Re: Check out Proposed Revision | APA DSM-5

[Guest guest]

What's different?

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

YOU have to meet all the criteria now, if you go to link there is the old criteria, its quite different in terms of HOW MUCH of it you have to meet.

NAA are saying this excludes kids with PDD and or Aspergers

Mx

What's different?

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

From NAAChanges in DSM-5 Autism Definition Could Negatively Impact Millions Autism organizations concerned that autism diagnostic changes will jeopardize services, impair tracking, and disrupt research around the globe.

WASHINGTON, DC – Proposed changes to the diagnostic criteria for autism spectrum disorders in the American Psychiatric Association's Diagnostic and Statistical Manual of Mental Disorders – 5 (DSM-5) will potentially disrupt appropriate and necessary services to hundreds of thousands of individuals in the US, hamper the ability to track the numbers of people with autism, and interfere with efforts to establish biological causes of autism.

"The proposed criteria make it significantly more difficult to qualify for an autism spectrum diagnosis and they completely eliminate the categories of PDD-NOS and Asperger's Disorder," stated Fournier, National Autism Association President. "In a well-intentioned desire to improve the specificity of an ASD diagnosis, the new criteria may, in fact, go too far and create unintended consequences. It is critically important that any diagnosis address all the symptoms of an individual and allow them the supports they need."

The new criteria, rationale and previous criteria are available at: http://www.dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=94

Currently, the federal government is spending millions of dollars to track prevalence of ASDs in 11 states; the 2000 birth cohort is due out this year. The Individuals with Disabilities Education Act (IDEA) requires schools to report the number of students with autism annually. Both sets of data have shown dramatic increases in autism spectrum disorders. One in 110 children in the US is now affected by autism compared to one in 10,000 in the early 1980's. By significantly changing the criteria for diagnosis, the new DSM-5 will impair the ability of public health officials to compare future rates of autism spectrum disorders to past rates, since the definition will have changed.

Accurate projections of trends in autism rates are critical to planning educational interventions, Medicaid and adult services. "By analogy, if the medical community chose to only count melanoma in the future instead of all types of skin cancer, it would look like skin cancer rates had gone down, even though other types were still present and needed treatment," said Ginger , Canary Party Executive Director.

In addition, incidence and prevalence are critically important to investigating environmental causes of autism. "Toxic exposures to the general population change over time and having good consistent epidemiology allows researchers to judge the likelihood of a toxin being involved in autism," stated Uram, SafeMinds Executive Director. "The APA's new criteria should add a specific mechanism to map the old diagnoses onto the new ones in order to allow researchers to compare new and old datasets. We also would like to see the APA address the issue of regressive autism by including age of onset as part of the criteria. The etiologies of infantile vs. regressive autism may be entirely different, but the new criteria do not distinguish them in any way."

A primary concern for parents is the likelihood that many children on the autism spectrum may not be diagnosed under the new criteria, thereby depriving them of appropriate early intervention and treatment. "Even in the states that have passed autism insurance legislation, the tightening of the criteria for autism may exclude children who need treatment with Applied Behavior Analysis," said Holland, Managing Director of the Birt Center for Autism Law and Advocacy. "Our organizations advocate that the criteria should err on the side of over-diagnosing rather than under-diagnosing since no harm is likely from providing educational services to a young child, but great potential can be lost by not providing treatment." Early intensive treatment improves outcomes for children with autism, making it highly cost-effective for tax-payers when compared to providing adult services. "The autism community strongly recommends that the proposed DSM-5 autism spectrum disorder diagnostic criteria be revisited with these concerns in mind," concludes Sallie Bernard, President of SafeMinds. "These issues are too important to remain unresolved." For more complete documentation of community concerns and questions, please visit www.safeminds.org. If your organization would like to sign onto these concerns, please contact kweisman@....

What's different?

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

OK, I'm obviously very old because I only ever remember the triad of impairments if you tick those boxes then it's autism if you don't then it isn't. I do remember when was very small and late to talk he was being assessed and the paed report stated "categorically, not autism,but possibly Asperger Syndrome". I would like to see better targeted provision, as it stands P is often grouped with much lower functioning children not dissimilar to , can't see how that helps anyone.

Vicky

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

Putting aside the fact that any diagnosis related to autism shouldn't be in teh

DSM in the first place, I agree with Vicky. If they were able to provide a

revised diagnosis for those things that aren't autism (such as whatever labels

they might come up with for kids who wouldn't meet these criteria but have

developmental problems) and then target the therapeutic help to that, a lot of

kids would be better off. There are kids where I live who wait years for

therapy, and then because the therapy is ABLLS/ABA based, they get nothing

because they are so far beyond that.

I think if there were different diagnoses, this might open the door for the fact

that different kids need different therapies (again putting aside the fact that

all these kids need biomedical help) and eventually lead to the idea that

therapy should be based on the kid, not some criteria laid out in a manual.

I think addressing this would also help the more severely affected kids like

mine. I meet people all the time who think that my kid should be some sort of

Bill Gates clone because for them the word autism doesn't mean what has happened

to him. They see very high functioning kids out in public and assume that is

autism. When really, sometimes the kids I see have about as much in common with

my kid as a bad sunburn does to melanoma (to borrow an analogy from the

ariticle).

To me it is highly ironic that these people have in fact got it right until now

from a biomedical perspective grouping all these kids together--when biomedical

considerations aren't even on their radar. Yet, for their intended purpose,

which is to diagnose for services, they have it almost entirely wrong.

I'm speaking of this issue solely from the perspecitive of services provided and

not a biomedical or incidence point of view.

Anita

>

>

> OK, I'm obviously very old because I only ever remember the triad of

impairments if you tick those boxes then it's autism if you don't then it isn't.

I do remember when was very small and late to talk he was being assessed

and the paed report stated " categorically, not autism,but possibly Asperger

Syndrome " . I would like to see better targeted provision, as it stands P is

often grouped with much lower functioning children not dissimilar to , can't

see how that helps anyone.

> Vicky

>

>

>

>

>

> Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

Putting aside the fact that any diagnosis related to autism shouldn't be in teh

DSM in the first place, I agree with Vicky. If they were able to provide a

revised diagnosis for those things that aren't autism (such as whatever labels

they might come up with for kids who wouldn't meet these criteria but have

developmental problems) and then target the therapeutic help to that, a lot of

kids would be better off. There are kids where I live who wait years for

therapy, and then because the therapy is ABLLS/ABA based, they get nothing

because they are so far beyond that.

I think if there were different diagnoses, this might open the door for the fact

that different kids need different therapies (again putting aside the fact that

all these kids need biomedical help) and eventually lead to the idea that

therapy should be based on the kid, not some criteria laid out in a manual.

I think addressing this would also help the more severely affected kids like

mine. I meet people all the time who think that my kid should be some sort of

Bill Gates clone because for them the word autism doesn't mean what has happened

to him. They see very high functioning kids out in public and assume that is

autism. When really, sometimes the kids I see have about as much in common with

my kid as a bad sunburn does to melanoma (to borrow an analogy from the

ariticle).

To me it is highly ironic that these people have in fact got it right until now

from a biomedical perspective grouping all these kids together--when biomedical

considerations aren't even on their radar. Yet, for their intended purpose,

which is to diagnose for services, they have it almost entirely wrong.

I'm speaking of this issue solely from the perspecitive of services provided and

not a biomedical or incidence point of view.

Anita

>

>

> OK, I'm obviously very old because I only ever remember the triad of

impairments if you tick those boxes then it's autism if you don't then it isn't.

I do remember when was very small and late to talk he was being assessed

and the paed report stated " categorically, not autism,but possibly Asperger

Syndrome " . I would like to see better targeted provision, as it stands P is

often grouped with much lower functioning children not dissimilar to , can't

see how that helps anyone.

> Vicky

>

>

>

>

>

> Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

Surely they should be diagnosed with PDD or Aspergers, why can't we be specific?

Do people with Aspergers really want to be labelled autistic? Why?

Vicky

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

Surely they should be diagnosed with PDD or Aspergers, why can't we be specific?

Do people with Aspergers really want to be labelled autistic? Why?

Vicky

Check out Proposed Revision | APA DSM-5

Click here: Proposed Revision | APA DSM-5

Sam would still qualify but I know others who wouldn't

Mandi x

[Guest guest]

, what services are we talking about? I have a high functioning and a low functioning autistic and never received anything worth having that I haven't had to crawl over hot coals to get!

There's and LD CP here who has seen both my boys, he has signed P off because he has no LD's, [college have assessed him 3 times and found he has], the salt in the wound though is that they refuse to deal with 's OCD because he is too low functioning and non verbal. Who is it that are justifying these parasites salaries? That may seem very harsh but all I have seen from Education and Health are people who are making a living off kids like mine by providing precisely nothing, that is a good definition for the word parasite imho. If we had some kind of specification in our childrens lives then it would be harder for people to hide behind the wrong kind of autism line.

Vicky

Re: Re: Check out Proposed Revision | APA DSM-5

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

, what services are we talking about? I have a high functioning and a low functioning autistic and never received anything worth having that I haven't had to crawl over hot coals to get!

There's and LD CP here who has seen both my boys, he has signed P off because he has no LD's, [college have assessed him 3 times and found he has], the salt in the wound though is that they refuse to deal with 's OCD because he is too low functioning and non verbal. Who is it that are justifying these parasites salaries? That may seem very harsh but all I have seen from Education and Health are people who are making a living off kids like mine by providing precisely nothing, that is a good definition for the word parasite imho. If we had some kind of specification in our childrens lives then it would be harder for people to hide behind the wrong kind of autism line.

Vicky

Re: Re: Check out Proposed Revision | APA DSM-5

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

, what services are we talking about? I have a high functioning and a low functioning autistic and never received anything worth having that I haven't had to crawl over hot coals to get!

There's and LD CP here who has seen both my boys, he has signed P off because he has no LD's, [college have assessed him 3 times and found he has], the salt in the wound though is that they refuse to deal with 's OCD because he is too low functioning and non verbal. Who is it that are justifying these parasites salaries? That may seem very harsh but all I have seen from Education and Health are people who are making a living off kids like mine by providing precisely nothing, that is a good definition for the word parasite imho. If we had some kind of specification in our childrens lives then it would be harder for people to hide behind the wrong kind of autism line.

Vicky

Re: Re: Check out Proposed Revision | APA DSM-5

totally agree it should help all to access the right services, I find that often difficulties are played down or up according to convenience and availability which is a shame .....result all go without the adequate treatment ....but if I know anything about services this mean that a lot of kids are going to fall of services instead of being directed to the adequate one, I am afraid.

the fact is only one no service can cope with the numbers of diagnosis so this is just a measure to cut people from services, may I be wrong for the sake of all this children, teenagers and adults.

PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that the services were thinking in removing the diagnosis of some ASD individuals

[Guest guest]

No doubt that these changes will see a loss of services all over the

place--where there are services to lose, that is. Here in Canada we also use

the DSM for diagnosis, and by restricting the criteria while not simultaneously

addressing all the other kids, services will be cut. Specification could have

some general better outcome for all kids, but I was speaking in a hypothetical

way, PRETENDING that people actually give a shit and are doing this for the good

of kids. As we all know, that is almost never the case. Parasites is

generally the right term. Some of them well-meaning but stymied by the system,

most are just clinging to ignorance for dear life, or so horribly arrogant it's

almost impossible not to hit them.

Anita

>

>

> , what services are we talking about? I have a high functioning and a

low functioning autistic and never received anything worth having that I haven't

had to crawl over hot coals to get!

> There's and LD CP here who has seen both my boys, he has signed P off because

he has no LD's, [college have assessed him 3 times and found he has], the salt

in the wound though is that they refuse to deal with 's OCD because he is

too low functioning and non verbal. Who is it that are justifying these

parasites salaries? That may seem very harsh but all I have seen from

Education and Health are people who are making a living off kids like mine by

providing precisely nothing, that is a good definition for the word parasite

imho. If we had some kind of specification in our childrens lives then it

would be harder for people to hide behind the wrong kind of autism line.

> Vicky

>

>

>

>

>

> Re: Re: Check out Proposed Revision | APA

DSM-5

>

>

>

>

>

>

> totally agree it should help all to access the right services, I find that

often difficulties are played down or up according to convenience and

availability which is a shame .....result all go without the adequate treatment

.....but if I know anything about services this mean that a lot of kids are going

to fall of services instead of being directed to the adequate one, I am afraid.

>

> the fact is only one no service can cope with the numbers of diagnosis so this

is just a measure to cut people from services, may I be wrong for the sake of

all this children, teenagers and adults.

>

> PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that

the services were thinking in removing the diagnosis of some ASD individuals

>

>

>

[Guest guest]

No doubt that these changes will see a loss of services all over the

place--where there are services to lose, that is. Here in Canada we also use

the DSM for diagnosis, and by restricting the criteria while not simultaneously

addressing all the other kids, services will be cut. Specification could have

some general better outcome for all kids, but I was speaking in a hypothetical

way, PRETENDING that people actually give a shit and are doing this for the good

of kids. As we all know, that is almost never the case. Parasites is

generally the right term. Some of them well-meaning but stymied by the system,

most are just clinging to ignorance for dear life, or so horribly arrogant it's

almost impossible not to hit them.

Anita

>

>

> , what services are we talking about? I have a high functioning and a

low functioning autistic and never received anything worth having that I haven't

had to crawl over hot coals to get!

> There's and LD CP here who has seen both my boys, he has signed P off because

he has no LD's, [college have assessed him 3 times and found he has], the salt

in the wound though is that they refuse to deal with 's OCD because he is

too low functioning and non verbal. Who is it that are justifying these

parasites salaries? That may seem very harsh but all I have seen from

Education and Health are people who are making a living off kids like mine by

providing precisely nothing, that is a good definition for the word parasite

imho. If we had some kind of specification in our childrens lives then it

would be harder for people to hide behind the wrong kind of autism line.

> Vicky

>

>

>

>

>

> Re: Re: Check out Proposed Revision | APA

DSM-5

>

>

>

>

>

>

> totally agree it should help all to access the right services, I find that

often difficulties are played down or up according to convenience and

availability which is a shame .....result all go without the adequate treatment

.....but if I know anything about services this mean that a lot of kids are going

to fall of services instead of being directed to the adequate one, I am afraid.

>

> the fact is only one no service can cope with the numbers of diagnosis so this

is just a measure to cut people from services, may I be wrong for the sake of

all this children, teenagers and adults.

>

> PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that

the services were thinking in removing the diagnosis of some ASD individuals

>

>

>

[Guest guest]

No doubt that these changes will see a loss of services all over the

place--where there are services to lose, that is. Here in Canada we also use

the DSM for diagnosis, and by restricting the criteria while not simultaneously

addressing all the other kids, services will be cut. Specification could have

some general better outcome for all kids, but I was speaking in a hypothetical

way, PRETENDING that people actually give a shit and are doing this for the good

of kids. As we all know, that is almost never the case. Parasites is

generally the right term. Some of them well-meaning but stymied by the system,

most are just clinging to ignorance for dear life, or so horribly arrogant it's

almost impossible not to hit them.

Anita

>

>

> , what services are we talking about? I have a high functioning and a

low functioning autistic and never received anything worth having that I haven't

had to crawl over hot coals to get!

> There's and LD CP here who has seen both my boys, he has signed P off because

he has no LD's, [college have assessed him 3 times and found he has], the salt

in the wound though is that they refuse to deal with 's OCD because he is

too low functioning and non verbal. Who is it that are justifying these

parasites salaries? That may seem very harsh but all I have seen from

Education and Health are people who are making a living off kids like mine by

providing precisely nothing, that is a good definition for the word parasite

imho. If we had some kind of specification in our childrens lives then it

would be harder for people to hide behind the wrong kind of autism line.

> Vicky

>

>

>

>

>

> Re: Re: Check out Proposed Revision | APA

DSM-5

>

>

>

>

>

>

> totally agree it should help all to access the right services, I find that

often difficulties are played down or up according to convenience and

availability which is a shame .....result all go without the adequate treatment

.....but if I know anything about services this mean that a lot of kids are going

to fall of services instead of being directed to the adequate one, I am afraid.

>

> the fact is only one no service can cope with the numbers of diagnosis so this

is just a measure to cut people from services, may I be wrong for the sake of

all this children, teenagers and adults.

>

> PS I heard about 2 years ago in a meeting in Cambridgeshire people saying that

the services were thinking in removing the diagnosis of some ASD individuals

>

>

>

[Guest guest]

That is a good question Vicky, but it does seem to be the case quite often.

Part of the problem is that we right now have autism spectrum disorder, and

within that is:

autistic disorder

aspergers

and PDD-NOS.

So autistic is actually something quite distinct, but it hasn't been treated

like that, in part because of the word autism in ASD--so just an honest kind of

sloppiness in language that mostly doesn't matter. So, when I am offering

biomed help to people, it frankly doesn't matter a bit if the child has a

diagnosis of autistic disorder or adhd or even no diagnosis at all--the child is

what matters. However, in trying to access services, or explaining what your

child might have recovered from, it matters a great deal.

Anita

>

> Surely they should be diagnosed with PDD or Aspergers, why can't we be

specific?

> Do people with Aspergers really want to be labelled autistic? Why?

> Vicky

>

>

>

>

>

>

>

> Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

That is a good question Vicky, but it does seem to be the case quite often.

Part of the problem is that we right now have autism spectrum disorder, and

within that is:

autistic disorder

aspergers

and PDD-NOS.

So autistic is actually something quite distinct, but it hasn't been treated

like that, in part because of the word autism in ASD--so just an honest kind of

sloppiness in language that mostly doesn't matter. So, when I am offering

biomed help to people, it frankly doesn't matter a bit if the child has a

diagnosis of autistic disorder or adhd or even no diagnosis at all--the child is

what matters. However, in trying to access services, or explaining what your

child might have recovered from, it matters a great deal.

Anita

>

> Surely they should be diagnosed with PDD or Aspergers, why can't we be

specific?

> Do people with Aspergers really want to be labelled autistic? Why?

> Vicky

>

>

>

>

>

>

>

> Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

Services is what I meant Anita, and to some extent the label itself.

I agree, being a believer in biomed I think it would probably be beneficial to all, but remember this doesn't apply in the context of diagnostic criteria because no one is going to be offered that course of action any time soon irresptective of how they present.

At the moment I'm trying to get DP's to pay for something would like to do, but no such common sense will be tolerated, he will pay for a carer, like it or not, because he is "autistic" just like his brother as things stand.

Vicky

Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

Services is what I meant Anita, and to some extent the label itself.

I agree, being a believer in biomed I think it would probably be beneficial to all, but remember this doesn't apply in the context of diagnostic criteria because no one is going to be offered that course of action any time soon irresptective of how they present.

At the moment I'm trying to get DP's to pay for something would like to do, but no such common sense will be tolerated, he will pay for a carer, like it or not, because he is "autistic" just like his brother as things stand.

Vicky

Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

Services is what I meant Anita, and to some extent the label itself.

I agree, being a believer in biomed I think it would probably be beneficial to all, but remember this doesn't apply in the context of diagnostic criteria because no one is going to be offered that course of action any time soon irresptective of how they present.

At the moment I'm trying to get DP's to pay for something would like to do, but no such common sense will be tolerated, he will pay for a carer, like it or not, because he is "autistic" just like his brother as things stand.

Vicky

Check out Proposed Revision | APA DSM-5

>

>

>

>

>

>

>

> Click here: Proposed Revision | APA DSM-5

>

>

>

> Sam would still qualify but I know others who wouldn't

>

>

>

> Mandi x

>

[Guest guest]

I agree that specification would help certain children mine would be one of them as we fit the criteria but I also feel for the ones that are almost there and need that "little" push and don't have now and will not have in the future that is cruel .....but this is actually if we had "services" all that we have is a sham and "parasites" is the right word as I look to all this people having meeting sipping tea and talking rubbish ....but working with our kids .....people being paid specialist wages without even know what they are talking about, therapist that spend all day witting god knows what, giving rubbish advice, I don't even need to get far actually I had one the other week advising me activities to my son that actually would put my son in danger of an accident and I would have to pay for it .....like I would.... oh don't get me starting but at the same time I am the eternal hopeful and do hope that things one day will get better, I really do.... they have too

[Guest guest]

I agree that specification would help certain children mine would be one of them as we fit the criteria but I also feel for the ones that are almost there and need that "little" push and don't have now and will not have in the future that is cruel .....but this is actually if we had "services" all that we have is a sham and "parasites" is the right word as I look to all this people having meeting sipping tea and talking rubbish ....but working with our kids .....people being paid specialist wages without even know what they are talking about, therapist that spend all day witting god knows what, giving rubbish advice, I don't even need to get far actually I had one the other week advising me activities to my son that actually would put my son in danger of an accident and I would have to pay for it .....like I would.... oh don't get me starting but at the same time I am the eternal hopeful and do hope that things one day will get better, I really do.... they have too

[Guest guest]

I agree that specification would help certain children mine would be one of them as we fit the criteria but I also feel for the ones that are almost there and need that "little" push and don't have now and will not have in the future that is cruel .....but this is actually if we had "services" all that we have is a sham and "parasites" is the right word as I look to all this people having meeting sipping tea and talking rubbish ....but working with our kids .....people being paid specialist wages without even know what they are talking about, therapist that spend all day witting god knows what, giving rubbish advice, I don't even need to get far actually I had one the other week advising me activities to my son that actually would put my son in danger of an accident and I would have to pay for it .....like I would.... oh don't get me starting but at the same time I am the eternal hopeful and do hope that things one day will get better, I really do.... they have too