Re: Will she be independent when she's an adult???

April 23, 2005

In a message dated 4/23/2005 5:32:47 PM Central Daylight Time,

fightingautism@... writes:

What I've found is that I set my personal dreams for my girls high.

But you know, I've never been President so why do I think they will?

If Allie's skills are to ride a bus and work at a grocery store and

she's happy, then she's got a good life ahead of her.

debi,

so very well said...that truly hit me where i needed it to...thanks for

sharing your thoughts...

April 23, 2005

In a message dated 4/23/2005 5:32:47 PM Central Daylight Time,

fightingautism@... writes:

What I've found is that I set my personal dreams for my girls high.

But you know, I've never been President so why do I think they will?

If Allie's skills are to ride a bus and work at a grocery store and

she's happy, then she's got a good life ahead of her.

debi,

so very well said...that truly hit me where i needed it to...thanks for

sharing your thoughts...

April 23, 2005

In a message dated 4/23/2005 5:32:47 PM Central Daylight Time,

fightingautism@... writes:

What I've found is that I set my personal dreams for my girls high.

But you know, I've never been President so why do I think they will?

If Allie's skills are to ride a bus and work at a grocery store and

she's happy, then she's got a good life ahead of her.

debi,

so very well said...that truly hit me where i needed it to...thanks for

sharing your thoughts...

April 24, 2005

Joan,

Thanks for the information, it sounds very interesting. Jenna does not always

resist being touched, she likes to come up to me and give me a big squeeze

sometimes,almost knocking me over. We live in Ohio, wonder if your Dr. knows

anyone that does this type of therapy in Ohio in the Columbus area.

On the math subject, it started clicking for her in the past few years, if you

ask her what any addition math fact is she can tell you and now she is working

on multiplcation, she contiunously will as you math question to the point where

you have to tell her " no more math question " ! But when it comes to using money

appropriately she has no clue, although she can tell you the value of coins.

Have a 1st grader and its funny because Jenna and her are learning together 1st

grade math.

What type of programming is your daughter in? What are services like in NY?

Jenna is in a Multi-Handicapp Program in a typical HS, which focuses alot on

life-skills. What does your daughter do in the summer? Are there any good

camps in NY, Jenna goes to a camp for a week in the summer here.

Thanks - Jane

joan migton wrote:

Jane:

The chiropractor we have been using for the past seven years (still see him once

a week), does a very unusual adjustment which he calls the neural organization

technique. It was started by a Dr. Ferrerri in Brooklyn, who has since retired.

It involves kinesiology, or muscle testing, to determine the deficits in the

body and can address all systems, neurological, digestive, learning

disabilities, etc. Then he uses pressure points typical to

accupressure/accupuncture to treat the problems he uncovers. This therapy is

non invasive, no needles, no drugs, etc. My daughter literally has fallen

asleep on the table during treatment.

Some effects are immediate. I can actually see her face change and relax during

the time on the table and soon after. Some effects have to be processed by the

body over time.

Barbara was unable to add or subtract. We could teacher her two plus three is

five, she could use the little cubes, etc. But the next day we'd ask what's two

plus three and she wouldn't know without the cubes. She learned how to use a

calculator but could never hold the facts in her head.

Six months after we began treatment, her teacher began noticing that she was

giving correct answers without the calculator. So she started teaching her math

facts all over again and this time it clicked. I am a fourth grade teacher, so

I was trying every approach I knew to help her.

Within a few months of starting treatment, she stopped picking at her skin and

her clothes. The practitioner also addressed other ocd issues that she had and

all of these are now gone.

If you saw her at 14 and saw her today, you would not believe this is the same

child. Granted, she is not cured, far from it. But she is much happier being

herself and behaves much more appropriately in all situations

If you are in the new york area, feel free to e-mail me off list and I'll be

glad to give you our doctor's name. He treats a lot of autistic kids and has

made a difference for many families.

Joan

Re: Re: Will she be independent when she's an

adult???

Hi,

would those of you who have daughters in their teens tell a little about what

you daughters were like when they were young...my girls are 2 and 3 and i

have no idea what to expect, and that unknown is so very scary...i'd let to

prepare myself...or do you have any advice?? what kind of therapies did your

daughters receive?? i know all children with ASD are different, but i'd like

some

idea of what i might be expecting...thanks so much...you all are so

insightful!!!

April 29, 2005

Hi Bebi,

That truly was a beautiful answer, and not

one to diminish in the slightest way what the future

may hold for any of our children! It was so

profound...we can't predict how simple or complex our

typical kids'lives will be either. One day at a time,

trusting The Lord to get us through is the only way we

can make it~ Warm wishes, Joan-'s Mom

--- Debi wrote:

>

> I also have a 5 yr old with autism. I did a Brigance

> on her for my

> sped class and found her weakest skills are in

> self-help. I realized

> that Allie's biggest problem isn't her communication

> gap, it's my

> doing everything for her. Don't know if you have

> this problem, but I'm

> really trying to back off and treat her like a five

> year old. She now

> had chores to do every day. She puts the laundry

> away, picks up her

> toys, and holds her 2 yr old sister's hand when we

> walk across a

> parking lot-- Allie's not a runner or this wouldn't

> work. What I'm

> seeing is more responsibility in Allie and I'm

> feeling more at peace

> seeing her rise to the challenge.

>

> I look at it like this. I have 2 typical kids and I

> don't know if they

> will marry, work, etc. I've seen plenty of NT adults

> who are losers so

> who's to say *anyone* will? Maybe your daughter will

> drive at 16, or

> maybe she'll be 25 before she's able to drive. Maybe

> she won't ever be

> able to drive, but maybe she'll learn how to take a

> bus. Maybe your

> daughter will go to college, and maybe she won't.

> But if she doesn't

> go to college, maybe she'll go to technical school.

> If she can't do

> tech school then maybe she'll have a job at a

> grocery store or library.

>

> What I've found is that I set my personal dreams for

> my girls high.

> But you know, I've never been President so why do I

> think they will?

> If Allie's skills are to ride a bus and work at a

> grocery store and

> she's happy, then she's got a good life ahead of

> her. I see lots of

> people with disabilities in my neighborhood work

> like this. I also see

> a group home nearby that takes them all to the

> store. They each have

> a cart and shopping list marked off with things they

> need. I nearly

> cry each time I see them, one girl in particular

> beemed with pride as

> she took her stuff to check out and paid for it.

> Who's to say this is

> a bad life? It works for them, works for me.

>

> Of course, tomorrow Jesus may come and then we

> won't need to worry

> about any of it. " Worry not about tomorrow for today

> has enough

> troubles... " :-)

>

> Debi

>

__________________________________________________

April 29, 2005

I agree with everything Debi said ,so I will only say this that I have goals for

live as independant so possilbe . And i am working on them now . She

eleven and already quite independant.

Debbie

Joan McKiernan wrote:

Hi Bebi,

That truly was a beautiful answer, and not

one to diminish in the slightest way what the future

may hold for any of our children! It was so

profound...we can't predict how simple or complex our

typical kids'lives will be either. One day at a time,

trusting The Lord to get us through is the only way we

can make it~ Warm wishes, Joan-'s Mom

--- Debi wrote:

>

> I also have a 5 yr old with autism. I did a Brigance

> on her for my

> sped class and found her weakest skills are in

> self-help. I realized

> that Allie's biggest problem isn't her communication

> gap, it's my

> doing everything for her. Don't know if you have

> this problem, but I'm

> really trying to back off and treat her like a five

> year old. She now

> had chores to do every day. She puts the laundry

> away, picks up her

> toys, and holds her 2 yr old sister's hand when we

> walk across a

> parking lot-- Allie's not a runner or this wouldn't

> work. What I'm

> seeing is more responsibility in Allie and I'm

> feeling more at peace

> seeing her rise to the challenge.

>

> I look at it like this. I have 2 typical kids and I

> don't know if they

> will marry, work, etc. I've seen plenty of NT adults

> who are losers so

> who's to say *anyone* will? Maybe your daughter will

> drive at 16, or

> maybe she'll be 25 before she's able to drive. Maybe

> she won't ever be

> able to drive, but maybe she'll learn how to take a

> bus. Maybe your

> daughter will go to college, and maybe she won't.

> But if she doesn't

> go to college, maybe she'll go to technical school.

> If she can't do

> tech school then maybe she'll have a job at a

> grocery store or library.

>

> What I've found is that I set my personal dreams for

> my girls high.

> But you know, I've never been President so why do I

> think they will?

> If Allie's skills are to ride a bus and work at a

> grocery store and

> she's happy, then she's got a good life ahead of

> her. I see lots of

> people with disabilities in my neighborhood work

> like this. I also see

> a group home nearby that takes them all to the

> store. They each have

> a cart and shopping list marked off with things they

> need. I nearly

> cry each time I see them, one girl in particular

> beemed with pride as

> she took her stuff to check out and paid for it.

> Who's to say this is

> a bad life? It works for them, works for me.

>

> Of course, tomorrow Jesus may come and then we

> won't need to worry

> about any of it. " Worry not about tomorrow for today

> has enough

> troubles... " :-)

>

> Debi

>

__________________________________________________

May 1, 2005

Debi your answer brought tears to my eyes. It is so true.

And I am beginning to realize that I need to give my Emmie more chances to

fail, because only with that chance can she succeed. Just today, I was very

tired and just told her to " go Potty! " (we have been working on tolieting). And

you know what, she DID.

Emmie is teaching me to rejoice in the day to day gifts God give us.

debbie townley wrote:

I agree with everything Debi said ,so I will only say this that I have goals for

live as independant so possilbe . And i am working on them now . She

eleven and already quite independant.

Debbie

Joan McKiernan wrote:

Hi Bebi,

That truly was a beautiful answer, and not

one to diminish in the slightest way what the future

may hold for any of our children! It was so

profound...we can't predict how simple or complex our

typical kids'lives will be either. One day at a time,

trusting The Lord to get us through is the only way we

can make it~ Warm wishes, Joan-'s Mom

--- Debi wrote:

>

> I also have a 5 yr old with autism. I did a Brigance

> on her for my

> sped class and found her weakest skills are in

> self-help. I realized

> that Allie's biggest problem isn't her communication

> gap, it's my

> doing everything for her. Don't know if you have

> this problem, but I'm

> really trying to back off and treat her like a five

> year old. She now

> had chores to do every day. She puts the laundry

> away, picks up her

> toys, and holds her 2 yr old sister's hand when we

> walk across a

> parking lot-- Allie's not a runner or this wouldn't

> work. What I'm

> seeing is more responsibility in Allie and I'm

> feeling more at peace

> seeing her rise to the challenge.

>

> I look at it like this. I have 2 typical kids and I

> don't know if they

> will marry, work, etc. I've seen plenty of NT adults

> who are losers so

> who's to say *anyone* will? Maybe your daughter will

> drive at 16, or

> maybe she'll be 25 before she's able to drive. Maybe

> she won't ever be

> able to drive, but maybe she'll learn how to take a

> bus. Maybe your

> daughter will go to college, and maybe she won't.

> But if she doesn't

> go to college, maybe she'll go to technical school.

> If she can't do

> tech school then maybe she'll have a job at a

> grocery store or library.

>

> What I've found is that I set my personal dreams for

> my girls high.

> But you know, I've never been President so why do I

> think they will?

> If Allie's skills are to ride a bus and work at a

> grocery store and

> she's happy, then she's got a good life ahead of

> her. I see lots of

> people with disabilities in my neighborhood work

> like this. I also see

> a group home nearby that takes them all to the

> store. They each have

> a cart and shopping list marked off with things they

> need. I nearly

> cry each time I see them, one girl in particular

> beemed with pride as

> she took her stuff to check out and paid for it.

> Who's to say this is

> a bad life? It works for them, works for me.

>

> Of course, tomorrow Jesus may come and then we

> won't need to worry

> about any of it. " Worry not about tomorrow for today

> has enough

> troubles... " :-)

>

> Debi

>

__________________________________________________

May 1, 2005

Debi your answer brought tears to my eyes. It is so true.

And I am beginning to realize that I need to give my Emmie more chances to

fail, because only with that chance can she succeed. Just today, I was very

tired and just told her to " go Potty! " (we have been working on tolieting). And

you know what, she DID.

Emmie is teaching me to rejoice in the day to day gifts God give us.

debbie townley wrote:

I agree with everything Debi said ,so I will only say this that I have goals for

live as independant so possilbe . And i am working on them now . She

eleven and already quite independant.

Debbie

Joan McKiernan wrote:

Hi Bebi,

That truly was a beautiful answer, and not

one to diminish in the slightest way what the future

may hold for any of our children! It was so

profound...we can't predict how simple or complex our

typical kids'lives will be either. One day at a time,

trusting The Lord to get us through is the only way we

can make it~ Warm wishes, Joan-'s Mom

--- Debi wrote:

>

> I also have a 5 yr old with autism. I did a Brigance

> on her for my

> sped class and found her weakest skills are in

> self-help. I realized

> that Allie's biggest problem isn't her communication

> gap, it's my

> doing everything for her. Don't know if you have

> this problem, but I'm

> really trying to back off and treat her like a five

> year old. She now

> had chores to do every day. She puts the laundry

> away, picks up her

> toys, and holds her 2 yr old sister's hand when we

> walk across a

> parking lot-- Allie's not a runner or this wouldn't

> work. What I'm

> seeing is more responsibility in Allie and I'm

> feeling more at peace

> seeing her rise to the challenge.

>

> I look at it like this. I have 2 typical kids and I

> don't know if they

> will marry, work, etc. I've seen plenty of NT adults

> who are losers so

> who's to say *anyone* will? Maybe your daughter will

> drive at 16, or

> maybe she'll be 25 before she's able to drive. Maybe

> she won't ever be

> able to drive, but maybe she'll learn how to take a

> bus. Maybe your

> daughter will go to college, and maybe she won't.

> But if she doesn't

> go to college, maybe she'll go to technical school.

> If she can't do

> tech school then maybe she'll have a job at a

> grocery store or library.

>

> What I've found is that I set my personal dreams for

> my girls high.

> But you know, I've never been President so why do I

> think they will?

> If Allie's skills are to ride a bus and work at a

> grocery store and

> she's happy, then she's got a good life ahead of

> her. I see lots of

> people with disabilities in my neighborhood work

> like this. I also see

> a group home nearby that takes them all to the

> store. They each have

> a cart and shopping list marked off with things they

> need. I nearly

> cry each time I see them, one girl in particular

> beemed with pride as

> she took her stuff to check out and paid for it.

> Who's to say this is

> a bad life? It works for them, works for me.

>

> Of course, tomorrow Jesus may come and then we

> won't need to worry

> about any of it. " Worry not about tomorrow for today

> has enough

> troubles... " :-)

>

> Debi

>

__________________________________________________

May 1, 2005

Debi your answer brought tears to my eyes. It is so true.

And I am beginning to realize that I need to give my Emmie more chances to

fail, because only with that chance can she succeed. Just today, I was very

tired and just told her to " go Potty! " (we have been working on tolieting). And

you know what, she DID.

Emmie is teaching me to rejoice in the day to day gifts God give us.

debbie townley wrote:

I agree with everything Debi said ,so I will only say this that I have goals for

live as independant so possilbe . And i am working on them now . She

eleven and already quite independant.

Debbie

Joan McKiernan wrote:

Hi Bebi,

That truly was a beautiful answer, and not

one to diminish in the slightest way what the future

may hold for any of our children! It was so

profound...we can't predict how simple or complex our

typical kids'lives will be either. One day at a time,

trusting The Lord to get us through is the only way we

can make it~ Warm wishes, Joan-'s Mom

--- Debi wrote:

>

> I also have a 5 yr old with autism. I did a Brigance

> on her for my

> sped class and found her weakest skills are in

> self-help. I realized

> that Allie's biggest problem isn't her communication

> gap, it's my

> doing everything for her. Don't know if you have

> this problem, but I'm

> really trying to back off and treat her like a five

> year old. She now

> had chores to do every day. She puts the laundry

> away, picks up her

> toys, and holds her 2 yr old sister's hand when we

> walk across a

> parking lot-- Allie's not a runner or this wouldn't

> work. What I'm

> seeing is more responsibility in Allie and I'm

> feeling more at peace

> seeing her rise to the challenge.

>

> I look at it like this. I have 2 typical kids and I

> don't know if they

> will marry, work, etc. I've seen plenty of NT adults

> who are losers so

> who's to say *anyone* will? Maybe your daughter will

> drive at 16, or

> maybe she'll be 25 before she's able to drive. Maybe

> she won't ever be

> able to drive, but maybe she'll learn how to take a

> bus. Maybe your

> daughter will go to college, and maybe she won't.

> But if she doesn't

> go to college, maybe she'll go to technical school.

> If she can't do

> tech school then maybe she'll have a job at a

> grocery store or library.

>

> What I've found is that I set my personal dreams for

> my girls high.

> But you know, I've never been President so why do I

> think they will?

> If Allie's skills are to ride a bus and work at a

> grocery store and

> she's happy, then she's got a good life ahead of

> her. I see lots of

> people with disabilities in my neighborhood work

> like this. I also see

> a group home nearby that takes them all to the

> store. They each have

> a cart and shopping list marked off with things they

> need. I nearly

> cry each time I see them, one girl in particular

> beemed with pride as

> she took her stuff to check out and paid for it.

> Who's to say this is

> a bad life? It works for them, works for me.

>

> Of course, tomorrow Jesus may come and then we

> won't need to worry

> about any of it. " Worry not about tomorrow for today

> has enough

> troubles... " :-)

>

> Debi

>

__________________________________________________

May 3, 2005

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

May 4, 2005

Yeah, Allie! You go girl!!!

Diane ('s Mom)

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 6, 2005

My non-verbal 20 month old said and waved bye-bye to daddy yesterday...i cried!

its the little things that matter in such a huge way

aimee

ds2400 wrote:

Yeah, Allie! You go girl!!!

Diane ('s Mom)

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 6, 2005

Oh that's great Aimee!! I can remember how great it felt when my dd finally

called me Mommy. It was so nice!! Now she says my name 100 times a day and

love each time!! Continue to share the good news please!!

Jen

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 6, 2005

Oh that's great Aimee!! I can remember how great it felt when my dd finally

called me Mommy. It was so nice!! Now she says my name 100 times a day and

love each time!! Continue to share the good news please!!

Jen

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 9, 2005

hoe old was your daughter when she said mommy?

is she or was she in an aba program?

aimee

Sagginario wrote:

Oh that's great Aimee!! I can remember how great it felt when my dd finally

called me Mommy. It was so nice!! Now she says my name 100 times a day and

love each time!! Continue to share the good news please!!

Jen

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 9, 2005

hoe old was your daughter when she said mommy?

is she or was she in an aba program?

aimee

Sagginario wrote:

Oh that's great Aimee!! I can remember how great it felt when my dd finally

called me Mommy. It was so nice!! Now she says my name 100 times a day and

love each time!! Continue to share the good news please!!

Jen

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

Autism_in_Girls-subscribe

------------------------

Autism_in_Girls-unsubscribe

May 10, 2005

It was after her 3rd birthday. nna could say words and sing many songs but

she couldn't use the words functionally. Like she'd say spider in the song but

had no idea what a spider was. She didn't really understand the concept of

people having different names until ABA. She would say Dada before that but

didn't use it to call my husband or identify him, she just repeated it or would

say it out of no where. Once ABA used pictures and basically drilled the

pictures with names, she really got it. Now she can identify and say her

grandparents, her sister, cousin, and close aunts and uncles. Does your

daughter receive ABA therapy? My dd didn't her first year of intervention (age

2-3) b/c the first set of teachers thought she was " too high functioning and

wouldn't respond. " Boy were they wrong! After a year of little steps of

growth, I asked for it at our mtg and the committee gave it to us on a trial

basis. We met again after 6 mos and got more hours b/c the results were

astounding. Within the first month she learned to identify people and how to

answer yes and no questions!! This has been a huge year for nna although

there is a lot of work still to be done. She's taken many new steps in her

development. She's a few set backs too (social & anxiety.) Overall after all

of my babbling to you, I recommend ABA and at least trying it.

Jen

Re: Will she be independent when she's an

adult???

God shows us His power in the most simple ways. This morning I said,

" I wonder where Isa is? " (our new kitten) and Allie, my child who

cannot do spontaneous expressive language said, " In 's room. "

Those little moments are awesome!

Debi

--- In Autism_in_Girls , Riddle Just today, I

was very tired and just told her to " go Potty! " (we have been working

on tolieting). And you know what, she DID.

>

> Emmie is teaching me to rejoice in the day to day gifts God give us.

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May 10, 2005