RE: Frustrated beyond belief...

[Guest guest]

Another alternative might be to get pissed

AT something. Like, does that doc (or more likely, his institution) that made

YOU wait charge you if you are late for an appointment? Hit him with a letter

noting this practice and asserting a parallel right to charge him and his

institution when they egregiously make you wait.

That’s sort of a petty example I

gave. But this damn condition ABOUNDS in other good ones, where a polite

confrontiveness-at-need can do wonders. Fight.

Seattle

From:

PozHealth [mailto:PozHealth ] On Behalf Of 32824

Sent: Tuesday, February 14, 2006

5:24 AM

To: pozhealth

Subject: Re:

Frustrated beyond belief...

I too, am sick of needles, meds, hospitals, side-effects, etc. I've had

2 surgeries in 2005, been in the hospital all of March, 4 days in May, all of

August, all of December, most of January. I am currently hooked up to a PICC

line, and I'm being fed PTN 16 hours a day to help me regain strength and

weight (It's working, I've gained 10 lbs since last week). I start radiation

therapy today for Kaposi's sarcoma. Give up? NO!

When I think I can't take anymore, my Higher Power (I call God) gives

me courage to go forward. Alas, I don't

know the outcome of this virus like you do. I may struggle

through to become a recipient of the cure. I don't know the outcome.

Life is so worth fighting for. To see a rainbow, just one more time,

is......WOW. I thrill at watching the little sparrows feed from their feeder in

the mornings. To watch a storm or good rain is awesome to me. You can only

enjoy these alive.

I fight for me, my family, my friends, and my friends that have already

died from AIDS. There is something to be said about fighting. Please try to be

optomistic, even through this. Optomism will be your friend longer than

frustration will.

Orlando

weewill53

wrote:

Okay folks, I've had it! I

waited for an hour and forty-five minutes to see my doc today only to

be told that there were 3 more people in front of

me. I left. My time is just as important as

his. I can't take this anymore. I know what the

outcome of this virus is going to be, so why do

I continue to play this stupid game? I'm so sick

of taking meds, getting stuck with needles,

waiting anxiously for the latest results, seeing

therapists, and everything else that goes with

this! I poured myself a hefty glass of scotch when

I got back home and the only thing it's

done is take the edge off. I'm still pissed as

hell! I want to walk away from all of this. I want to

live my life doing the things I like to do and die

when I'm supposed to die. I'm tired of the

side effects. I'm tired of the prejudice and

bigotry surrounding this virus. I'm tired of all it!!! It

was better when I didn't know. They say that

knowledge is power, so why does it feel like a

burden? The image that comes to mind is that of

the Ancient Mariner with the proverbial

Albatros. I just want to walk into the void.

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