Re: How did your children get diagnosed?

[Guest guest]

How did your children with autism get diagnosed? Did a neurologist tell you it

was autism, pdd, aspergers, etc?? What kind of testing did your child have to

get to that point of determination? Also do you take your children with autism

to the neurologist and/or dev. pediatrician regularly? I'm not that happy with

my last neurologist appt with her just asking me questions while my daughter was

scared so didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later after

diagnosis...

Jen

[Guest guest]

How did your children with autism get diagnosed? Did a neurologist tell you it

was autism, pdd, aspergers, etc?? What kind of testing did your child have to

get to that point of determination? Also do you take your children with autism

to the neurologist and/or dev. pediatrician regularly? I'm not that happy with

my last neurologist appt with her just asking me questions while my daughter was

scared so didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later after

diagnosis...

Jen

[Guest guest]

How did your children with autism get diagnosed? Did a neurologist tell you it

was autism, pdd, aspergers, etc?? What kind of testing did your child have to

get to that point of determination? Also do you take your children with autism

to the neurologist and/or dev. pediatrician regularly? I'm not that happy with

my last neurologist appt with her just asking me questions while my daughter was

scared so didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later after

diagnosis...

Jen

[Guest guest]

Jen,

My daughter was diagnosed at the age of 2 by a very prominent

pediatric neurologist at UCLA. Basically she said: " Sorry, nothing

I can do for you...good luck...enjoy her! " I was like, What the

F#*@???

I also ditched her regualar ped, who was also no help at all and

totally clueless. I started seeing a develomental ped who came

highly recommended. he was a little more knowledgeable but not

proactive at all. He was only interested in " managing " my daughter,

not helping her get better. He just wanted to stick her on meds and

possibly get her some behavior management and that's it. Also thought

I was completely insane for having any concern at all about

Thimerosal. So... I ditched him too. I finally found an MD I love,

who is also a homeopath, and my daughter loves him and it not afraid

at all to go see him. We also see a chiropractor, another homeopath

and a cranio-sacral therapist, all of which are in the same office.

they all work together and with me for an integrative approach. I

couldn't be happier now and glad I unloaded all of those unhelpful docs.

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

Jen,

My daughter was diagnosed at the age of 2 by a very prominent

pediatric neurologist at UCLA. Basically she said: " Sorry, nothing

I can do for you...good luck...enjoy her! " I was like, What the

F#*@???

I also ditched her regualar ped, who was also no help at all and

totally clueless. I started seeing a develomental ped who came

highly recommended. he was a little more knowledgeable but not

proactive at all. He was only interested in " managing " my daughter,

not helping her get better. He just wanted to stick her on meds and

possibly get her some behavior management and that's it. Also thought

I was completely insane for having any concern at all about

Thimerosal. So... I ditched him too. I finally found an MD I love,

who is also a homeopath, and my daughter loves him and it not afraid

at all to go see him. We also see a chiropractor, another homeopath

and a cranio-sacral therapist, all of which are in the same office.

they all work together and with me for an integrative approach. I

couldn't be happier now and glad I unloaded all of those unhelpful docs.

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

Jen,

My daughter was diagnosed at the age of 2 by a very prominent

pediatric neurologist at UCLA. Basically she said: " Sorry, nothing

I can do for you...good luck...enjoy her! " I was like, What the

F#*@???

I also ditched her regualar ped, who was also no help at all and

totally clueless. I started seeing a develomental ped who came

highly recommended. he was a little more knowledgeable but not

proactive at all. He was only interested in " managing " my daughter,

not helping her get better. He just wanted to stick her on meds and

possibly get her some behavior management and that's it. Also thought

I was completely insane for having any concern at all about

Thimerosal. So... I ditched him too. I finally found an MD I love,

who is also a homeopath, and my daughter loves him and it not afraid

at all to go see him. We also see a chiropractor, another homeopath

and a cranio-sacral therapist, all of which are in the same office.

they all work together and with me for an integrative approach. I

couldn't be happier now and glad I unloaded all of those unhelpful docs.

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

>> Her answer to potty training was, nobody goes to

>>college in diapers. I'm trying to figure this all out one

>>year later after diagnosis...

What a bizarre thing to say....

You should write her a thank you card and ask her.

---------------------------------------------

Dear Dr ___________,

Thank you for the diagnosis.

On this date, you said " nobody goes to college in diapers " .

Do you mean my child will go to college, or that she will never need to be

out of diapers because she won't?

I'm curious what you highly educated mind meant to imply to me cause I am

STILL wondering how to go about potty-training my child, which - if you

recall - was the original question to which you replied with the above

statement.

Please enlighten a poor soul.

---------------------------------------------

Some people.....

Go to a different doctor who has a CLUE.

My kids were dx'd by a pediatric neurologist at Kaiser, and then again by

the developmental pediatrician at Regional Center. Neither were all that

mind-blowing or awe-inspiring, though the first definitely feigned more

interest/compassion, but it didn't matter much to me. I went in knowing

what was the case - and I wanted it on paper so I could get my kids what

they needed. The only time I would have had a problem is if they told me

everything seemed normal when I knew it was NOT.

Grace

[Guest guest]

>> Her answer to potty training was, nobody goes to

>>college in diapers. I'm trying to figure this all out one

>>year later after diagnosis...

What a bizarre thing to say....

You should write her a thank you card and ask her.

---------------------------------------------

Dear Dr ___________,

Thank you for the diagnosis.

On this date, you said " nobody goes to college in diapers " .

Do you mean my child will go to college, or that she will never need to be

out of diapers because she won't?

I'm curious what you highly educated mind meant to imply to me cause I am

STILL wondering how to go about potty-training my child, which - if you

recall - was the original question to which you replied with the above

statement.

Please enlighten a poor soul.

---------------------------------------------

Some people.....

Go to a different doctor who has a CLUE.

My kids were dx'd by a pediatric neurologist at Kaiser, and then again by

the developmental pediatrician at Regional Center. Neither were all that

mind-blowing or awe-inspiring, though the first definitely feigned more

interest/compassion, but it didn't matter much to me. I went in knowing

what was the case - and I wanted it on paper so I could get my kids what

they needed. The only time I would have had a problem is if they told me

everything seemed normal when I knew it was NOT.

Grace

[Guest guest]

>> Her answer to potty training was, nobody goes to

>>college in diapers. I'm trying to figure this all out one

>>year later after diagnosis...

What a bizarre thing to say....

You should write her a thank you card and ask her.

---------------------------------------------

Dear Dr ___________,

Thank you for the diagnosis.

On this date, you said " nobody goes to college in diapers " .

Do you mean my child will go to college, or that she will never need to be

out of diapers because she won't?

I'm curious what you highly educated mind meant to imply to me cause I am

STILL wondering how to go about potty-training my child, which - if you

recall - was the original question to which you replied with the above

statement.

Please enlighten a poor soul.

---------------------------------------------

Some people.....

Go to a different doctor who has a CLUE.

My kids were dx'd by a pediatric neurologist at Kaiser, and then again by

the developmental pediatrician at Regional Center. Neither were all that

mind-blowing or awe-inspiring, though the first definitely feigned more

interest/compassion, but it didn't matter much to me. I went in knowing

what was the case - and I wanted it on paper so I could get my kids what

they needed. The only time I would have had a problem is if they told me

everything seemed normal when I knew it was NOT.

Grace

[Guest guest]

,

I'm on Long Island, New York...

Jen

Re: How did your children get diagnosed?

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

,

I'm on Long Island, New York...

Jen

Re: How did your children get diagnosed?

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

,

I'm on Long Island, New York...

Jen

Re: How did your children get diagnosed?

,

What city are you in? The neurologist I saw was great, but I had

many didderent people dx my daughter. guess i wanted to be sure?!?!?

> How did your children with autism get diagnosed? Did a neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last

> neurologist appt with her just asking me questions while my

> daughter was scared so didn't do anything. Her answer to potty

> training was, nobody goes to college in diapers. I'm trying to

> figure this all out one year later after diagnosis...

>

> Jen

>

>

>

>

[Guest guest]

Jen.

We went to many different places. !st the school dx Marisa, then we

went to a behavioral pys, then we went to the hospital here and " The

Center for Human Development " then Cleveland Clinic. The TCFHD gave

me the best dx and what I call my bible. They tested, they made

recommendations for follow up, for reading material, for blood

tests. We also did the MRI and just recently the EEG because someone

told me our kids could seizures we don't know about. So start at the

school if they have the personnel, if not how about a good university

hospital type setting? Or call the best hospitals in the area and

find out who works with our kids. It's always like being on a

scavenger hunt.

Good luck, stay strong and you'll do fine

> ,

> I'm on Long Island, New York...

> Jen

> Re: How did your children get diagnosed?

>

>

> ,

> What city are you in? The neurologist I saw was great, but I had

> many didderent people dx my daughter. guess i wanted to be

> sure?!?!?

>

>

>

> > How did your children with autism get diagnosed? Did a

> neurologist

> > tell you it was autism, pdd, aspergers, etc?? What kind of

> testing

> > did your child have to get to that point of determination?

> Also do

> > you take your children with autism to the neurologist and/or dev.

> > pediatrician regularly? I'm not that happy with my last

> > neurologist appt with her just asking me questions while my

> > daughter was scared so didn't do anything. Her answer to potty

> > training was, nobody goes to college in diapers. I'm trying to

> > figure this all out one year later after diagnosis...

> >

> > Jen

> >

> >

> >

> >

[Guest guest]

Jen.

We went to many different places. !st the school dx Marisa, then we

went to a behavioral pys, then we went to the hospital here and " The

Center for Human Development " then Cleveland Clinic. The TCFHD gave

me the best dx and what I call my bible. They tested, they made

recommendations for follow up, for reading material, for blood

tests. We also did the MRI and just recently the EEG because someone

told me our kids could seizures we don't know about. So start at the

school if they have the personnel, if not how about a good university

hospital type setting? Or call the best hospitals in the area and

find out who works with our kids. It's always like being on a

scavenger hunt.

Good luck, stay strong and you'll do fine

> ,

> I'm on Long Island, New York...

> Jen

> Re: How did your children get diagnosed?

>

>

> ,

> What city are you in? The neurologist I saw was great, but I had

> many didderent people dx my daughter. guess i wanted to be

> sure?!?!?

>

>

>

> > How did your children with autism get diagnosed? Did a

> neurologist

> > tell you it was autism, pdd, aspergers, etc?? What kind of

> testing

> > did your child have to get to that point of determination?

> Also do

> > you take your children with autism to the neurologist and/or dev.

> > pediatrician regularly? I'm not that happy with my last

> > neurologist appt with her just asking me questions while my

> > daughter was scared so didn't do anything. Her answer to potty

> > training was, nobody goes to college in diapers. I'm trying to

> > figure this all out one year later after diagnosis...

> >

> > Jen

> >

> >

> >

> >

[Guest guest]

Jen.

We went to many different places. !st the school dx Marisa, then we

went to a behavioral pys, then we went to the hospital here and " The

Center for Human Development " then Cleveland Clinic. The TCFHD gave

me the best dx and what I call my bible. They tested, they made

recommendations for follow up, for reading material, for blood

tests. We also did the MRI and just recently the EEG because someone

told me our kids could seizures we don't know about. So start at the

school if they have the personnel, if not how about a good university

hospital type setting? Or call the best hospitals in the area and

find out who works with our kids. It's always like being on a

scavenger hunt.

Good luck, stay strong and you'll do fine

> ,

> I'm on Long Island, New York...

> Jen

> Re: How did your children get diagnosed?

>

>

> ,

> What city are you in? The neurologist I saw was great, but I had

> many didderent people dx my daughter. guess i wanted to be

> sure?!?!?

>

>

>

> > How did your children with autism get diagnosed? Did a

> neurologist

> > tell you it was autism, pdd, aspergers, etc?? What kind of

> testing

> > did your child have to get to that point of determination?

> Also do

> > you take your children with autism to the neurologist and/or dev.

> > pediatrician regularly? I'm not that happy with my last

> > neurologist appt with her just asking me questions while my

> > daughter was scared so didn't do anything. Her answer to potty

> > training was, nobody goes to college in diapers. I'm trying to

> > figure this all out one year later after diagnosis...

> >

> > Jen

> >

> >

> >

> >

[Guest guest]

Jen, please excuse my poor attitude, but your neuro sounds like a

complete idiot. Does she think a statement like that is gonna do

*anything* to give you confidence, training, or help? I'm sorry, but I

get so fed up with professionals being more trouble than help!

With allie I found myself doing searches for " autism " on the web when

she was 10 mos old when she regressed. However for her age she wasn't

supposed to do all the things listed so I kept quiet. At 18 mos I

realized something was wrong more than my imagination so I called her

doc who scheduled her for a hearing test. I told audiologist I felt

she had good hearing but has autism instead, she wrote the standard

list for what was done. She said we'd need a full hearing test

including ABR, speech consult, neurology consult, and that finally a

developmental psychologist would give the dx. We got her dx 2 wks

before her 2nd bday, but then the school required a MD to give the dx.

I found this stupid because the dx for ASD is a psychological

assessment from the DSM-IV, yet the school required it. In the most

basic definition, autism is a set of behaviors and if a child has

enough of them, they are given that dx.

HTH,

Debi

>

> How did your children with autism get diagnosed? Did a neurologist

tell you it was autism, pdd, aspergers, etc?? What kind of testing

did your child have to get to that point of determination? Also do

you take your children with autism to the neurologist and/or dev.

pediatrician regularly? I'm not that happy with my last neurologist

appt with her just asking me questions while my daughter was scared so

didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later

after diagnosis...

>

> Jen

[Guest guest]

Jen, please excuse my poor attitude, but your neuro sounds like a

complete idiot. Does she think a statement like that is gonna do

*anything* to give you confidence, training, or help? I'm sorry, but I

get so fed up with professionals being more trouble than help!

With allie I found myself doing searches for " autism " on the web when

she was 10 mos old when she regressed. However for her age she wasn't

supposed to do all the things listed so I kept quiet. At 18 mos I

realized something was wrong more than my imagination so I called her

doc who scheduled her for a hearing test. I told audiologist I felt

she had good hearing but has autism instead, she wrote the standard

list for what was done. She said we'd need a full hearing test

including ABR, speech consult, neurology consult, and that finally a

developmental psychologist would give the dx. We got her dx 2 wks

before her 2nd bday, but then the school required a MD to give the dx.

I found this stupid because the dx for ASD is a psychological

assessment from the DSM-IV, yet the school required it. In the most

basic definition, autism is a set of behaviors and if a child has

enough of them, they are given that dx.

HTH,

Debi

>

> How did your children with autism get diagnosed? Did a neurologist

tell you it was autism, pdd, aspergers, etc?? What kind of testing

did your child have to get to that point of determination? Also do

you take your children with autism to the neurologist and/or dev.

pediatrician regularly? I'm not that happy with my last neurologist

appt with her just asking me questions while my daughter was scared so

didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later

after diagnosis...

>

> Jen

[Guest guest]

Jen, please excuse my poor attitude, but your neuro sounds like a

complete idiot. Does she think a statement like that is gonna do

*anything* to give you confidence, training, or help? I'm sorry, but I

get so fed up with professionals being more trouble than help!

With allie I found myself doing searches for " autism " on the web when

she was 10 mos old when she regressed. However for her age she wasn't

supposed to do all the things listed so I kept quiet. At 18 mos I

realized something was wrong more than my imagination so I called her

doc who scheduled her for a hearing test. I told audiologist I felt

she had good hearing but has autism instead, she wrote the standard

list for what was done. She said we'd need a full hearing test

including ABR, speech consult, neurology consult, and that finally a

developmental psychologist would give the dx. We got her dx 2 wks

before her 2nd bday, but then the school required a MD to give the dx.

I found this stupid because the dx for ASD is a psychological

assessment from the DSM-IV, yet the school required it. In the most

basic definition, autism is a set of behaviors and if a child has

enough of them, they are given that dx.

HTH,

Debi

>

> How did your children with autism get diagnosed? Did a neurologist

tell you it was autism, pdd, aspergers, etc?? What kind of testing

did your child have to get to that point of determination? Also do

you take your children with autism to the neurologist and/or dev.

pediatrician regularly? I'm not that happy with my last neurologist

appt with her just asking me questions while my daughter was scared so

didn't do anything. Her answer to potty training was, nobody goes to

college in diapers. I'm trying to figure this all out one year later

after diagnosis...

>

> Jen

[Guest guest]

Email tmarascia@... She lives here in TN now but is from

there and has a son with autism, she'd be glad to help.

Debi

>

> ,

> I'm on Long Island, New York...

> Jen

>

[Guest guest]

Email tmarascia@... She lives here in TN now but is from

there and has a son with autism, she'd be glad to help.

Debi

>

> ,

> I'm on Long Island, New York...

> Jen

>

[Guest guest]

Email tmarascia@... She lives here in TN now but is from

there and has a son with autism, she'd be glad to help.

Debi

>

> ,

> I'm on Long Island, New York...

> Jen

>

[Guest guest]

Here's our experience:

At 17 months I knew something was going on with my daughter and

addressed my concerns with our pediatrician. He looked at 's

chart and said she was hitting all of the milestones and " developing

beautifully " . At age 2 I had even more concerns and he told me it

was " still too early for it to be something like autism " . By 2 1/2

's issues were quite apparent and I ended up having her

evaluated by our local early intervention agency. They are not

allowed to diagnose, so they gave her the label of developmental

delay. Although she clearly had all signs of an Autism Spectrum

Disorder she received the bare minimum services. At this time we

made appointments with a neurologist and a developmental pediatrician

at Children's Hospital of Philadelphia. We were put on a waiting

list for 6 months. When turned 3 she transitioned from early

intervention to our county's intermediate unit, where they too called

her developmentally delayed. This past June we saw a neurologist,

who read the evaluation report from the intermediate unit, asked us a

few questions, looked at for a few minutes and labeled her PDD-

NOS. In July we saw the developmental pediatrician at CHOP. They

did an extensive evaluation, administered the ADOS, did speech and OT

evals, asked us questions, read over all of our paperwork,

checklists, etc. The developmetal ped. said ASD. I felt that

diagnosis was the most accurate and we will be returning to see her

for our follow-up visit. Once we had the label (back in July), we

approached the intermediate unit to ask them to provide an ABA

program. They disagreed with CHOP's diagnosis and said " she just has

processing, sensory, and motor planning issues. " Here we are 3 months

later and still fighting. Sorry this post is so long, but I am

frustrated and angry that these " professionals " have no clue what

they are doing. I have lost so much time because of their

incompetency.

Lori

> >

> > How did your children with autism get diagnosed? Did a

neurologist

> tell you it was autism, pdd, aspergers, etc?? What kind of testing

> did your child have to get to that point of determination? Also do

> you take your children with autism to the neurologist and/or dev.

> pediatrician regularly? I'm not that happy with my last neurologist

> appt with her just asking me questions while my daughter was scared

so

> didn't do anything. Her answer to potty training was, nobody goes

to

> college in diapers. I'm trying to figure this all out one year

later

> after diagnosis...

> >

> > Jen

>