Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 , I hear you!!! Yesterday I was in another meeting with the school AGAIN.....having to explain why my kid is different when they're never going to understand her. I told my husband that I'm so sick of hearing, seeing, thinking, about the word autism that I could scream. Sometimes I want to run away and leave it all behind but I know it will follow me anywhere I go. I get sick of getting up each morning and starting the day off feeling like I have to gear up for another day of fighting someone about my kid, of having to help her do everything or of feeling guilty over whatever treatment I didn't try on her that just might have worked. Of feeling that if I just tried a littttttlllle harder she might have been better, knowing all the time that I'm doing the damn best I can just to keep it all in the middle of the road. Most days I take it all in stride but some days, man, I feel your pain!!!!!!!!!!! Diane ('s Mom) Does it ever end??? I'm tired. Tired of doing therapies. I'm tired of this whole thing. Usually I'm a very positive person and wouldn't change my kids issues at all. BUT did I tell you I'm TIRED. Just trying to make it to vacation, next month. Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? Tired of being one step ahead of early intervention for my son. Tired of PPT's and realizing what is not in the PPT. Getting summer services that are really just a band-aid to make it to the fall. Having the school not address personal hygiene issues because it's not academic. Gaining two feet to fall back 1 1/2 feet. I'm tired of it all. Trying to explain to family or strangers the things involved in evaluations, schools doctor's they thing your making something out of nothing. They try but truly have no clue what us parents deal with day in and day out. The struggle to get her hair brushed, to get them dresses finally only to have them spill something on themselves just as were leaving for the day. Knowing that your child won't take medicine at all sick or healthy, because she thinks your poisoning her. Having to worry about them leaving the house while your still in bed. (It happened this week). Worrying if she'll make a friend in school or be outcast because she's different and always talking to herself. Having to explain on the spur of the moment about what the doctor wants to do, and not having her understand so we need to restrain her. When does this stress stop. When does worrying about the future of your child, and, if they'll be able to function on their own. Will I ever be at piece with myself over decisions I made and didn't make about her school and development. Okay I'm done moaning. Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 , I hear you!!! Yesterday I was in another meeting with the school AGAIN.....having to explain why my kid is different when they're never going to understand her. I told my husband that I'm so sick of hearing, seeing, thinking, about the word autism that I could scream. Sometimes I want to run away and leave it all behind but I know it will follow me anywhere I go. I get sick of getting up each morning and starting the day off feeling like I have to gear up for another day of fighting someone about my kid, of having to help her do everything or of feeling guilty over whatever treatment I didn't try on her that just might have worked. Of feeling that if I just tried a littttttlllle harder she might have been better, knowing all the time that I'm doing the damn best I can just to keep it all in the middle of the road. Most days I take it all in stride but some days, man, I feel your pain!!!!!!!!!!! Diane ('s Mom) Does it ever end??? I'm tired. Tired of doing therapies. I'm tired of this whole thing. Usually I'm a very positive person and wouldn't change my kids issues at all. BUT did I tell you I'm TIRED. Just trying to make it to vacation, next month. Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? Tired of being one step ahead of early intervention for my son. Tired of PPT's and realizing what is not in the PPT. Getting summer services that are really just a band-aid to make it to the fall. Having the school not address personal hygiene issues because it's not academic. Gaining two feet to fall back 1 1/2 feet. I'm tired of it all. Trying to explain to family or strangers the things involved in evaluations, schools doctor's they thing your making something out of nothing. They try but truly have no clue what us parents deal with day in and day out. The struggle to get her hair brushed, to get them dresses finally only to have them spill something on themselves just as were leaving for the day. Knowing that your child won't take medicine at all sick or healthy, because she thinks your poisoning her. Having to worry about them leaving the house while your still in bed. (It happened this week). Worrying if she'll make a friend in school or be outcast because she's different and always talking to herself. Having to explain on the spur of the moment about what the doctor wants to do, and not having her understand so we need to restrain her. When does this stress stop. When does worrying about the future of your child, and, if they'll be able to function on their own. Will I ever be at piece with myself over decisions I made and didn't make about her school and development. Okay I'm done moaning. Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Wow, this makes me feel a bit better... My family is so great but sometimes they are too great (if there is such a thing.) They're always emailing, faxing, calling, & telling me what they've heard or seen on autism. Somedays I just want to have a day without hearing about the latest talk of autism. I want to curl up into my pretend world and let my daughter be happy playing by herself in our playroom or yard. Nice to know you are feeling similar. Jen Does it ever end??? I'm tired. Tired of doing therapies. I'm tired of this whole thing. Usually I'm a very positive person and wouldn't change my kids issues at all. BUT did I tell you I'm TIRED. Just trying to make it to vacation, next month. Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? Tired of being one step ahead of early intervention for my son. Tired of PPT's and realizing what is not in the PPT. Getting summer services that are really just a band-aid to make it to the fall. Having the school not address personal hygiene issues because it's not academic. Gaining two feet to fall back 1 1/2 feet. I'm tired of it all. Trying to explain to family or strangers the things involved in evaluations, schools doctor's they thing your making something out of nothing. They try but truly have no clue what us parents deal with day in and day out. The struggle to get her hair brushed, to get them dresses finally only to have them spill something on themselves just as were leaving for the day. Knowing that your child won't take medicine at all sick or healthy, because she thinks your poisoning her. Having to worry about them leaving the house while your still in bed. (It happened this week). Worrying if she'll make a friend in school or be outcast because she's different and always talking to herself. Having to explain on the spur of the moment about what the doctor wants to do, and not having her understand so we need to restrain her. When does this stress stop. When does worrying about the future of your child, and, if they'll be able to function on their own. Will I ever be at piece with myself over decisions I made and didn't make about her school and development. Okay I'm done moaning. Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Wow, this makes me feel a bit better... My family is so great but sometimes they are too great (if there is such a thing.) They're always emailing, faxing, calling, & telling me what they've heard or seen on autism. Somedays I just want to have a day without hearing about the latest talk of autism. I want to curl up into my pretend world and let my daughter be happy playing by herself in our playroom or yard. Nice to know you are feeling similar. Jen Does it ever end??? I'm tired. Tired of doing therapies. I'm tired of this whole thing. Usually I'm a very positive person and wouldn't change my kids issues at all. BUT did I tell you I'm TIRED. Just trying to make it to vacation, next month. Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? Tired of being one step ahead of early intervention for my son. Tired of PPT's and realizing what is not in the PPT. Getting summer services that are really just a band-aid to make it to the fall. Having the school not address personal hygiene issues because it's not academic. Gaining two feet to fall back 1 1/2 feet. I'm tired of it all. Trying to explain to family or strangers the things involved in evaluations, schools doctor's they thing your making something out of nothing. They try but truly have no clue what us parents deal with day in and day out. The struggle to get her hair brushed, to get them dresses finally only to have them spill something on themselves just as were leaving for the day. Knowing that your child won't take medicine at all sick or healthy, because she thinks your poisoning her. Having to worry about them leaving the house while your still in bed. (It happened this week). Worrying if she'll make a friend in school or be outcast because she's different and always talking to herself. Having to explain on the spur of the moment about what the doctor wants to do, and not having her understand so we need to restrain her. When does this stress stop. When does worrying about the future of your child, and, if they'll be able to function on their own. Will I ever be at piece with myself over decisions I made and didn't make about her school and development. Okay I'm done moaning. Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2005 Report Share Posted August 16, 2005 Wow, this makes me feel a bit better... My family is so great but sometimes they are too great (if there is such a thing.) They're always emailing, faxing, calling, & telling me what they've heard or seen on autism. Somedays I just want to have a day without hearing about the latest talk of autism. I want to curl up into my pretend world and let my daughter be happy playing by herself in our playroom or yard. Nice to know you are feeling similar. Jen Does it ever end??? I'm tired. Tired of doing therapies. I'm tired of this whole thing. Usually I'm a very positive person and wouldn't change my kids issues at all. BUT did I tell you I'm TIRED. Just trying to make it to vacation, next month. Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? Tired of being one step ahead of early intervention for my son. Tired of PPT's and realizing what is not in the PPT. Getting summer services that are really just a band-aid to make it to the fall. Having the school not address personal hygiene issues because it's not academic. Gaining two feet to fall back 1 1/2 feet. I'm tired of it all. Trying to explain to family or strangers the things involved in evaluations, schools doctor's they thing your making something out of nothing. They try but truly have no clue what us parents deal with day in and day out. The struggle to get her hair brushed, to get them dresses finally only to have them spill something on themselves just as were leaving for the day. Knowing that your child won't take medicine at all sick or healthy, because she thinks your poisoning her. Having to worry about them leaving the house while your still in bed. (It happened this week). Worrying if she'll make a friend in school or be outcast because she's different and always talking to herself. Having to explain on the spur of the moment about what the doctor wants to do, and not having her understand so we need to restrain her. When does this stress stop. When does worrying about the future of your child, and, if they'll be able to function on their own. Will I ever be at piece with myself over decisions I made and didn't make about her school and development. Okay I'm done moaning. Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 >>have a dog who i KNOW wishes we never brought her to this >>crazy house.. , this made me laugh. ) I know the expression the dogs can get, especially smack dab in the middle of a tantrum. My girls <the canine variety> used to crawl over to the kids to lick them when they were throwing fits. Way back when - this worked for them in that even if the child didn't care about it, they seemed to want to do it and felt better doing it than not. As my girls <the skin variety> got older, and their tantrums oftentimes truly nasty and dangerous, the dogs tried the same thing. Well - - they learned real quick that coming near a child flailing on the ground is not a pleasant experience. Now, they all sit by the vicinity with the expression I imagine your dog wears while living in your house. Then again - - many, many times I get through the day because of my dogs. I will sometimes hire a sitter just to go play ball with the dogs. There is something so simple and beautiful in tossing a ball, having a dog run at full speed, ears pulled back, catch it in mid-air and bring it back to you because it's their lives' highlight and joy to have you chuck a ball for them. Sometimes, I feel, " FINALLY.... Something I can do right! " By the way - no matter what it looks like, your dog does NOT wish that!! LOL! ..so YES i so feel this way all the time...autism >>24 hrs a day, all the time...how can it not be, i'm trapped >>by it...on top, we have NO family support whatsoever...life's >>probably about as hard as it can get...i just pray everyday >>for the strength to get thru the day...that's all i ever pray >>for...and SOMEHOW i've made it this long...know u are NOT alone.... Me too. Grace Home of the Working German Shepherd www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 >>have a dog who i KNOW wishes we never brought her to this >>crazy house.. , this made me laugh. ) I know the expression the dogs can get, especially smack dab in the middle of a tantrum. My girls <the canine variety> used to crawl over to the kids to lick them when they were throwing fits. Way back when - this worked for them in that even if the child didn't care about it, they seemed to want to do it and felt better doing it than not. As my girls <the skin variety> got older, and their tantrums oftentimes truly nasty and dangerous, the dogs tried the same thing. Well - - they learned real quick that coming near a child flailing on the ground is not a pleasant experience. Now, they all sit by the vicinity with the expression I imagine your dog wears while living in your house. Then again - - many, many times I get through the day because of my dogs. I will sometimes hire a sitter just to go play ball with the dogs. There is something so simple and beautiful in tossing a ball, having a dog run at full speed, ears pulled back, catch it in mid-air and bring it back to you because it's their lives' highlight and joy to have you chuck a ball for them. Sometimes, I feel, " FINALLY.... Something I can do right! " By the way - no matter what it looks like, your dog does NOT wish that!! LOL! ..so YES i so feel this way all the time...autism >>24 hrs a day, all the time...how can it not be, i'm trapped >>by it...on top, we have NO family support whatsoever...life's >>probably about as hard as it can get...i just pray everyday >>for the strength to get thru the day...that's all i ever pray >>for...and SOMEHOW i've made it this long...know u are NOT alone.... Me too. Grace Home of the Working German Shepherd www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 >>have a dog who i KNOW wishes we never brought her to this >>crazy house.. , this made me laugh. ) I know the expression the dogs can get, especially smack dab in the middle of a tantrum. My girls <the canine variety> used to crawl over to the kids to lick them when they were throwing fits. Way back when - this worked for them in that even if the child didn't care about it, they seemed to want to do it and felt better doing it than not. As my girls <the skin variety> got older, and their tantrums oftentimes truly nasty and dangerous, the dogs tried the same thing. Well - - they learned real quick that coming near a child flailing on the ground is not a pleasant experience. Now, they all sit by the vicinity with the expression I imagine your dog wears while living in your house. Then again - - many, many times I get through the day because of my dogs. I will sometimes hire a sitter just to go play ball with the dogs. There is something so simple and beautiful in tossing a ball, having a dog run at full speed, ears pulled back, catch it in mid-air and bring it back to you because it's their lives' highlight and joy to have you chuck a ball for them. Sometimes, I feel, " FINALLY.... Something I can do right! " By the way - no matter what it looks like, your dog does NOT wish that!! LOL! ..so YES i so feel this way all the time...autism >>24 hrs a day, all the time...how can it not be, i'm trapped >>by it...on top, we have NO family support whatsoever...life's >>probably about as hard as it can get...i just pray everyday >>for the strength to get thru the day...that's all i ever pray >>for...and SOMEHOW i've made it this long...know u are NOT alone.... Me too. Grace Home of the Working German Shepherd www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I just wanted to share a happy story, speaking of dogs... I took my 2 yorkies to play at a friend's house...she has 4 kids, 2 boys and 2 girls, both boys are on the spectrum, the oldest severly impaired. Anyway, my male dog, Bradley, is a hyperactive little thing most of the time, but when Beck, the oldest boy, picked up Bradley's ball, he totally calmed down. If anyone else touched that ball, he'd be jumping and barking all over them, but when Beck had it, Bradley followed him around queitly until Beck decided to throw it. Them he ran and brought it right back to him, practically pushing it into his hand! Beck was delighted, and it was just so cute watching them interacting in a totally new way for both of them. I think dogs are a wonderful addition to any family, and I'm sure your dogs wouldn't trade you for the world! Mine drive me nuts sometimes, and my son drived them nuts sometimes, but then we have a good day like we did with Beck, and I'm glad I have them. Amnesty > > >>have a dog who i KNOW wishes we never brought her to this > >>crazy house.. > > > , this made me laugh. ) > I know the expression the dogs can get, especially smack dab in the middle > of a tantrum. My girls <the canine variety> used to crawl over to the kids > to lick them when they were throwing fits. Way back when - this worked for > them in that even if the child didn't care about it, they seemed to want to > do it and felt better doing it than not. > As my girls <the skin variety> got older, and their tantrums oftentimes > truly nasty and dangerous, the dogs tried the same thing. Well - - they > learned real quick that coming near a child flailing on the ground is not a > pleasant experience. Now, they all sit by the vicinity with the expression > I imagine your dog wears while living in your house. > > Then again - - many, many times I get through the day because of my dogs. I > will sometimes hire a sitter just to go play ball with the dogs. There is > something so simple and beautiful in tossing a ball, having a dog run at > full speed, ears pulled back, catch it in mid-air and bring it back to you > because it's their lives' highlight and joy to have you chuck a ball for > them. > Sometimes, I feel, " FINALLY.... Something I can do right! " > > By the way - no matter what it looks like, your dog does NOT wish that!! > LOL! > > > .so YES i so feel this way all the time...autism > >>24 hrs a day, all the time...how can it not be, i'm trapped > >>by it...on top, we have NO family support whatsoever...life's > >>probably about as hard as it can get...i just pray everyday > >>for the strength to get thru the day...that's all i ever pray > >>for...and SOMEHOW i've made it this long...know u are NOT alone.... > > Me too. > > > Grace > Home of the Working German Shepherd > www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I just wanted to share a happy story, speaking of dogs... I took my 2 yorkies to play at a friend's house...she has 4 kids, 2 boys and 2 girls, both boys are on the spectrum, the oldest severly impaired. Anyway, my male dog, Bradley, is a hyperactive little thing most of the time, but when Beck, the oldest boy, picked up Bradley's ball, he totally calmed down. If anyone else touched that ball, he'd be jumping and barking all over them, but when Beck had it, Bradley followed him around queitly until Beck decided to throw it. Them he ran and brought it right back to him, practically pushing it into his hand! Beck was delighted, and it was just so cute watching them interacting in a totally new way for both of them. I think dogs are a wonderful addition to any family, and I'm sure your dogs wouldn't trade you for the world! Mine drive me nuts sometimes, and my son drived them nuts sometimes, but then we have a good day like we did with Beck, and I'm glad I have them. Amnesty > > >>have a dog who i KNOW wishes we never brought her to this > >>crazy house.. > > > , this made me laugh. ) > I know the expression the dogs can get, especially smack dab in the middle > of a tantrum. My girls <the canine variety> used to crawl over to the kids > to lick them when they were throwing fits. Way back when - this worked for > them in that even if the child didn't care about it, they seemed to want to > do it and felt better doing it than not. > As my girls <the skin variety> got older, and their tantrums oftentimes > truly nasty and dangerous, the dogs tried the same thing. Well - - they > learned real quick that coming near a child flailing on the ground is not a > pleasant experience. Now, they all sit by the vicinity with the expression > I imagine your dog wears while living in your house. > > Then again - - many, many times I get through the day because of my dogs. I > will sometimes hire a sitter just to go play ball with the dogs. There is > something so simple and beautiful in tossing a ball, having a dog run at > full speed, ears pulled back, catch it in mid-air and bring it back to you > because it's their lives' highlight and joy to have you chuck a ball for > them. > Sometimes, I feel, " FINALLY.... Something I can do right! " > > By the way - no matter what it looks like, your dog does NOT wish that!! > LOL! > > > .so YES i so feel this way all the time...autism > >>24 hrs a day, all the time...how can it not be, i'm trapped > >>by it...on top, we have NO family support whatsoever...life's > >>probably about as hard as it can get...i just pray everyday > >>for the strength to get thru the day...that's all i ever pray > >>for...and SOMEHOW i've made it this long...know u are NOT alone.... > > Me too. > > > Grace > Home of the Working German Shepherd > www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I just wanted to share a happy story, speaking of dogs... I took my 2 yorkies to play at a friend's house...she has 4 kids, 2 boys and 2 girls, both boys are on the spectrum, the oldest severly impaired. Anyway, my male dog, Bradley, is a hyperactive little thing most of the time, but when Beck, the oldest boy, picked up Bradley's ball, he totally calmed down. If anyone else touched that ball, he'd be jumping and barking all over them, but when Beck had it, Bradley followed him around queitly until Beck decided to throw it. Them he ran and brought it right back to him, practically pushing it into his hand! Beck was delighted, and it was just so cute watching them interacting in a totally new way for both of them. I think dogs are a wonderful addition to any family, and I'm sure your dogs wouldn't trade you for the world! Mine drive me nuts sometimes, and my son drived them nuts sometimes, but then we have a good day like we did with Beck, and I'm glad I have them. Amnesty > > >>have a dog who i KNOW wishes we never brought her to this > >>crazy house.. > > > , this made me laugh. ) > I know the expression the dogs can get, especially smack dab in the middle > of a tantrum. My girls <the canine variety> used to crawl over to the kids > to lick them when they were throwing fits. Way back when - this worked for > them in that even if the child didn't care about it, they seemed to want to > do it and felt better doing it than not. > As my girls <the skin variety> got older, and their tantrums oftentimes > truly nasty and dangerous, the dogs tried the same thing. Well - - they > learned real quick that coming near a child flailing on the ground is not a > pleasant experience. Now, they all sit by the vicinity with the expression > I imagine your dog wears while living in your house. > > Then again - - many, many times I get through the day because of my dogs. I > will sometimes hire a sitter just to go play ball with the dogs. There is > something so simple and beautiful in tossing a ball, having a dog run at > full speed, ears pulled back, catch it in mid-air and bring it back to you > because it's their lives' highlight and joy to have you chuck a ball for > them. > Sometimes, I feel, " FINALLY.... Something I can do right! " > > By the way - no matter what it looks like, your dog does NOT wish that!! > LOL! > > > .so YES i so feel this way all the time...autism > >>24 hrs a day, all the time...how can it not be, i'm trapped > >>by it...on top, we have NO family support whatsoever...life's > >>probably about as hard as it can get...i just pray everyday > >>for the strength to get thru the day...that's all i ever pray > >>for...and SOMEHOW i've made it this long...know u are NOT alone.... > > Me too. > > > Grace > Home of the Working German Shepherd > www.vomtauglichkeit.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 In a message dated 8/17/2005 7:07:06 AM Central Daylight Time, bubbetta@... writes: but the little bit of change has just been huge! Penny, i am so glad u posted about RDI...i have been reading up on it and have found a consultant who has time to travel to develop and oversee a program if we choose to do it...what else can you tell me about it??? thanks so much.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 In a message dated 8/17/2005 7:07:06 AM Central Daylight Time, bubbetta@... writes: but the little bit of change has just been huge! Penny, i am so glad u posted about RDI...i have been reading up on it and have found a consultant who has time to travel to develop and oversee a program if we choose to do it...what else can you tell me about it??? thanks so much.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 In a message dated 8/17/2005 7:07:06 AM Central Daylight Time, bubbetta@... writes: but the little bit of change has just been huge! Penny, i am so glad u posted about RDI...i have been reading up on it and have found a consultant who has time to travel to develop and oversee a program if we choose to do it...what else can you tell me about it??? thanks so much.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Our home ABA program kinda fell apart last fall. Not something I wanted, but when your people leave you for clinics, you don't have a choice. We'd just learned about RDI, and I was at a point where I could pull my ABA program back together in six months just as easily as I could at the time, and I decided to give RDI a try. Having our ABA program fall apart was one of the biggest blessings! We're barely (BARELY!) in Stage 1 of RDI (after almost a year--RDI is slower than ABA, because the development happens in order, from the social and emotional side, and takes as long as it takes), but the little bit of change has just been huge! We're seeing flexibility like we've never seen before, and big decrease in meltdowns. Additionally, referencing is beginning to emerge, and she's FINALLY following non-verbal cues (something that never happened in over 3 years of intense ABA). RDI is a powerful intervention, putting big tools in the hands of parents. We're more relaxed as a family, and have quit stressing over the " race " . Penny > I'm tired. Tired of doing therapies. I'm tired of this whole > thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Our home ABA program kinda fell apart last fall. Not something I wanted, but when your people leave you for clinics, you don't have a choice. We'd just learned about RDI, and I was at a point where I could pull my ABA program back together in six months just as easily as I could at the time, and I decided to give RDI a try. Having our ABA program fall apart was one of the biggest blessings! We're barely (BARELY!) in Stage 1 of RDI (after almost a year--RDI is slower than ABA, because the development happens in order, from the social and emotional side, and takes as long as it takes), but the little bit of change has just been huge! We're seeing flexibility like we've never seen before, and big decrease in meltdowns. Additionally, referencing is beginning to emerge, and she's FINALLY following non-verbal cues (something that never happened in over 3 years of intense ABA). RDI is a powerful intervention, putting big tools in the hands of parents. We're more relaxed as a family, and have quit stressing over the " race " . Penny > I'm tired. Tired of doing therapies. I'm tired of this whole > thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 Our home ABA program kinda fell apart last fall. Not something I wanted, but when your people leave you for clinics, you don't have a choice. We'd just learned about RDI, and I was at a point where I could pull my ABA program back together in six months just as easily as I could at the time, and I decided to give RDI a try. Having our ABA program fall apart was one of the biggest blessings! We're barely (BARELY!) in Stage 1 of RDI (after almost a year--RDI is slower than ABA, because the development happens in order, from the social and emotional side, and takes as long as it takes), but the little bit of change has just been huge! We're seeing flexibility like we've never seen before, and big decrease in meltdowns. Additionally, referencing is beginning to emerge, and she's FINALLY following non-verbal cues (something that never happened in over 3 years of intense ABA). RDI is a powerful intervention, putting big tools in the hands of parents. We're more relaxed as a family, and have quit stressing over the " race " . Penny > I'm tired. Tired of doing therapies. I'm tired of this whole > thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I sometimes wish we could live in a sheltered community together so we can take care of each other. I want to offer help to you. Continue to vent, we're listening. Re: Does it ever end??? In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I sometimes wish we could live in a sheltered community together so we can take care of each other. I want to offer help to you. Continue to vent, we're listening. Re: Does it ever end??? In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I sometimes wish we could live in a sheltered community together so we can take care of each other. I want to offer help to you. Continue to vent, we're listening. Re: Does it ever end??? In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Amen to that sentiment! (: Re: Does it ever end??? I sometimes wish we could live in a sheltered community together so we can take care of each other. I want to offer help to you. Continue to vent, we're listening. Re: Does it ever end??? In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Amen to that sentiment! (: Re: Does it ever end??? I sometimes wish we could live in a sheltered community together so we can take care of each other. I want to offer help to you. Continue to vent, we're listening. Re: Does it ever end??? In a message dated 8/16/2005 10:00:04 AM Central Daylight Time, no_reply writes: Did anyone just get so tired of Dr. Appointments, supplements, therapies, behaviors, understanding and discipline of their children???? You know, i believe someone has a need to vent on the list b/c there might be many others feeling the same exact way and they need to hear they're not alone...i believe that's what ur email has done...YES YES YES i feel this way almost every day...no, i lied, i DO feel this way EVERY day...i have 3 kiddos under 5 with autism...2 of them have IEPs, one we're suing the school district and going to due process in 3 weeks, 2 are still getting IFSPs b/c a dev. center didn't provide them therapy for a whole year and we won due processes against our state's birth-3yr old programs b/c of that (so more lawyers and 2 different court hearings), and i have another child with an IFSP...adds up to having mtgs all the time...i have 2 kiddos at home getting aba programs...40hrs/ each every week...there are always, at minimum, 3 therapists in my house at any given time...talk about no privacy...i do everything with our kids autism as my husband now works 2 jobs to pay for extra therapies...so i am home alone with the kids by myself alot on weekends and in the evenings...i have one child that's smearing poop everywhere, another child that goes crazy trying to find pens to write on anything with, and another child that needs constant attention or else i hear " mom " every 3 seconds...i have a dog who i KNOW wishes we never brought her to this crazy house...so YES i so feel this way all the time...autism 24 hrs a day, all the time...how can it not be, i'm trapped by it...on top, we have NO family support whatsoever...life's probably about as hard as it can get...i just pray everyday for the strength to get thru the day...that's all i ever pray for...and SOMEHOW i've made it this long...know u are NOT alone.... in Missouri Quote Link to comment Share on other sites More sharing options...
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