Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 One thing that I failed to mention in my previous post: eating gluten---especially by FEMALES on the autism spectrum----is associated w/ a higher rate of epilepsy and, of course, epileptic seizures. I have read this bit of info. in at least 2 recent reports. This possibility alone is THE reason I will not ever re-introduce gluten to my 5.75 y/old Grace's diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 I am new to this group and have many questions. What is the GFCF Diet? It seems from what I have read of people's postings that it only seems to help some. I have been told now for over a year that the doctors and certain programs feel my daughter is Autistic, but they have never diagnosed her. She has an appointment with a child psychologist in Late March. But for me that is not soon enough. I have done a lot of internet searching on how to help her and have tried various things, but am so at a loss right now. She is driving me litterally crazy. I just had my younger daughter evaluated and they feel that she too, may be autistic. My older daughter is 3 1/2 and my younger is almost 2. Their symptoms and behaviors are very different from one another, but also very abnormal compared to the children I have babysat, done day care for and grown up with as I am from a family of nine children and am the 2nd oldest. My older daughter (Chantelle) can not have milk. I used to just think she was lactose intollerent like my husband and father-in-law. She acted a lot better on Lactaid than regular milk, but when she goes off of milk all together for about 3-5 days she starts to get a lot better, not nearly as many tantrums and drooling and hurting herself. But then if she has any milk even Lactaid after she's been off a week or so, then she has these seizure like tantrums. They last for like 20 minutes and it is like she is not really there. I thought they were just tantrums, because they only started about 3 weeks ago. But I tried bribing her out of them with Ice cream or going outside or other things she likes, and nothing seems to work. She doesn't have a very wide vocabulary and most of what she does say, are quotes from movies, but when she finally comes out of these little spells, she turns to me, as if she weren't even there, and then says, " What happened? " " What happened? " over and over, like she doesn't know why her head is hurting, from beating it into things. It just makes me cry and worry what is wrong with her and what I can do. I had never heard anything about Siezures having anything to do with Autism, until I just read your title, saying " Eating gluten and Epilepsy " Please let me know anything you can about that or this diet or anything I can try, or if you know anyone who does know. I am also 7 months pregnant right now, and just don't have the energy or strength to pick her up and hold her still during these tantrums so that she doesn't hurt herself. She is tall and big, she wears a size 6-7 already and weighs about 42lbs. Give me any help or insight you can, thankyou > One thing that I failed to mention in my previous post: eating gluten---especially by FEMALES on the autism spectrum----is associated w/ a higher rate of epilepsy and, of course, epileptic seizures. I have read this bit of info. in at least 2 recent reports. This possibility alone is THE reason I will not ever re- introduce gluten to my 5.75 y/old Grace's diet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 I am new to this group and have many questions. What is the GFCF Diet? It seems from what I have read of people's postings that it only seems to help some. I have been told now for over a year that the doctors and certain programs feel my daughter is Autistic, but they have never diagnosed her. She has an appointment with a child psychologist in Late March. But for me that is not soon enough. I have done a lot of internet searching on how to help her and have tried various things, but am so at a loss right now. She is driving me litterally crazy. I just had my younger daughter evaluated and they feel that she too, may be autistic. My older daughter is 3 1/2 and my younger is almost 2. Their symptoms and behaviors are very different from one another, but also very abnormal compared to the children I have babysat, done day care for and grown up with as I am from a family of nine children and am the 2nd oldest. My older daughter (Chantelle) can not have milk. I used to just think she was lactose intollerent like my husband and father-in-law. She acted a lot better on Lactaid than regular milk, but when she goes off of milk all together for about 3-5 days she starts to get a lot better, not nearly as many tantrums and drooling and hurting herself. But then if she has any milk even Lactaid after she's been off a week or so, then she has these seizure like tantrums. They last for like 20 minutes and it is like she is not really there. I thought they were just tantrums, because they only started about 3 weeks ago. But I tried bribing her out of them with Ice cream or going outside or other things she likes, and nothing seems to work. She doesn't have a very wide vocabulary and most of what she does say, are quotes from movies, but when she finally comes out of these little spells, she turns to me, as if she weren't even there, and then says, " What happened? " " What happened? " over and over, like she doesn't know why her head is hurting, from beating it into things. It just makes me cry and worry what is wrong with her and what I can do. I had never heard anything about Siezures having anything to do with Autism, until I just read your title, saying " Eating gluten and Epilepsy " Please let me know anything you can about that or this diet or anything I can try, or if you know anyone who does know. I am also 7 months pregnant right now, and just don't have the energy or strength to pick her up and hold her still during these tantrums so that she doesn't hurt herself. She is tall and big, she wears a size 6-7 already and weighs about 42lbs. Give me any help or insight you can, thankyou > One thing that I failed to mention in my previous post: eating gluten---especially by FEMALES on the autism spectrum----is associated w/ a higher rate of epilepsy and, of course, epileptic seizures. I have read this bit of info. in at least 2 recent reports. This possibility alone is THE reason I will not ever re- introduce gluten to my 5.75 y/old Grace's diet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 I am new to this group and have many questions. What is the GFCF Diet? It seems from what I have read of people's postings that it only seems to help some. I have been told now for over a year that the doctors and certain programs feel my daughter is Autistic, but they have never diagnosed her. She has an appointment with a child psychologist in Late March. But for me that is not soon enough. I have done a lot of internet searching on how to help her and have tried various things, but am so at a loss right now. She is driving me litterally crazy. I just had my younger daughter evaluated and they feel that she too, may be autistic. My older daughter is 3 1/2 and my younger is almost 2. Their symptoms and behaviors are very different from one another, but also very abnormal compared to the children I have babysat, done day care for and grown up with as I am from a family of nine children and am the 2nd oldest. My older daughter (Chantelle) can not have milk. I used to just think she was lactose intollerent like my husband and father-in-law. She acted a lot better on Lactaid than regular milk, but when she goes off of milk all together for about 3-5 days she starts to get a lot better, not nearly as many tantrums and drooling and hurting herself. But then if she has any milk even Lactaid after she's been off a week or so, then she has these seizure like tantrums. They last for like 20 minutes and it is like she is not really there. I thought they were just tantrums, because they only started about 3 weeks ago. But I tried bribing her out of them with Ice cream or going outside or other things she likes, and nothing seems to work. She doesn't have a very wide vocabulary and most of what she does say, are quotes from movies, but when she finally comes out of these little spells, she turns to me, as if she weren't even there, and then says, " What happened? " " What happened? " over and over, like she doesn't know why her head is hurting, from beating it into things. It just makes me cry and worry what is wrong with her and what I can do. I had never heard anything about Siezures having anything to do with Autism, until I just read your title, saying " Eating gluten and Epilepsy " Please let me know anything you can about that or this diet or anything I can try, or if you know anyone who does know. I am also 7 months pregnant right now, and just don't have the energy or strength to pick her up and hold her still during these tantrums so that she doesn't hurt herself. She is tall and big, she wears a size 6-7 already and weighs about 42lbs. Give me any help or insight you can, thankyou > One thing that I failed to mention in my previous post: eating gluten---especially by FEMALES on the autism spectrum----is associated w/ a higher rate of epilepsy and, of course, epileptic seizures. I have read this bit of info. in at least 2 recent reports. This possibility alone is THE reason I will not ever re- introduce gluten to my 5.75 y/old Grace's diet. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Go to the yahoo group GFCFKids and lurk for a little while. > > I am new to this group and have many questions. What is the GFCF > Diet? Give me any help or insight you > can, thankyou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2005 Report Share Posted February 24, 2005 Go to the yahoo group GFCFKids and lurk for a little while. > > I am new to this group and have many questions. What is the GFCF > Diet? Give me any help or insight you > can, thankyou Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 just google " gluten " + " seizures " or " gluten " + epilepsy here's one, and reading it, makes me wonder if my NT 7 year old needs to have a blood test for celiac disease. she has stomach aches and canker sores. http://neuro-mancer.mgh.harvard.edu/ubb/Forum240/HTML/000256.html > Where did you see these reports? > I'm curious. i'm autistic. Im female. And I have > refractory mixed-pattern seizures. > > Kassiane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 There's a great book called " Unraveling the mystery of Autism and PDD " by Karyn Seroussi that explains the diet. Also check out the website www.AutismNDI.com There's tons of info on it, and I would be happy to help you get started if you decide to try it. Amnesty > > One thing that I failed to mention in my previous post: eating > gluten---especially by FEMALES on the autism spectrum----is > associated w/ a higher rate of epilepsy and, of course, epileptic > seizures. I have read this bit of info. in at least 2 recent > reports. This possibility alone is THE reason I will not ever re- > introduce gluten to my 5.75 y/old Grace's diet. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2005 Report Share Posted February 25, 2005 I would highly recommend video taping the tantrums you described from as soon as one starts until she's " recovered " . I would also recommend making an appointment with a pediatric neurologist and showing the tape to him/her. Around 40% of people with autism develop epilepsy by adulthood; many seizures begin around puberty. I thought Allie was having seizure activity and she went gfcf and the " episodes " stopped. You can also video tape the concerns you have with your girls around the house and take to the psychologist. Many times our kids won't do the things that concern us; if you have video tape it can help the psych make a more accurate diagnosis. My thought is if you're seeing a connection in your girls with food, stop the offending foods as soon as you can. It might take a few weeks to research, etc, but it's well worth the effort. There's also a slew of recipes (breads, stews, soups, pies, cakes, etc) on both the autismbiology board and gfcfrecipes board titled " debi's... " that I collected when Allie went gfcf. If anyone's interested I can cut and paste them here, but be forewarned, each posting will be very long. HTH, Debi Quote Link to comment Share on other sites More sharing options...
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