RE: Re: Psychotic episodes/regression?

[Guest guest]

IT ALSO FEELS LIKE YOU MIGHT POP...................MANDI JUST DEFLATED IN DORSET

For us , it was chronic soft stool constipation ( he was going daily and yet....) the gastro said it must feel like stonesHugs Nina x> >> > is going through some kind of regression, totally mindless, psychotic episodes.> > He physically attacked me today, that's a first for him, he raged for about 30 minutes, therapist was here at the time so she helped me restrain him, he was completely exhausted afterwards.> > Anyone seen this before? Any ideas? The rages are coming out of nowhere.> > No changes in supps or diet.> > TIA> > Vicky> >>

[Guest guest]

How old is ?

For us , it was chronic soft stool constipation ( he was

going daily and yet....) the gastro said it must feel like

stones

Hugs Nina x

> >

> > is going through some kind of regression,

totally mindless, psychotic episodes.

> > He physically attacked me today, that's a first

for him, he raged for about 30 minutes, therapist was here

at the time so she helped me restrain him, he was

completely exhausted afterwards.

> > Anyone seen this before? Any ideas? The rages

are coming out of nowhere.

> > No changes in supps or diet.

> > TIA

> > Vicky

> >

>

[Guest guest]

How old is ?

For us , it was chronic soft stool constipation ( he was

going daily and yet....) the gastro said it must feel like

stones

Hugs Nina x

> >

> > is going through some kind of regression,

totally mindless, psychotic episodes.

> > He physically attacked me today, that's a first

for him, he raged for about 30 minutes, therapist was here

at the time so she helped me restrain him, he was

completely exhausted afterwards.

> > Anyone seen this before? Any ideas? The rages

are coming out of nowhere.

> > No changes in supps or diet.

> > TIA

> > Vicky

> >

>

[Guest guest]

How old is ?

For us , it was chronic soft stool constipation ( he was

going daily and yet....) the gastro said it must feel like

stones

Hugs Nina x

> >

> > is going through some kind of regression,

totally mindless, psychotic episodes.

> > He physically attacked me today, that's a first

for him, he raged for about 30 minutes, therapist was here

at the time so she helped me restrain him, he was

completely exhausted afterwards.

> > Anyone seen this before? Any ideas? The rages

are coming out of nowhere.

> > No changes in supps or diet.

> > TIA

> > Vicky

> >

>

[Guest guest]

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

If he is tolerating antihistamines you should def try them no ASAP. Ideally http://www.amazon.co.uk/Coricidin-Antihistamine-Suppressant-Pressure-16-Count/dp/B0011DTFYC/ref=sr_1_cc_1?s=dvd & ie=UTF8 & qid=1323961825 & sr=1-1-catcorr but if you cannot get it quickly try cetirizine or loratidine (everywhere should sell them different brands).Also consider something for reflux, ranitidine is widely available – called Zantac or Gavis_something (read ingredients, it should have ranitidine and nothing else). ons etc have it own labelnxReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Thu, 15 Dec 2011 09:44:32 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Psychotic episodes/regression?

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach. 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too. A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that. The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE. You can find a link to levels of naturally occuring glutamate in foods here http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/ The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet] Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems withedginess with too much calcium, so we watch out for that. ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammoniamay respond to this. Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

If he is tolerating antihistamines you should def try them no ASAP. Ideally http://www.amazon.co.uk/Coricidin-Antihistamine-Suppressant-Pressure-16-Count/dp/B0011DTFYC/ref=sr_1_cc_1?s=dvd & ie=UTF8 & qid=1323961825 & sr=1-1-catcorr but if you cannot get it quickly try cetirizine or loratidine (everywhere should sell them different brands).Also consider something for reflux, ranitidine is widely available – called Zantac or Gavis_something (read ingredients, it should have ranitidine and nothing else). ons etc have it own labelnxReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Thu, 15 Dec 2011 09:44:32 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Psychotic episodes/regression?

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach. 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too. A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that. The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE. You can find a link to levels of naturally occuring glutamate in foods here http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/ The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet] Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems withedginess with too much calcium, so we watch out for that. ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammoniamay respond to this. Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

If he is tolerating antihistamines you should def try them no ASAP. Ideally http://www.amazon.co.uk/Coricidin-Antihistamine-Suppressant-Pressure-16-Count/dp/B0011DTFYC/ref=sr_1_cc_1?s=dvd & ie=UTF8 & qid=1323961825 & sr=1-1-catcorr but if you cannot get it quickly try cetirizine or loratidine (everywhere should sell them different brands).Also consider something for reflux, ranitidine is widely available – called Zantac or Gavis_something (read ingredients, it should have ranitidine and nothing else). ons etc have it own labelnxReply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Thu, 15 Dec 2011 09:44:32 -0500 (EST)To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: Re: Re: Psychotic episodes/regression?

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach. 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too. A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that. The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE. You can find a link to levels of naturally occuring glutamate in foods here http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/ The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet] Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems withedginess with too much calcium, so we watch out for that. ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammoniamay respond to this. Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Vicky,Can you remember exactly what he ate for dinner? Can you list?JSubject: Re: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Thursday, 15 December, 2011, 14:44

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Vicky,Can you remember exactly what he ate for dinner? Can you list?JSubject: Re: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Thursday, 15 December, 2011, 14:44

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Vicky,Can you remember exactly what he ate for dinner? Can you list?JSubject: Re: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Thursday, 15 December, 2011, 14:44

Thanks and everyone that responded.

Quite a few possibles, this has been boiling up for some time, he has become more willfull.

I would have been in serious problems had the therapist not been there to help.

I don't give B's because he is a rager on them and I don't rule out the most recent attempt to still have had a longer term effect on him, calcium is a no also along with Vit C and anything high oxalate.

I haven't seen like this since the days of his old school and severe gut pain, the difference is he is now double the size and strength!

Glut anything is out, but we have been eating Turkey mince for years with no problems, what's the glutamate connection there?

I am sure strep is bad, he is very OCD but not responding too well.

Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked all the way through getting consistantly worse because he couldn't settle to eat and he loves his food.

He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

Vicky

Re: Psychotic episodes/regression?

For us it was glutamate levels getting too high, along with a couple of other things. Anju Usman suggested a 3 pronged approach.

1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas are all high – also turkey especially]

2] stop all b vitamins for a period [we also stopped a multi which dr neubrander had recommended and his mb12.

3] use anti-strep herbs – although this was to treat the concurrent HUGE ocd problem he had at the time too.

A urine organic acids test showed high levels of kynurenic acid and quinolinate, both of which suggested gut bugs that thrive on b vits.

They also occur sometimes with hallucinations and schizophrenia, so we concluded he had been hallucinating – it certainly looked like that.

The ocd took some weeks, but the psychotic episodes never occurred again.....and they had been HORRIBLE.

You can find a link to levels of naturally occuring glutamate in foods here

http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

The site is by a vet who found that lowering glutamates and amines in foods for dogs got rid of their epilepsy! He also has animal owners with autistic kids and has taken a real interest in this.

He writes a lot about it on his website, including reference to the GARD diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

Some kids find l-glutamine helps – for us it has always been a big no-no, as does not seem to metabolise it right. Also – he has problems with

edginess with too much calcium, so we watch out for that.

ONE GREAT TIP – we found that a 1/2 teaspoon of bicarbonate in water really calms him quickly when he gets edgy..... any kind of excess acid or ammonia

may respond to this.

Hope something here helps – I know how upsetting this can be, but can tell you now it has been 4 years since anything like this happened here.

[Guest guest]

Hi Eileen, don't know any other Eileens lol.

Thanks for really interesting post, definitely see some possibles there, think I know the Dan you mention, we had strep ruled out by them, my understanding was there had to be a flare at the time of testing and that is pretty much impossible to arrange, were told something like 90% of the population would test positive for past EBV as did along with others so he was not treated as strep. I am so done with tests.

The antibiotics are really scarey for me because 's major regression were as a result of anitibiotic treatment for an extensive period of time when he was little, other than the gut issue he behaves really oddly when he is taking antibiotics, very nervous, staring at doors and things as though someone was lurking behind.Vit D3 is perhaps implicated somewhere, we started with that many years ago under Dr D, it was responsible for finally growing, getting teeth through, and all the other physical issues he had but look, this is the thing, I stopped Vit D some time ago now, maybe 4-5 months because I was really fearful that it may have been all the years of supplementing that had caused this bizarre bone growth he has.

Doctors are not worried about his bones, they call it endogenous bone growth but no reason why he has it or cause, been told to keep an eye, as if one day we will decide that's enough extra bone!

I wonder though if we are in a damned if we do and damned if we don't situation with over this, wouldn't be the first time.

Vicky

Re: Psychotic episodes/regression?

>

>

>

>

>

> For us it was glutamate levels getting too high, along with a couple of

> other things. Anju Usman suggested a 3 pronged approach.

>

> 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

> are all high ­ also turkey especially]

> 2] stop all b vitamins for a period [we also stopped a multi which dr

> neubrander had recommended and his mb12.

> 3] use anti-strep herbs ­ although this was to treat the concurrent HUGE ocd

> problem he had at the time too.

>

> A urine organic acids test showed high levels of kynurenic acid and

> quinolinate, both of which suggested gut bugs that thrive on b vits.

> They also occur sometimes with hallucinations and schizophrenia, so we

> concluded he had been hallucinating ­ it certainly looked like that.

>

> The ocd took some weeks, but the psychotic episodes never occurred

> again.....and they had been HORRIBLE.

>

> You can find a link to levels of naturally occuring glutamate in foods here

>

> http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

>

> The site is by a vet who found that lowering glutamates and amines in foods

> for dogs got rid of their epilepsy! He also has animal owners with autistic

> kids and has taken a real interest in this.

> He writes a lot about it on his website, including reference to the GARD

> diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

>

> Some kids find l-glutamine helps ­ for us it has always been a big no-no, as

> does not seem to metabolise it right. Also ­ he has problems with

> edginess with too much calcium, so we watch out for that.

>

> ONE GREAT TIP ­ we found that a 1/2 teaspoon of bicarbonate in water really

> calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> may respond to this.

>

> Hope something here helps ­ I know how upsetting this can be, but can tell

> you now it has been 4 years since anything like this happened here.

>

>

>

[Guest guest]

Hi Eileen, don't know any other Eileens lol.

Thanks for really interesting post, definitely see some possibles there, think I know the Dan you mention, we had strep ruled out by them, my understanding was there had to be a flare at the time of testing and that is pretty much impossible to arrange, were told something like 90% of the population would test positive for past EBV as did along with others so he was not treated as strep. I am so done with tests.

The antibiotics are really scarey for me because 's major regression were as a result of anitibiotic treatment for an extensive period of time when he was little, other than the gut issue he behaves really oddly when he is taking antibiotics, very nervous, staring at doors and things as though someone was lurking behind.Vit D3 is perhaps implicated somewhere, we started with that many years ago under Dr D, it was responsible for finally growing, getting teeth through, and all the other physical issues he had but look, this is the thing, I stopped Vit D some time ago now, maybe 4-5 months because I was really fearful that it may have been all the years of supplementing that had caused this bizarre bone growth he has.

Doctors are not worried about his bones, they call it endogenous bone growth but no reason why he has it or cause, been told to keep an eye, as if one day we will decide that's enough extra bone!

I wonder though if we are in a damned if we do and damned if we don't situation with over this, wouldn't be the first time.

Vicky

Re: Psychotic episodes/regression?

>

>

>

>

>

> For us it was glutamate levels getting too high, along with a couple of

> other things. Anju Usman suggested a 3 pronged approach.

>

> 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

> are all high ­ also turkey especially]

> 2] stop all b vitamins for a period [we also stopped a multi which dr

> neubrander had recommended and his mb12.

> 3] use anti-strep herbs ­ although this was to treat the concurrent HUGE ocd

> problem he had at the time too.

>

> A urine organic acids test showed high levels of kynurenic acid and

> quinolinate, both of which suggested gut bugs that thrive on b vits.

> They also occur sometimes with hallucinations and schizophrenia, so we

> concluded he had been hallucinating ­ it certainly looked like that.

>

> The ocd took some weeks, but the psychotic episodes never occurred

> again.....and they had been HORRIBLE.

>

> You can find a link to levels of naturally occuring glutamate in foods here

>

> http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

>

> The site is by a vet who found that lowering glutamates and amines in foods

> for dogs got rid of their epilepsy! He also has animal owners with autistic

> kids and has taken a real interest in this.

> He writes a lot about it on his website, including reference to the GARD

> diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

>

> Some kids find l-glutamine helps ­ for us it has always been a big no-no, as

> does not seem to metabolise it right. Also ­ he has problems with

> edginess with too much calcium, so we watch out for that.

>

> ONE GREAT TIP ­ we found that a 1/2 teaspoon of bicarbonate in water really

> calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> may respond to this.

>

> Hope something here helps ­ I know how upsetting this can be, but can tell

> you now it has been 4 years since anything like this happened here.

>

>

>

[Guest guest]

Hi Eileen, don't know any other Eileens lol.

Thanks for really interesting post, definitely see some possibles there, think I know the Dan you mention, we had strep ruled out by them, my understanding was there had to be a flare at the time of testing and that is pretty much impossible to arrange, were told something like 90% of the population would test positive for past EBV as did along with others so he was not treated as strep. I am so done with tests.

The antibiotics are really scarey for me because 's major regression were as a result of anitibiotic treatment for an extensive period of time when he was little, other than the gut issue he behaves really oddly when he is taking antibiotics, very nervous, staring at doors and things as though someone was lurking behind.Vit D3 is perhaps implicated somewhere, we started with that many years ago under Dr D, it was responsible for finally growing, getting teeth through, and all the other physical issues he had but look, this is the thing, I stopped Vit D some time ago now, maybe 4-5 months because I was really fearful that it may have been all the years of supplementing that had caused this bizarre bone growth he has.

Doctors are not worried about his bones, they call it endogenous bone growth but no reason why he has it or cause, been told to keep an eye, as if one day we will decide that's enough extra bone!

I wonder though if we are in a damned if we do and damned if we don't situation with over this, wouldn't be the first time.

Vicky

Re: Psychotic episodes/regression?

>

>

>

>

>

> For us it was glutamate levels getting too high, along with a couple of

> other things. Anju Usman suggested a 3 pronged approach.

>

> 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

> are all high ­ also turkey especially]

> 2] stop all b vitamins for a period [we also stopped a multi which dr

> neubrander had recommended and his mb12.

> 3] use anti-strep herbs ­ although this was to treat the concurrent HUGE ocd

> problem he had at the time too.

>

> A urine organic acids test showed high levels of kynurenic acid and

> quinolinate, both of which suggested gut bugs that thrive on b vits.

> They also occur sometimes with hallucinations and schizophrenia, so we

> concluded he had been hallucinating ­ it certainly looked like that.

>

> The ocd took some weeks, but the psychotic episodes never occurred

> again.....and they had been HORRIBLE.

>

> You can find a link to levels of naturally occuring glutamate in foods here

>

> http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

>

> The site is by a vet who found that lowering glutamates and amines in foods

> for dogs got rid of their epilepsy! He also has animal owners with autistic

> kids and has taken a real interest in this.

> He writes a lot about it on his website, including reference to the GARD

> diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

>

> Some kids find l-glutamine helps ­ for us it has always been a big no-no, as

> does not seem to metabolise it right. Also ­ he has problems with

> edginess with too much calcium, so we watch out for that.

>

> ONE GREAT TIP ­ we found that a 1/2 teaspoon of bicarbonate in water really

> calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> may respond to this.

>

> Hope something here helps ­ I know how upsetting this can be, but can tell

> you now it has been 4 years since anything like this happened here.

>

>

>

[Guest guest]

Eileen, I've had a quick look through your posts but can't find which enzyme you mean? Subject: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Saturday, 17 December, 2011, 9:17

I get where you are coming from, Strep can be hard to test for. I took J in the middle of a flare, but some of the kids also test negative for it anyway and still have it. My experience is once the strep has really caught hold, its at such a high level that we tested positive for it, whereas we might not have done before when it was gathering momentum.

I am SO done with tests as well but they're the only thing we can do here to get the right treatment. They will put my child on untested narcoleptic medication for debilitating tics, but an abx, even though so many nt mainstream kids are on them for immune related condition? Had to fight for it.

Depends what antibiotic you are on Vicky, has had a hard time on most of them, but settles well like a lot of the kids on Zithro. Jay had visual stims which have been resolved as the treatment has gone over a period of months. I've found if you go in initially at too low a level, things get worse. We dose in morning and put in probiotic at night.

I'm megadosing Vit D at the moment. I don't plan to keep J on it forever, its in my armoury for the Winter when he's most vulnerable, then I'll keep it in at RDA.

I feel like damned if you don't as well with the abx, but I just don't want the rages, emotions and tics back. He's so good right now.

I will get to the bottom of this and find some alternatives that work but I have to tread carefully.

As for the bone growth, I hope there's somebody out there with some answers to you. That enzyme deficiency I mentioned could be significant, and its treatable and very well known association with autism.

E xx

> >

> > If he is tolerating antihistamines you should def try them no ASAP. Ideally

> > http://www.amazon.co.uk/Coricidin-Antihistamine-Suppressant-Pressure-16-Coun

> > t/dp/B0011DTFYC/ref=sr_1_cc_1?s=dvd & ie=UTF8 & qid=1323961825 & sr=1-1-catcorr

> > but if you cannot get it quickly try cetirizine or loratidine (everywhere

> > should sell them different brands).

> >

> > Also consider something for reflux, ranitidine is widely available ­ called

> > Zantac or Gavis_something (read ingredients, it should have ranitidine and

> > nothing else). ons etc have it own label

> >

> > nx

> >

> > From: veronicamadigan <MaddiganV@>

> > Reply-To: "Autism-Biomedical-Europe "

> > <Autism-Biomedical-Europe >

> > Date: Thu, 15 Dec 2011 09:44:32 -0500 (EST)

> > To: "Autism-Biomedical-Europe "

> > <Autism-Biomedical-Europe >

> > Subject: Re: Re: Psychotic episodes/regression?

> >

> >

> >

> >

> >

> >

> > Thanks and everyone that responded.

> > Quite a few possibles, this has been boiling up for some time, he has become

> > more willfull.

> > I would have been in serious problems had the therapist not been there to

> > help.

> > I don't give B's because he is a rager on them and I don't rule

> > out the most recent attempt to still have had a longer term effect on him,

> > calcium is a no also along with Vit C and anything high oxalate.

> > I haven't seen like this since the days of his old school and severe

> > gut pain, the difference is he is now double the size and strength!

> > Glut anything is out, but we have been eating Turkey mince for years with no

> > problems, what's the glutamate connection there?

> > I am sure strep is bad, he is very OCD but not responding too well.

> > Last night we had the Ultrica rash [sp] during dinner, he stimmed and jerked

> > all the way through getting consistantly worse because he couldn't settle to

> > eat and he loves his food.

> > He is veyr wrung out a lot of the time, exhausted but raging, sleeping well.

> > Vicky

> >

> >

> > Re: Psychotic episodes/regression?

> >

> >

> >

> >

> >

> > For us it was glutamate levels getting too high, along with a couple of

> > other things. Anju Usman suggested a 3 pronged approach.

> >

> > 1] lower even natural levels of glutamate in foods [eg meat, peas, chickpeas

> > are all high ­ also turkey especially]

> > 2] stop all b vitamins for a period [we also stopped a multi which dr

> > neubrander had recommended and his mb12.

> > 3] use anti-strep herbs ­ although this was to treat the concurrent HUGE ocd

> > problem he had at the time too.

> >

> > A urine organic acids test showed high levels of kynurenic acid and

> > quinolinate, both of which suggested gut bugs that thrive on b vits.

> > They also occur sometimes with hallucinations and schizophrenia, so we

> > concluded he had been hallucinating ­ it certainly looked like that.

> >

> > The ocd took some weeks, but the psychotic episodes never occurred

> > again.....and they had been HORRIBLE.

> >

> > You can find a link to levels of naturally occuring glutamate in foods here

> >

> > http://dogtorj.com/g-a-r-d/foods-to-avoid-foods-to-enjoy/

> >

> > The site is by a vet who found that lowering glutamates and amines in foods

> > for dogs got rid of their epilepsy! He also has animal owners with autistic

> > kids and has taken a real interest in this.

> > He writes a lot about it on his website, including reference to the GARD

> > diet for epilepsy in people. [Glutamate and Amine Reduced Diet]

> >

> > Some kids find l-glutamine helps ­ for us it has always been a big no-no, as

> > does not seem to metabolise it right. Also ­ he has problems with

> > edginess with too much calcium, so we watch out for that.

> >

> > ONE GREAT TIP ­ we found that a 1/2 teaspoon of bicarbonate in water really

> > calms him quickly when he gets edgy..... any kind of excess acid or ammonia

> > may respond to this.

> >

> > Hope something here helps ­ I know how upsetting this can be, but can tell

> > you now it has been 4 years since anything like this happened here.

> >

> >

> >

>

[Guest guest]

Funny you should be chatting about the subject of vitamin D, i started to go down with bronchitis last Saturday, my chest was hurting when coughing and i was left with a nasty taste in my mouth after coughing, these symptoms for me have always ment bronchitis and a trip to doctors for antibiotics. Well i went looking into supplementing instead and came across the following website:-

http://otiswoodardmd.typepad.com/my_weblog/2009/03/stop-infections-with-vitamin-d.html

"Here's how: at the first sign of an infection take vitamin D 1000 IU per pound of body weight each day for three days. If you weigh if you weigh 150 pounds, you take 150,000 units each day for three days. By the third day you'll probably be free of any symptoms or at least they will be much milder than usual".

Also found this website which says the following;-

http://www.lef.org/protocols/respiratory/bronchitis_01.htm

In one study, investigators examined cold and flu symptoms in two groups of students. Individuals in the control group were given conventional pain relievers and decongestants, whereas those in the test group were treated with hourly doses of 1000 mg vitamin C for the first six hours and then three times a day thereafter. Flu and cold symptoms in the test group decreased 85 percent compared with the control group (Gorton HC et al 1999).

So i did 114,000ius of vitamin D3 for 3 days and 1000mg every hour for 6 hours on the first day also and 1000mg 3 times a day for a few subsequent days, i also took 4 primal defence probiotics each night and am feeling completely better.

x

To: Autism-Biomedical-Europe From: mysuperteach@...Date: Sat, 17 Dec 2011 14:24:55 +0000Subject: Re: Psychotic episodes/regression?

Sara, I've been dosing myself with a lot of vitamin D lately, preparing myself for an experiment that has now started:-) Anyway, I'm much bigger than anyone's kid, but have been taking 18,000-22,000 a day for about two months and feel much better for it. Keep in mind I spent the summer in a place much further south than the UK and had a great tan, so should have been full up with D already. But don't think I was, and this is wierd to me and makes me wonder even more about our kids. Esp as I wouldn't have low cholestrol (eat a WAP diet mostly) and my health, although it has tanked in the last couple years, cannot be nearly as bad as our kids.This is an article I wrote for teh TA newsletter a few years back. There are some links that you might find helpful.AnitaI come from Canada and now live in the UK. The two places have at least one thing in common: a lack of sunshine. And so a recent article about Swedish doctors pointing to a possible link between Vitamin D deficiency and autism (tinyurl.com/5rjdb7) caught my eye. The Swedish doctors are certainly not the first to point out the significance of vitamin D to our health. More than sixty years ago, Dr. Weston A. Price in his landmark book Nutrition and Physical Degeneration, pointed out that the isolated, traditional cultures he studied had more than 10 times the level of dietary fat-soluble vitamins (like A and D) compared to the standard American diet of his time. Even more telling, Price noticed the marked and fairly swift decline in health in people whose traditional diet had been replaced by a more modern diet—this was especially true of the children born to these people. Dr. Cannell, Executive Director of the Vitamin D Council, connects vitamin D deficiency to not only autism, but depression, cancer, mental illness, and a variety of other problems that seem to plague our modern society. Vitamin D is created by our body as a result of being in the sunshine (specifically, the ultraviolet-B wavelength). In our modern world, we spend very little time outdoors compared to what was normal even twenty years ago. Furthermore, we have been taught to fear the sun, and parents receive dire and repeated warnings about protecting our children from sun exposure. People whose ancestors come from very sunny climates (like the Somali people living in Sweden who are being studied by the doctors mentioned above) are even more at risk for Vitamin D deficiency when they move to less sunny places. The sun shining alone, though, is not enough to produce Vitamin D. Because the amount of ultraviolet-B wavelength can vary as the result of many factors, it is impossible, for example, to create vitamin D for only six months of the year in the city where I was born—Edmonton, Alberta, Canada. Something similar may be true for the UK, as there have been many concerns raised here by experts who study this: maternal vitamin D levels and type 1 diabetes in children; rickets among Asian children living in England; and vitamin D deficiency in the elderly.Because our bodies cannot always get enough vitamin D from the sun, it can also be ingested. As was pointed out in Price's work, unlike traditional diets, modern diets tend not to include vitamin D rich foods. How many of us eat organ meat and oily fish (let alone insects!) on a regular basis? Furthermore, the vitamin D we could get from foods we may find more palatable, like egg yolk or milk, is often lacking because we do things like raise our chickens indoors (where they cannot manufacture the D that would end up in their egg yolk) or pasteurize milk (and replace the natural D3 with synthetic D2, which behaves differently in our body).Many parents of children with ASD have known for a long time that supplementing with cod liver oil proves beneficial to their children's health. Cod liver oil contains vitamin D, along with vitamin A and omega 3 fatty acids. More recently, a number of parents have seen much success on what many call the Vitamin K protocol, which uses, among other nutritional supplements, extra Vitamin D3. I know of many parents who have seen improvements in their children by adding D3 into their supplementation routine, on top of the D that a child would receive in cod liver oil. My own son is one of these children. In fact, only after adding extra D3 to my son's supplementation was he finally able to tan normally. Because vitamin D is a fat soluble vitamin, the body can store it. Theoretically, this means that levels of Vitamin D could reach toxicity. For this reason, it is very important to approach supplementation wisely and armed with knowledge. Below, you will find a number of resources that can help you better understand vitamin D and the role it may play in your child's health.http://www.westonaprice.org/basicnutrition/vitamin-d-safety.html An excellent and comprehensive article on Vitamin D, by Masterjohn of the Weston A Price Foundation.http://www.vitamindcouncil.org/health/autism/index.html A huge resource where Dr. Cannell and other medical professionals examine Vitamin D, and question traditional medical wisdom on sufficient levels. This website has links to the latest research in Vitamin D.http://health.groups.yahoo.com/group/VitaminK/ A support group for parents interested in exploring the use of fat soluble vitamins, including D, as supplements.>> Eileen, please share how much D3 you are giving as a megadose and how > much you will give as maintenance (RDA) (and do you include any from CLO > in that?) Thanks, Sara xxx>

[Guest guest]

Funny you should be chatting about the subject of vitamin D, i started to go down with bronchitis last Saturday, my chest was hurting when coughing and i was left with a nasty taste in my mouth after coughing, these symptoms for me have always ment bronchitis and a trip to doctors for antibiotics. Well i went looking into supplementing instead and came across the following website:-

http://otiswoodardmd.typepad.com/my_weblog/2009/03/stop-infections-with-vitamin-d.html

"Here's how: at the first sign of an infection take vitamin D 1000 IU per pound of body weight each day for three days. If you weigh if you weigh 150 pounds, you take 150,000 units each day for three days. By the third day you'll probably be free of any symptoms or at least they will be much milder than usual".

Also found this website which says the following;-

http://www.lef.org/protocols/respiratory/bronchitis_01.htm

In one study, investigators examined cold and flu symptoms in two groups of students. Individuals in the control group were given conventional pain relievers and decongestants, whereas those in the test group were treated with hourly doses of 1000 mg vitamin C for the first six hours and then three times a day thereafter. Flu and cold symptoms in the test group decreased 85 percent compared with the control group (Gorton HC et al 1999).

So i did 114,000ius of vitamin D3 for 3 days and 1000mg every hour for 6 hours on the first day also and 1000mg 3 times a day for a few subsequent days, i also took 4 primal defence probiotics each night and am feeling completely better.

x

To: Autism-Biomedical-Europe From: mysuperteach@...Date: Sat, 17 Dec 2011 14:24:55 +0000Subject: Re: Psychotic episodes/regression?

Sara, I've been dosing myself with a lot of vitamin D lately, preparing myself for an experiment that has now started:-) Anyway, I'm much bigger than anyone's kid, but have been taking 18,000-22,000 a day for about two months and feel much better for it. Keep in mind I spent the summer in a place much further south than the UK and had a great tan, so should have been full up with D already. But don't think I was, and this is wierd to me and makes me wonder even more about our kids. Esp as I wouldn't have low cholestrol (eat a WAP diet mostly) and my health, although it has tanked in the last couple years, cannot be nearly as bad as our kids.This is an article I wrote for teh TA newsletter a few years back. There are some links that you might find helpful.AnitaI come from Canada and now live in the UK. The two places have at least one thing in common: a lack of sunshine. And so a recent article about Swedish doctors pointing to a possible link between Vitamin D deficiency and autism (tinyurl.com/5rjdb7) caught my eye. The Swedish doctors are certainly not the first to point out the significance of vitamin D to our health. More than sixty years ago, Dr. Weston A. Price in his landmark book Nutrition and Physical Degeneration, pointed out that the isolated, traditional cultures he studied had more than 10 times the level of dietary fat-soluble vitamins (like A and D) compared to the standard American diet of his time. Even more telling, Price noticed the marked and fairly swift decline in health in people whose traditional diet had been replaced by a more modern diet—this was especially true of the children born to these people. Dr. Cannell, Executive Director of the Vitamin D Council, connects vitamin D deficiency to not only autism, but depression, cancer, mental illness, and a variety of other problems that seem to plague our modern society. Vitamin D is created by our body as a result of being in the sunshine (specifically, the ultraviolet-B wavelength). In our modern world, we spend very little time outdoors compared to what was normal even twenty years ago. Furthermore, we have been taught to fear the sun, and parents receive dire and repeated warnings about protecting our children from sun exposure. People whose ancestors come from very sunny climates (like the Somali people living in Sweden who are being studied by the doctors mentioned above) are even more at risk for Vitamin D deficiency when they move to less sunny places. The sun shining alone, though, is not enough to produce Vitamin D. Because the amount of ultraviolet-B wavelength can vary as the result of many factors, it is impossible, for example, to create vitamin D for only six months of the year in the city where I was born—Edmonton, Alberta, Canada. Something similar may be true for the UK, as there have been many concerns raised here by experts who study this: maternal vitamin D levels and type 1 diabetes in children; rickets among Asian children living in England; and vitamin D deficiency in the elderly.Because our bodies cannot always get enough vitamin D from the sun, it can also be ingested. As was pointed out in Price's work, unlike traditional diets, modern diets tend not to include vitamin D rich foods. How many of us eat organ meat and oily fish (let alone insects!) on a regular basis? Furthermore, the vitamin D we could get from foods we may find more palatable, like egg yolk or milk, is often lacking because we do things like raise our chickens indoors (where they cannot manufacture the D that would end up in their egg yolk) or pasteurize milk (and replace the natural D3 with synthetic D2, which behaves differently in our body).Many parents of children with ASD have known for a long time that supplementing with cod liver oil proves beneficial to their children's health. Cod liver oil contains vitamin D, along with vitamin A and omega 3 fatty acids. More recently, a number of parents have seen much success on what many call the Vitamin K protocol, which uses, among other nutritional supplements, extra Vitamin D3. I know of many parents who have seen improvements in their children by adding D3 into their supplementation routine, on top of the D that a child would receive in cod liver oil. My own son is one of these children. In fact, only after adding extra D3 to my son's supplementation was he finally able to tan normally. Because vitamin D is a fat soluble vitamin, the body can store it. Theoretically, this means that levels of Vitamin D could reach toxicity. For this reason, it is very important to approach supplementation wisely and armed with knowledge. Below, you will find a number of resources that can help you better understand vitamin D and the role it may play in your child's health.http://www.westonaprice.org/basicnutrition/vitamin-d-safety.html An excellent and comprehensive article on Vitamin D, by Masterjohn of the Weston A Price Foundation.http://www.vitamindcouncil.org/health/autism/index.html A huge resource where Dr. Cannell and other medical professionals examine Vitamin D, and question traditional medical wisdom on sufficient levels. This website has links to the latest research in Vitamin D.http://health.groups.yahoo.com/group/VitaminK/ A support group for parents interested in exploring the use of fat soluble vitamins, including D, as supplements.>> Eileen, please share how much D3 you are giving as a megadose and how > much you will give as maintenance (RDA) (and do you include any from CLO > in that?) Thanks, Sara xxx>

[Guest guest]

And that is approximately what I do, plus probiotics as you say, and it chases the flu/cold away.I did this after a LOT of research though.....xSubject: RE: Re: Psychotic episodes/regression?To: autism-biomedical-europe Date: Saturday, 17 December, 2011, 15:35

Funny you should be chatting about the subject of vitamin D, i started to go down with bronchitis last Saturday, my chest was hurting when coughing and i was left with a nasty taste in my mouth after coughing, these symptoms for me have always ment bronchitis and a trip to doctors for antibiotics. Well i went looking into supplementing instead and came across the following website:-

http://otiswoodardmd.typepad.com/my_weblog/2009/03/stop-infections-with-vitamin-d.html

"Here's how: at the first sign of an infection take vitamin D 1000 IU per pound of body weight each day for three days. If you weigh if you weigh 150 pounds, you take 150,000 units each day for three days. By the third day you'll probably be free of any symptoms or at least they will be much milder than usual".

Also found this website which says the following;-

http://www.lef.org/protocols/respiratory/bronchitis_01.htm

In one study, investigators examined cold and flu symptoms in two groups of students. Individuals in the control group were given conventional pain relievers and decongestants, whereas those in the test group were treated with hourly doses of 1000 mg vitamin C for the first six hours and then three times a day thereafter. Flu and cold symptoms in the test group decreased 85 percent compared with the control group (Gorton HC et al 1999).

So i did 114,000ius of vitamin D3 for 3 days and 1000mg every hour for 6 hours on the first day also and 1000mg 3 times a day for a few subsequent days, i also took 4 primal defence probiotics each night and am feeling completely better.

x

To: Autism-Biomedical-Europe From: mysuperteach@...Date: Sat, 17 Dec 2011 14:24:55 +0000Subject: Re: Psychotic episodes/regression?

Sara, I've been dosing myself with a lot of vitamin D lately, preparing myself for an experiment that has now started:-) Anyway, I'm much bigger than anyone's kid, but have been taking 18,000-22,000 a day for about two months and feel much better for it. Keep in mind I spent the summer in a place much further south than the UK and had a great tan, so should have been full up with D already. But don't think I was, and this is wierd to me and makes me wonder even more about our kids. Esp as I wouldn't have low cholestrol (eat a WAP diet mostly) and my health, although it has tanked in the last couple years, cannot be nearly as bad as our kids.This is an article I wrote for teh TA newsletter a few years back. There are some links that you might find helpful.AnitaI come from Canada and now live in the UK. The two places have at least one thing in common: a lack of sunshine. And so a recent article about Swedish doctors

pointing to a possible link between Vitamin D deficiency and autism (tinyurl.com/5rjdb7) caught my eye. The Swedish doctors are certainly not the first to point out the significance of vitamin D to our health. More than sixty years ago, Dr. Weston A. Price in his landmark book Nutrition and Physical Degeneration, pointed out that the isolated, traditional cultures he studied had more than 10 times the level of dietary fat-soluble vitamins (like A and D) compared to the standard American diet of his time. Even more telling, Price noticed the marked and fairly swift decline in health in people whose traditional diet had been replaced by a more modern diet—this was especially true of the children born to these people. Dr. Cannell, Executive Director of the Vitamin D Council, connects vitamin D deficiency to not only autism, but depression, cancer, mental illness, and a variety of other problems that seem to plague our modern society.

Vitamin D is created by our body as a result of being in the sunshine (specifically, the ultraviolet-B wavelength). In our modern world, we spend very little time outdoors compared to what was normal even twenty years ago. Furthermore, we have been taught to fear the sun, and parents receive dire and repeated warnings about protecting our children from sun exposure. People whose ancestors come from very sunny climates (like the Somali people living in Sweden who are being studied by the doctors mentioned above) are even more at risk for Vitamin D deficiency when they move to less sunny places. The sun shining alone, though, is not enough to produce Vitamin D. Because the amount of ultraviolet-B wavelength can vary as the result of many factors, it is impossible, for example, to create vitamin D for only six months of the year in the city where I was born—Edmonton, Alberta, Canada. Something similar may be true for the UK, as there have been

many concerns raised here by experts who study this: maternal vitamin D levels and type 1 diabetes in children; rickets among Asian children living in England; and vitamin D deficiency in the elderly.Because our bodies cannot always get enough vitamin D from the sun, it can also be ingested. As was pointed out in Price's work, unlike traditional diets, modern diets tend not to include vitamin D rich foods. How many of us eat organ meat and oily fish (let alone insects!) on a regular basis? Furthermore, the vitamin D we could get from foods we may find more palatable, like egg yolk or milk, is often lacking because we do things like raise our chickens indoors (where they cannot manufacture the D that would end up in their egg yolk) or pasteurize milk (and replace the natural D3 with synthetic D2, which behaves differently in our body).Many parents of children with ASD have known for a long time that supplementing with cod liver oil proves

beneficial to their children's health. Cod liver oil contains vitamin D, along with vitamin A and omega 3 fatty acids. More recently, a number of parents have seen much success on what many call the Vitamin K protocol, which uses, among other nutritional supplements, extra Vitamin D3. I know of many parents who have seen improvements in their children by adding D3 into their supplementation routine, on top of the D that a child would receive in cod liver oil. My own son is one of these children. In fact, only after adding extra D3 to my son's supplementation was he finally able to tan normally. Because vitamin D is a fat soluble vitamin, the body can store it. Theoretically, this means that levels of Vitamin D could reach toxicity. For this reason, it is very important to approach supplementation wisely and armed with knowledge. Below, you will find a number of resources that can help you better understand vitamin D and the role it may play in

your child's health.http://www.westonaprice.org/basicnutrition/vitamin-d-safety.html An excellent and comprehensive article on Vitamin D, by Masterjohn of the Weston A Price Foundation.http://www.vitamindcouncil.org/health/autism/index.html A huge resource where Dr. Cannell and other medical professionals examine Vitamin D, and question traditional medical wisdom on sufficient levels. This website has links to the latest research in Vitamin D.http://health.groups.yahoo.com/group/VitaminK/ A support group for parents interested in exploring the use of fat soluble vitamins, including D, as supplements.>> Eileen, please share how much D3 you are giving as a megadose and how > much you will give as maintenance (RDA) (and do you include any from CLO > in that?) Thanks, Sara xxx>

[Guest guest]

I am glad about this Vitamin D thread.Vitamin D supports the immune system but it it is really important for the thyroid. Anita, you say that UK and Canada lack sunshine. Recently I looked at the two countries on the map and discovered that most of the UK is north of 51 degrees which is the same latitiude as Moosonee, a tiny little town at the southern end of Bay in Canada and known as the 'Gateway to the Artic'. When I found that out, I realized high up we are here in the UK and high up I have been living for the last 30 years! Yikes! Why the heck was I bothering about sunscreen? The other thing I have found out is that Vitamin D levels dip after two months, REALLY dip after the summer. The NHS, Cancer UK and Sunsmart tell you that if you tank up in the summer you will have enough Vitamin D to last you through to the next summer.

This is simply an outright UNTRUTH. IN the winter relying on food is not enough as it will give you at the most 200 IU daily.Another thing I have found out is that there quite a few studies where a bolus of 50,000-100,000 IUs have been administered to study participants. I wouldn't recommend this until properly assessed but it does put the paltry 400 IU RDA in a questionable light.There is huge debate raging around the dosage recommendations at the moment but the NHS is recommending 2,000 IU for adults so I feel confident in saying that this is a good starting position. D3 is one of the main elements for good thyroid function. I think thyroid and the endocrine system is where we should be concentrating.From: Anita

Subject: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Saturday, 17 December, 2011, 14:24

Sara,

I've been dosing myself with a lot of vitamin D lately, preparing myself for an experiment that has now started:-) Anyway, I'm much bigger than anyone's kid, but have been taking 18,000-22,000 a day for about two months and feel much better for it. Keep in mind I spent the summer in a place much further south than the UK and had a great tan, so should have been full up with D already. But don't think I was, and this is wierd to me and makes me wonder even more about our kids. Esp as I wouldn't have low cholestrol (eat a WAP diet mostly) and my health, although it has tanked in the last couple years, cannot be nearly as bad as our kids.

This is an article I wrote for teh TA newsletter a few years back. There are some links that you might find helpful.

Anita

I come from Canada and now live in the UK. The two places have at least one thing in common: a lack of sunshine. And so a recent article about Swedish doctors pointing to a possible link between Vitamin D deficiency and autism (tinyurl.com/5rjdb7) caught my eye.

The Swedish doctors are certainly not the first to point out the significance of vitamin D to our health. More than sixty years ago, Dr. Weston A. Price in his landmark book Nutrition and Physical Degeneration, pointed out that the isolated, traditional cultures he studied had more than 10 times the level of dietary fat-soluble vitamins (like A and D) compared to the standard American diet of his time. Even more telling, Price noticed the marked and fairly swift decline in health in people whose traditional diet had been replaced by a more modern diet—this was especially true of the children born to these people. Dr. Cannell, Executive Director of the Vitamin D Council, connects vitamin D deficiency to not only autism, but depression, cancer, mental illness, and a variety of other problems that seem to plague our modern society.

Vitamin D is created by our body as a result of being in the sunshine (specifically, the ultraviolet-B wavelength). In our modern world, we spend very little time outdoors compared to what was normal even twenty years ago. Furthermore, we have been taught to fear the sun, and parents receive dire and repeated warnings about protecting our children from sun exposure. People whose ancestors come from very sunny climates (like the Somali people living in Sweden who are being studied by the doctors mentioned above) are even more at risk for Vitamin D deficiency when they move to less sunny places. The sun shining alone, though, is not enough to produce Vitamin D. Because the amount of ultraviolet-B wavelength can vary as the result of many factors, it is impossible, for example, to create vitamin D for only six months of the year in the city where I was born—Edmonton, Alberta, Canada. Something similar may be true for the UK, as there have been many

concerns raised here by experts who study this: maternal vitamin D levels and type 1 diabetes in children; rickets among Asian children living in England; and vitamin D deficiency in the elderly.

Because our bodies cannot always get enough vitamin D from the sun, it can also be ingested. As was pointed out in Price's work, unlike traditional diets, modern diets tend not to include vitamin D rich foods. How many of us eat organ meat and oily fish (let alone insects!) on a regular basis? Furthermore, the vitamin D we could get from foods we may find more palatable, like egg yolk or milk, is often lacking because we do things like raise our chickens indoors (where they cannot manufacture the D that would end up in their egg yolk) or pasteurize milk (and replace the natural D3 with synthetic D2, which behaves differently in our body).

Many parents of children with ASD have known for a long time that supplementing with cod liver oil proves beneficial to their children's health. Cod liver oil contains vitamin D, along with vitamin A and omega 3 fatty acids. More recently, a number of parents have seen much success on what many call the Vitamin K protocol, which uses, among other nutritional supplements, extra Vitamin D3. I know of many parents who have seen improvements in their children by adding D3 into their supplementation routine, on top of the D that a child would receive in cod liver oil. My own son is one of these children. In fact, only after adding extra D3 to my son's supplementation was he finally able to tan normally.

Because vitamin D is a fat soluble vitamin, the body can store it. Theoretically, this means that levels of Vitamin D could reach toxicity. For this reason, it is very important to approach supplementation wisely and armed with knowledge. Below, you will find a number of resources that can help you better understand vitamin D and the role it may play in your child's health.

http://www.westonaprice.org/basicnutrition/vitamin-d-safety.html An excellent and comprehensive article on Vitamin D, by Masterjohn of the Weston A Price Foundation.

http://www.vitamindcouncil.org/health/autism/index.html A huge resource where Dr. Cannell and other medical professionals examine Vitamin D, and question traditional medical wisdom on sufficient levels. This website has links to the latest research in Vitamin D.

http://health.groups.yahoo.com/group/VitaminK/ A support group for parents interested in exploring the use of fat soluble vitamins, including D, as supplements.

>

> Eileen, please share how much D3 you are giving as a megadose and how

> much you will give as maintenance (RDA) (and do you include any from CLO

> in that?) Thanks, Sara xxx

>

[Guest guest]

I am glad about this Vitamin D thread.Vitamin D supports the immune system but it it is really important for the thyroid. Anita, you say that UK and Canada lack sunshine. Recently I looked at the two countries on the map and discovered that most of the UK is north of 51 degrees which is the same latitiude as Moosonee, a tiny little town at the southern end of Bay in Canada and known as the 'Gateway to the Artic'. When I found that out, I realized high up we are here in the UK and high up I have been living for the last 30 years! Yikes! Why the heck was I bothering about sunscreen? The other thing I have found out is that Vitamin D levels dip after two months, REALLY dip after the summer. The NHS, Cancer UK and Sunsmart tell you that if you tank up in the summer you will have enough Vitamin D to last you through to the next summer.

This is simply an outright UNTRUTH. IN the winter relying on food is not enough as it will give you at the most 200 IU daily.Another thing I have found out is that there quite a few studies where a bolus of 50,000-100,000 IUs have been administered to study participants. I wouldn't recommend this until properly assessed but it does put the paltry 400 IU RDA in a questionable light.There is huge debate raging around the dosage recommendations at the moment but the NHS is recommending 2,000 IU for adults so I feel confident in saying that this is a good starting position. D3 is one of the main elements for good thyroid function. I think thyroid and the endocrine system is where we should be concentrating.From: Anita

Subject: Re: Psychotic episodes/regression?To: Autism-Biomedical-Europe Date: Saturday, 17 December, 2011, 14:24

Sara,

I've been dosing myself with a lot of vitamin D lately, preparing myself for an experiment that has now started:-) Anyway, I'm much bigger than anyone's kid, but have been taking 18,000-22,000 a day for about two months and feel much better for it. Keep in mind I spent the summer in a place much further south than the UK and had a great tan, so should have been full up with D already. But don't think I was, and this is wierd to me and makes me wonder even more about our kids. Esp as I wouldn't have low cholestrol (eat a WAP diet mostly) and my health, although it has tanked in the last couple years, cannot be nearly as bad as our kids.

This is an article I wrote for teh TA newsletter a few years back. There are some links that you might find helpful.

Anita

I come from Canada and now live in the UK. The two places have at least one thing in common: a lack of sunshine. And so a recent article about Swedish doctors pointing to a possible link between Vitamin D deficiency and autism (tinyurl.com/5rjdb7) caught my eye.

The Swedish doctors are certainly not the first to point out the significance of vitamin D to our health. More than sixty years ago, Dr. Weston A. Price in his landmark book Nutrition and Physical Degeneration, pointed out that the isolated, traditional cultures he studied had more than 10 times the level of dietary fat-soluble vitamins (like A and D) compared to the standard American diet of his time. Even more telling, Price noticed the marked and fairly swift decline in health in people whose traditional diet had been replaced by a more modern diet—this was especially true of the children born to these people. Dr. Cannell, Executive Director of the Vitamin D Council, connects vitamin D deficiency to not only autism, but depression, cancer, mental illness, and a variety of other problems that seem to plague our modern society.

Vitamin D is created by our body as a result of being in the sunshine (specifically, the ultraviolet-B wavelength). In our modern world, we spend very little time outdoors compared to what was normal even twenty years ago. Furthermore, we have been taught to fear the sun, and parents receive dire and repeated warnings about protecting our children from sun exposure. People whose ancestors come from very sunny climates (like the Somali people living in Sweden who are being studied by the doctors mentioned above) are even more at risk for Vitamin D deficiency when they move to less sunny places. The sun shining alone, though, is not enough to produce Vitamin D. Because the amount of ultraviolet-B wavelength can vary as the result of many factors, it is impossible, for example, to create vitamin D for only six months of the year in the city where I was born—Edmonton, Alberta, Canada. Something similar may be true for the UK, as there have been many

concerns raised here by experts who study this: maternal vitamin D levels and type 1 diabetes in children; rickets among Asian children living in England; and vitamin D deficiency in the elderly.

Because our bodies cannot always get enough vitamin D from the sun, it can also be ingested. As was pointed out in Price's work, unlike traditional diets, modern diets tend not to include vitamin D rich foods. How many of us eat organ meat and oily fish (let alone insects!) on a regular basis? Furthermore, the vitamin D we could get from foods we may find more palatable, like egg yolk or milk, is often lacking because we do things like raise our chickens indoors (where they cannot manufacture the D that would end up in their egg yolk) or pasteurize milk (and replace the natural D3 with synthetic D2, which behaves differently in our body).

Many parents of children with ASD have known for a long time that supplementing with cod liver oil proves beneficial to their children's health. Cod liver oil contains vitamin D, along with vitamin A and omega 3 fatty acids. More recently, a number of parents have seen much success on what many call the Vitamin K protocol, which uses, among other nutritional supplements, extra Vitamin D3. I know of many parents who have seen improvements in their children by adding D3 into their supplementation routine, on top of the D that a child would receive in cod liver oil. My own son is one of these children. In fact, only after adding extra D3 to my son's supplementation was he finally able to tan normally.

Because vitamin D is a fat soluble vitamin, the body can store it. Theoretically, this means that levels of Vitamin D could reach toxicity. For this reason, it is very important to approach supplementation wisely and armed with knowledge. Below, you will find a number of resources that can help you better understand vitamin D and the role it may play in your child's health.

http://www.westonaprice.org/basicnutrition/vitamin-d-safety.html An excellent and comprehensive article on Vitamin D, by Masterjohn of the Weston A Price Foundation.

http://www.vitamindcouncil.org/health/autism/index.html A huge resource where Dr. Cannell and other medical professionals examine Vitamin D, and question traditional medical wisdom on sufficient levels. This website has links to the latest research in Vitamin D.

http://health.groups.yahoo.com/group/VitaminK/ A support group for parents interested in exploring the use of fat soluble vitamins, including D, as supplements.

>

> Eileen, please share how much D3 you are giving as a megadose and how

> much you will give as maintenance (RDA) (and do you include any from CLO

> in that?) Thanks, Sara xxx

>

[Guest guest]

I did the 3 day thing alongside but of course I weigh a lot more than her (most people do lol) and did feel sick when I took the dose on day 3 (150,000ius) didn;t feel any immediate benefit but I've been tested as having 'adequate' levels. So then I started throwing 5 caps of LDM 100 a day down and fell today that I am beating the bug I caught on plane back from Tampa which is 5 days post first dosing on the D. I was full on with the illness whilst caught hers at beginning though.

Always get ill after long haul flights but as you can see in Autism Media programme the venue is to die for

http://www.autismmediachannel.com/autismmediachannelvideo.php?video=79

Mandi x

Another thing I have found out is that there quite a few studies where a bolus of 50,000-100,000 IUs have been administered to study participants. I wouldn't recommend this until properly assessed but it does put the paltry 400 IU RDA in a questionable light

[Guest guest]

I did the 3 day thing alongside but of course I weigh a lot more than her (most people do lol) and did feel sick when I took the dose on day 3 (150,000ius) didn;t feel any immediate benefit but I've been tested as having 'adequate' levels. So then I started throwing 5 caps of LDM 100 a day down and fell today that I am beating the bug I caught on plane back from Tampa which is 5 days post first dosing on the D. I was full on with the illness whilst caught hers at beginning though.

Always get ill after long haul flights but as you can see in Autism Media programme the venue is to die for

http://www.autismmediachannel.com/autismmediachannelvideo.php?video=79

Mandi x

Another thing I have found out is that there quite a few studies where a bolus of 50,000-100,000 IUs have been administered to study participants. I wouldn't recommend this until properly assessed but it does put the paltry 400 IU RDA in a questionable light

[Guest guest]

I did the 3 day thing alongside but of course I weigh a lot more than her (most people do lol) and did feel sick when I took the dose on day 3 (150,000ius) didn;t feel any immediate benefit but I've been tested as having 'adequate' levels. So then I started throwing 5 caps of LDM 100 a day down and fell today that I am beating the bug I caught on plane back from Tampa which is 5 days post first dosing on the D. I was full on with the illness whilst caught hers at beginning though.

Always get ill after long haul flights but as you can see in Autism Media programme the venue is to die for

http://www.autismmediachannel.com/autismmediachannelvideo.php?video=79

Mandi x

Another thing I have found out is that there quite a few studies where a bolus of 50,000-100,000 IUs have been administered to study participants. I wouldn't recommend this until properly assessed but it does put the paltry 400 IU RDA in a questionable light