Re: Autonomic Testing Q please

[Guest guest]

We had the baseline one done, Joe took his ipad and was happy to play on that

throughout. Needed some persuasion to keep the finger probe thing on but

otherwise fine.

x

> >

> >

> >

> > In a message dated 04/02/2012 23:28:05 GMT Standard Time,

> > neno@ writes:

> >

> > That would be the Full Autonomic Test, full version and expensive. We

> did

> > the basic version of that †" called Baseline autonomic profile or

> something

> > similar. This baseline costs around £200 - is this what you should be

> > having?

> >

> > >>Just the baseline one

> >

> >

> >

> > They don't do any tilt tables or maneuvers in Baseline version, it only

> > involves lying or sitting very still for 20†" 30 minutes, with bits

> (small

> > suction cups) attached to stomach, shoulder, and one clip on middle

> finger,

> > feeding the monitor. So not really easy or possible if child won't sit

> still,

> > but they are not asked to 'do' anything. Helps to bring a portable DVD,

> but

> > if watching something exciting that can mess up readings so they ask you

> > to switch off or turn volume down… Is there anything else that would

> help

> > sit still you think, something to listen to on headphones?

> >

> > >>Watching DVD's does make him kinda excited, jolly and thought when it

> > was suggested that if I bring who does his TST, he would lay down

> still

> > for her but whether she wants to get up at 6.00am and come with me on a

> > Saturday is another thing................hmmmmmmmmmmmm

> > Thanks for help

> > Mandi x

> >

>

[Guest guest]

We had the baseline one done, Joe took his ipad and was happy to play on that

throughout. Needed some persuasion to keep the finger probe thing on but

otherwise fine.

x

> >

> >

> >

> > In a message dated 04/02/2012 23:28:05 GMT Standard Time,

> > neno@ writes:

> >

> > That would be the Full Autonomic Test, full version and expensive. We

> did

> > the basic version of that †" called Baseline autonomic profile or

> something

> > similar. This baseline costs around £200 - is this what you should be

> > having?

> >

> > >>Just the baseline one

> >

> >

> >

> > They don't do any tilt tables or maneuvers in Baseline version, it only

> > involves lying or sitting very still for 20†" 30 minutes, with bits

> (small

> > suction cups) attached to stomach, shoulder, and one clip on middle

> finger,

> > feeding the monitor. So not really easy or possible if child won't sit

> still,

> > but they are not asked to 'do' anything. Helps to bring a portable DVD,

> but

> > if watching something exciting that can mess up readings so they ask you

> > to switch off or turn volume down… Is there anything else that would

> help

> > sit still you think, something to listen to on headphones?

> >

> > >>Watching DVD's does make him kinda excited, jolly and thought when it

> > was suggested that if I bring who does his TST, he would lay down

> still

> > for her but whether she wants to get up at 6.00am and come with me on a

> > Saturday is another thing................hmmmmmmmmmmmm

> > Thanks for help

> > Mandi x

> >

>

[Guest guest]

we have had a few autonmic baseline tests no sedation but i suppose we are

lucky as my son is co operative but i take a distraction in the form of videos,

i pod etc I am sure breakspear could do semi sedation if you pleaded ie

melatonin.. Dr G can be helpful if you ask him...the basic autonomic test costs

around £200 the full one £430...

Isobel

> >

> >

> >

> > In a message dated

> 04/02/2012 23:28:05 GMT Standard Time,

> > neno@ writes:

> >

>

> > That would be the Full Autonomic Test, full version and expensive. We

> did

> > the basic version of that †" called Baseline autonomic profile

> or something

> > similar. This baseline costs around £200 - is this what

> you should be

> > having?

> >

> > >>Just the baseline

> one

> >

> >

> >

> > They don't do any tilt tables or

> maneuvers in Baseline version, it only

> > involves lying or sitting very

> still for 20†" 30 minutes, with bits (small

> > suction cups) attached to

> stomach, shoulder, and one clip on middle finger,

> > feeding the

> monitor. So not really easy or possible if child won't sit still,

> > but

> they are not asked to 'do' anything. Helps to bring a portable DVD, but

>

> > if watching something exciting that can mess up readings so they ask

> you

> > to switch off or turn volume down… Is there anything else that

> would help

> > sit still you think, something to listen to on

> headphones?

> >

> > >>Watching DVD's does make him kinda

> excited, jolly and thought when it

> > was suggested that if I bring

> who does his TST, he would lay down still

> > for her but whether

> she wants to get up at 6.00am and come with me on a

> > Saturday is

> another thing................hmmmmmmmmmmmm

> > Thanks for help

> >

> Mandi x

> >

>

[Guest guest]

we have had a few autonmic baseline tests no sedation but i suppose we are

lucky as my son is co operative but i take a distraction in the form of videos,

i pod etc I am sure breakspear could do semi sedation if you pleaded ie

melatonin.. Dr G can be helpful if you ask him...the basic autonomic test costs

around £200 the full one £430...

Isobel

> >

> >

> >

> > In a message dated

> 04/02/2012 23:28:05 GMT Standard Time,

> > neno@ writes:

> >

>

> > That would be the Full Autonomic Test, full version and expensive. We

> did

> > the basic version of that †" called Baseline autonomic profile

> or something

> > similar. This baseline costs around £200 - is this what

> you should be

> > having?

> >

> > >>Just the baseline

> one

> >

> >

> >

> > They don't do any tilt tables or

> maneuvers in Baseline version, it only

> > involves lying or sitting very

> still for 20†" 30 minutes, with bits (small

> > suction cups) attached to

> stomach, shoulder, and one clip on middle finger,

> > feeding the

> monitor. So not really easy or possible if child won't sit still,

> > but

> they are not asked to 'do' anything. Helps to bring a portable DVD, but

>

> > if watching something exciting that can mess up readings so they ask

> you

> > to switch off or turn volume down… Is there anything else that

> would help

> > sit still you think, something to listen to on

> headphones?

> >

> > >>Watching DVD's does make him kinda

> excited, jolly and thought when it

> > was suggested that if I bring

> who does his TST, he would lay down still

> > for her but whether

> she wants to get up at 6.00am and come with me on a

> > Saturday is

> another thing................hmmmmmmmmmmmm

> > Thanks for help

> >

> Mandi x

> >

>

[Guest guest]

we have had a few autonmic baseline tests no sedation but i suppose we are

lucky as my son is co operative but i take a distraction in the form of videos,

i pod etc I am sure breakspear could do semi sedation if you pleaded ie

melatonin.. Dr G can be helpful if you ask him...the basic autonomic test costs

around £200 the full one £430...

Isobel

> >

> >

> >

> > In a message dated

> 04/02/2012 23:28:05 GMT Standard Time,

> > neno@ writes:

> >

>

> > That would be the Full Autonomic Test, full version and expensive. We

> did

> > the basic version of that †" called Baseline autonomic profile

> or something

> > similar. This baseline costs around £200 - is this what

> you should be

> > having?

> >

> > >>Just the baseline

> one

> >

> >

> >

> > They don't do any tilt tables or

> maneuvers in Baseline version, it only

> > involves lying or sitting very

> still for 20†" 30 minutes, with bits (small

> > suction cups) attached to

> stomach, shoulder, and one clip on middle finger,

> > feeding the

> monitor. So not really easy or possible if child won't sit still,

> > but

> they are not asked to 'do' anything. Helps to bring a portable DVD, but

>

> > if watching something exciting that can mess up readings so they ask

> you

> > to switch off or turn volume down… Is there anything else that

> would help

> > sit still you think, something to listen to on

> headphones?

> >

> > >>Watching DVD's does make him kinda

> excited, jolly and thought when it

> > was suggested that if I bring

> who does his TST, he would lay down still

> > for her but whether

> she wants to get up at 6.00am and come with me on a

> > Saturday is

> another thing................hmmmmmmmmmmmm

> > Thanks for help

> >

> Mandi x

> >

>

[Guest guest]

Hi margaret I paid for the eeg test results from gOSH it cost £25.00, on another

note Dr Kleminov did an eeg for a £110 and gave me the notes via email for

free.... Isobel

> >

> > I don't understand why they are being so obstructive???? The GP should have

> > a letter from them in H's records, maybe they just put the no generalised

> > stuff in there too?

> >

> > Mx

> >

> >

> > In a message dated 06/02/2012 05:04:51 GMT Standard Time,

> > m.collins9@ writes:

> >

> > I'm still trying to get the report from the EEG they did last April. All

> > we have been told is that no generalised activity was seen. Now that could

> > mean the EEG was a failure and that nothing abnormal was seen. I have asked

> > for the report. I have asked the epilepsy nurses to tell me what the report

> > says. No result. They say they aren't allowed to tell me over the phone.

> > The Neuro now says if I want results I have to go through the Access to

> > Medical Records people - up to £50 and 40 days from the request. So I have

sent

> > off the form and said I want to inspect the records first before they are

> > copied and I want to go in this week. (At the GP's if I ask they say " What

> > do you want? " and print it out on the spot.But the hospital doesn't share

> > test results with the GP....)

> >

>

[Guest guest]

We done ours yesterday as Dr G though that DS seizures are connected to lack of oxygen .....raise and then tilted exams were done but the deep breathing and the valsalva maneuver were not , the good news is that you have two blokes for any emergency .....cannot wait for the results as his blood pressure was all over the place for starters .....

claudia

head still in a spin from telephone consult with DG this morning, wants us to do the basic autonomic testing when we go in March, found this on another site - is this the same type of thing?

How is it performed?

To see if a disease is affecting the autonomic nervous system, several tests are done to monitor blood pressure, blood flow, heart rate, skin temperature, and sweating. By measuring these functions, it is possible to discover whether or not the autonomic nervous system is functioning normally.

Tests to measure blood pressure and heart rate include the tilt table test, a deep breathing test and the Valsalva maneuver. The tilt table test requires that the patient lie on a table that is then raised. The deep breathing test requires the patient to take deep breaths for a minute. The Valsalva maneuver requires that the patient blow into a tube to increase pressure in the chest. While these simple tests are performed, blood pressure and heart rate are monitored.

[Guest guest]

We done ours yesterday as Dr G though that DS seizures are connected to lack of oxygen .....raise and then tilted exams were done but the deep breathing and the valsalva maneuver were not , the good news is that you have two blokes for any emergency .....cannot wait for the results as his blood pressure was all over the place for starters .....

claudia

head still in a spin from telephone consult with DG this morning, wants us to do the basic autonomic testing when we go in March, found this on another site - is this the same type of thing?

How is it performed?

To see if a disease is affecting the autonomic nervous system, several tests are done to monitor blood pressure, blood flow, heart rate, skin temperature, and sweating. By measuring these functions, it is possible to discover whether or not the autonomic nervous system is functioning normally.

Tests to measure blood pressure and heart rate include the tilt table test, a deep breathing test and the Valsalva maneuver. The tilt table test requires that the patient lie on a table that is then raised. The deep breathing test requires the patient to take deep breaths for a minute. The Valsalva maneuver requires that the patient blow into a tube to increase pressure in the chest. While these simple tests are performed, blood pressure and heart rate are monitored.

[Guest guest]

We done ours yesterday as Dr G though that DS seizures are connected to lack of oxygen .....raise and then tilted exams were done but the deep breathing and the valsalva maneuver were not , the good news is that you have two blokes for any emergency .....cannot wait for the results as his blood pressure was all over the place for starters .....

claudia

head still in a spin from telephone consult with DG this morning, wants us to do the basic autonomic testing when we go in March, found this on another site - is this the same type of thing?

How is it performed?

To see if a disease is affecting the autonomic nervous system, several tests are done to monitor blood pressure, blood flow, heart rate, skin temperature, and sweating. By measuring these functions, it is possible to discover whether or not the autonomic nervous system is functioning normally.

Tests to measure blood pressure and heart rate include the tilt table test, a deep breathing test and the Valsalva maneuver. The tilt table test requires that the patient lie on a table that is then raised. The deep breathing test requires the patient to take deep breaths for a minute. The Valsalva maneuver requires that the patient blow into a tube to increase pressure in the chest. While these simple tests are performed, blood pressure and heart rate are monitored.