Re: Psychotic episodes/regression?

[Guest guest]

Sara,

For maintenance doses, perhaps our experience might help.

We were low on D and dosed 8000iu per day but then tested too high back in may

so we were advised to drop back to 6000iu. We did but are back to 8000iu for

winter. Our son is 48lbs.

x

>

> Eileen, please share how much D3 you are giving as a megadose and how

> much you will give as maintenance (RDA) (and do you include any from CLO

> in that?) Thanks, Sara xxx

>

[Guest guest]

I think that even the NHS is now recommending that pregnant women supplement

with Vitamin D?

Margaret

>

> >

>

> > Eileen, please share how much D3 you are giving as a megadose and how

>

> > much you will give as maintenance (RDA) (and do you include any from CLO

>

> > in that?) Thanks, Sara xxx

>

> >

>

[Guest guest]

Sara

I am very glad to read Anita and 's replies as I know them both, know they

research everything like a lot of us, and like you we are seeing good things. I

was piffling about with it until I chatted with and she told me what

she had read about it, plus I watched Mandi's video. Jay is up to 20 drops a

day of RX from Mandi, no ill effects, I am on 40 and need to get some more!

Mandi's is good for dosing, I figured out now how many mls that is in the

dropper so I don't have to count them. When I maintain I will go to 2/3rd that

I think. What I further find out will influence what I do.

Jay has low cholesterol levels, and I want to get them up but the test did not

tell me which were good/bad. I plan to get the test that will tell me that and

supplement cholesterol a bit later on when I have made more progress with the

strep thing. Depending on the cholesterol I might have to change my plan which

is only approx at the mo. Eileen

> >

> > Eileen, please share how much D3 you are giving as a megadose and how

> > much you will give as maintenance (RDA) (and do you include any from CLO

> > in that?) Thanks, Sara xxx

> >

>

[Guest guest]

Sara

I am very glad to read Anita and 's replies as I know them both, know they

research everything like a lot of us, and like you we are seeing good things. I

was piffling about with it until I chatted with and she told me what

she had read about it, plus I watched Mandi's video. Jay is up to 20 drops a

day of RX from Mandi, no ill effects, I am on 40 and need to get some more!

Mandi's is good for dosing, I figured out now how many mls that is in the

dropper so I don't have to count them. When I maintain I will go to 2/3rd that

I think. What I further find out will influence what I do.

Jay has low cholesterol levels, and I want to get them up but the test did not

tell me which were good/bad. I plan to get the test that will tell me that and

supplement cholesterol a bit later on when I have made more progress with the

strep thing. Depending on the cholesterol I might have to change my plan which

is only approx at the mo. Eileen

> >

> > Eileen, please share how much D3 you are giving as a megadose and how

> > much you will give as maintenance (RDA) (and do you include any from CLO

> > in that?) Thanks, Sara xxx

> >

>

[Guest guest]

, what anti strep herbs did she recommend if you don't mind sharing?

Eileen xx

>

> For us it was glutamate levels getting too high, along with a couple of other

things. Anju Usman suggested a 3 pronged approach.

>

> 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

are all high †" also turkey especially]

> 2] stop all b vitamins for a period [we also stopped a multi which dr

neubrander had recommended and his mb12.

> 3] use anti-strep herbs †" although this was to treat the concurrent HUGE ocd

problem he had at the time too.

>

> A urine organic acids test showed high levels of kynurenic acid and

quinolinate, both of which suggested gut bugs that thrive on b vits.

> They also occur sometimes with hallucinations and schizophrenia, so we

concluded he had been hallucinating †" it certainly looked like that.

>

> The ocd took some weeks, but the psychotic episodes never occurred

again.....and they had been HORRIBLE.

>

> You can find a link to levels of naturally occuring glutamate in foods here

>

> http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

>

> The site is by a vet who found that lowering glutamates and amines in foods

for dogs got rid of their epilepsy! He also has animal owners with autistic kids

and has taken a real interest in this.

> He writes a lot about it on his website, including reference to the GARD diet

for epilepsy in people. [Glutamate and Amine Reduced Diet]

>

> Some kids find l-glutamine helps †" for us it has always been a big no-no, as

does not seem to metabolise it right. Also †" he has problems with

> edginess with too much calcium, so we watch out for that.

>

> ONE GREAT TIP †" we found that a 1/2 teaspoon of bicarbonate in water really

calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> may respond to this.

>

> Hope something here helps †" I know how upsetting this can be, but can tell

you now it has been 4 years since anything like this happened here.

>

>

>

[Guest guest]

, what anti strep herbs did she recommend if you don't mind sharing?

Eileen xx

>

> For us it was glutamate levels getting too high, along with a couple of other

things. Anju Usman suggested a 3 pronged approach.

>

> 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

are all high †" also turkey especially]

> 2] stop all b vitamins for a period [we also stopped a multi which dr

neubrander had recommended and his mb12.

> 3] use anti-strep herbs †" although this was to treat the concurrent HUGE ocd

problem he had at the time too.

>

> A urine organic acids test showed high levels of kynurenic acid and

quinolinate, both of which suggested gut bugs that thrive on b vits.

> They also occur sometimes with hallucinations and schizophrenia, so we

concluded he had been hallucinating †" it certainly looked like that.

>

> The ocd took some weeks, but the psychotic episodes never occurred

again.....and they had been HORRIBLE.

>

> You can find a link to levels of naturally occuring glutamate in foods here

>

> http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

>

> The site is by a vet who found that lowering glutamates and amines in foods

for dogs got rid of their epilepsy! He also has animal owners with autistic kids

and has taken a real interest in this.

> He writes a lot about it on his website, including reference to the GARD diet

for epilepsy in people. [Glutamate and Amine Reduced Diet]

>

> Some kids find l-glutamine helps †" for us it has always been a big no-no, as

does not seem to metabolise it right. Also †" he has problems with

> edginess with too much calcium, so we watch out for that.

>

> ONE GREAT TIP †" we found that a 1/2 teaspoon of bicarbonate in water really

calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> may respond to this.

>

> Hope something here helps †" I know how upsetting this can be, but can tell

you now it has been 4 years since anything like this happened here.

>

>

>

[Guest guest]

Vicky yes I read that. Thank you. ~In your position I would be asking exactly

the question you are asking, I am interested to see if others did long term D

how long term it was and what happened. It blasted the hell out of my virus and

i feel calmer on it. I'm not sure I'll maintain for years at that level, but I

really think we, me and J are better on it right now. I think this is like

Vitamin E. I plan to put that in again, because J has adenosylcobalamin

insufficiency, and E drives this round. Took me years to find that out. Some

things take years to get to the bottom of with our children, don't they. I

don't think I will have D in forever and a day though. Its just that sometimes I

find with J I have to hit things quite hard and this has been good for us.

So mainly Winter, then down, then up if we see virus/flare.

I seem to recall about how it works with CLO supplementation as well, can't

remember why, need to look it up.

Did you supplement calcium as well as D? Thinking about the bone growth.

I wish that hadn't happened for you, Vicky. All of this is such unchartered

territory for me and it seems everyone else xx

> > >

> > > Eileen, please share how much D3 you are giving as a megadose and how

> > > much you will give as maintenance (RDA) (and do you include any from CLO

> > > in that?) Thanks, Sara xxx

> > >

> >

>

[Guest guest]

Vicky yes I read that. Thank you. ~In your position I would be asking exactly

the question you are asking, I am interested to see if others did long term D

how long term it was and what happened. It blasted the hell out of my virus and

i feel calmer on it. I'm not sure I'll maintain for years at that level, but I

really think we, me and J are better on it right now. I think this is like

Vitamin E. I plan to put that in again, because J has adenosylcobalamin

insufficiency, and E drives this round. Took me years to find that out. Some

things take years to get to the bottom of with our children, don't they. I

don't think I will have D in forever and a day though. Its just that sometimes I

find with J I have to hit things quite hard and this has been good for us.

So mainly Winter, then down, then up if we see virus/flare.

I seem to recall about how it works with CLO supplementation as well, can't

remember why, need to look it up.

Did you supplement calcium as well as D? Thinking about the bone growth.

I wish that hadn't happened for you, Vicky. All of this is such unchartered

territory for me and it seems everyone else xx

> > >

> > > Eileen, please share how much D3 you are giving as a megadose and how

> > > much you will give as maintenance (RDA) (and do you include any from CLO

> > > in that?) Thanks, Sara xxx

> > >

> >

>