RE: Getting casting done today

[Guest guest]

My two cents.......

The casting is only bad for a few minutes. I think it would be too

hard for your son to drink a bottle during the casting, but if he

takes a pacifier, you can try that. We also tried to distract our

son with toys and songs. Nothing really worked, he just screamed for

10 minutes but then was completely find and happy afterwards! I

don't think tylenol will help - the casting won't hurt - it probably

just feels weird to them.

Follow your instincts. If you want the helmet/band then go for it!

Try not to let others' opinions (those that are different from your

own) bother you.

good luck!

Sharon & Evan (11-22-99)

>Well today we take our 7 1/2 month old for the casting process in Dallas -

>am very nervous. Everything I have been reading says it's only bad for

>about 10 minutes. Can we give him a bottle. Should we try and give him

>Tylenol or anything before we go?

>

>Really hope we are doing the right thing - my sister-in-law had a preemie

>that was on her back for a year and she had a flat head in back - now she is

>2 years old and looks fine? Never wore a helmut or anything? She says it

>is a " torture device " - am so torn as to what to do.

>

>Please send me any advice!

>

>> -----Original Message-----

>> From: Pitchke [sMTP:CAPS2000@...]

>> Sent: Sunday, October 22, 2000 10:19 AM

>> Plagiocephalyegroups

>> Subject: RE: New to board

>>

>> Hi Sue my name is Pitchke and my son had craniosynostosis and I

>> hang out on the plagio board to learn more about this condition and how it

>> relates to craniosynostosis. I am posting to tell you that we have

>> Tricare and I have a feeling you will have a fight on your hands? We

>> fought for six months and finally got them to cover everything. If you

>> need any help let me know. If they deny you I can let you in on the

>> places you can contact to get them to turn the denial around. Welcome!!

>>

>> -----Original Message-----

>> From: wolver@... [mailto:wolver@...]

>> Sent: Friday, October 20, 2000 10:17 PM

>> Plagiocephalyegroups

>> Subject: New to board

>>

>>

>> What a wonderful board. As usual, you can find more knowledge and

>> information from people who are experiencing something than from

>> the " experts " . My daughter, , is almost 5 months old and was

>> officially diagnosed yesterday. I mentioned her head shape to her

>> pediatrician at two months and she told me not to worry. My 3 1/2

>> year old also had an abnormal head shape and was evaluated for

>> craniosynostosis, but the helmet wasn't suggested. Her head was

>> never asymmetrical and now looks fine. I called her back at 3

>> months

>> and finally went for our appointment yesterday. We were seen at

>> Oklahoma Children's Hospital in Ok City. Anyone go there? They

>> have

>> an orthotist who makes the helmet ($700). 's scheduled for a

>> 3D

>> CT and neuro-ophthalmology. Will take about a month to get the

>> helmet (we have to travel 2 hours each way for every appointment and

>>

>> can never get the appointments on the same day!)Insurance will cover

>>

>> all but the helmet. We're military and have Tricare. Anyone else

>> deal with Tricare? Would love to hear from other military folks and

>>

>> people who have been to Ok City.

>>

>> Sue ('s Mom)

>>

>>

>>

>>