Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Hi Cari: I have been down the road that you are now experiencing and had to taper off prednisone many times. When I taper, it is very slowly and there are no side effects except fatigue. Prednisone. is great when one is in distress it really helps. My allergy and asthma has offered me shots of Xolair which had to be approved by your insurance plan since it is so very expensive. It is suppose to be a great drug with high success. I researched it as far as I could and it seems to be great. I am going to go for it as soon as I get back on my feet from recent surgery. My doctor seems to think it is a good thing. Blessings Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 , I have only heard of Xolair being administered by having shots, not by IV. But it may be a different way of doing it. You either get shots every 2 weeks or every 4 weeks depending on your IgE. They do take a blood test for your IgE level to see if you are qualified for it. You have to have allergies.- I had chest pain also during an attack before my asthma got controlled. My doctor also had me have an echocardiogram, I think it is maybe standard procedure if you have chest pain just to make sure nothing is wrong with your heart because that can also cause shortness of breath. Once they rule that out you'll have one less thing to worry about. Try to stay calm(i know that is hard), it sounds like maybe you are finally getting something done to help you feel better. They have to do tests to know what to do for you. -- In asthma , <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 , I have only heard of Xolair being administered by having shots, not by IV. But it may be a different way of doing it. You either get shots every 2 weeks or every 4 weeks depending on your IgE. They do take a blood test for your IgE level to see if you are qualified for it. You have to have allergies.- I had chest pain also during an attack before my asthma got controlled. My doctor also had me have an echocardiogram, I think it is maybe standard procedure if you have chest pain just to make sure nothing is wrong with your heart because that can also cause shortness of breath. Once they rule that out you'll have one less thing to worry about. Try to stay calm(i know that is hard), it sounds like maybe you are finally getting something done to help you feel better. They have to do tests to know what to do for you. -- In asthma , <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 , I have only heard of Xolair being administered by having shots, not by IV. But it may be a different way of doing it. You either get shots every 2 weeks or every 4 weeks depending on your IgE. They do take a blood test for your IgE level to see if you are qualified for it. You have to have allergies.- I had chest pain also during an attack before my asthma got controlled. My doctor also had me have an echocardiogram, I think it is maybe standard procedure if you have chest pain just to make sure nothing is wrong with your heart because that can also cause shortness of breath. Once they rule that out you'll have one less thing to worry about. Try to stay calm(i know that is hard), it sounds like maybe you are finally getting something done to help you feel better. They have to do tests to know what to do for you. -- In asthma , <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Hi ....... My name is Lin and my son is going to be takin the xolair shot.... it's given by shot once a month or twice a month.....it's very new...... the information i got on it is.... from the pulmonlogist......and the allergist..... they both had told me this.... like i said shot given once or twice a month... the drs need ige levels from allergy and see if ur a candiate first before getting it... it's for moderate to severe asthma patients.. after getting the shot you have to wait in the drs office for a hour to see if there any allergic reaction.... thats alll i know so far..... my son has had asthma since birth...... so if u need any other help or any other questions answered about the xolair ask me any time..... we are just waiting from the insurance company to see if approved...... the med... is very expensive and not all insurance companies are paying for it....... just to let u know..... glad to be of help Lin wrote: Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Hi ....... My name is Lin and my son is going to be takin the xolair shot.... it's given by shot once a month or twice a month.....it's very new...... the information i got on it is.... from the pulmonlogist......and the allergist..... they both had told me this.... like i said shot given once or twice a month... the drs need ige levels from allergy and see if ur a candiate first before getting it... it's for moderate to severe asthma patients.. after getting the shot you have to wait in the drs office for a hour to see if there any allergic reaction.... thats alll i know so far..... my son has had asthma since birth...... so if u need any other help or any other questions answered about the xolair ask me any time..... we are just waiting from the insurance company to see if approved...... the med... is very expensive and not all insurance companies are paying for it....... just to let u know..... glad to be of help Lin wrote: Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 Hi ....... My name is Lin and my son is going to be takin the xolair shot.... it's given by shot once a month or twice a month.....it's very new...... the information i got on it is.... from the pulmonlogist......and the allergist..... they both had told me this.... like i said shot given once or twice a month... the drs need ige levels from allergy and see if ur a candiate first before getting it... it's for moderate to severe asthma patients.. after getting the shot you have to wait in the drs office for a hour to see if there any allergic reaction.... thats alll i know so far..... my son has had asthma since birth...... so if u need any other help or any other questions answered about the xolair ask me any time..... we are just waiting from the insurance company to see if approved...... the med... is very expensive and not all insurance companies are paying for it....... just to let u know..... glad to be of help Lin wrote: Is Xolair administered by a shot? I saw the pulmonologist last week and he took a blood sample to see if I was a candidate for a newer medication that is administered by IV once a month. I have an appointment with him again next week and I guess he will give me the results then. I had assumed it was Xolair, but now I am not sure. Does anyone have any idea what it could be? He has also ordered an echocardiogram which I will have this Thursday. Is that just pretty standard? I do get chest pain on the left side of my chest and shoulder during an attack, but just always assumed that was part of it. Does anyone else experience that? I really hope there is not a problem. I feel like I am dealing with enough chronic things at the moment. Thanks, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Lin, Sorry for the delay in replying. I get a 2 Xoliar shots every 2 weeks. They go by Your IgE and weight to determine hwo much and how often you get a shot. The first couple of times my doctor had me wait for an hour, but now I leave right after the shot, and soon I am going to be giving my own shots at home. I am completely off prednisone thanks to the Xolair. The stuff is really a miracle. It does take a while to work for some people. It took about 4 months for me to get feeling this good. So if your son doesn't see an improvement right away, don't give up. It is worth the wait. Check out Xolair.com, lots of good info there. -- - In asthma , no1friend621 <no1friend621@y...> wrote: > > > thank you so much for the info...... > i need to know as much as i can find out..... the only thing > i know about it is what the drs have told me.... > my son has been on steriods left and right.. > sometimes all year long.... hospitals like crazy... > like now he's been in and out of hospital.. > he's also taking allergy shots for sinus problems to see > if that will help.... the the drs said he would be perfect > for the xolair..... so now we wait.... > any other info would help..... > like what did u take it? once a month or twice a month? > did u have to wait for like an hour after u got ur shot? > thanks again > Lin > > > <cox58asthma@y...> wrote: > Lin > > Just wanted to tell you that I've been taking Xolair since Oct 2004 > and I have really seen a big improvement. I am now totally off > pred. It's really great stuff. I imagine your son will be feeling > better soon. You do want to remember that it is not something that > works right away, so don't get discouraged, give it time and you'll > be glad you did. I really didn't see alot of improvement until this > month, and now I feel like I am finally going to get my life back. > If you have any questions I'd be glad to answer then. Also I had > no side effects at all from the Xolair. > > --- > In asthma , no1friend621 <no1friend621@y...> wrote: > > Hi ....... My name is Lin and my son is going to be takin the > xolair shot.... > > it's given by shot once a month or twice a month.....it's very > new...... the information i got on it is.... from the > pulmonlogist......and the allergist..... they both had told me > this.... > > like i said shot given once or twice a month... > > the drs need ige levels from allergy and see if ur a candiate > first before getting it... > > it's for moderate to severe asthma patients.. > > after getting the shot you have to wait in the drs office for a > hour to see if there any allergic reaction.... > > > > thats alll i know so far..... > > my son has had asthma since birth...... so if u need any other > help or any other questions answered about the xolair ask me any > time..... > > we are just waiting from the insurance company to see if > approved...... the med... is very expensive and not all insurance > companies are paying for it....... just to let u know..... > > > > glad to be of help > > Lin > > > > > > > > <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last > week and he took a blood sample to see if I was a candidate for a > newer medication that is administered by IV once a month. I have an > appointment with him again next week and I guess he will give me the > results then. I had assumed it was Xolair, but now I am not sure. > Does anyone have any idea what it could be? He has also ordered an > echocardiogram which I will have this Thursday. Is that just pretty > standard? I do get chest pain on the left side of my chest and > shoulder during an attack, but just always assumed that was part of > it. Does anyone else experience that? I really hope there is not a > problem. I feel like I am dealing with enough chronic things at the > moment. Thanks, > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Lin, Sorry for the delay in replying. I get a 2 Xoliar shots every 2 weeks. They go by Your IgE and weight to determine hwo much and how often you get a shot. The first couple of times my doctor had me wait for an hour, but now I leave right after the shot, and soon I am going to be giving my own shots at home. I am completely off prednisone thanks to the Xolair. The stuff is really a miracle. It does take a while to work for some people. It took about 4 months for me to get feeling this good. So if your son doesn't see an improvement right away, don't give up. It is worth the wait. Check out Xolair.com, lots of good info there. -- - In asthma , no1friend621 <no1friend621@y...> wrote: > > > thank you so much for the info...... > i need to know as much as i can find out..... the only thing > i know about it is what the drs have told me.... > my son has been on steriods left and right.. > sometimes all year long.... hospitals like crazy... > like now he's been in and out of hospital.. > he's also taking allergy shots for sinus problems to see > if that will help.... the the drs said he would be perfect > for the xolair..... so now we wait.... > any other info would help..... > like what did u take it? once a month or twice a month? > did u have to wait for like an hour after u got ur shot? > thanks again > Lin > > > <cox58asthma@y...> wrote: > Lin > > Just wanted to tell you that I've been taking Xolair since Oct 2004 > and I have really seen a big improvement. I am now totally off > pred. It's really great stuff. I imagine your son will be feeling > better soon. You do want to remember that it is not something that > works right away, so don't get discouraged, give it time and you'll > be glad you did. I really didn't see alot of improvement until this > month, and now I feel like I am finally going to get my life back. > If you have any questions I'd be glad to answer then. Also I had > no side effects at all from the Xolair. > > --- > In asthma , no1friend621 <no1friend621@y...> wrote: > > Hi ....... My name is Lin and my son is going to be takin the > xolair shot.... > > it's given by shot once a month or twice a month.....it's very > new...... the information i got on it is.... from the > pulmonlogist......and the allergist..... they both had told me > this.... > > like i said shot given once or twice a month... > > the drs need ige levels from allergy and see if ur a candiate > first before getting it... > > it's for moderate to severe asthma patients.. > > after getting the shot you have to wait in the drs office for a > hour to see if there any allergic reaction.... > > > > thats alll i know so far..... > > my son has had asthma since birth...... so if u need any other > help or any other questions answered about the xolair ask me any > time..... > > we are just waiting from the insurance company to see if > approved...... the med... is very expensive and not all insurance > companies are paying for it....... just to let u know..... > > > > glad to be of help > > Lin > > > > > > > > <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last > week and he took a blood sample to see if I was a candidate for a > newer medication that is administered by IV once a month. I have an > appointment with him again next week and I guess he will give me the > results then. I had assumed it was Xolair, but now I am not sure. > Does anyone have any idea what it could be? He has also ordered an > echocardiogram which I will have this Thursday. Is that just pretty > standard? I do get chest pain on the left side of my chest and > shoulder during an attack, but just always assumed that was part of > it. Does anyone else experience that? I really hope there is not a > problem. I feel like I am dealing with enough chronic things at the > moment. Thanks, > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Lin, Sorry for the delay in replying. I get a 2 Xoliar shots every 2 weeks. They go by Your IgE and weight to determine hwo much and how often you get a shot. The first couple of times my doctor had me wait for an hour, but now I leave right after the shot, and soon I am going to be giving my own shots at home. I am completely off prednisone thanks to the Xolair. The stuff is really a miracle. It does take a while to work for some people. It took about 4 months for me to get feeling this good. So if your son doesn't see an improvement right away, don't give up. It is worth the wait. Check out Xolair.com, lots of good info there. -- - In asthma , no1friend621 <no1friend621@y...> wrote: > > > thank you so much for the info...... > i need to know as much as i can find out..... the only thing > i know about it is what the drs have told me.... > my son has been on steriods left and right.. > sometimes all year long.... hospitals like crazy... > like now he's been in and out of hospital.. > he's also taking allergy shots for sinus problems to see > if that will help.... the the drs said he would be perfect > for the xolair..... so now we wait.... > any other info would help..... > like what did u take it? once a month or twice a month? > did u have to wait for like an hour after u got ur shot? > thanks again > Lin > > > <cox58asthma@y...> wrote: > Lin > > Just wanted to tell you that I've been taking Xolair since Oct 2004 > and I have really seen a big improvement. I am now totally off > pred. It's really great stuff. I imagine your son will be feeling > better soon. You do want to remember that it is not something that > works right away, so don't get discouraged, give it time and you'll > be glad you did. I really didn't see alot of improvement until this > month, and now I feel like I am finally going to get my life back. > If you have any questions I'd be glad to answer then. Also I had > no side effects at all from the Xolair. > > --- > In asthma , no1friend621 <no1friend621@y...> wrote: > > Hi ....... My name is Lin and my son is going to be takin the > xolair shot.... > > it's given by shot once a month or twice a month.....it's very > new...... the information i got on it is.... from the > pulmonlogist......and the allergist..... they both had told me > this.... > > like i said shot given once or twice a month... > > the drs need ige levels from allergy and see if ur a candiate > first before getting it... > > it's for moderate to severe asthma patients.. > > after getting the shot you have to wait in the drs office for a > hour to see if there any allergic reaction.... > > > > thats alll i know so far..... > > my son has had asthma since birth...... so if u need any other > help or any other questions answered about the xolair ask me any > time..... > > we are just waiting from the insurance company to see if > approved...... the med... is very expensive and not all insurance > companies are paying for it....... just to let u know..... > > > > glad to be of help > > Lin > > > > > > > > <pirates_ej@y...> wrote: > > Is Xolair administered by a shot? I saw the pulmonologist last > week and he took a blood sample to see if I was a candidate for a > newer medication that is administered by IV once a month. I have an > appointment with him again next week and I guess he will give me the > results then. I had assumed it was Xolair, but now I am not sure. > Does anyone have any idea what it could be? He has also ordered an > echocardiogram which I will have this Thursday. Is that just pretty > standard? I do get chest pain on the left side of my chest and > shoulder during an attack, but just always assumed that was part of > it. Does anyone else experience that? I really hope there is not a > problem. I feel like I am dealing with enough chronic things at the > moment. Thanks, > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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