Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 hi Jabi My son is at a similar stage to yours & at the same age. I trained him on PECS at 3 & within a week he was using sentence strips. When he started in ASD pre-school 6 months later he refused to use at home. Then at 4 & 1/2 he started pulling, pointing etc. like a child of 18months. I never pushed PECS at home. Recently we have gotten the odd sounds and attempted to helicopter (his first word!). I recruited a speech therapist who said you should always follow the child's lead. She said to promote language (receptive & expressive) and forget spoken for the moment – that isn't to say speech won't come, but the first building blocks of language need to be in place first. Receptive would be what he understands, expressive would be how he follows through on the receptive – so you can read stores & ask questions or make large picture and print smaller pictures and ask him things like – put the car on the road etc. also focus on singing rhymes – leaving out last word at end of sentence. In relation to diet – we are under Yasko and my son has h pilori which is hugely linked to language and we are now treating for this. He is now starting big school (autistic unit) and It was suggested he start on the `tap to talk' application and I refused. I think his spoken is similar to a child at 18 months and I feel if we use another application we will prevent speech – he is a logical child and when he used pecs he would point to the words but would never say because in his head he had communicated so why would he need to verbalise. Plus he has never mixed with his peers and most of his new class are verbal so I need to give it another year so see if I can promote speech before I ever consider another communication device. I know the panic you feel but trust your instincts! Not sure if this helped. Enda > > Hello all, > > I am new to the group, but not new to biomedical. We have tried biomedical when my son was diagonised ASD at 3 years, we did for 1 year, we didnt see any huge gains, but after doing biomedical he has solid stools. > > I was in India for last 1 year for his treatment. There he had intensive OT and ST. He made great progress in some areas like > Gross Motor- and fine motor he has improved a lot he is almost for his age level. > > But speech is the biggest issue, we have done lots of test last year. Dr. Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest issue and due to the communication and another issues, I have stopped after 6 weeks. > > Now I am thinking of addding something to his diet. > He is very healthy, no sleep problem, no OCD,no eczema, no stool issues or eating problem. He is not on any diet, we have tried diet for a year.He has some sensory issues still. But hyper activity also reduced. > > Now his behaviour also improved and his ATEC score which was 110 when we were started now is around 50 to 55 range. > > He is 5 years old now and goes to a Special school , where they use PECS only. My son doesnt like it he always refuse to use it. > He imitates some sounds, and some words. > > I am really working hard to find anything that to bring his speech. > > (also from India he had fresh Brahmi leaves with Vacha every morning) I also learnt accupressure and Reiki, I think it all has helped him. > Now he doesn't have crying episode or tantrums, I can take him out for shopping and all. > > Now his biggest problem is speech? If we do chelation is it going to help him? > We are also seeing a Homeopath doing CEASE Therapy. > Sorry long mail, but really getting worried about the speech. > > Regards > > Jabi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 hi Jabi My son is at a similar stage to yours & at the same age. I trained him on PECS at 3 & within a week he was using sentence strips. When he started in ASD pre-school 6 months later he refused to use at home. Then at 4 & 1/2 he started pulling, pointing etc. like a child of 18months. I never pushed PECS at home. Recently we have gotten the odd sounds and attempted to helicopter (his first word!). I recruited a speech therapist who said you should always follow the child's lead. She said to promote language (receptive & expressive) and forget spoken for the moment – that isn't to say speech won't come, but the first building blocks of language need to be in place first. Receptive would be what he understands, expressive would be how he follows through on the receptive – so you can read stores & ask questions or make large picture and print smaller pictures and ask him things like – put the car on the road etc. also focus on singing rhymes – leaving out last word at end of sentence. In relation to diet – we are under Yasko and my son has h pilori which is hugely linked to language and we are now treating for this. He is now starting big school (autistic unit) and It was suggested he start on the `tap to talk' application and I refused. I think his spoken is similar to a child at 18 months and I feel if we use another application we will prevent speech – he is a logical child and when he used pecs he would point to the words but would never say because in his head he had communicated so why would he need to verbalise. Plus he has never mixed with his peers and most of his new class are verbal so I need to give it another year so see if I can promote speech before I ever consider another communication device. I know the panic you feel but trust your instincts! Not sure if this helped. Enda > > Hello all, > > I am new to the group, but not new to biomedical. We have tried biomedical when my son was diagonised ASD at 3 years, we did for 1 year, we didnt see any huge gains, but after doing biomedical he has solid stools. > > I was in India for last 1 year for his treatment. There he had intensive OT and ST. He made great progress in some areas like > Gross Motor- and fine motor he has improved a lot he is almost for his age level. > > But speech is the biggest issue, we have done lots of test last year. Dr. Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest issue and due to the communication and another issues, I have stopped after 6 weeks. > > Now I am thinking of addding something to his diet. > He is very healthy, no sleep problem, no OCD,no eczema, no stool issues or eating problem. He is not on any diet, we have tried diet for a year.He has some sensory issues still. But hyper activity also reduced. > > Now his behaviour also improved and his ATEC score which was 110 when we were started now is around 50 to 55 range. > > He is 5 years old now and goes to a Special school , where they use PECS only. My son doesnt like it he always refuse to use it. > He imitates some sounds, and some words. > > I am really working hard to find anything that to bring his speech. > > (also from India he had fresh Brahmi leaves with Vacha every morning) I also learnt accupressure and Reiki, I think it all has helped him. > Now he doesn't have crying episode or tantrums, I can take him out for shopping and all. > > Now his biggest problem is speech? If we do chelation is it going to help him? > We are also seeing a Homeopath doing CEASE Therapy. > Sorry long mail, but really getting worried about the speech. > > Regards > > Jabi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Wow!And if a child recovers on antivirals alone then that child never had autism in the first place?NatasaReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Fri, 9 Mar 2012 07:22:26 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Wow!And if a child recovers on antivirals alone then that child never had autism in the first place?NatasaReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Fri, 9 Mar 2012 07:22:26 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Wow!And if a child recovers on antivirals alone then that child never had autism in the first place?NatasaReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Fri, 9 Mar 2012 07:22:26 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 I didn't connect it for ages, not until Andy came over in June when I just came out of the hole I was in with mega supps for months, addressing low blood sugar, sluggish thyroid, completely shot adrenals, the timing fits and so do the symptoms. Even if you could cope you still need to properly chelate with ALA to get it out of your brain which is also shown on the hump diagram, that's why I now always mention you are signing up for 2 years. In the early days chelating Sam I could tell he was 'ready' to go again 9-10 days off round, tested the theory and his Lead was off the page, round the block and in the park. He's done 4 years worth and is doing well on monthly at the moment, so far crossing everything, he has not had seizure on round or immediately after. I do DMSA/ALA once per month and sometimes do a TD DMPS in between but since I started DMSA/ALA on myself I am not liking the TD DMPS so much on me, backed off to 12 drops per dose for both of us (from 22). At the mo we both do 12.5mg DMSA/12.5 ALA which is low dose for our weights especially mine. Sam is finally at the stage on seeming better after each round, subtle stuff ist hard to notice like understanding receptively, like yesterday at Scotson was redoing his photo's, she wanted him to turn over laying on couch, she said Sam can you change to lying on your tummy and blow me down he did, I would have given him a visual sign and used roll over to your tummy She is very impressed with his physical and cognitive improvements, how she remembers the tiny details on Sam who she has not seen in nearly 2 years is amazing. He makes word like sounds now, as if he is using own language, or its coming out differently to how he planned buts its purposeful, when Jane Stooks came down to stay she said he was talking we just are not listening, I heard eat, no and yes when she was right there pointing it out (hangs head in shame), Jane will be training staff at Sam's school for me and is confident play therapy will bring out more words. He is very vocal with intensive interaction and I am not giving up till he talks Mx That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 I didn't connect it for ages, not until Andy came over in June when I just came out of the hole I was in with mega supps for months, addressing low blood sugar, sluggish thyroid, completely shot adrenals, the timing fits and so do the symptoms. Even if you could cope you still need to properly chelate with ALA to get it out of your brain which is also shown on the hump diagram, that's why I now always mention you are signing up for 2 years. In the early days chelating Sam I could tell he was 'ready' to go again 9-10 days off round, tested the theory and his Lead was off the page, round the block and in the park. He's done 4 years worth and is doing well on monthly at the moment, so far crossing everything, he has not had seizure on round or immediately after. I do DMSA/ALA once per month and sometimes do a TD DMPS in between but since I started DMSA/ALA on myself I am not liking the TD DMPS so much on me, backed off to 12 drops per dose for both of us (from 22). At the mo we both do 12.5mg DMSA/12.5 ALA which is low dose for our weights especially mine. Sam is finally at the stage on seeming better after each round, subtle stuff ist hard to notice like understanding receptively, like yesterday at Scotson was redoing his photo's, she wanted him to turn over laying on couch, she said Sam can you change to lying on your tummy and blow me down he did, I would have given him a visual sign and used roll over to your tummy She is very impressed with his physical and cognitive improvements, how she remembers the tiny details on Sam who she has not seen in nearly 2 years is amazing. He makes word like sounds now, as if he is using own language, or its coming out differently to how he planned buts its purposeful, when Jane Stooks came down to stay she said he was talking we just are not listening, I heard eat, no and yes when she was right there pointing it out (hangs head in shame), Jane will be training staff at Sam's school for me and is confident play therapy will bring out more words. He is very vocal with intensive interaction and I am not giving up till he talks Mx That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 I didn't connect it for ages, not until Andy came over in June when I just came out of the hole I was in with mega supps for months, addressing low blood sugar, sluggish thyroid, completely shot adrenals, the timing fits and so do the symptoms. Even if you could cope you still need to properly chelate with ALA to get it out of your brain which is also shown on the hump diagram, that's why I now always mention you are signing up for 2 years. In the early days chelating Sam I could tell he was 'ready' to go again 9-10 days off round, tested the theory and his Lead was off the page, round the block and in the park. He's done 4 years worth and is doing well on monthly at the moment, so far crossing everything, he has not had seizure on round or immediately after. I do DMSA/ALA once per month and sometimes do a TD DMPS in between but since I started DMSA/ALA on myself I am not liking the TD DMPS so much on me, backed off to 12 drops per dose for both of us (from 22). At the mo we both do 12.5mg DMSA/12.5 ALA which is low dose for our weights especially mine. Sam is finally at the stage on seeming better after each round, subtle stuff ist hard to notice like understanding receptively, like yesterday at Scotson was redoing his photo's, she wanted him to turn over laying on couch, she said Sam can you change to lying on your tummy and blow me down he did, I would have given him a visual sign and used roll over to your tummy She is very impressed with his physical and cognitive improvements, how she remembers the tiny details on Sam who she has not seen in nearly 2 years is amazing. He makes word like sounds now, as if he is using own language, or its coming out differently to how he planned buts its purposeful, when Jane Stooks came down to stay she said he was talking we just are not listening, I heard eat, no and yes when she was right there pointing it out (hangs head in shame), Jane will be training staff at Sam's school for me and is confident play therapy will bring out more words. He is very vocal with intensive interaction and I am not giving up till he talks Mx That's awful, I wouldn't have even connected the symptoms after 7 months of stopping. I know am slow onuptake with this(!) but why did it have this effect if the body is chelating automatically once that cascade has begun? Why with a little chelator is what you went through avoided? Just shows the need to know before starting that it's not something you can pick up and drop within the 2 years. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 13:30:11 -0500Subject: Re: Re: Chelation and Speech Racing heart 100+ BPM 5 weeks, no sleep, nausea, joints aching, at one stage couldn't even keep herbal tea down, squits, bad taste in mouth, basically unable to function for first time in my life, this started 9 months after starting chelation, 7 months after stopping (Sam started seizures which is what prompted stopping). The HUMP, in the AC diagram there is a hump, I rode it, when you continue to chelate that's the stall period, generally about 6-9 months in. I will upload my hair test from that time Click here: http://f1.grp.yahoofs.com/v1/IEVaTzr5JTRe_vs6H96YyYbdG7H1Yii9tDtszTzaipUezdPMN7-L4Y3zWe0WcyXdtpHngD2XFb_6zIq5o_TvR Mx Being nosey what effects did you have and how long did they take to show after stopping chelation? Trying to work out why that happenes if body is chelating itself due to cascade starting. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 10:54:45 -0500Subject: Re: Re: Chelation and Speech No, low dose is just fine, no dose is a problem - been there done that and had the not so pretty effects, this is me not Sam Mx Right thanks Mandi - I think I understand, just hadn't realised that without chelators metals were able to leave the body if metal toxic. You don't think you can go too low with a dose then so it doesn't do anything much? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 07:22:26 -0500Subject: Re: Re: Chelation and Speech Will have to come back to this later as tome for PO run, but once the first dose is given a cascade approx 2 years in length takes place whether you give the chelators or not. 5mg per dose every few weeks is just fine Folks who say we chelated for 3 months and it wasn;t doing anything so we stopped and did antivirals and now kid is recovered, the kid was dumping metals for approx 2 years regardless of the fact you stopped giving chelators, giving chelators makes the whole process more comfortable and efficient. The more common one is we stopped chelation and did yasko and metals are pouring out............although I know folks who gave no chelators did yasko and did have metals coming out that's a different action Click here: http://f1.grp.yahoofs.com/v1/wPBZT07FhUJMfimMuP6zzsQdnkrtHtXBTtKqcdesqIkQRAdEHy03JDfJu0Wyjoh2C1it2UqAs88-Xxl9qpDvU Mx Don't want to hijack your post Jabi, but what do you mean Mandi by having started chelation it happens whether you chelate or not? Am thinking in circs. where you have to stop chelation due to other reasons what happens? By stopping it do you mean completely or is it ok spaced out say every few weeks? I've had to stop due to other health issues - am thinking now, after what you've put, of doing say a really low dose of 5mg every couple of weeks but is that a waste of time on an adult - ie can you dose too low? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 8 Mar 2012 16:22:43 -0500Subject: Re: Re: Chelation and Speech Well thats not an efficient protocol, how many mgs per dose? The proper way do do it would be vits and minerals EVRY day, never stop, starting dose of 5mg, every 4 hours, day and night for at least 64 but preferably 72 hours, have at least as many days off as on and continue for 2 years. 3 months of chelation is not going to help, especially done in an ineffcient manner. However, now you have started chelation will happen regardless of whether you give chelators for approximately 2 years, the point of chelation is to make the person comfortable during this detox (starts first time you give chelator). I didn't understand this until last year, and I suspect most people including those doing the Cutler protocol and everything right don't either, I started and stopped on myself, the fallout was the worst time of my life and I would not wish that on anyone let alone a non verbal child Never trust anybody on anything, research yourself, he knows this protocol but I will remind him in my own special way when we see him next week, shame he never made the Andy Cutler lecture when we brought him over last summer and he does so many good things it really really irritates me that he choses to get this so very wrong, full moon rant over Mx Dear mandy,He has suggested three times a day for three days and minerals for three days and continue for 3 months.RegardsJabi>> How much DMSA and how often? > > Mandi x> > > In a message dated 08/03/2012 19:47:42 GMT Standard Time, jas1s@... > writes:> > But speech is the biggest issue, we have done lots of test last year. Dr. > Goyal suggested doing DSMA. We tried for six weeks, yeast was the biggest > issue and due to the communication and another issues, I have stopped after > 6 weeks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Thanks for explaining - what a way to find out for you though. They're fantastic achievements for Sam, it's so good hearing success stories , can sometimes get so bogged down with dealing with one issue that comes along after another it perks me up to read. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 14:56:53 -0500Subject: Re: Re: Chelation and Speech Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Thanks for explaining - what a way to find out for you though. They're fantastic achievements for Sam, it's so good hearing success stories , can sometimes get so bogged down with dealing with one issue that comes along after another it perks me up to read. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 14:56:53 -0500Subject: Re: Re: Chelation and Speech Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2012 Report Share Posted March 9, 2012 Thanks for explaining - what a way to find out for you though. They're fantastic achievements for Sam, it's so good hearing success stories , can sometimes get so bogged down with dealing with one issue that comes along after another it perks me up to read. Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Fri, 9 Mar 2012 14:56:53 -0500Subject: Re: Re: Chelation and Speech Dumping metals is very very stressful for body, that's why chelation done properly and with the supports in place makes everything easier, safer and efficient Mx but why did it have this effect if the body is chelating automatically once that cascade has begun? Quote Link to comment Share on other sites More sharing options...
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