RE: Re: Autonomic Testing Q please

[Guest guest]

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before handTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

In a message dated 05/02/2012 11:55:46 GMT Standard Time, sarahziegel@... writes:

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.--- In Autism-Biomedical-Europe , Mum231ASD@... wrote:>> > > In a message dated 04/02/2012 23:28:05 GMT Standard Time, > neno@... writes:> > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that †" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20†" 30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

6 months wait! Oh God… :(Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 13:44:40 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Autonomic Testing Q please

Not sure but DG said he would not use sedation for Sam...................maybe has do with seizures, he is quite excited that we are considering Lamotragine and making Rx anti viral plans. ,Was referred urgently to Paed neuro on 14th Jan and have just had app for middle of June.......................sigh Mx

Was the sedation oral or IV? -- we recently did oral/drink for tooth extraction, and had no problems. Very quick recovery.

Also wondering if sedation would not mess up the readings, or are they aware and know what to ignore on tests as would be due to sedation?

Natasa

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 15:31:29 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Re: Autonomic Testing Q please

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before hand

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.>> > > > > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that â€" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20â€"30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

6 months wait! Oh God… :(Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 13:44:40 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Autonomic Testing Q please

Not sure but DG said he would not use sedation for Sam...................maybe has do with seizures, he is quite excited that we are considering Lamotragine and making Rx anti viral plans. ,Was referred urgently to Paed neuro on 14th Jan and have just had app for middle of June.......................sigh Mx

Was the sedation oral or IV? -- we recently did oral/drink for tooth extraction, and had no problems. Very quick recovery.

Also wondering if sedation would not mess up the readings, or are they aware and know what to ignore on tests as would be due to sedation?

Natasa

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 15:31:29 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Re: Autonomic Testing Q please

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before hand

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.>> > > > > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that â€" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20â€"30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

He had 2 in a day on Monday, second one smashed his temple on hardwood door jam as he went down, lump bigger than an egg hanging out, yellow green and black eye now and still has lump but not as big as before. But had been 7 weeks without any which is longest he has been since they started

Mx

6 months wait! Oh God…

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 13:44:40 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Autonomic Testing Q please

Not sure but DG said he would not use sedation for Sam...................maybe has do with seizures, he is quite excited that we are considering Lamotragine and making Rx anti viral plans. ,Was referred urgently to Paed neuro on 14th Jan and have just had app for middle of June.......................sigh

Mx

Was the sedation oral or IV? -- we recently did oral/drink for tooth extraction, and had no problems. Very quick recovery.

Also wondering if sedation would not mess up the readings, or are they aware and know what to ignore on tests as would be due to sedation?

Natasa

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 15:31:29 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Re: Autonomic Testing Q please

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before hand

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.>> > > > > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that â€" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20â€"30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

He had 2 in a day on Monday, second one smashed his temple on hardwood door jam as he went down, lump bigger than an egg hanging out, yellow green and black eye now and still has lump but not as big as before. But had been 7 weeks without any which is longest he has been since they started

Mx

6 months wait! Oh God…

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 13:44:40 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Autonomic Testing Q please

Not sure but DG said he would not use sedation for Sam...................maybe has do with seizures, he is quite excited that we are considering Lamotragine and making Rx anti viral plans. ,Was referred urgently to Paed neuro on 14th Jan and have just had app for middle of June.......................sigh

Mx

Was the sedation oral or IV? -- we recently did oral/drink for tooth extraction, and had no problems. Very quick recovery.

Also wondering if sedation would not mess up the readings, or are they aware and know what to ignore on tests as would be due to sedation?

Natasa

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 15:31:29 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Re: Autonomic Testing Q please

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before hand

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.>> > > > > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that â€" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20â€"30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

He had 2 in a day on Monday, second one smashed his temple on hardwood door jam as he went down, lump bigger than an egg hanging out, yellow green and black eye now and still has lump but not as big as before. But had been 7 weeks without any which is longest he has been since they started

Mx

6 months wait! Oh God…

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 13:44:40 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Autonomic Testing Q please

Not sure but DG said he would not use sedation for Sam...................maybe has do with seizures, he is quite excited that we are considering Lamotragine and making Rx anti viral plans. ,Was referred urgently to Paed neuro on 14th Jan and have just had app for middle of June.......................sigh

Mx

Was the sedation oral or IV? -- we recently did oral/drink for tooth extraction, and had no problems. Very quick recovery.

Also wondering if sedation would not mess up the readings, or are they aware and know what to ignore on tests as would be due to sedation?

Natasa

Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Sun, 5 Feb 2012 15:31:29 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: Re: Autonomic Testing Q please

We had the full autonomic with sedation at the Breakspear but DS 3 hrs old took two days to recover so not happy to repeat with the sedation.for the follow up one no sedation and no compliance!! They did not charge us but still worth checking before hand

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 5 Feb 2012 10:26:07 -0500Subject: Re: Re: Autonomic Testing Q please

i WONDER IF THEY STILL CHARGE YOU IF YOU HAVE TO ABORT THROUGH NON COMPLIANCE?

mX

Its very similar to having a chest ECG if you know what that is like? Its leads on sticky pads on the chest and the finger monitor. gets upset by the sticky pads coming off and by having to stop talking (he talks incessantly) and by having to keep still. But it is not painful at all and not frightening. I think Dr Goyal is trying to assess how irritable the brain is, will be having his third in 6 months during half term as he wants to see if removing strep has helped.>> > > > > That would be the Full Autonomic Test, full version and expensive. We did > the basic version of that â€" called Baseline autonomic profile or something > similar. This baseline costs around £200 - is this what you should be > having?> > >>Just the baseline one> > > > They don't do any tilt tables or maneuvers in Baseline version, it only > involves lying or sitting very still for 20â€"30 minutes, with bits (small > suction cups) attached to stomach, shoulder, and one clip on middle finger, > feeding the monitor. So not really easy or possible if child won't sit still, > but they are not asked to 'do' anything. Helps to bring a portable DVD, but > if watching something exciting that can mess up readings so they ask you > to switch off or turn volume down… Is there anything else that would help > sit still you think, something to listen to on headphones?> > >>Watching DVD's does make him kinda excited, jolly and thought when it > was suggested that if I bring who does his TST, he would lay down still > for her but whether she wants to get up at 6.00am and come with me on a > Saturday is another thing................hmmmmmmmmmmmm> Thanks for help> Mandi x>

[Guest guest]

Don;t want one, waste of time as he would need sedated, they should have done one on Monday when we were in A & E and he was still spacey from seizure but that would have made too much sense, 4.5 hours just to shine torch in his eyes, don't get me started!

Mx

get them to do an EEG before you have seen the neuro. The paed might be able to order one.Margaret> >> > > > > > In a message dated 04/02/2012 23:28:05 GMT Standard Time, > > neno@ writes:> > > > That would be the Full Autonomic Test, full version and expensive. We > did > > the basic version of that â€" called Baseline autonomic profile or > something > > similar. This baseline costs around £200 - is this what you should be > > having?> > > > >>Just the baseline one> > > > > > > > They don't do any tilt tables or maneuvers in Baseline version, it only > > involves lying or sitting very still for 20â€"30 minutes, with bits > (small > > suction cups) attached to stomach, shoulder, and one clip on middle > finger, > > feeding the monitor. So not really easy or possible if child won't sit > still, > > but they are not asked to 'do' anything. Helps to bring a portable DVD, > but > > if watching something exciting that can mess up readings so they ask you > > to switch off or turn volume down… Is there anything else that would > help > > sit still you think, something to listen to on headphones?> > > > >>Watching DVD's does make him kinda excited, jolly and thought when it > > was suggested that if I bring who does his TST, he would lay down > still > > for her but whether she wants to get up at 6.00am and come with me on a > > Saturday is another thing................hmmmmmmmmmmmm> > Thanks for help> > Mandi x> >>

[Guest guest]

Don;t want one, waste of time as he would need sedated, they should have done one on Monday when we were in A & E and he was still spacey from seizure but that would have made too much sense, 4.5 hours just to shine torch in his eyes, don't get me started!

Mx

get them to do an EEG before you have seen the neuro. The paed might be able to order one.Margaret> >> > > > > > In a message dated 04/02/2012 23:28:05 GMT Standard Time, > > neno@ writes:> > > > That would be the Full Autonomic Test, full version and expensive. We > did > > the basic version of that â€" called Baseline autonomic profile or > something > > similar. This baseline costs around £200 - is this what you should be > > having?> > > > >>Just the baseline one> > > > > > > > They don't do any tilt tables or maneuvers in Baseline version, it only > > involves lying or sitting very still for 20â€"30 minutes, with bits > (small > > suction cups) attached to stomach, shoulder, and one clip on middle > finger, > > feeding the monitor. So not really easy or possible if child won't sit > still, > > but they are not asked to 'do' anything. Helps to bring a portable DVD, > but > > if watching something exciting that can mess up readings so they ask you > > to switch off or turn volume down… Is there anything else that would > help > > sit still you think, something to listen to on headphones?> > > > >>Watching DVD's does make him kinda excited, jolly and thought when it > > was suggested that if I bring who does his TST, he would lay down > still > > for her but whether she wants to get up at 6.00am and come with me on a > > Saturday is another thing................hmmmmmmmmmmmm> > Thanks for help> > Mandi x> >>