Re: OT: questionnaire about priorities for autism research

[Guest guest]

Done...

[Guest guest]

done:-)

> Hello all

>

> Here is a chance to influence the autism research agenda. Research Autism are

asking parents, people with autism and practitioners to fill in a questionnaire

about what the priorities for autism research should be.

>

> PLEASE fill this in. http://www.mrcresearch.co.uk/surveys/nas3rd.htm

>

> A small group of people have also been convened by NAS (separate to this piece

of Research Autism work) to look at improving the intervention information that

is available for parents and individuals.

>

> We will take our lead from what you tell us in the Research Autism survey (as

well as other sources) even though its not a great survey - please use it to say

what you want by filling in the 'other' boxes. This is how I got my point

across.

>

> We cant lobby for what you want unless you tell us what that is. PLEASE

CIRCULATE WIDELY to everyone you know who has an interest in the priorities for

autism research. Thank you.

>

> I have protested LOUDLY on the questionnaire and will also be writing to

Research Autism about the omission from this survey of interventions and

approaches that seek to work on social communication.

>

> These DO NOT fall under the categories (Q9) of 'behavioural interventions' or

'social skills interventions' but these are what lots of cutting edge and

emerging research is pointing towards.

>

> You'll be glad to know that biomedical interventions have their own category -

we need as many parents to fill this survey in and tell us what they think (even

if the only feedback is that the survey has a lot of shortcomings) so that our

interventions group can then use the information to lobby the decision-makers.

>

> Thanks

>

> Zoe

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If

you need medical advice, please seek it from a suitably qualified practitioner.

>

[Guest guest]

done:-)

> Hello all

>

> Here is a chance to influence the autism research agenda. Research Autism are

asking parents, people with autism and practitioners to fill in a questionnaire

about what the priorities for autism research should be.

>

> PLEASE fill this in. http://www.mrcresearch.co.uk/surveys/nas3rd.htm

>

> A small group of people have also been convened by NAS (separate to this piece

of Research Autism work) to look at improving the intervention information that

is available for parents and individuals.

>

> We will take our lead from what you tell us in the Research Autism survey (as

well as other sources) even though its not a great survey - please use it to say

what you want by filling in the 'other' boxes. This is how I got my point

across.

>

> We cant lobby for what you want unless you tell us what that is. PLEASE

CIRCULATE WIDELY to everyone you know who has an interest in the priorities for

autism research. Thank you.

>

> I have protested LOUDLY on the questionnaire and will also be writing to

Research Autism about the omission from this survey of interventions and

approaches that seek to work on social communication.

>

> These DO NOT fall under the categories (Q9) of 'behavioural interventions' or

'social skills interventions' but these are what lots of cutting edge and

emerging research is pointing towards.

>

> You'll be glad to know that biomedical interventions have their own category -

we need as many parents to fill this survey in and tell us what they think (even

if the only feedback is that the survey has a lot of shortcomings) so that our

interventions group can then use the information to lobby the decision-makers.

>

> Thanks

>

> Zoe

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If

you need medical advice, please seek it from a suitably qualified practitioner.

>

[Guest guest]

done:-)

> Hello all

>

> Here is a chance to influence the autism research agenda. Research Autism are

asking parents, people with autism and practitioners to fill in a questionnaire

about what the priorities for autism research should be.

>

> PLEASE fill this in. http://www.mrcresearch.co.uk/surveys/nas3rd.htm

>

> A small group of people have also been convened by NAS (separate to this piece

of Research Autism work) to look at improving the intervention information that

is available for parents and individuals.

>

> We will take our lead from what you tell us in the Research Autism survey (as

well as other sources) even though its not a great survey - please use it to say

what you want by filling in the 'other' boxes. This is how I got my point

across.

>

> We cant lobby for what you want unless you tell us what that is. PLEASE

CIRCULATE WIDELY to everyone you know who has an interest in the priorities for

autism research. Thank you.

>

> I have protested LOUDLY on the questionnaire and will also be writing to

Research Autism about the omission from this survey of interventions and

approaches that seek to work on social communication.

>

> These DO NOT fall under the categories (Q9) of 'behavioural interventions' or

'social skills interventions' but these are what lots of cutting edge and

emerging research is pointing towards.

>

> You'll be glad to know that biomedical interventions have their own category -

we need as many parents to fill this survey in and tell us what they think (even

if the only feedback is that the survey has a lot of shortcomings) so that our

interventions group can then use the information to lobby the decision-makers.

>

> Thanks

>

> Zoe

>

>

>

> ------------------------------------

>

> DISCLAIMER

> No information contained in this post is to be construed as medical advice. If

you need medical advice, please seek it from a suitably qualified practitioner.

>