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Re: GFCF Diet, Eating Gluten and Epilepsy

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One thing that I failed to mention in my previous post: eating

gluten---especially by FEMALES on the autism spectrum----is associated w/ a

higher rate of epilepsy and, of course, epileptic seizures. I have read this bit

of info. in at least 2 recent reports. This possibility alone is THE reason I

will not ever re-introduce gluten to my 5.75 y/old Grace's diet.

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I am new to this group and have many questions. What is the GFCF

Diet? It seems from what I have read of people's postings that it

only seems to help some. I have been told now for over a year that

the doctors and certain programs feel my daughter is Autistic, but

they have never diagnosed her. She has an appointment with a child

psychologist in Late March. But for me that is not soon enough. I

have done a lot of internet searching on how to help her and have

tried various things, but am so at a loss right now. She is driving

me litterally crazy. I just had my younger daughter evaluated and

they feel that she too, may be autistic. My older daughter is 3 1/2

and my younger is almost 2. Their symptoms and behaviors are very

different from one another, but also very abnormal compared to the

children I have babysat, done day care for and grown up with as I am

from a family of nine children and am the 2nd oldest. My older

daughter (Chantelle) can not have milk. I used to just think she was

lactose intollerent like my husband and father-in-law. She acted a

lot better on Lactaid than regular milk, but when she goes off of

milk all together for about 3-5 days she starts to get a lot better,

not nearly as many tantrums and drooling and hurting herself. But

then if she has any milk even Lactaid after she's been off a week or

so, then she has these seizure like tantrums. They last for like 20

minutes and it is like she is not really there. I thought they were

just tantrums, because they only started about 3 weeks ago. But I

tried bribing her out of them with Ice cream or going outside or

other things she likes, and nothing seems to work. She doesn't have

a very wide vocabulary and most of what she does say, are quotes

from movies, but when she finally comes out of these little spells,

she turns to me, as if she weren't even there, and then says, " What

happened? " " What happened? " over and over, like she doesn't know why

her head is hurting, from beating it into things. It just makes me

cry and worry what is wrong with her and what I can do. I had never

heard anything about Siezures having anything to do with Autism,

until I just read your title, saying " Eating gluten and Epilepsy "

Please let me know anything you can about that or this diet or

anything I can try, or if you know anyone who does know. I am also 7

months pregnant right now, and just don't have the energy or

strength to pick her up and hold her still during these tantrums so

that she doesn't hurt herself. She is tall and big, she wears a size

6-7 already and weighs about 42lbs. Give me any help or insight you

can, thankyou

> One thing that I failed to mention in my previous post: eating

gluten---especially by FEMALES on the autism spectrum----is

associated w/ a higher rate of epilepsy and, of course, epileptic

seizures. I have read this bit of info. in at least 2 recent

reports. This possibility alone is THE reason I will not ever re-

introduce gluten to my 5.75 y/old Grace's diet.

>

>

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I am new to this group and have many questions. What is the GFCF

Diet? It seems from what I have read of people's postings that it

only seems to help some. I have been told now for over a year that

the doctors and certain programs feel my daughter is Autistic, but

they have never diagnosed her. She has an appointment with a child

psychologist in Late March. But for me that is not soon enough. I

have done a lot of internet searching on how to help her and have

tried various things, but am so at a loss right now. She is driving

me litterally crazy. I just had my younger daughter evaluated and

they feel that she too, may be autistic. My older daughter is 3 1/2

and my younger is almost 2. Their symptoms and behaviors are very

different from one another, but also very abnormal compared to the

children I have babysat, done day care for and grown up with as I am

from a family of nine children and am the 2nd oldest. My older

daughter (Chantelle) can not have milk. I used to just think she was

lactose intollerent like my husband and father-in-law. She acted a

lot better on Lactaid than regular milk, but when she goes off of

milk all together for about 3-5 days she starts to get a lot better,

not nearly as many tantrums and drooling and hurting herself. But

then if she has any milk even Lactaid after she's been off a week or

so, then she has these seizure like tantrums. They last for like 20

minutes and it is like she is not really there. I thought they were

just tantrums, because they only started about 3 weeks ago. But I

tried bribing her out of them with Ice cream or going outside or

other things she likes, and nothing seems to work. She doesn't have

a very wide vocabulary and most of what she does say, are quotes

from movies, but when she finally comes out of these little spells,

she turns to me, as if she weren't even there, and then says, " What

happened? " " What happened? " over and over, like she doesn't know why

her head is hurting, from beating it into things. It just makes me

cry and worry what is wrong with her and what I can do. I had never

heard anything about Siezures having anything to do with Autism,

until I just read your title, saying " Eating gluten and Epilepsy "

Please let me know anything you can about that or this diet or

anything I can try, or if you know anyone who does know. I am also 7

months pregnant right now, and just don't have the energy or

strength to pick her up and hold her still during these tantrums so

that she doesn't hurt herself. She is tall and big, she wears a size

6-7 already and weighs about 42lbs. Give me any help or insight you

can, thankyou

> One thing that I failed to mention in my previous post: eating

gluten---especially by FEMALES on the autism spectrum----is

associated w/ a higher rate of epilepsy and, of course, epileptic

seizures. I have read this bit of info. in at least 2 recent

reports. This possibility alone is THE reason I will not ever re-

introduce gluten to my 5.75 y/old Grace's diet.

>

>

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I am new to this group and have many questions. What is the GFCF

Diet? It seems from what I have read of people's postings that it

only seems to help some. I have been told now for over a year that

the doctors and certain programs feel my daughter is Autistic, but

they have never diagnosed her. She has an appointment with a child

psychologist in Late March. But for me that is not soon enough. I

have done a lot of internet searching on how to help her and have

tried various things, but am so at a loss right now. She is driving

me litterally crazy. I just had my younger daughter evaluated and

they feel that she too, may be autistic. My older daughter is 3 1/2

and my younger is almost 2. Their symptoms and behaviors are very

different from one another, but also very abnormal compared to the

children I have babysat, done day care for and grown up with as I am

from a family of nine children and am the 2nd oldest. My older

daughter (Chantelle) can not have milk. I used to just think she was

lactose intollerent like my husband and father-in-law. She acted a

lot better on Lactaid than regular milk, but when she goes off of

milk all together for about 3-5 days she starts to get a lot better,

not nearly as many tantrums and drooling and hurting herself. But

then if she has any milk even Lactaid after she's been off a week or

so, then she has these seizure like tantrums. They last for like 20

minutes and it is like she is not really there. I thought they were

just tantrums, because they only started about 3 weeks ago. But I

tried bribing her out of them with Ice cream or going outside or

other things she likes, and nothing seems to work. She doesn't have

a very wide vocabulary and most of what she does say, are quotes

from movies, but when she finally comes out of these little spells,

she turns to me, as if she weren't even there, and then says, " What

happened? " " What happened? " over and over, like she doesn't know why

her head is hurting, from beating it into things. It just makes me

cry and worry what is wrong with her and what I can do. I had never

heard anything about Siezures having anything to do with Autism,

until I just read your title, saying " Eating gluten and Epilepsy "

Please let me know anything you can about that or this diet or

anything I can try, or if you know anyone who does know. I am also 7

months pregnant right now, and just don't have the energy or

strength to pick her up and hold her still during these tantrums so

that she doesn't hurt herself. She is tall and big, she wears a size

6-7 already and weighs about 42lbs. Give me any help or insight you

can, thankyou

> One thing that I failed to mention in my previous post: eating

gluten---especially by FEMALES on the autism spectrum----is

associated w/ a higher rate of epilepsy and, of course, epileptic

seizures. I have read this bit of info. in at least 2 recent

reports. This possibility alone is THE reason I will not ever re-

introduce gluten to my 5.75 y/old Grace's diet.

>

>

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Go to the yahoo group GFCFKids and lurk for a little while.

>

> I am new to this group and have many questions. What is the GFCF

> Diet? Give me any help or insight you

> can, thankyou

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Go to the yahoo group GFCFKids and lurk for a little while.

>

> I am new to this group and have many questions. What is the GFCF

> Diet? Give me any help or insight you

> can, thankyou

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just google " gluten " + " seizures "

or " gluten " + epilepsy

here's one, and reading it, makes me wonder if my NT 7 year old

needs to have a blood test for celiac disease. she has stomach

aches and canker sores.

http://neuro-mancer.mgh.harvard.edu/ubb/Forum240/HTML/000256.html

> Where did you see these reports?

> I'm curious. i'm autistic. Im female. And I have

> refractory mixed-pattern seizures.

>

> Kassiane

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There's a great book called " Unraveling the mystery of Autism and

PDD " by Karyn Seroussi that explains the diet. Also check out the

website www.AutismNDI.com

There's tons of info on it, and I would be happy to help you get

started if you decide to try it.

Amnesty

> > One thing that I failed to mention in my previous post: eating

> gluten---especially by FEMALES on the autism spectrum----is

> associated w/ a higher rate of epilepsy and, of course, epileptic

> seizures. I have read this bit of info. in at least 2 recent

> reports. This possibility alone is THE reason I will not ever re-

> introduce gluten to my 5.75 y/old Grace's diet.

> >

> >

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I would highly recommend video taping the tantrums you described from

as soon as one starts until she's " recovered " . I would also recommend

making an appointment with a pediatric neurologist and showing the

tape to him/her. Around 40% of people with autism develop epilepsy by

adulthood; many seizures begin around puberty. I thought Allie was

having seizure activity and she went gfcf and the " episodes " stopped.

You can also video tape the concerns you have with your girls around

the house and take to the psychologist. Many times our kids won't do

the things that concern us; if you have video tape it can help the

psych make a more accurate diagnosis.

My thought is if you're seeing a connection in your girls with food,

stop the offending foods as soon as you can. It might take a few weeks

to research, etc, but it's well worth the effort. There's also a slew

of recipes (breads, stews, soups, pies, cakes, etc) on both the

autismbiology board and gfcfrecipes board titled " debi's... " that I

collected when Allie went gfcf. If anyone's interested I can cut and

paste them here, but be forewarned, each posting will be very long.

HTH,

Debi

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