Re: Am I wasting my money at Breakspear - strep titers?

[Guest guest]

Hi Christiane,

Did you see any benefits whilst using the antibiotics ?

There was a very recent thread entitled 'OCD Saving Sammy'.... Sandy

had success fighting gamma strep with oregano oil.

Hi all,

We had a lot of tests done at Breakspear and the strep

titer came back high (400, normal range 0-200), so Dr.

Goyal had us do a 7 week course of antibiotics

(zytromycin). Now 3 months later the next test reveals the

titer is still the same, but in addition we had the

yeasty-beasty come back (after 4 years of freedom!).

Giggling etc is really impacting school work and I have

started giving coconut oil, but will probably need

something stronger.

I feel like I wasted my money and we are worse off than

before overall.

Sorry for the rant, but needed to vent – and would be

quite thankful if anybody has experience in getting the

strep titers down.

Christiane

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4765 - Release Date:

01/25/12

[Guest guest]

Hi Christiane,

Did you see any benefits whilst using the antibiotics ?

There was a very recent thread entitled 'OCD Saving Sammy'.... Sandy

had success fighting gamma strep with oregano oil.

Hi all,

We had a lot of tests done at Breakspear and the strep

titer came back high (400, normal range 0-200), so Dr.

Goyal had us do a 7 week course of antibiotics

(zytromycin). Now 3 months later the next test reveals the

titer is still the same, but in addition we had the

yeasty-beasty come back (after 4 years of freedom!).

Giggling etc is really impacting school work and I have

started giving coconut oil, but will probably need

something stronger.

I feel like I wasted my money and we are worse off than

before overall.

Sorry for the rant, but needed to vent – and would be

quite thankful if anybody has experience in getting the

strep titers down.

Christiane

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4765 - Release Date:

01/25/12

[Guest guest]

Hi Christiane,

Did you see any benefits whilst using the antibiotics ?

There was a very recent thread entitled 'OCD Saving Sammy'.... Sandy

had success fighting gamma strep with oregano oil.

Hi all,

We had a lot of tests done at Breakspear and the strep

titer came back high (400, normal range 0-200), so Dr.

Goyal had us do a 7 week course of antibiotics

(zytromycin). Now 3 months later the next test reveals the

titer is still the same, but in addition we had the

yeasty-beasty come back (after 4 years of freedom!).

Giggling etc is really impacting school work and I have

started giving coconut oil, but will probably need

something stronger.

I feel like I wasted my money and we are worse off than

before overall.

Sorry for the rant, but needed to vent – and would be

quite thankful if anybody has experience in getting the

strep titers down.

Christiane

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4765 - Release Date:

01/25/12

[Guest guest]

Breakspeare make their money by trying to convince you to do tests....

To: Autism-Biomedical-Europe From: peteandlindajohnson@...Date: Fri, 27 Jan 2012 11:47:44 +0000Subject: Re: Am I wasting my money at Breakspear - strep titers?

Hi Christiane,Did you see any benefits whilst using the antibiotics ?There was a very recent thread entitled 'OCD Saving Sammy'.... Sandy had success fighting gamma strep with oregano oil.

Hi all,We had a lot of tests done at Breakspear and the strep titer came back high (400, normal range 0-200), so Dr. Goyal had us do a 7 week course of antibiotics (zytromycin). Now 3 months later the next test reveals the titer is still the same, but in addition we had the yeasty-beasty come back (after 4 years of freedom!). Giggling etc is really impacting school work and I have started giving coconut oil, but will probably need something stronger.I feel like I wasted my money and we are worse off than before overall.Sorry for the rant, but needed to vent – and would be quite thankful if anybody has experience in getting the strep titers down.Christiane

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1901 / Virus Database: 2109/4765 - Release Date: 01/25/12

[Guest guest]

Breakspeare make their money by trying to convince you to do tests....

To: Autism-Biomedical-Europe From: peteandlindajohnson@...Date: Fri, 27 Jan 2012 11:47:44 +0000Subject: Re: Am I wasting my money at Breakspear - strep titers?

Hi Christiane,Did you see any benefits whilst using the antibiotics ?There was a very recent thread entitled 'OCD Saving Sammy'.... Sandy had success fighting gamma strep with oregano oil.

Hi all,We had a lot of tests done at Breakspear and the strep titer came back high (400, normal range 0-200), so Dr. Goyal had us do a 7 week course of antibiotics (zytromycin). Now 3 months later the next test reveals the titer is still the same, but in addition we had the yeasty-beasty come back (after 4 years of freedom!). Giggling etc is really impacting school work and I have started giving coconut oil, but will probably need something stronger.I feel like I wasted my money and we are worse off than before overall.Sorry for the rant, but needed to vent – and would be quite thankful if anybody has experience in getting the strep titers down.Christiane

No virus found in this message.Checked by AVG - www.avg.comVersion: 2012.0.1901 / Virus Database: 2109/4765 - Release Date: 01/25/12

[Guest guest]

Christianne,

Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

This is hypothetical, but I don't know when you had the titre taken for 400. I

took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

In my case the test was absolutely necessary and helped me get my child back on

track.

Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@....

you are entitled to your opinion. This is mine. Glad I did the test and

others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

Don't get the hump with me over this , I haven't got the hump with you over

it, but if you have a go at the Breakspear where does that leave the rest of us

if they shut down?

I am sorry you have had so much to contend with Christianne, I really am.

Eileen (and )

[Guest guest]

Christianne,

Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

This is hypothetical, but I don't know when you had the titre taken for 400. I

took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

In my case the test was absolutely necessary and helped me get my child back on

track.

Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@....

you are entitled to your opinion. This is mine. Glad I did the test and

others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

Don't get the hump with me over this , I haven't got the hump with you over

it, but if you have a go at the Breakspear where does that leave the rest of us

if they shut down?

I am sorry you have had so much to contend with Christianne, I really am.

Eileen (and )

[Guest guest]

Christianne,

Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

This is hypothetical, but I don't know when you had the titre taken for 400. I

took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

In my case the test was absolutely necessary and helped me get my child back on

track.

Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@....

you are entitled to your opinion. This is mine. Glad I did the test and

others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

Don't get the hump with me over this , I haven't got the hump with you over

it, but if you have a go at the Breakspear where does that leave the rest of us

if they shut down?

I am sorry you have had so much to contend with Christianne, I really am.

Eileen (and )

[Guest guest]

Christianne the comment which begins with " Natasa posted on here " is meant for

's point. It is not directed at you. Hope you're not mad. I'm just sorry

for any kid who might be dealing with this, because I've seen what it did to

mine.

All best

Eileen

>

> Christianne,

>

> Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

>

> It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

>

> The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

>

> This is hypothetical, but I don't know when you had the titre taken for 400.

I took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

>

> In my case the test was absolutely necessary and helped me get my child back

on track.

>

> Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@...

>

> you are entitled to your opinion. This is mine. Glad I did the test

and others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

>

> Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

>

> Don't get the hump with me over this , I haven't got the hump with you

over it, but if you have a go at the Breakspear where does that leave the rest

of us if they shut down?

>

> I am sorry you have had so much to contend with Christianne, I really am.

>

>

> Eileen (and )

>

[Guest guest]

Christianne the comment which begins with " Natasa posted on here " is meant for

's point. It is not directed at you. Hope you're not mad. I'm just sorry

for any kid who might be dealing with this, because I've seen what it did to

mine.

All best

Eileen

>

> Christianne,

>

> Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

>

> It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

>

> The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

>

> This is hypothetical, but I don't know when you had the titre taken for 400.

I took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

>

> In my case the test was absolutely necessary and helped me get my child back

on track.

>

> Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@...

>

> you are entitled to your opinion. This is mine. Glad I did the test

and others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

>

> Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

>

> Don't get the hump with me over this , I haven't got the hump with you

over it, but if you have a go at the Breakspear where does that leave the rest

of us if they shut down?

>

> I am sorry you have had so much to contend with Christianne, I really am.

>

>

> Eileen (and )

>

[Guest guest]

Christianne the comment which begins with " Natasa posted on here " is meant for

's point. It is not directed at you. Hope you're not mad. I'm just sorry

for any kid who might be dealing with this, because I've seen what it did to

mine.

All best

Eileen

>

> Christianne,

>

> Strep 400. Did your child have accompanying OCD behaviour that had some

crossover with the PANDAS symptoms. Can you pinpoint a time when OCD got

suddenly worse. Those points, plus strep titres can indicate pandas. It is a

clinical diagnosis, the presentation of it varies but is distinct, and a lot of

children have strep as a secondary bacterial infection to viruses. The titres

can back up diagnosis.

>

> It would have been remiss of the Breakspear not to test if suspected pandas,

because if it is untreated it gets worse. 400 is high. Ours were way higher.

We have a history of strep titres, and just for example, it took six months of

antibiotics every day to get from 1000 (the mid reading) to 200. The Dnase

titres take much longer to get down. With some kids I know about with pandas, it

takes less time. It depends on the child like everything else. If strep left to

go on in its own merry way, the consequences can be tough, we've faced them here

and are still dealing with them. Its the most frustrating thing ever.

>

> The yeast is a nightmare, but you can perhaps get something for that on

prescription if its really bad. I dosed for yeast at nighttime.ABX in morning.

That seems to work.

>

> This is hypothetical, but I don't know when you had the titre taken for 400.

I took the titre just into a really bad flare (we've been up and down for years,

didn't know viruses were complicated by strep, but that was a good time to take

it because we got a result that correlated with the symptoms. When J's off abx

the behaviours come back with a vengeance, tics, anxiety and OCD. Within 48

hours. Strep can result in damage to the basal ganglia it is thought, and you

cannot get rid of the antibodies which attack yet. They haven't found a way

yet. Also there isn't an overall protocol really established yet either. So it

is vitally necessary to get it under control.

>

> In my case the test was absolutely necessary and helped me get my child back

on track.

>

> Not saying that any of the above is same for you, just giving you another

perspective, I hope that helps. You know my email if you want to go into any

more depth? Eileen.Chiverton@...

>

> you are entitled to your opinion. This is mine. Glad I did the test

and others. Without them my kid would be stuck in the house too anxious to go

outside with the curtains shut, lining up anything that could be lined up.

We're all different, we all have different opinions. Eventually I was able to

go to the NHS and make them pay for his antibiotic. Talk about antibiotic

resistance, they brought new meaning to the word, but they gave them because

they were needed. But I had the titres, and the research. How hard a fight

you'd have for that depends on who you're dealing with.

>

> Natasa posted on here, that for the sake of all of us, we shouldn't be using

names, I'd add to that complaining about one of only three real possibilities

(leaving aside nutrition which I acknowledge is successful as well) for other

parents. So if you feel angry with the Breakspear then take it up with them, it

isn't fair on the rest of us who they have helped to wind people up on here.

>

> Don't get the hump with me over this , I haven't got the hump with you

over it, but if you have a go at the Breakspear where does that leave the rest

of us if they shut down?

>

> I am sorry you have had so much to contend with Christianne, I really am.

>

>

> Eileen (and )

>

[Guest guest]

We had strep x4 the upper limit high[800+]. Zithromax @ 500mg/day[120#person]

was not doing much. We had to get out all strep exposures even the good

probiotics, nystatin etc before titers began to diminish. It took quite some

time to get into normal range. She stayed on this dose until the titers went

down and stayed in normal range for awhile. She's been off the zithro for 3mos

now and titers have stayed down. We still avoid all strep.

> >

> > Hi all,

> >

> >

> >

> > We had a lot of tests done at Breakspear and the strep titer came back high

(400, normal range 0-200), so Dr. Goyal had us do a 7 week course of antibiotics

(zytromycin). Now 3 months later the next test reveals the titer is still the

same, but in addition we had the yeasty-beasty come back (after 4 years of

freedom!). Giggling etc is really impacting school work and I have started

giving coconut oil, but will probably need something stronger.

> >

> > I feel like I wasted my money and we are worse off than before overall.

> >

> >

> >

> > Sorry for the rant, but needed to vent – and would be quite thankful if

anybody has experience in getting the strep titers down.

> >

> >

> >

> > Christiane

> >

>

[Guest guest]

We had strep x4 the upper limit high[800+]. Zithromax @ 500mg/day[120#person]

was not doing much. We had to get out all strep exposures even the good

probiotics, nystatin etc before titers began to diminish. It took quite some

time to get into normal range. She stayed on this dose until the titers went

down and stayed in normal range for awhile. She's been off the zithro for 3mos

now and titers have stayed down. We still avoid all strep.

> >

> > Hi all,

> >

> >

> >

> > We had a lot of tests done at Breakspear and the strep titer came back high

(400, normal range 0-200), so Dr. Goyal had us do a 7 week course of antibiotics

(zytromycin). Now 3 months later the next test reveals the titer is still the

same, but in addition we had the yeasty-beasty come back (after 4 years of

freedom!). Giggling etc is really impacting school work and I have started

giving coconut oil, but will probably need something stronger.

> >

> > I feel like I wasted my money and we are worse off than before overall.

> >

> >

> >

> > Sorry for the rant, but needed to vent – and would be quite thankful if

anybody has experience in getting the strep titers down.

> >

> >

> >

> > Christiane

> >

>

[Guest guest]

Our son had high strep titres a while ago, but we haven't re tested since his

OCD improved. He had a throat infection which was followed by really awful OCD.

We used a rotation of herbs which really did eliminate the OCD behaviours, apart

from scripting, which has always been an issue. Herbs included multistage like

yeast aid and biocides, but there were about a dozen and we used around 3 a day,

rotating them over 4 days.

Sent from my iPad

[Guest guest]

Our son had high strep titres a while ago, but we haven't re tested since his

OCD improved. He had a throat infection which was followed by really awful OCD.

We used a rotation of herbs which really did eliminate the OCD behaviours, apart

from scripting, which has always been an issue. Herbs included multistage like

yeast aid and biocides, but there were about a dozen and we used around 3 a day,

rotating them over 4 days.

Sent from my iPad

[Guest guest]

Sandy, you cleared gamma strep from the gut. My question is would it lower

strep titres when they have got as far as the blood and did you test blood strep

titres.

Yes we had to take my Son off all supps. No choice. Had to quieten down an

immune system in overdrive.

ABX resistance didn't even figure in my decision Natasa. My Son crashed big

time, up and down for years, that was the final result, and I couldn't watch it

happen, I had to act. That was just my individual situation though. Doesn't

apply to everyone perhaps. Complex immune system response. Can't test for that

in the blood, wish we could. Unless you know different, please let me know if

you do.

Eileen x

[Guest guest]

No, I know Natasha. I saw the research and thanks for pointing to it. I'm not

sure that is true for everyone. Remember in the states they use the antibiotic

more than we do. Could be true there, but not so much here. Currently it works

for us. We knew it was a good chance for us when we saw J do well on it when it

was prescribed to clear persistent guardia. That particular bacteria figures,

like candida, in a lot of autoimmune conditions. He tolerated it well and we

saw the tics go, and the OCD lessen, then when he was off the abx, we saw all

that come back again. Then gradually, he deteriorated, and ticked every box for

pandas. I do think there is a time though when these things can cease to work

that's why I mentioned Saving Sammy.

The augmentin thing. There's a lot of research out. mentioned it in

Florida but didn't mention augmentin, just " an antibiotic with a high level of

clavulanic acid. " I think he realised its a really hot topic amongst autism

Mothers, augmentin. Sammy got better on Augmentin XR, which is another reason I

think the book can be misleading to those treating " autism " .

xx

>

> Hi Eileen, I didn't mean to say (or better still I didn't hear Bradstreet

> saying that using abx for your child would create resistance. He was

> saying that Strep has already GROWN resistant to most abx. Imo the bottom

> line of what he was saying that yes we need to treat it with abx, but don't

> be surprised if it doesn't work as well as it is supposed to. In his opinion

> one stands the best chance of success with Amoxicillin/clavulanic acid combo

> (augmentin), which unfortunately is hard to tolerate and has a long list of

> side effects.

>

> Nx

>

>

> Reply-To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Date: Sun, 29 Jan 2012 00:03:00 -0000

> To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Subject: Re: Am I wasting my money at Breakspear

> - strep titers?

>

>

>

>

>

>

> Sandy, you cleared gamma strep from the gut. My question is would it lower

> strep titres when they have got as far as the blood and did you test blood

> strep titres.

>

> Yes we had to take my Son off all supps. No choice. Had to quieten down an

> immune system in overdrive.

>

> ABX resistance didn't even figure in my decision Natasa. My Son crashed big

> time, up and down for years, that was the final result, and I couldn't watch

> it happen, I had to act. That was just my individual situation though.

> Doesn't apply to everyone perhaps. Complex immune system response. Can't

> test for that in the blood, wish we could. Unless you know different,

> please let me know if you do.

>

> Eileen x

>

[Guest guest]

No, I know Natasha. I saw the research and thanks for pointing to it. I'm not

sure that is true for everyone. Remember in the states they use the antibiotic

more than we do. Could be true there, but not so much here. Currently it works

for us. We knew it was a good chance for us when we saw J do well on it when it

was prescribed to clear persistent guardia. That particular bacteria figures,

like candida, in a lot of autoimmune conditions. He tolerated it well and we

saw the tics go, and the OCD lessen, then when he was off the abx, we saw all

that come back again. Then gradually, he deteriorated, and ticked every box for

pandas. I do think there is a time though when these things can cease to work

that's why I mentioned Saving Sammy.

The augmentin thing. There's a lot of research out. mentioned it in

Florida but didn't mention augmentin, just " an antibiotic with a high level of

clavulanic acid. " I think he realised its a really hot topic amongst autism

Mothers, augmentin. Sammy got better on Augmentin XR, which is another reason I

think the book can be misleading to those treating " autism " .

xx

>

> Hi Eileen, I didn't mean to say (or better still I didn't hear Bradstreet

> saying that using abx for your child would create resistance. He was

> saying that Strep has already GROWN resistant to most abx. Imo the bottom

> line of what he was saying that yes we need to treat it with abx, but don't

> be surprised if it doesn't work as well as it is supposed to. In his opinion

> one stands the best chance of success with Amoxicillin/clavulanic acid combo

> (augmentin), which unfortunately is hard to tolerate and has a long list of

> side effects.

>

> Nx

>

>

> Reply-To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Date: Sun, 29 Jan 2012 00:03:00 -0000

> To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Subject: Re: Am I wasting my money at Breakspear

> - strep titers?

>

>

>

>

>

>

> Sandy, you cleared gamma strep from the gut. My question is would it lower

> strep titres when they have got as far as the blood and did you test blood

> strep titres.

>

> Yes we had to take my Son off all supps. No choice. Had to quieten down an

> immune system in overdrive.

>

> ABX resistance didn't even figure in my decision Natasa. My Son crashed big

> time, up and down for years, that was the final result, and I couldn't watch

> it happen, I had to act. That was just my individual situation though.

> Doesn't apply to everyone perhaps. Complex immune system response. Can't

> test for that in the blood, wish we could. Unless you know different,

> please let me know if you do.

>

> Eileen x

>

[Guest guest]

No, I know Natasha. I saw the research and thanks for pointing to it. I'm not

sure that is true for everyone. Remember in the states they use the antibiotic

more than we do. Could be true there, but not so much here. Currently it works

for us. We knew it was a good chance for us when we saw J do well on it when it

was prescribed to clear persistent guardia. That particular bacteria figures,

like candida, in a lot of autoimmune conditions. He tolerated it well and we

saw the tics go, and the OCD lessen, then when he was off the abx, we saw all

that come back again. Then gradually, he deteriorated, and ticked every box for

pandas. I do think there is a time though when these things can cease to work

that's why I mentioned Saving Sammy.

The augmentin thing. There's a lot of research out. mentioned it in

Florida but didn't mention augmentin, just " an antibiotic with a high level of

clavulanic acid. " I think he realised its a really hot topic amongst autism

Mothers, augmentin. Sammy got better on Augmentin XR, which is another reason I

think the book can be misleading to those treating " autism " .

xx

>

> Hi Eileen, I didn't mean to say (or better still I didn't hear Bradstreet

> saying that using abx for your child would create resistance. He was

> saying that Strep has already GROWN resistant to most abx. Imo the bottom

> line of what he was saying that yes we need to treat it with abx, but don't

> be surprised if it doesn't work as well as it is supposed to. In his opinion

> one stands the best chance of success with Amoxicillin/clavulanic acid combo

> (augmentin), which unfortunately is hard to tolerate and has a long list of

> side effects.

>

> Nx

>

>

> Reply-To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Date: Sun, 29 Jan 2012 00:03:00 -0000

> To: " Autism-Biomedical-Europe "

> <Autism-Biomedical-Europe >

> Subject: Re: Am I wasting my money at Breakspear

> - strep titers?

>

>

>

>

>

>

> Sandy, you cleared gamma strep from the gut. My question is would it lower

> strep titres when they have got as far as the blood and did you test blood

> strep titres.

>

> Yes we had to take my Son off all supps. No choice. Had to quieten down an

> immune system in overdrive.

>

> ABX resistance didn't even figure in my decision Natasa. My Son crashed big

> time, up and down for years, that was the final result, and I couldn't watch

> it happen, I had to act. That was just my individual situation though.

> Doesn't apply to everyone perhaps. Complex immune system response. Can't

> test for that in the blood, wish we could. Unless you know different,

> please let me know if you do.

>

> Eileen x

>