Re: anyone heard of plagio on both sides?

[Guest guest]

We had a CT and all sutures were open. It was obvious in the scan where the flat spot is. I will look up that picture and let you know if that is what it looks like.

Jen

[Guest guest]

Ok, my daughter's head is similar to 's head shape in the photos on the site, but not as severe as his. But hers is more symettrical, like almost the same amount flat on both sides. I do beleive that plagio causes other conditions related to the jaw etc, but if the deformity is symmetrical, does it still cause problems. My husband doesnt want to do it purely for cosmetic reasons, but I am fine with it. Her self esteem is improtant to me.

Jen

[Guest guest]

Her head shape is similar to 's although not as severe and more symetrical. Both sides in the back seem almost equal, I would say I have seen worsening on the right which is the good side even since we have seen the doctors and gotten the prescription. I will be anxious to get her in the band. She is already 10 months and is a slow grower. Also, do you know how long it takes to get the band once the baby has been casted?

Jen

[Guest guest]

I will, I am very anxious to get things started since she is already 10 months old. We will deal with the insurance appeals during treatment, as it seems so many other people do as well. THanks.

Jen

[Guest guest]

That is good to know! She is a slow grower, She started in the 50% for head circum. and is now at 7% so I hope that this will work. She still has a pretty significant soft spot up top so I hope that is a good sign. We will see. I think CT will be able to give me more info on Thursday.

Jen

[Guest guest]

I agree with everything. To tell you the truth, I didn't know anything about repostioning. I was always told it would round out on its own. It did, but not symetrically. I dont think that if I had been vigilant with repositioning that things would have turned out any differently. I mean, she is now flat on both sides, and I surely would be able to get her to sleep flat on the back anymore because it is at such a point. I feel the only way to fix it would be with a band. I see what you mean about the brachy and the jaw. I just wish he felt more confident. I feel he is just letting me do it, and he really doesnt care. Oh well. I am sure that he and I will never agree but when it comes to the kids, I don't give up easily, so I think he is just giving up the fight.

Jen

[Guest guest]

Hi Jen,

I think in some cases, that is possible. I vaguely remember in the

past someone metioning that in their effort to reposition, the

rounder side actually started to flatten out. But I don't think its

all that common to happen with repostitioning.

If you were to go in to the photo section of our plagio board, and

click on the first folder there its full of head shots of our members

kids. Check out 's folder, from your description, that's how

I'm picturing the headshape. I just wanted to see if that's what you

were trying to describe. Also, have you had any CT scans or X-rays

done? You might might want to consider doing this, to rule out

craniosynostosis (premature fusinf of the skull sutures), or even to

give you peace of mind.

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> I was just wondering if anyone had ever heard of a baby having

plagio on both

> sides of the head?

> My daughter was very brachy shaped. She is 10 months now. She

started

> naturally repositioning herself at around 6 months, but she never

preferred a

> side. We alternated her with out knowing about repositioning at

the time. I

> am a lefty and DH is rightie, so we were always changing her.

Anyway, her

> head seems to me that it is flatter on left and ear is pushed

forward, but

> the other side seems to have a flat spot too. These both developed

as the

> brachy seemed to naturally round out. So, her head seems very wide

and

> forehead bossed, but the back is almost triangular. I have never

seen any

> pictures of babies like this.

> Does this type of both side thing cause other medical problems? I

am

> appealing insurance this week.

> Jen

> Mom to Harley 10m plagio, gross motor delay, exzema,

pseudostrabismus

> Collin 2 1-2 metatarsal adductus ( currently in corrective

orthopedic shoes)

[Guest guest]

Hi,

The right back side of my daughter's head is flat due to torticollis,

her head in the front on the left is flat due to my repositioning

efforts. So the answer is yes.

> I was just wondering if anyone had ever heard of a baby having

plagio on both

> sides of the head?

> My daughter was very brachy shaped. She is 10 months now. She

started

> naturally repositioning herself at around 6 months, but she never

preferred a

> side. We alternated her with out knowing about repositioning at

the time. I

> am a lefty and DH is rightie, so we were always changing her.

Anyway, her

> head seems to me that it is flatter on left and ear is pushed

forward, but

> the other side seems to have a flat spot too. These both developed

as the

> brachy seemed to naturally round out. So, her head seems very wide

and

> forehead bossed, but the back is almost triangular. I have never

seen any

> pictures of babies like this.

> Does this type of both side thing cause other medical problems? I

am

> appealing insurance this week.

> Jen

> Mom to Harley 10m plagio, gross motor delay, exzema,

pseudostrabismus

> Collin 2 1-2 metatarsal adductus ( currently in corrective

orthopedic shoes)

[Guest guest]

Jen,

Is there anyway to post a picture of your daughter. Your description

of headshape has peaked my curiousity. There is nothing I could

offer but my opinion.

Thanks again

Sponagle in NB, Dad to Ben

> I was just wondering if anyone had ever heard of a baby having

plagio on both

> sides of the head?

> My daughter was very brachy shaped. She is 10 months now. She

started

> naturally repositioning herself at around 6 months, but she never

preferred a

> side. We alternated her with out knowing about repositioning at

the time. I

> am a lefty and DH is rightie, so we were always changing her.

Anyway, her

> head seems to me that it is flatter on left and ear is pushed

forward, but

> the other side seems to have a flat spot too. These both

developed as the

> brachy seemed to naturally round out. So, her head seems very

wide and

> forehead bossed, but the back is almost triangular. I have never

seen any

> pictures of babies like this.

> Does this type of both side thing cause other medical problems? I

am

> appealing insurance this week.

> Jen

> Mom to Harley 10m plagio, gross motor delay, exzema,

pseudostrabismus

> Collin 2 1-2 metatarsal adductus ( currently in corrective

orthopedic shoes)

[Guest guest]

Hi Jen:

I am , mom to Rhiannon (DOC grad, tort resolved, now 14 months

old and perfect:)

My daughter had several flat spots on her head, and the back of her

head was kind of pointy on one side (inter-uterine malposition).

According to my OT, osteopath, chiroprator and cranial-sacral

therapist, YES, sometimes a misshapen head can put pressure on

certain areas of the brain and cause symptoms ( developmental delays,

eyesight issues, learning disabilities.) I would encourage you to

find a cranial osteopath in your area and bring your baby in for an

eval/and or treatment. My child's MD said no, head shape does not

cause problems. But then the MD missed the " most severe case of

torticollis " the surgeon had ever seen - and he'd treated 2000 cases.

Who's right? Who knows. But my daughter received treatment and

she's doing GREAT.

In your case, I would make sure that you are not dealing with

cranialsynestosis, (which I'm sure you have already had ruled out,

but just thought I would mention it...)

Also, my cousin has a child with mild plagio/mild tort who is now 3

and cannot speak. Personally, I think that it is tight muscles on

his jaw/face that is inhibiting his speech, but the MD's have

said " he's fine " . Who's right? Who knows. All I know if he were

mine he'd see an osteopath right away and I'd get started on finding

a solution for his problem.

All just fyi - good luck to you!

> > I was just wondering if anyone had ever heard of a baby having

> plagio on both

> > sides of the head?

> > My daughter was very brachy shaped. She is 10 months now. She

> started

> > naturally repositioning herself at around 6 months, but she never

> preferred a

> > side. We alternated her with out knowing about repositioning at

> the time. I

> > am a lefty and DH is rightie, so we were always changing her.

> Anyway, her

> > head seems to me that it is flatter on left and ear is pushed

> forward, but

> > the other side seems to have a flat spot too. These both

> developed as the

> > brachy seemed to naturally round out. So, her head seems very

> wide and

> > forehead bossed, but the back is almost triangular. I have never

> seen any

> > pictures of babies like this.

> > Does this type of both side thing cause other medical problems?

I

> am

> > appealing insurance this week.

> > Jen

> > Mom to Harley 10m plagio, gross motor delay, exzema,

> pseudostrabismus

> > Collin 2 1-2 metatarsal adductus ( currently in corrective

> orthopedic shoes)

[Guest guest]

The Cranial Tech orthotist took some pictures of her yesterday for at her casting so I will see if I can get a copy of her top of the head shot. I took some but it doesnt really show what it looks like very well. Also, yesterday and this morning, she has been having episodes that seem somewhat like a focal seizure although all doctors say it isnt the typical presentation. The ER doc said it was allergy to Benadryl, pedi said he wasnt sure so he called neuro who said unsure also. She will have EEG Friday to see if it is seizure or it could be a nerve spasm. She spaces for about 5 minuets, her eyes cross, unfocus, she is unresponsive, fussy, grabs at the back of her head and pulls hair, rubs her eyes. It is totally scary and I am toatlly helpless. I dont know what is wrong with her. Who knows that this isnt correlated with plagio. She was casted yesterday and that was very stressful to her. Doesnt stress sometimes bring on seizures if the person already has a disorder?

Jen