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Re: Parent of plagio child/ Aurora, IL

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Hi,

Welcome to the group. First of all, it is entirely up to you whether

or not you band your son! It's not the decision of your ped or

neurosurgeon. The only thing your ped or the ns need to do is write

you a script. They can't tell you, you can't band your baby!!!

We have quite a few members that have used/use the Oakbrook CT. They

all rave about it. While repositioning can correct plagio, it doesn't

work for everyone! It is up to you if you want to continue to

reposition or not. Does your son have torticollis, it's a tight neck

muscle. Some babies have a tilt too. If you notice your son really

only looks to one side it could be torticollis.

When it comes to banding, the younger you band a baby the better and

faster the correction will be. I am all for repositioning, if you're

seeing improvement and the baby doesn't have torticollis. If not,

you could very well be wasting your time. If you were to band your

son now, you would most likely get 100% correction.

It really makes me mad that your pediatricain told you to do nothing.

How ignorant is he/she? I'm sorry if you think that is rude, but he

really has no right telling parent to do nothing. He can't guarantee

you that your son's plagio will correct on it's own. Some babies do

round out but some babies don't. I think most don't.

Like I said, it's YOUR decision to make, not your peds or the ns, if

you want to band your son, do it!!

No matter what you decide to do, you'll have our support. Please keep

us posted and good luck.

> I have a son that is 4 months old. We have taken him to my

> pediatrician. My pediatrician told me his head would round out

> eventually. He told me to stay offline and not to worry...he said

> not to buy any positioners...he said not to do anything at all.

> Anyways the first thing I did when I got home was made an

> appointment with a neurosurgen. He said that same thing that

> everything would be fine and just to start repositioning. So then I

> proceeded to go to Cranial Tech in Oakbrook. They said to

reposition

> for a month and see how it goes. I feel like no one is taking my

> concerns seriously. I have been repositioning for about 3wks and

> haven't seen any changes good or bad. Am I wasting precious time

> with repositioning ? Should I give repositioning more time or

> what ? I'm so worried...Any thoughts would be greatly appreciated.

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Thanks for your support it nice to know that I'm not alone out here.

Just had a question. How long does it usually take to get a band ? Assuming that you already have a perscription.

"stripes6060 <taime@...>" <taime@...> wrote:

Hi,Welcome to the group. First of all, it is entirely up to you whether or not you band your son! It's not the decision of your ped or neurosurgeon. The only thing your ped or the ns need to do is write you a script. They can't tell you, you can't band your baby!!!We have quite a few members that have used/use the Oakbrook CT. They all rave about it. While repositioning can correct plagio, it doesn't work for everyone! It is up to you if you want to continue to reposition or not. Does your son have torticollis, it's a tight neck muscle. Some babies have a tilt too. If you notice your son really only looks to one side it could be torticollis. When it comes to banding, the younger you band a baby the better and faster the correction will be. I am all for repositioning, if you're seeing improvement and the baby doesn't have torticollis. If not, you could very well be wasting your time. If you were to band your son now, you would most likely get 100% correction. It really makes me mad that your pediatricain told you to do nothing. How ignorant is he/she? I'm sorry if you think that is rude, but he really has no right telling parent to do nothing. He can't guarantee you that your son's plagio will correct on it's own. Some babies do round out but some babies don't. I think most don't.Like I said, it's YOUR decision to make, not your peds or the ns, if you want to band your son, do it!!No matter what you decide to do, you'll have our support. Please keep us posted and good luck.> I have a son that is 4 months old. We have taken him to my > pediatrician. My pediatrician told me his head would round out > eventually. He told me to stay offline and not to worry...he said > not to buy any positioners...he said not to do anything at all. > Anyways the first thing I did when I got home was made an > appointment with a neurosurgen. He said that same thing that > everything would be fine and just to start repositioning. So then I > proceeded to go to Cranial Tech in Oakbrook. They said to reposition > for a month and see how it goes. I feel like no one is taking my > concerns seriously. I have been repositioning for about 3wks and > haven't seen any changes good or bad. Am I wasting precious time > with repositioning ? Should I give repositioning more time or > what ? I'm so worried...Any thoughts would be greatly appreciated.For more plagio info

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Welcome to

the group! You are definitely not

alone. There seems to be so many

physicians out there who are simply not educated about tort and plagio and the

benefits of early intervention. A

band or helmet usually takes up to two weeks to get in after your little one

has been measured or “casted” for one.

They try to keep the window of time under two weeks because those little

brains are growing rapidly.

Have you

considered going to another pediatrician?

& JD (casted for DOCband)

TX

-----Original

Message-----

From: Rika Intriago

[mailto:rikasdylan@...]

Sent: Thursday, February 20, 2003

1:36 AM

Plagiocephaly

Subject: Re: Re: Parent

of plagio child/ Aurora, IL

Thanks for your support it nice to know

that I'm not alone out here.

Just had a question. How long does it

usually take to get a band ? Assuming that you already have a

perscription.

" stripes6060 <taime@...> "

<taime@...> wrote:

Hi,

Welcome to the group. First of all, it is entirely up to you whether

or not you band your son! It's not the decision of your ped or

neurosurgeon. The only thing your ped or the ns need to do is write

you a script. They can't tell you, you can't band your baby!!!

We have quite a few members that have used/use the Oakbrook CT. They

all rave about it. While repositioning can correct plagio, it doesn't

work for everyone! It is up to you if you want to continue to

reposition or not. Does your son have torticollis, it's a tight neck

muscle. Some babies have a tilt too. If you notice your son really

only looks to one side it could be torticollis.

When it comes to banding, the younger you band a baby the better and

faster the correction will be. I am all for repositioning, if you're

seeing improvement and the baby doesn't have torticollis. If not,

you could very well be wasting your time. If you were to band your

son now, you would most likely get 100% correction.

It really makes me mad that your pediatricain told you to do nothing.

How ignorant is he/she? I'm sorry if you think that is rude, but he

really has no right telling parent to do nothing. He can't guarantee

you that your son's plagio will correct on it's own. Some babies do

round out but some babies don't. I think most don't.

Like I said, it's YOUR decision to make, not your peds or the ns, if

you want to band your son, do it!!

No matter what you decide to do, you'll have our support. Please keep

us posted and good luck.

> I have a son that is 4 months old. We have taken him to my

> pediatrician. My pediatrician told me his head would round out

> eventually. He told me to stay offline and not to worry...he said

> not to buy any positioners...he said not to do anything at all.

> Anyways the first thing I did when I got home was made an

> appointment with a neurosurgen. He said that same thing that

> everything would be fine and just to start repositioning. So then I

> proceeded to go to Cranial Tech in Oakbrook. They said to

reposition

> for a month and see how it goes. I feel like no one is taking my

> concerns seriously. I have been repositioning for about 3wks and

> haven't seen any changes good or bad. Am I wasting precious time

> with repositioning ? Should I give repositioning more time or

> what ? I'm so worried...Any thoughts would be greatly appreciated.

For more plagio

info

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Welcome to the group!

A lot of us can relate to not having our concerns taken seriously by

doctors!

If CT said to try repositioning for a month, then I would follow

their advice. But, if it's been 3 weeks with no improvement, you

may want to call and set up another appointment. Did they take

pictures? Those will be great to see if there actually was any

improvement that you may not notice b/c you see him everyday.

My son was banded from 5-8 months. He had moderate plagio and got

pretty perfect correction, including his asymmetries. From the time

we made the decision to band him until he actually got his band was

2.5 weeks. But, I think our case was a bit faster than most. Our

ped didn't give us a problem with writing the script and never

ordered CT scans. Our insurance denied us within 3 business days,

so we didn't have to wait around for that.

If you are sure you want to go with the band, then just call them

now and get everything set up. Ask them to recommend a plagio

friendly doctor.

Dane's mom DOC Grad

> I have a son that is 4 months old. We have taken him to my

> pediatrician. My pediatrician told me his head would round out

> eventually. He told me to stay offline and not to worry...he said

> not to buy any positioners...he said not to do anything at all.

> Anyways the first thing I did when I got home was made an

> appointment with a neurosurgen. He said that same thing that

> everything would be fine and just to start repositioning. So then

I

> proceeded to go to Cranial Tech in Oakbrook. They said to

reposition

> for a month and see how it goes. I feel like no one is taking my

> concerns seriously. I have been repositioning for about 3wks and

> haven't seen any changes good or bad. Am I wasting precious time

> with repositioning ? Should I give repositioning more time or

> what ? I'm so worried...Any thoughts would be greatly appreciated.

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-- In Plagiocephaly , " rikasdylan <rikasdylan@y...> "

> <rikasdylan@y...> wrote:

> > I have a son that is 4 months old. We have taken him to my

> > pediatrician. My pediatrician told me his head would round out

> > eventually. He told me to stay offline and not to worry...he said

> > not to buy any positioners...he said not to do anything at all.

> >

WElcome to our group!

Heaven forbid you go on the internet & actually receive some

education regarding plagio! What a dope!! *sorry, that kinda

irritated me*

Good for you taking matters into your own hands! Too bad the neuro

also told you not to worry. Glad to hear you've already been to

Cranial Tech - we also got our daughter's band from the Oakbrook

office, rec'd great care!

They probably felt your son is young enough yet, that repositioning a

bit longer may benefit and avoid the need for a band. If you have

not seen any correction in 3 wks, you may want to call your ped again

and demand to have your concerns taken seriously - if he won't, then

find a new ped..

We all know how you feel. Your son is still at the perfect age to

get correctioon from a band and even repositioning yet. Good luck,

please let us know what happens.

Debbie Abby's mom DOCGrad

MI

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I'm sorry to hear of the resistance you have met. I'm appalled that

your ped didn't even recommend repositioning - that is terrible!

Repositioning is an excellent treatment option - it has worked

wonders for some of the parents/babies in this group.

Unfortunately it does not work for everyone. At 4 months you

could reposition for another month and then pursue the band.

Your baby would still be at a great starting age. If CT told you to

reposition for another month perhaps they think the plagio is

mild? Did they give any indication as to the severity? Also, was

torticollis mentioned? That condition can sometimes make

repositioning very difficult. Take a bunch of pictures from all

different angles if you haven't already done so and if you decide

to continue to repositioning take additional pictures frequently so

you can check progress.

I'm glad you have continued to pursue this despite the lack of

support you have received from the medical community. Hang in

there!

Marci (Mom to )

Oklahoma

> I have a son that is 4 months old. We have taken him to my

> pediatrician. My pediatrician told me his head would round out

> eventually. He told me to stay offline and not to worry...he said

> not to buy any positioners...he said not to do anything at all.

> Anyways the first thing I did when I got home was made an

> appointment with a neurosurgen. He said that same thing that

> everything would be fine and just to start repositioning. So then

I

> proceeded to go to Cranial Tech in Oakbrook. They said to

reposition

> for a month and see how it goes. I feel like no one is taking my

> concerns seriously. I have been repositioning for about 3wks

and

> haven't seen any changes good or bad. Am I wasting precious

time

> with repositioning ? Should I give repositioning more time or

> what ? I'm so worried...Any thoughts would be greatly

appreciated.

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Rika,

I emailed you my phone# since you are only a few towns away from me.

If you like you can call me or if you prefer you can email me off the

board.

Who knows maybe we will run into each other, like at the FoxValley

mall and you can see a Band Baby.

Take Care,

Heidi - mom to 7, 4-1/2 (DSI, Apraxia) 10-1/2

months (VUR, Tort/Plagio-DOC Banded 2/14/03)

> I have a son that is 4 months old. We have taken him to my

> pediatrician. My pediatrician told me his head would round out

> eventually. He told me to stay offline and not to worry...he said

> not to buy any positioners...he said not to do anything at all.

> Anyways the first thing I did when I got home was made an

> appointment with a neurosurgen. He said that same thing that

> everything would be fine and just to start repositioning. So then I

> proceeded to go to Cranial Tech in Oakbrook. They said to

reposition

> for a month and see how it goes. I feel like no one is taking my

> concerns seriously. I have been repositioning for about 3wks and

> haven't seen any changes good or bad. Am I wasting precious time

> with repositioning ? Should I give repositioning more time or

> what ? I'm so worried...Any thoughts would be greatly appreciated.

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Heidi,

What town are you from, I'm from Streamwood, and maybe we could together for a Banded Baby Brigade?

Robyn

"Heidi <saraibeth2@...>" <saraibeth2@...> wrote:

Rika,I emailed you my phone# since you are only a few towns away from me.If you like you can call me or if you prefer you can email me off the board. Who knows maybe we will run into each other, like at the FoxValley mall and you can see a Band Baby.Take Care,Heidi - mom to 7, 4-1/2 (DSI, Apraxia) 10-1/2 months (VUR, Tort/Plagio-DOC Banded 2/14/03) > I have a son that is 4 months old. We have taken him to my > pediatrician. My pediatrician told me his head would round out > eventually. He told me to stay offline and not to worry...he said > not to buy any positioners...he said not to do anything at all. > Anyways the first thing I did when I got home was made an > appointment with a neurosurgen. He said that same thing that > everything would be fine and just to start repositioning. So then I > proceeded to go to Cranial Tech in Oakbrook. They said to reposition > for a month and see how it goes. I feel like no one is taking my > concerns seriously. I have been repositioning for about 3wks and > haven't seen any changes good or bad. Am I wasting precious time > with repositioning ? Should I give repositioning more time or > what ? I'm so worried...Any thoughts would be greatly appreciated.For more plagio info

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