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Re: Epileptiform activity without seizures

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Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone on for more than 2.5 mins, how long was your daughters? They told me blue light if it goes on for 5 mins

Mandi x

She said we would have to decide which route we would like to go, this type or the Lamictal. I remember you mentioned a particular one that promoted expressive speech that you were keen on trailing with Sam. I have searched the posts and can't find it. Could you tell me what it is?

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Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone on for more than 2.5 mins, how long was your daughters? They told me blue light if it goes on for 5 mins

Mandi x

She said we would have to decide which route we would like to go, this type or the Lamictal. I remember you mentioned a particular one that promoted expressive speech that you were keen on trailing with Sam. I have searched the posts and can't find it. Could you tell me what it is?

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Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone on for more than 2.5 mins, how long was your daughters? They told me blue light if it goes on for 5 mins

Mandi x

She said we would have to decide which route we would like to go, this type or the Lamictal. I remember you mentioned a particular one that promoted expressive speech that you were keen on trailing with Sam. I have searched the posts and can't find it. Could you tell me what it is?

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The couple of generalised ones have been under two minutes. The partial ones

vary from a few seconds to the latest one being a half hour long. The eye

rolling or the head jerking usually lasts under a couple of minutes again, but

one or more systems such as speech or eyes take longer to come back online.

During the partial seizures, usually one or the other systems will continue to

work, for instance, this last one, her eyes and speech took half an hour but her

arms and legs were working after a couple of minutes.

The seizures have also presented differently each time. Sometimes it is eye

twitching and then rolling off to the left. Other times, it is a staring off

into space for a few seconds. Another time all we saw was a rage episode and

then a post sleep. I am now able to see it coming though. Her processing gets

very slow, as if what I am saying is not getting through, sometimes she will

repeat the same word over and over again, very different from stemming, a

stillness comes over her and I have to coax her gently to lie down. She also

begins swallowing. This last time, when I asked her if she was having a

seizure, she said 'yes'.

When we did the video eeg, the discharge was dismissed as a brief single one

over two days and not considered significant by the neurologist. It was

interesting that the on call epileptologist this time had a look at it and said

that the shape of the discharge indicated that Ishko's seizures were originating

from different parts of the brain and not from the same area.

Radhe

>

> Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone

> on for more than 2.5 mins, how long was your daughters? They told me blue

> light if it goes on for 5 mins

>

> Mandi x

>

>

> In a message dated 15/03/2012 00:29:08 GMT Standard Time,

> radhe@... writes:

>

> She said we would have to decide which route we would like to go, this

> type or the Lamictal. I remember you mentioned a particular one that promoted

> expressive speech that you were keen on trailing with Sam. I have searched

> the posts and can't find it. Could you tell me what it is?

>

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Guest guest

The couple of generalised ones have been under two minutes. The partial ones

vary from a few seconds to the latest one being a half hour long. The eye

rolling or the head jerking usually lasts under a couple of minutes again, but

one or more systems such as speech or eyes take longer to come back online.

During the partial seizures, usually one or the other systems will continue to

work, for instance, this last one, her eyes and speech took half an hour but her

arms and legs were working after a couple of minutes.

The seizures have also presented differently each time. Sometimes it is eye

twitching and then rolling off to the left. Other times, it is a staring off

into space for a few seconds. Another time all we saw was a rage episode and

then a post sleep. I am now able to see it coming though. Her processing gets

very slow, as if what I am saying is not getting through, sometimes she will

repeat the same word over and over again, very different from stemming, a

stillness comes over her and I have to coax her gently to lie down. She also

begins swallowing. This last time, when I asked her if she was having a

seizure, she said 'yes'.

When we did the video eeg, the discharge was dismissed as a brief single one

over two days and not considered significant by the neurologist. It was

interesting that the on call epileptologist this time had a look at it and said

that the shape of the discharge indicated that Ishko's seizures were originating

from different parts of the brain and not from the same area.

Radhe

>

> Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone

> on for more than 2.5 mins, how long was your daughters? They told me blue

> light if it goes on for 5 mins

>

> Mandi x

>

>

> In a message dated 15/03/2012 00:29:08 GMT Standard Time,

> radhe@... writes:

>

> She said we would have to decide which route we would like to go, this

> type or the Lamictal. I remember you mentioned a particular one that promoted

> expressive speech that you were keen on trailing with Sam. I have searched

> the posts and can't find it. Could you tell me what it is?

>

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Guest guest

Were you getting reasonable control with modified Atkins' before? If so then

perhaps go back to it? (Specialist guidance on doing diets for epilepsy is

available from the NHS in some places, or from a charity.)

Also, sometimes some supplements can help.

Margaret

> >

> > Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone

> > on for more than 2.5 mins, how long was your daughters? They told me blue

> > light if it goes on for 5 mins

> >

> > Mandi x

> >

> >

> > In a message dated 15/03/2012 00:29:08 GMT Standard Time,

> > radhe@ writes:

> >

> > She said we would have to decide which route we would like to go, this

> > type or the Lamictal. I remember you mentioned a particular one that

promoted

> > expressive speech that you were keen on trailing with Sam. I have searched

> > the posts and can't find it. Could you tell me what it is?

> >

>

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Guest guest

Were you getting reasonable control with modified Atkins' before? If so then

perhaps go back to it? (Specialist guidance on doing diets for epilepsy is

available from the NHS in some places, or from a charity.)

Also, sometimes some supplements can help.

Margaret

> >

> > Its the same one, Lamictil or Lamotragine in generic. Sam's have never gone

> > on for more than 2.5 mins, how long was your daughters? They told me blue

> > light if it goes on for 5 mins

> >

> > Mandi x

> >

> >

> > In a message dated 15/03/2012 00:29:08 GMT Standard Time,

> > radhe@ writes:

> >

> > She said we would have to decide which route we would like to go, this

> > type or the Lamictal. I remember you mentioned a particular one that

promoted

> > expressive speech that you were keen on trailing with Sam. I have searched

> > the posts and can't find it. Could you tell me what it is?

> >

>

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