Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Wow thank you Joanne! > > > > > > > > > > > > Hi za, > > > > Hope Natasa is watching as well. > > > > > > > > The first time we did Valtrex, we saw side effects in the first > week on day > > 5. Side effects for us were: head-pressing against us and hard > surfaces (like > > head banging, to relieve inflammation) and stupidly massive yeast. > Lots of > > stimming, lining up, to cope with extra stress on the body. This > time, with > > acyclovir, we haven't had any. All we've seen is great gains. We > have learned > > to a certain extent from the first time. > > > > > > > > You might not get any side effects at all but most of us do. > > > > > > > > In a nutshell, to avoid the side-effects, i.e. to keep the extra > stress on > > the body in control which might result from anti-viral use, you need > to: > > > > > > > > Increase your yeast protocol, after observation of first week. > > > > We upped probiotics at night. We use CP1 and Candex as it doesn't > contain > > Streptococcus Thermophilis which for some reason has negative impact > on PANDAS > > kids. We haven't used as much Candex as we used to, but are working > it back in > > again (remember we totally came off biomed for a while because we > hadn't had a > > break for six years). > > > > > > > > You need to manage inflammation - consider Ibuprofen. Not good > for kids > > with gut issues, granted, but you are looking at bigger picture and > not long > > term use. We did Valtrex a few years ago which is six times more > bioavailable > > than Acyclovir. We had massive stimming (we needed prescription yeast > killers > > and at that point had to fight for them because this was all new) and > pressing > > head against surfaces to relieve pain. This time on Acyclovir, we did > a week of > > regular ibuprofen at the beginning of the protocol. Then occasional > doses if > > needed on the odd rough day. This worked for us. We didn't get the > head > > pressing and all the stims. If we had a really bad moment we'd put it > in again, > > but not regularly. Also you could up the fish oils. That helps as > well. You > > could also up fish oil protocol, that has helped here. > > > > > > > > Manage the strep. Another thing is we have got J on Zithro at the > same time > > as the anti-viral. This won't make it necessarily what DG will > prescribe for > > Eddie because we had massive strep titres. It depends. But Zithro > has an > > overall anti-inflammatory effect on the body. So this begs question, > did J avoid > > side-effects this time because of Zithro or Ibuprofen, because he was > on both? > > I think Ibuprofen helps because when he was on Zithro alone for strep, > he still > > had inflammation so we needed something extra, particularly at the > start. It is > > not something I want long term, but it is helping right now, along > with the rest > > of the world I'm looking for more healthy ways. > > > > > > > > Getting the strep/tics under control before you start antivirals > seems to > > have helped this time. We didn't know strep was rampant the first > time we did > > Valtrex. > > > > > > > > To me, if you have viral and strep at same time, you are going to > battle > > inflammation and if you can do that you are on a winner. Its so much > better for > > us this time. Whatever you do, don't suddenly stop the anti-virals > but I guess > > has told you that. > > > > > > > > Liver and Kidney Support. Essential to clear systemic > prescription drugs > > through the system (and viruses). I use Liv-detox but am considering > moving to > > other supps. > > > > > > > > Methylation. You need to make sure the MB12/folinic is in place, > but if the > > negative effects are too much at the start, I would do that week 2/3 > if not > > established already or you won't know what's causing what. > > > > > > > > Managing coming off anti-virals eventually - up your strep > protocol. When > > viruses move out we have found in comes Strep. > > > > > > > > Isobel Ramsey gave me a tip about massaging encense oil (in a > carrier) > > into the feet at night, this and some music helps calm as well, > so think > > about what calms Eddie as well as supps to avoid the storm. > > > > > > > > If things get really awful, pick up the phone to 's sec > , and he > > will get back to you usually by the end of the day if its an > emergency. > > > > > > > > Have you got some Melatonin to help with the sleep, is Eddie all > right on > > that? > > > > > > > > Please ask if I've been unclear and you want me to answer anything > in more > > details. > > > > > > > > Much love to you and Eddie > > > > Things have got so much better in all areas here having braved > this one out > > for a while. > > > > > > > > Eil x > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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