Re: Neuro AutonomicDisturbances -

[Guest guest]

Hi Margaret,

I believe that they do, as I discussed this with them when I first rang to see

if they could do the scan and I think that they asked me if she would be OK. As

it happened my daughter managed without, although she did move a little which

they were able to make adjustments for.

They also had a lovely Dr who administered the Gadolinium contrast dye.

It would be worth ringing them to find out as they would probably have to

arrange for the anaesthetist to be there.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Dr G did an Autonomic test on ds 7yrs old. He

> > > > > prescribed

> > > > > > > Ketotifen and

> > > > > > > > > > > > > will reassess this month (3 months since starting

> > > > > > > Ketotifen). The result

> > > > > > > > > > was

> > > > > > > > > > > > > quite marked and by the effects of the medication it

> > > is

> > > > > > > likely to be

> > > > > > > > > > viral

> > > > > > > > > > > > > related. So will return for another autonomic test

> > > this

> > > > > > > month to see if

> > > > > > > > > > > > > Ketotifin has sabalized the disturbance if not try

> > > viral

> > > > > > > route.

> > > > > > > > > > > > > > I took Dr G letter to Neurologist who also did ECG

> > > > > which

> > > > > > > result shows

> > > > > > > > > > > > > Neuro Autonomic Disturbances and wants ds to have

> > > bloods

> > > > > and

> > > > > > > urine tests

> > > > > > > > > > this

> > > > > > > > > > > > > week.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Does anyone here have a child with Neuro Autonomic

> > > > > > > Disturbances and

> > > > > > > > > > what

> > > > > > > > > > > > > diagnosis, symptoms and most important treatment and

> > > > > > > prognosis their is?

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > Thank you in advance.

> > > > > > > > > > > > > >

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