanda > > > >From: " Pitchke " <CAPS2000@g...> > >Reply-Plagiocephalyegroups > ><Plagiocephalyegroups> > >Subject: RE: Tricare > >Date: Thu, 18 May 2000 22:44:12 -0400 > > > >Wanda I think that we should get our stories together of our Tricare > >stories > >and send them up the chain to the highest officals WIVES, and get their > >help. I have a email address of a lady who is lobbying Congress right > now > >for the fact that Tricare says different things in different regions!! > IF > >we can help eachother in any way let me know-- Pitchke > > -----Original Message----- > > From: Wanda Hoskins [mailto:mom2genna@h...] > > Sent: Thursday, May 18, 2000 9:42 PM > > Plagiocephalyegroups > > Subject: Re: Re: Hello Everyone > > > > > > > > Polly, > > > > Thank you! Thank you! Thank you!...I appreciate the help. Tricare > is > >the > > only thing we have being in the military. I don't work anymore and we > >just > > can't afford civilian insurance. I am going to go through the > paperwork > > with Tricare and even if I don't get some kind of approval I am taking > >this > > as far as I can. Maybe some serviceman's child in the future won't > have > >to > > go through this. I think it sucks that Tricare will do tummy tucks > and > >face > > lifts but won't shell out the money for necessary medical equipment > for > >a > > child. > > > > Thanks again > > Wanda > > > > >From: " Polly Janos " <pollyjanos@h...> > > >Reply-Plagiocephalyegroups > > >Plagiocephalyegroups > > >Subject: Re: Hello Everyone > > >Date: Sat, 13 May 2000 15:02:38 -0000 > > > > > >Hello Wanda, > > > > > >I think I might be able to help you. Please go to the Files section > > >of this site then click on to " sPictures " . You will find a > > >couple of things that will be of help to you: > > > > > >1. Click on to the AMA resolution file (both 1 and 2) This will > > >assist you in your argument that cranial banding/helmet therapy is in > > >NO WAY cosmetic in nature. > > > > > >2. Click on to the UHCAppeal file. This is a copy of my appeal > > >letter that was successful in obtaining benefits for my son. Please > > >feel free to use it as a guide in your own personal appeal process. > > > > > >Another helpful place is http://www.cranialtech.com This site > > >contains alot of useful information and even has a parent's > > >discussion board (although sometimes they can get " rowdy " :- D) > > > > > >Finally, http://www.plagiocephaly.org has numerous > > >research/scientific based articles and links that will prove of > > >significant assistance in your appeal process. > > > > > >Did I forget anything? > > > > > >Good luck Wanda! > > > > > >Polly Janos > > > > > >PS LOVE the name Genevieve...it is my mother's middle name! > > > > > >--- In Plagiocephalyegroups, " Wanda Hoskins " <mom2genna@h...> > > >wrote: > > > > > >Please share your knowledge. > > > > I am currently fighting with the Navy to get them to pay for this. > > >They > > > > consider this cosmetic. From what the surgeon told me it isn't > > >cosmetic in > > > > children over 5 months of age. It is a medical condition that > > >requires the > > > > helmet to try to correct it but if it doesn't she will have to > have > > >surgery. > > > > > > > > If anyone can point me in the right direction to find information > > >or share > > > > with me their experiences, I would appreciate it. > > > > > > > > Thanks > > > > Wanda > > > > > > > >_____________________________________________________________________ _ > > >__ > > > > Get Your Private, Free E-mail from MSN Hotmail at > > >http://www.hotmail.com > > > > > > > > ______________________________________________________________________ __ > > Get Your Private, Free E-mail from MSN Hotmail at > http://www.hotmail.com > > > > > > >------------------------------------------------------------------- -------- > - > >-- > > > > > > > > >------------------------------------------------------------------- -------- > - > >-- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2000 Report Share Posted May 19, 2000 First I am not sure about Plagio although when you think about it s biggest reason for still needing care is his helmets. So it is worth a try!! The lady here who is leaving was great even got the local military paper to do a story, it will be out soon. I know that we looked into Navy Relief and I don't think they would help. See s squardon was great and he got TAD orders everytime we went out to Missouri, so they did pay for our travel expenses. And the lady I gave you the email address for she also wants to know where the military isn't help with transportation and travel expense--with us that was the only non-issue. I am so angry now after talking to all of you I am really determined to get Tricare to own up to us!! P. -----Original Message-----From: aschton@... [mailto:aschton@...]Sent: Friday, May 19, 2000 2:03 PMPlagiocephalyegroupsSubject: Re: RE: Tricare, speaking of EFMP - did any of you have to enroll your babies ? Is Plagio a condition that they feel warrants it ? Also, do you know of anyone who applied to Army Emergency relief ( or Marine's or Navy) to help pay for the bands/ helmets ? I know they will cover other medical costs, plane tickets, rent/utilities, and car repair, etc...(depending on the situation). If they did, I'm just curious as to wether or not they were helped.> Well Wanda, on my group there are two of us that are military!! That is all> I have found so far but I will talk to the lady here at the exceptional> family member program and get that email address this afternoon. I really> want to do something, this isn't fair!! P.> -----Original Message-----> From: Wanda Hoskins [mailto:mom2genna@h...]> Sent: Friday, May 19, 2000 6:06 AM> Plagiocephalyegroups> Subject: RE: Tricare> > > > > I would love that e-mail address. I would like to share it with friends> of> mine who have had battles with Tricare. I have friends here and friends> in> California. Tricare does say different things in different areas. I am> also going to my congressman and the CNO. Adm. Danzig says he has an> open> door policy and wants to hear from us when we have issues. I have> enlisted> friends and family to contact their congressmen about this also. Nothing> will change unless we all speak up. I personally have had it with Tricare> and their "policies". I have diabetes and sometimes have to fight to see> the specialists I need. I can deal with that but they are messing with my> baby and the care she needs this time. Not acceptable.> > Do you know any other parents with plagio children in your area? I am> going> to look into support groups in this area. If I can find others it will> help> me handle this. But if I can find others who are military then I can get> them involved too with getting their stories to the lobbyist.> > Wanda> > > >From: " Pitchke" <CAPS2000@g...>> >Reply-Plagiocephalyegroups> ><Plagiocephalyegroups>> >Subject: RE: Tricare> >Date: Thu, 18 May 2000 22:44:12 -0400> >> >Wanda I think that we should get our stories together of our Tricare> >stories> >and send them up the chain to the highest officals WIVES, and get their> >help. I have a email address of a lady who is lobbying Congress right> now> >for the fact that Tricare says different things in different regions!!> IF> >we can help eachother in any way let me know-- Pitchke> > -----Original Message-----> > From: Wanda Hoskins [mailto:mom2genna@h...]> > Sent: Thursday, May 18, 2000 9:42 PM> > Plagiocephalyegroups> > Subject: Re: Re: Hello Everyone> >> >> >> > Polly,> >> > Thank you! Thank you! Thank you!...I appreciate the help. Tricare> is> >the> > only thing we have being in the military. I don't work anymore and we> >just> > can't afford civilian insurance. I am going to go through the> paperwork> > with Tricare and even if I don't get some kind of approval I am taking> >this> > as far as I can. Maybe some serviceman's child in the future won't> have> >to> > go through this. I think it sucks that Tricare will do tummy tucks> and> >face> > lifts but won't shell out the money for necessary medical equipment> for> >a> > child.> >> > Thanks again> > Wanda> >> > >From: "Polly Janos" <pollyjanos@h...>> > >Reply-Plagiocephalyegroups> > >Plagiocephalyegroups> > >Subject: Re: Hello Everyone> > >Date: Sat, 13 May 2000 15:02:38 -0000> > >> > >Hello Wanda,> > >> > >I think I might be able to help you. Please go to the Files section> > >of this site then click on to "sPictures". You will find a> > >couple of things that will be of help to you:> > >> > >1. Click on to the AMA resolution file (both 1 and 2) This will> > >assist you in your argument that cranial banding/helmet therapy is in> > >NO WAY cosmetic in nature.> > >> > >2. Click on to the UHCAppeal file. This is a copy of my appeal> > >letter that was successful in obtaining benefits for my son. Please> > >feel free to use it as a guide in your own personal appeal process.> > >> > >Another helpful place is http://www.cranialtech.com This site> > >contains alot of useful information and even has a parent's> > >discussion board (although sometimes they can get "rowdy" :-D)> > >> > >Finally, http://www.plagiocephaly.org has numerous> > >research/scientific based articles and links that will prove of> > >significant assistance in your appeal process.> > >> > >Did I forget anything?> > >> > >Good luck Wanda!> > >> > >Polly Janos> > >> > >PS LOVE the name Genevieve...it is my mother's middle name!> > >> > >--- In Plagiocephalyegroups, "Wanda Hoskins" <mom2genna@h...>> > >wrote:> > >> > >Please share your knowledge.> > > > I am currently fighting with the Navy to get them to pay for this.> > >They> > > > consider this cosmetic. From what the surgeon told me it isn't> > >cosmetic in> > > > children over 5 months of age. It is a medical condition that> > >requires the> > > > helmet to try to correct it but if it doesn't she will have to> have> > >surgery.> > > >> > > > If anyone can point me in the right direction to find information> > >or share> > > > with me their experiences, I would appreciate it.> > > >> > > > Thanks> > > > Wanda> > > >> >> >______________________________________________________________________> > >__> > > > Get Your Private, Free E-mail from MSN Hotmail at> > >http://www.hotmail.com> > >> >> >> ________________________________________________________________________> > Get Your Private, Free E-mail from MSN Hotmail at> http://www.hotmail.com> >> >> > >---------------------------------------------------------------------------> -> >--> >> >> >> > >---------------------------------------------------------------------------> -> >--> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Hey Wanda I have rattled enough cages that I have Tricare calling me!!! I talked to a few case managment workers at different levels in the last week or so and I can honestly say it is lack of education that keep them denying these claims and if you make a big enough stink you can get them to make some changes. I to am sending out my appeal letter today!! To everyone including my congressman!! If you need anything let me know-- P. -----Original Message-----From: Wanda Hoskins [mailto:mom2genna@...]Sent: Thursday, June 01, 2000 6:01 AMPlagiocephalyegroupsSubject: Sorry I haven't posted in awhileHello everyone,Sorry I haven't posted in a while. We had to go on emergency leave and have been gone for several weeks. I forgot to go "no mail" and about had a heart attack when I downloaded my mail. I think I actually fell asleep at one point reading all the e-mail.Genna gets her helmet tomorrow. I have been pretty good about this so far. I have reminded myself that this is something she needs and it will help but I don't know if I am actually ready to see her in this. Tricare of course has sent the denial letter but thanks to the info I have found from all of you I have a rebuttal package, not just a letter, to send them.I was reading through all the mail and there were several questions raised about speech and feeding delays. Genna doesn't have speech problems. In fact we call her "Genna of the Jungle". She sings, babbles and talks to anyone. Feeding her isn't a problem either. But she is almost 10 months old and doesn't crawl or even try to pull up to stand. She also will not roll from back to tummy. If I put her on her tummy she will roll to her back. She was 6 months old before she started doing that. She can sit up on her own but sometimes has problems staying up. She will fall backwards a lot. Has anyone else had problems? We are going to the doctor today and I am going to ask about it but they make me feel like an idiot. Like I don't do enough with her. I work with her everday but I'll admit she's my first and I don't always know what to do. It took me months of working with her everyday to get her to sit up. Are delays normal with babies with plagio?Wanda________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com www. ..com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2000 Report Share Posted August 4, 2000 I think you are going a great route. My husband is in the Marine Corp, but his group has been great with helping us with Tricare and not put all the stress on us alone. Now of course my son had surgery and we are talking about ALOT more issues but getting support from the military is another way to go. The more families dealing with this the better. Something will have to change someday--we hope!! Pitchke -----Original Message-----From: Porterfield [mailto:SHSKAP@...]Sent: Friday, August 04, 2000 11:31 AMPlagiocephalyegroupsSubject: TricareHello to all you Tricare parents. I just wanted to let you know that we are fighting Foundation Health in Louisiana. That is who our Tricare is through. Also, yesterday I went to a wives meeting and talked with some of the commanders wives here (Barksdale AFB). I am hoping to get them along with other important wives in the are--we have the head of 8th Air Force here--to help me by writing letters to Tricare or also talking to their husbands to see what they can do. I am hoping since I am on the Officers Spouses Board here that I will have some luck getting some Generals wives to help me in my fight. I talked to one wife and she was very upset that Tricare won't cover the treatment for Ainsley. She said that it was insane for them to cover some treatment for children and not other. I have been talking to everyone I know in my neighborhood--I live on base-- and hopefully we can get more people than just ourselves involved in getting this approved. Like I said Strength in Numbers and once one gets approved we all have a much better chance. Well good luck to all and lets try and keep eachother informed on the progress we make to ensure that we all get approved from Tricare!!! Porterfield mom to Ainsley Quote Link to comment Share on other sites More sharing options...
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