Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 We're thinking of going back to Breakspear - Tom not right, NHS at paed level washed hands (although GP rising to the challenge, good). New in our house: OCD. plus old favourites of SIB, pain, eye problems, stim king, Gross Motor slapping and banging all the hours of daylight. Then occasional flashes of utter loveliness. He's taking risperidone, and an anti spasmodic pre food benesomething or other which does seem to help along with enzymes. Which paed said was causing undigested food in stools. Me: surely it breaks it down, if it speeds up the passage of food it's because it's chime earlier. Paed: no, they just speed it up out of the stomach. Me: ! Back to Tom, really not a happy bunny and the OCD is driving us Over the Edge (OTE) and RTT (Round the Twist). Is Dr Goyal good on this sort of long term, GI, sensory and neural car crash mullarkey? we've also just completed the questionnaire for Irlen. How does that differ from chap in Scotland or is it all the same thing? Steph Nottingham. Absolutely fed up to the back teeth with autism. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 As he was a late regression have you looked into PANDAS/STrep? Mx We're thinking of going back to Breakspear - Tom not right, NHS at paed level washed hands (although GP rising to the challenge, good). New in our house: OCD. plus old favourites of SIB, pain, eye problems, stim king, Gross Motor slapping and banging all the hours of daylight. Then occasional flashes of utter loveliness. He's taking risperidone, and an anti spasmodic pre food benesomething or other which does seem to help along with enzymes. Which paed said was causing undigested food in stools. Me: surely it breaks it down, if it speeds up the passage of food it's because it's chime earlier. Paed: no, they just speed it up out of the stomach. Me: ! Back to Tom, really not a happy bunny and the OCD is driving us Over the Edge (OTE) and RTT (Round the Twist).Is Dr Goyal good on this sort of long term, GI, sensory and neural car crash mullarkey? we've also just completed the questionnaire for Irlen. How does that differ from chap in Scotland or is it all the same thing? StephNottingham. Absolutely fed up to the back teeth with autism. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 As he was a late regression have you looked into PANDAS/STrep? Mx We're thinking of going back to Breakspear - Tom not right, NHS at paed level washed hands (although GP rising to the challenge, good). New in our house: OCD. plus old favourites of SIB, pain, eye problems, stim king, Gross Motor slapping and banging all the hours of daylight. Then occasional flashes of utter loveliness. He's taking risperidone, and an anti spasmodic pre food benesomething or other which does seem to help along with enzymes. Which paed said was causing undigested food in stools. Me: surely it breaks it down, if it speeds up the passage of food it's because it's chime earlier. Paed: no, they just speed it up out of the stomach. Me: ! Back to Tom, really not a happy bunny and the OCD is driving us Over the Edge (OTE) and RTT (Round the Twist).Is Dr Goyal good on this sort of long term, GI, sensory and neural car crash mullarkey? we've also just completed the questionnaire for Irlen. How does that differ from chap in Scotland or is it all the same thing? StephNottingham. Absolutely fed up to the back teeth with autism. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2012 Report Share Posted February 13, 2012 As he was a late regression have you looked into PANDAS/STrep? Mx We're thinking of going back to Breakspear - Tom not right, NHS at paed level washed hands (although GP rising to the challenge, good). New in our house: OCD. plus old favourites of SIB, pain, eye problems, stim king, Gross Motor slapping and banging all the hours of daylight. Then occasional flashes of utter loveliness. He's taking risperidone, and an anti spasmodic pre food benesomething or other which does seem to help along with enzymes. Which paed said was causing undigested food in stools. Me: surely it breaks it down, if it speeds up the passage of food it's because it's chime earlier. Paed: no, they just speed it up out of the stomach. Me: ! Back to Tom, really not a happy bunny and the OCD is driving us Over the Edge (OTE) and RTT (Round the Twist).Is Dr Goyal good on this sort of long term, GI, sensory and neural car crash mullarkey? we've also just completed the questionnaire for Irlen. How does that differ from chap in Scotland or is it all the same thing? StephNottingham. Absolutely fed up to the back teeth with autism. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Hi Mandi He had a very high DNase test a few years ago but when NHS reran it they said it was normal. But I'm not at all sure they reran the same test! I've got an appointment with Dr G in June, we'll see how we go. xx > > As he was a late regression have you looked into PANDAS/STrep? > > Mx > > > In a message dated 13/02/2012 16:32:16 GMT Standard Time, > mark.grabiec1@... writes: > > > > > We're thinking of going back to Breakspear - Tom not right, NHS at paed > level washed hands (although GP rising to the challenge, good). > > New in our house: OCD. plus old favourites of SIB, pain, eye problems, > stim king, Gross Motor slapping and banging all the hours of daylight. Then > occasional flashes of utter loveliness. > > He's taking risperidone, and an anti spasmodic pre food benesomething or > other which does seem to help along with enzymes. Which paed said was > causing undigested food in stools. Me: surely it breaks it down, if it speeds up > the passage of food it's because it's chime earlier. Paed: no, they just > speed it up out of the stomach. Me: ! > > Back to Tom, really not a happy bunny and the OCD is driving us Over the > Edge (OTE) and RTT (Round the Twist). > > Is Dr Goyal good on this sort of long term, GI, sensory and neural car > crash mullarkey? > > we've also just completed the questionnaire for Irlen. How does that > differ from chap in Scotland or is it all the same thing? > > Steph > Nottingham. Absolutely fed up to the back teeth with autism. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Hi Mandi He had a very high DNase test a few years ago but when NHS reran it they said it was normal. But I'm not at all sure they reran the same test! I've got an appointment with Dr G in June, we'll see how we go. xx > > As he was a late regression have you looked into PANDAS/STrep? > > Mx > > > In a message dated 13/02/2012 16:32:16 GMT Standard Time, > mark.grabiec1@... writes: > > > > > We're thinking of going back to Breakspear - Tom not right, NHS at paed > level washed hands (although GP rising to the challenge, good). > > New in our house: OCD. plus old favourites of SIB, pain, eye problems, > stim king, Gross Motor slapping and banging all the hours of daylight. Then > occasional flashes of utter loveliness. > > He's taking risperidone, and an anti spasmodic pre food benesomething or > other which does seem to help along with enzymes. Which paed said was > causing undigested food in stools. Me: surely it breaks it down, if it speeds up > the passage of food it's because it's chime earlier. Paed: no, they just > speed it up out of the stomach. Me: ! > > Back to Tom, really not a happy bunny and the OCD is driving us Over the > Edge (OTE) and RTT (Round the Twist). > > Is Dr Goyal good on this sort of long term, GI, sensory and neural car > crash mullarkey? > > we've also just completed the questionnaire for Irlen. How does that > differ from chap in Scotland or is it all the same thing? > > Steph > Nottingham. Absolutely fed up to the back teeth with autism. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 Hi Mandi He had a very high DNase test a few years ago but when NHS reran it they said it was normal. But I'm not at all sure they reran the same test! I've got an appointment with Dr G in June, we'll see how we go. xx > > As he was a late regression have you looked into PANDAS/STrep? > > Mx > > > In a message dated 13/02/2012 16:32:16 GMT Standard Time, > mark.grabiec1@... writes: > > > > > We're thinking of going back to Breakspear - Tom not right, NHS at paed > level washed hands (although GP rising to the challenge, good). > > New in our house: OCD. plus old favourites of SIB, pain, eye problems, > stim king, Gross Motor slapping and banging all the hours of daylight. Then > occasional flashes of utter loveliness. > > He's taking risperidone, and an anti spasmodic pre food benesomething or > other which does seem to help along with enzymes. Which paed said was > causing undigested food in stools. Me: surely it breaks it down, if it speeds up > the passage of food it's because it's chime earlier. Paed: no, they just > speed it up out of the stomach. Me: ! > > Back to Tom, really not a happy bunny and the OCD is driving us Over the > Edge (OTE) and RTT (Round the Twist). > > Is Dr Goyal good on this sort of long term, GI, sensory and neural car > crash mullarkey? > > we've also just completed the questionnaire for Irlen. How does that > differ from chap in Scotland or is it all the same thing? > > Steph > Nottingham. Absolutely fed up to the back teeth with autism. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2012 Report Share Posted February 16, 2012 I would talk to Eileen before you go, what she doesn't know about PANDAS and strep is not worth knowing and the rebounds and treatments troubles, coupled with OCD and late deep dive regression are alerts now since I spent 5 days with the lady LOL Mandi x Hi MandiHe had a very high DNase test a few years ago but when NHS reran it they said it was normal. But I'm not at all sure they reran the same test!I've got an appointment with Dr G in June, we'll see how we go.xx>> As he was a late regression have you looked into PANDAS/STrep?> > Mx> > > > > > > > We're thinking of going back to Breakspear - Tom not right, NHS at paed > level washed hands (although GP rising to the challenge, good). > > New in our house: OCD. plus old favourites of SIB, pain, eye problems, > stim king, Gross Motor slapping and banging all the hours of daylight. Then > occasional flashes of utter loveliness. > > He's taking risperidone, and an anti spasmodic pre food benesomething or > other which does seem to help along with enzymes. Which paed said was > causing undigested food in stools. Me: surely it breaks it down, if it speeds up > the passage of food it's because it's chime earlier. Paed: no, they just > speed it up out of the stomach. Me: ! > > Back to Tom, really not a happy bunny and the OCD is driving us Over the > Edge (OTE) and RTT (Round the Twist).> > Is Dr Goyal good on this sort of long term, GI, sensory and neural car > crash mullarkey? > > we've also just completed the questionnaire for Irlen. How does that > differ from chap in Scotland or is it all the same thing? > > Steph> Nottingham. Absolutely fed up to the back teeth with autism. Thanks.> Quote Link to comment Share on other sites More sharing options...
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