Re: Re: supplements to stop before & after surgery - For Darla

[Guest guest]

Hi ,I wouldn't buy any Transfer Factor if you don't have any, it was just that we had such a terrible time with contracting GI viruses when in hospital (such as norovirus and rotavirus) that I felt that anything that I could do to boost his immunity was worth a shot and I would guess that colostrum would have roughly the same benefit.  

I had a look back at the archives and the comment was that the gas part of the GA depletes B12 specifically so it might not affect the other B vits.  I found anecdotally that my son was able to tolerate much higher doses of B vits after his GA's (of which we sadly had many over a course of 2 years, something like 9) than he could when he was not having the GAs. This is purely anecdotal but it was true in our case and we had lots of GA's to test it out on!

All the best to you and your precious son,Darla xx

 

Dear Darla,

Thank you so much for your very warm message, I am really grateful :-)

I will be sure to dose the B vits, I was not aware of this especially as

Norman depends on B6 (p5p) to control some of his seizures. I have used

Transfer Factor in the past, at the moment I don't have any but do you

think Colostrum can also help?

Looking on the bright side and with all the positive energy, I am sure

Norman will have a positive outcome from this.

emily xx

>

> > **

> >

> >

> >

> > Hi everyone,

> >

> > I hope someone here can help me please.

> >

> > My question is does anyone know which supplements I need to stop /

avoid

> > before and after surgery and also what supplements would I need to

be

> > looking at giving to help with healing/inflammation etc after the

> > surgery?

> >

> > Norman is scheduled for surgery on 9th February, the surgery is to

be

> > on both wrists, to release the tight tendons which have contributed

to

> > his wrists being flexed resulting in a " clawed " posture. This has

> > affected all/any possible hand function that he could have, over

many

> > years and of course is also a cause of stress and discomfort for

him.

> > Caring for him and dressing him up can be quite tricky when the

hands

> > are tight and flexed. The operation will involve releasing one of

the

> > tendons in the wrist and another tendon being transferred

( " re-routed " )

> > to the top of the hand to enable some wrist movement. It may be that

> > they will need to remove the first row of the carpal bones in the

wrist

> > but they won't know until they are doing the procedure. It is all

quite

> > scary... but it does not seem that there is any other alternatives

for

> > him and his hand/wrist posture can likely get worse and worse.

> > Following the surgery he will be in plaster for six weeks.....really

not

> > looking forward to all of it and my biggest hope and wish is that we

can

> > get a chance of rehabilitating hand function.

> >

> > Forgive me for the long post and going on about the operation but

just

> > feel you guys are the only ones who may understand..... For now I

also

> > need to get him better before the operation as he came down with

some

> > " flu " like bug and has been quite congested. Thanks for reading.

> >

> > emily x

> >

> >

> >

>

[Guest guest]

You know, , those 2 years are a bit of a blur for all 3 of us I think and I don't remember how many GA's used Nitrous Oxide and how many didn't.  We started off requesting no Nitrous Oxide (so they put him under using an IV) because had had a bad reaction to it when he was 11 months old - I told them it made him vomit and they didn't use it.  (In retrospect I'm not sure that his delayed recovery when he was 11 mos old was due to the NO and more to the virus that he caught.) 

Then I became fast friends with a paed anaesthesiologist (we kept having the same one!) and she spent a long time one day discussing with me the GA's and we decided to go back to the Nitrous Oxide.  He then did not have any problems with it and I think his last several GA's were a combo of a strong sedative (this was mostly for psychological support because by this time he was really struggling to cope with all of the hospitalisations and the sedative fortunately made him forget what had happened) Nitrous Oxide and then the GA.  My understanding (and please someone correct me if I'm wrong) was that even if they don't use NO to put a child under, they use it to keep the child under so there is really no reason to not use it.  This is in a child who was under investigation for mitochondrial and/or metabolic illnesses and I discussed that possibility with the anaesthesiologist.  

Ultimately I saw no difference in his recovery with or without the GA, it all depended on whether or not we could keep him from getting a damned infectious illness while he was in hospital that seemed to matter.  

We finally found perfect hands which works all day long at killing viruses on the surface of the hands and then we finally stopped contracting infectious illnesses at the hospital.  

not sure if that helps at all but there it is!Darla xx

 

Darla, thanks for this. Wow that was a lot of GA's for in such a

short period!! It must have been so worrying for you. What gas was

used for , was it Nitrous Oxide?

emily xx

> > >

> > > > **

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I hope someone here can help me please.

> > > >

> > > > My question is does anyone know which supplements I need to stop

/

> > avoid

> > > > before and after surgery and also what supplements would I need

to

> > be

> > > > looking at giving to help with healing/inflammation etc after

the

> > > > surgery?

> > > >

> > > > Norman is scheduled for surgery on 9th February, the surgery is

to

> > be

> > > > on both wrists, to release the tight tendons which have

contributed

> > to

> > > > his wrists being flexed resulting in a " clawed " posture. This

has

> > > > affected all/any possible hand function that he could have, over

> > many

> > > > years and of course is also a cause of stress and discomfort for

> > him.

> > > > Caring for him and dressing him up can be quite tricky when the

> > hands

> > > > are tight and flexed. The operation will involve releasing one

of

> > the

> > > > tendons in the wrist and another tendon being transferred

> > ( " re-routed " )

> > > > to the top of the hand to enable some wrist movement. It may be

that

> > > > they will need to remove the first row of the carpal bones in

the

> > wrist

> > > > but they won't know until they are doing the procedure. It is

all

> > quite

> > > > scary... but it does not seem that there is any other

alternatives

> > for

> > > > him and his hand/wrist posture can likely get worse and worse.

> > > > Following the surgery he will be in plaster for six

weeks.....really

> > not

> > > > looking forward to all of it and my biggest hope and wish is

that we

> > can

> > > > get a chance of rehabilitating hand function.

> > > >

> > > > Forgive me for the long post and going on about the operation

but

> > just

> > > > feel you guys are the only ones who may understand..... For now

I

> > also

> > > > need to get him better before the operation as he came down with

> > some

> > > > " flu " like bug and has been quite congested. Thanks for reading.

> > > >

> > > > emily x

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

sorry that should say  Ultimately I saw no difference in his recovery with or without the Nitrous Oxide (not GA!)Sorry typing in a rush!

You know, , those 2 years are a bit of a blur for all 3 of us I think and I don't remember how many GA's used Nitrous Oxide and how many didn't.  We started off requesting no Nitrous Oxide (so they put him under using an IV) because had had a bad reaction to it when he was 11 months old - I told them it made him vomit and they didn't use it.  (In retrospect I'm not sure that his delayed recovery when he was 11 mos old was due to the NO and more to the virus that he caught.) 

Then I became fast friends with a paed anaesthesiologist (we kept having the same one!) and she spent a long time one day discussing with me the GA's and we decided to go back to the Nitrous Oxide.  He then did not have any problems with it and I think his last several GA's were a combo of a strong sedative (this was mostly for psychological support because by this time he was really struggling to cope with all of the hospitalisations and the sedative fortunately made him forget what had happened) Nitrous Oxide and then the GA.  My understanding (and please someone correct me if I'm wrong) was that even if they don't use NO to put a child under, they use it to keep the child under so there is really no reason to not use it.  This is in a child who was under investigation for mitochondrial and/or metabolic illnesses and I discussed that possibility with the anaesthesiologist.  

Ultimately I saw no difference in his recovery with or without the GA, it all depended on whether or not we could keep him from getting a damned infectious illness while he was in hospital that seemed to matter.  

We finally found perfect hands which works all day long at killing viruses on the surface of the hands and then we finally stopped contracting infectious illnesses at the hospital.  

not sure if that helps at all but there it is!Darla xx

 

Darla, thanks for this. Wow that was a lot of GA's for in such a

short period!! It must have been so worrying for you. What gas was

used for , was it Nitrous Oxide?

emily xx

> > >

> > > > **

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I hope someone here can help me please.

> > > >

> > > > My question is does anyone know which supplements I need to stop

/

> > avoid

> > > > before and after surgery and also what supplements would I need

to

> > be

> > > > looking at giving to help with healing/inflammation etc after

the

> > > > surgery?

> > > >

> > > > Norman is scheduled for surgery on 9th February, the surgery is

to

> > be

> > > > on both wrists, to release the tight tendons which have

contributed

> > to

> > > > his wrists being flexed resulting in a " clawed " posture. This

has

> > > > affected all/any possible hand function that he could have, over

> > many

> > > > years and of course is also a cause of stress and discomfort for

> > him.

> > > > Caring for him and dressing him up can be quite tricky when the

> > hands

> > > > are tight and flexed. The operation will involve releasing one

of

> > the

> > > > tendons in the wrist and another tendon being transferred

> > ( " re-routed " )

> > > > to the top of the hand to enable some wrist movement. It may be

that

> > > > they will need to remove the first row of the carpal bones in

the

> > wrist

> > > > but they won't know until they are doing the procedure. It is

all

> > quite

> > > > scary... but it does not seem that there is any other

alternatives

> > for

> > > > him and his hand/wrist posture can likely get worse and worse.

> > > > Following the surgery he will be in plaster for six

weeks.....really

> > not

> > > > looking forward to all of it and my biggest hope and wish is

that we

> > can

> > > > get a chance of rehabilitating hand function.

> > > >

> > > > Forgive me for the long post and going on about the operation

but

> > just

> > > > feel you guys are the only ones who may understand..... For now

I

> > also

> > > > need to get him better before the operation as he came down with

> > some

> > > > " flu " like bug and has been quite congested. Thanks for reading.

> > > >

> > > > emily x

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

sorry that should say  Ultimately I saw no difference in his recovery with or without the Nitrous Oxide (not GA!)Sorry typing in a rush!

You know, , those 2 years are a bit of a blur for all 3 of us I think and I don't remember how many GA's used Nitrous Oxide and how many didn't.  We started off requesting no Nitrous Oxide (so they put him under using an IV) because had had a bad reaction to it when he was 11 months old - I told them it made him vomit and they didn't use it.  (In retrospect I'm not sure that his delayed recovery when he was 11 mos old was due to the NO and more to the virus that he caught.) 

Then I became fast friends with a paed anaesthesiologist (we kept having the same one!) and she spent a long time one day discussing with me the GA's and we decided to go back to the Nitrous Oxide.  He then did not have any problems with it and I think his last several GA's were a combo of a strong sedative (this was mostly for psychological support because by this time he was really struggling to cope with all of the hospitalisations and the sedative fortunately made him forget what had happened) Nitrous Oxide and then the GA.  My understanding (and please someone correct me if I'm wrong) was that even if they don't use NO to put a child under, they use it to keep the child under so there is really no reason to not use it.  This is in a child who was under investigation for mitochondrial and/or metabolic illnesses and I discussed that possibility with the anaesthesiologist.  

Ultimately I saw no difference in his recovery with or without the GA, it all depended on whether or not we could keep him from getting a damned infectious illness while he was in hospital that seemed to matter.  

We finally found perfect hands which works all day long at killing viruses on the surface of the hands and then we finally stopped contracting infectious illnesses at the hospital.  

not sure if that helps at all but there it is!Darla xx

 

Darla, thanks for this. Wow that was a lot of GA's for in such a

short period!! It must have been so worrying for you. What gas was

used for , was it Nitrous Oxide?

emily xx

> > >

> > > > **

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I hope someone here can help me please.

> > > >

> > > > My question is does anyone know which supplements I need to stop

/

> > avoid

> > > > before and after surgery and also what supplements would I need

to

> > be

> > > > looking at giving to help with healing/inflammation etc after

the

> > > > surgery?

> > > >

> > > > Norman is scheduled for surgery on 9th February, the surgery is

to

> > be

> > > > on both wrists, to release the tight tendons which have

contributed

> > to

> > > > his wrists being flexed resulting in a " clawed " posture. This

has

> > > > affected all/any possible hand function that he could have, over

> > many

> > > > years and of course is also a cause of stress and discomfort for

> > him.

> > > > Caring for him and dressing him up can be quite tricky when the

> > hands

> > > > are tight and flexed. The operation will involve releasing one

of

> > the

> > > > tendons in the wrist and another tendon being transferred

> > ( " re-routed " )

> > > > to the top of the hand to enable some wrist movement. It may be

that

> > > > they will need to remove the first row of the carpal bones in

the

> > wrist

> > > > but they won't know until they are doing the procedure. It is

all

> > quite

> > > > scary... but it does not seem that there is any other

alternatives

> > for

> > > > him and his hand/wrist posture can likely get worse and worse.

> > > > Following the surgery he will be in plaster for six

weeks.....really

> > not

> > > > looking forward to all of it and my biggest hope and wish is

that we

> > can

> > > > get a chance of rehabilitating hand function.

> > > >

> > > > Forgive me for the long post and going on about the operation

but

> > just

> > > > feel you guys are the only ones who may understand..... For now

I

> > also

> > > > need to get him better before the operation as he came down with

> > some

> > > > " flu " like bug and has been quite congested. Thanks for reading.

> > > >

> > > > emily x

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

sorry that should say  Ultimately I saw no difference in his recovery with or without the Nitrous Oxide (not GA!)Sorry typing in a rush!

You know, , those 2 years are a bit of a blur for all 3 of us I think and I don't remember how many GA's used Nitrous Oxide and how many didn't.  We started off requesting no Nitrous Oxide (so they put him under using an IV) because had had a bad reaction to it when he was 11 months old - I told them it made him vomit and they didn't use it.  (In retrospect I'm not sure that his delayed recovery when he was 11 mos old was due to the NO and more to the virus that he caught.) 

Then I became fast friends with a paed anaesthesiologist (we kept having the same one!) and she spent a long time one day discussing with me the GA's and we decided to go back to the Nitrous Oxide.  He then did not have any problems with it and I think his last several GA's were a combo of a strong sedative (this was mostly for psychological support because by this time he was really struggling to cope with all of the hospitalisations and the sedative fortunately made him forget what had happened) Nitrous Oxide and then the GA.  My understanding (and please someone correct me if I'm wrong) was that even if they don't use NO to put a child under, they use it to keep the child under so there is really no reason to not use it.  This is in a child who was under investigation for mitochondrial and/or metabolic illnesses and I discussed that possibility with the anaesthesiologist.  

Ultimately I saw no difference in his recovery with or without the GA, it all depended on whether or not we could keep him from getting a damned infectious illness while he was in hospital that seemed to matter.  

We finally found perfect hands which works all day long at killing viruses on the surface of the hands and then we finally stopped contracting infectious illnesses at the hospital.  

not sure if that helps at all but there it is!Darla xx

 

Darla, thanks for this. Wow that was a lot of GA's for in such a

short period!! It must have been so worrying for you. What gas was

used for , was it Nitrous Oxide?

emily xx

> > >

> > > > **

> > > >

> > > >

> > > >

> > > > Hi everyone,

> > > >

> > > > I hope someone here can help me please.

> > > >

> > > > My question is does anyone know which supplements I need to stop

/

> > avoid

> > > > before and after surgery and also what supplements would I need

to

> > be

> > > > looking at giving to help with healing/inflammation etc after

the

> > > > surgery?

> > > >

> > > > Norman is scheduled for surgery on 9th February, the surgery is

to

> > be

> > > > on both wrists, to release the tight tendons which have

contributed

> > to

> > > > his wrists being flexed resulting in a " clawed " posture. This

has

> > > > affected all/any possible hand function that he could have, over

> > many

> > > > years and of course is also a cause of stress and discomfort for

> > him.

> > > > Caring for him and dressing him up can be quite tricky when the

> > hands

> > > > are tight and flexed. The operation will involve releasing one

of

> > the

> > > > tendons in the wrist and another tendon being transferred

> > ( " re-routed " )

> > > > to the top of the hand to enable some wrist movement. It may be

that

> > > > they will need to remove the first row of the carpal bones in

the

> > wrist

> > > > but they won't know until they are doing the procedure. It is

all

> > quite

> > > > scary... but it does not seem that there is any other

alternatives

> > for

> > > > him and his hand/wrist posture can likely get worse and worse.

> > > > Following the surgery he will be in plaster for six

weeks.....really

> > not

> > > > looking forward to all of it and my biggest hope and wish is

that we

> > can

> > > > get a chance of rehabilitating hand function.

> > > >

> > > > Forgive me for the long post and going on about the operation

but

> > just

> > > > feel you guys are the only ones who may understand..... For now

I

> > also

> > > > need to get him better before the operation as he came down with

> > some

> > > > " flu " like bug and has been quite congested. Thanks for reading.

> > > >

> > > > emily x

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>