Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. Kerry Sent from Yahoo! Mail on Android From: haqkanwal ; To: <Autism-Biomedical-Europe >; Subject: Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. Kerry Sent from Yahoo! Mail on Android From: haqkanwal ; To: <Autism-Biomedical-Europe >; Subject: Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. Kerry Sent from Yahoo! Mail on Android From: haqkanwal ; To: <Autism-Biomedical-Europe >; Subject: Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Yes, major problem here, have tried it several times, even swapped for B6 but in 's case for whatever reason all B's are a huge problem, giving in itsy bitsy build ups have been no better. It takes about a week to get back to normal after supplement reactions so don't expect to see an immediate improvement although you may do. There was a big discussion on LOD about this, can't really remember the why's and wherefore's but worth checking out anyway's, I know it's a discussion I want to re-visit after xmas to see if I can find some answers. Vicky Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Yes, major problem here, have tried it several times, even swapped for B6 but in 's case for whatever reason all B's are a huge problem, giving in itsy bitsy build ups have been no better. It takes about a week to get back to normal after supplement reactions so don't expect to see an immediate improvement although you may do. There was a big discussion on LOD about this, can't really remember the why's and wherefore's but worth checking out anyway's, I know it's a discussion I want to re-visit after xmas to see if I can find some answers. Vicky Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Yes, major problem here, have tried it several times, even swapped for B6 but in 's case for whatever reason all B's are a huge problem, giving in itsy bitsy build ups have been no better. It takes about a week to get back to normal after supplement reactions so don't expect to see an immediate improvement although you may do. There was a big discussion on LOD about this, can't really remember the why's and wherefore's but worth checking out anyway's, I know it's a discussion I want to re-visit after xmas to see if I can find some answers. Vicky Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Sent from Yahoo! Mail on Android From: Kerry Browne ; To: Autism-Biomedical-Europe <Autism-Biomedical-Europe >; Subject: Re: Re: P5P and anger Sent: Wed, Dec 28, 2011 9:17:30 AM Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. Kerry Sent from Yahoo! Mail on Android From: haqkanwal ; To: <Autism-Biomedical-Europe >; Subject: Re: Signalong Sent: Tue, Dec 27, 2011 8:18:32 PM My son is non verbal... He is nearly 4 and pecs works for him > > Anyone using signing with a completely non verbal and severe child? If anyone has a non verbal older child[teen and above] how are you communicating? > TIA > Vicky > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 What dose is he taking? And do you supplement with magnesium? karianne > > > Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. > > Kerry > > Sent from Yahoo! Mail on Android > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 What dose is he taking? And do you supplement with magnesium? karianne > > > Just posting on to see if anyone's kids have gone off on one with kirkmans P5P? It's the only new supplement I have introduced recently and H keeps having real anger bursts and meltdowns. Happy one min and really upset the next. I am going to stop the p5p to see if this helps. It could just be all the hype of Xmas and change of routine any ideas of anything to calm him down would be great!! Doing a mini clearout but pretty sure its not loading. > > Kerry > > Sent from Yahoo! Mail on Android > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Thanks for the advice... Am going to stop it now. Been giving him 1/2 cap of kirkmans p5p twice a day. I do give him magnesium to. Kerryx Sent from Yahoo! Mail on Android Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Thanks for the advice... Am going to stop it now. Been giving him 1/2 cap of kirkmans p5p twice a day. I do give him magnesium to. Kerryx Sent from Yahoo! Mail on Android Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 Mine got very difficult on P5P, flapping and aggressive, once we stopped he settled down quite quickly. Tried again after few years was less severe reaction, but still much more stressed than usual. He also did not do well on suprenuthera from Kirkman (possibly b/c of the b’s) and on other multivits, Brainchild has been OK though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2011 Report Share Posted December 28, 2011 My son reacts badly to most (if not all B vits), however testing shows he is deficient inmost of them. There is info in Rosemary Warings research on sulphation re: p5p.If there is a sulphation problem p5p is needed but you will negative reactions unless given with correct ratio of mg. Kirkman do a P5p with mg glycinate in correct ratio. If there is a CBS upregulation (which my son has severe verson of) p5p will increase this problem. We manage by giving a very small dose (just 5mg - around 1/10 cap) of the kirkman p5p with mg). This small amount really does make a difference - he has seizures without it. If I increase it he reacts badly. P5P is needed along with active folate (folinic acid) and B12 for methylation. Following enzymes adding these in low dose were the next wow! moment for my son. Still struggling to get other B vits on board but as we are correcting mehtylation (through yasko) we are slowly adding in some seperately. BWAlison R Mine got very difficult on P5P, flapping and aggressive, once we stopped he settled down quite quickly. Tried again after few years was less severe reaction, but still much more stressed than usual. He also did not do well on suprenuthera from Kirkman (possibly b/c of the b’s) and on other multivits, Brainchild has been OK though. Quote Link to comment Share on other sites More sharing options...
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