Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Janet, I believe my son regressed due to having the MMR booster when he possibly had very low immunity. He had the jab in August 2008 and 2 months later he totally regressed. He was speaking in sentences, using the toilet and a very happy boy before this. Looking back I remember he developed OCD and started having tantrums in the 2 months prior to regression. When I saw Dr Goyal he was sure he had viruses and put him on Imunovir, Azithromycin and Metronidazole all caused serious problems so we had to stop that. I was referred to an NHS Immunologist who thought that Dr Goyal was away with the fairies! So that was the end of that investigation. So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Helen > > > > > > > > > Hi, > > > > > > > > Sorry, it's a > long one but might be relevant. My son is 6 years > old > > > and has > a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made > a > > > difference (eye contact, a little speech, eating better and > using > the > > > toilet). In addition to this I've been giving supps > for 2 years. > He's > > > been seen by 3 well known specialist, > including Dr Goyal, had > numerous > > > tests and tried many > treatments but still no gains. Dr Goyal > referred > > > him to an > Immunologist who did more blood test but nothing came back > > > > abnormal. So we've now started chelation which I'm hoping will > start > to > > > work as we get into it. He's had 2 rounds of DMSA at > 5mg per dose. > The > > > supps he's currently taking to support the > chelation are as follows: > > > > > > > > Everything > Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk > Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum > Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 > x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > > Biocare Lipocell – 4 x 5ml per day > > > > Thorne Adrenal > Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per > day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with > meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 > capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as > required > > > > > > > > (I have a spreadsheet listing all > the individual quantities if of > > > interest) > > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > > The problems we are seeing are due to anxiety and > stress I think, > but > > > I don't know why. He doesn't seem to want > to do anything or go > anywhere > > > anymore. Over the school > holidays he's only had a handful of days > out. > > > He's only happy > in the garden for about 10 minutes at a time before > his > > > mood > changes. Even the park stresses him at the moment. He's lost > > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > > anxiety/stress. He wont get in the bath anymore even if I carry > him > in, > > > he wont put any part of his body in the water, holds > on to me and > > > screams. So I have to wash him all over with a > sponge next to the > bath > > > (this he doesn't mind). At one time he > would spend about an hour > laying > > > in the bath and loved it.. > Since starting chelation he's now crying > in > > > the car before > we've even got anywhere. So I upped the probiotics > and > > > the > Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > > He has always hummed since regression and very little > speech but > the > > > humming is getting louder and he's puffing out > his cheeks and > holding > > > his breath. When he lets it out he's > usually rolling around the > floor if > > > at home or throwing > himself on the sofa. He does have a good > > > understanding of what's > being said to him and not shutting down at > all > > > but the speech > is very repetitive in between the humming. I know > none of > > > this > behaviour is unusual in Autism but I've not seen any gains in 2 > > > > years and was hoping that someone could advise if I'm > missing > something > > > or doing something wrong. My worst fear is > that I am making him > worse. > > > > > > > > Thank > you > > > > > > > > Helen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Janet, I believe my son regressed due to having the MMR booster when he possibly had very low immunity. He had the jab in August 2008 and 2 months later he totally regressed. He was speaking in sentences, using the toilet and a very happy boy before this. Looking back I remember he developed OCD and started having tantrums in the 2 months prior to regression. When I saw Dr Goyal he was sure he had viruses and put him on Imunovir, Azithromycin and Metronidazole all caused serious problems so we had to stop that. I was referred to an NHS Immunologist who thought that Dr Goyal was away with the fairies! So that was the end of that investigation. So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Helen > > > > > > > > > Hi, > > > > > > > > Sorry, it's a > long one but might be relevant. My son is 6 years > old > > > and has > a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made > a > > > difference (eye contact, a little speech, eating better and > using > the > > > toilet). In addition to this I've been giving supps > for 2 years. > He's > > > been seen by 3 well known specialist, > including Dr Goyal, had > numerous > > > tests and tried many > treatments but still no gains. Dr Goyal > referred > > > him to an > Immunologist who did more blood test but nothing came back > > > > abnormal. So we've now started chelation which I'm hoping will > start > to > > > work as we get into it. He's had 2 rounds of DMSA at > 5mg per dose. > The > > > supps he's currently taking to support the > chelation are as follows: > > > > > > > > Everything > Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk > Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum > Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 > x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > > Biocare Lipocell – 4 x 5ml per day > > > > Thorne Adrenal > Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per > day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with > meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 > capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as > required > > > > > > > > (I have a spreadsheet listing all > the individual quantities if of > > > interest) > > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > > The problems we are seeing are due to anxiety and > stress I think, > but > > > I don't know why. He doesn't seem to want > to do anything or go > anywhere > > > anymore. Over the school > holidays he's only had a handful of days > out. > > > He's only happy > in the garden for about 10 minutes at a time before > his > > > mood > changes. Even the park stresses him at the moment. He's lost > > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > > anxiety/stress. He wont get in the bath anymore even if I carry > him > in, > > > he wont put any part of his body in the water, holds > on to me and > > > screams. So I have to wash him all over with a > sponge next to the > bath > > > (this he doesn't mind). At one time he > would spend about an hour > laying > > > in the bath and loved it.. > Since starting chelation he's now crying > in > > > the car before > we've even got anywhere. So I upped the probiotics > and > > > the > Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > > He has always hummed since regression and very little > speech but > the > > > humming is getting louder and he's puffing out > his cheeks and > holding > > > his breath. When he lets it out he's > usually rolling around the > floor if > > > at home or throwing > himself on the sofa. He does have a good > > > understanding of what's > being said to him and not shutting down at > all > > > but the speech > is very repetitive in between the humming. I know > none of > > > this > behaviour is unusual in Autism but I've not seen any gains in 2 > > > > years and was hoping that someone could advise if I'm > missing > something > > > or doing something wrong. My worst fear is > that I am making him > worse. > > > > > > > > Thank > you > > > > > > > > Helen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Janet, In our case I am absolutely sure it is heavy metal toxicity. regressed after the MMR but I think the problem started when I was carrying. Ate loads of Tuna for starters (long story), then the story is the same as so many other parents, injections, fillings, etc etc. We have photos like most, which show exactly when we 'lost him'. is now nearly fourteen and we are doing chelation. Never wanted to but I have to say, we are seeing the most positive things especially concerning those problems which occurred early on such as hearing sensitivities. Hi , Am not that knowledgeable as still finding feet ourselves, but do you have any indications as to why he regressed? I ask because my dd who began with a mild stammer shortly after her mmr booster and has gone downhill from there over the years looks likely to be fighting a viral overload and subsequently dealing with heavy metal toxicity. I had no idea at the time of the connection, but it's helpful to some extent now in terms of understanding best route for her if that makes sense. Janet To: Autism-Biomedical-Europe From: Thorpeheather@...Date: Thu, 1 Sep 2011 12:59:17 -0400Subject: Re: Re: Help! I'm running out of ideas... I don't know about the other supplements but always felt stressed until recently when we introduced Inositol and Adrenal Cortex (I think you said you give one of these). Now he is very laid back most of the time. fwiw my son didn't react well to most probiotics - much better off thanon them. Also many multivitamins contain things that some kids do badlyon (in our case it is folinic, some B vits, calcium...).And yes could be the dosage. In you place I would stop all you aregiving right now, observe if any changes for say 2 weeks, then slowlyreintroduce some of the things - those you think he does well, but notat dosages he is on right now if they are high.Even if things don't hurt him in obvious ways, imo there is no point ingiving high doses of anything that does not make him better in obviousways.> > >> > > Hi,> > >> > > Sorry, it's a long one but might be relevant. My son is 6 yearsold> > and has a diagnosis of ASD. He regressed at age 3 years 4 months.Since> > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > difference (eye contact, a little speech, eating better and usingthe> > toilet). In addition to this I've been giving supps for 2 years.He's> > been seen by 3 well known specialist, including Dr Goyal, hadnumerous> > tests and tried many treatments but still no gains. Dr Goyalreferred> > him to an Immunologist who did more blood test but nothing came back> > abnormal. So we've now started chelation which I'm hoping will startto> > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.The> > supps he's currently taking to support the chelation are as follows:> > >> > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > Milk Thistle Extract - 1/4 cap 4 x per day> > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > Biocare Vit A - 1 drop 4 x / day> > > Biocare Molybdenum - 1 drop 2 x / day> > > Biocare Lipocell – 4 x 5ml per day> > > Thorne Adrenal Cortex - 1 capsule am> > > NOW Biotin - 1 capsule 3 x per day> > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > Kirkman Sacc. B - 1 x capsule bedtime> > > Candex - 1 capsule bedtime> > > Custom CP1 Probiotics - 2 capsule bedtime> > > Lee Silsby Magnesium Sulfate Cream - as required> > >> > > (I have a spreadsheet listing all the individual quantities if of> > interest)> > >> > > I plan to add ALA between round 5 and 10.> > >> > > The problems we are seeing are due to anxiety and stress I think,but> > I don't know why. He doesn't seem to want to do anything or goanywhere> > anymore. Over the school holidays he's only had a handful of daysout.> > He's only happy in the garden for about 10 minutes at a time beforehis> > mood changes. Even the park stresses him at the moment. He's lost> > interest in toys, puzzles, drawing, and TV seems to bring on> > anxiety/stress. He wont get in the bath anymore even if I carry himin,> > he wont put any part of his body in the water, holds on to me and> > screams. So I have to wash him all over with a sponge next to thebath> > (this he doesn't mind). At one time he would spend about an hourlaying> > in the bath and loved it.. Since starting chelation he's now cryingin> > the car before we've even got anywhere. So I upped the probioticsand> > the Candex and added Biotin and Sacc B to help with yeast.> > >> > > He has always hummed since regression and very little speech butthe> > humming is getting louder and he's puffing out his cheeks andholding> > his breath. When he lets it out he's usually rolling around thefloor if> > at home or throwing himself on the sofa. He does have a good> > understanding of what's being said to him and not shutting down atall> > but the speech is very repetitive in between the humming. I knownone of> > this behaviour is unusual in Autism but I've not seen any gains in 2> > years and was hoping that someone could advise if I'm missingsomething> > or doing something wrong. My worst fear is that I am making himworse.> > >> > > Thank you> > >> > > Helen> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Janet, In our case I am absolutely sure it is heavy metal toxicity. regressed after the MMR but I think the problem started when I was carrying. Ate loads of Tuna for starters (long story), then the story is the same as so many other parents, injections, fillings, etc etc. We have photos like most, which show exactly when we 'lost him'. is now nearly fourteen and we are doing chelation. Never wanted to but I have to say, we are seeing the most positive things especially concerning those problems which occurred early on such as hearing sensitivities. Hi , Am not that knowledgeable as still finding feet ourselves, but do you have any indications as to why he regressed? I ask because my dd who began with a mild stammer shortly after her mmr booster and has gone downhill from there over the years looks likely to be fighting a viral overload and subsequently dealing with heavy metal toxicity. I had no idea at the time of the connection, but it's helpful to some extent now in terms of understanding best route for her if that makes sense. Janet To: Autism-Biomedical-Europe From: Thorpeheather@...Date: Thu, 1 Sep 2011 12:59:17 -0400Subject: Re: Re: Help! I'm running out of ideas... I don't know about the other supplements but always felt stressed until recently when we introduced Inositol and Adrenal Cortex (I think you said you give one of these). Now he is very laid back most of the time. fwiw my son didn't react well to most probiotics - much better off thanon them. Also many multivitamins contain things that some kids do badlyon (in our case it is folinic, some B vits, calcium...).And yes could be the dosage. In you place I would stop all you aregiving right now, observe if any changes for say 2 weeks, then slowlyreintroduce some of the things - those you think he does well, but notat dosages he is on right now if they are high.Even if things don't hurt him in obvious ways, imo there is no point ingiving high doses of anything that does not make him better in obviousways.> > >> > > Hi,> > >> > > Sorry, it's a long one but might be relevant. My son is 6 yearsold> > and has a diagnosis of ASD. He regressed at age 3 years 4 months.Since> > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > difference (eye contact, a little speech, eating better and usingthe> > toilet). In addition to this I've been giving supps for 2 years.He's> > been seen by 3 well known specialist, including Dr Goyal, hadnumerous> > tests and tried many treatments but still no gains. Dr Goyalreferred> > him to an Immunologist who did more blood test but nothing came back> > abnormal. So we've now started chelation which I'm hoping will startto> > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.The> > supps he's currently taking to support the chelation are as follows:> > >> > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > Milk Thistle Extract - 1/4 cap 4 x per day> > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > Biocare Vit A - 1 drop 4 x / day> > > Biocare Molybdenum - 1 drop 2 x / day> > > Biocare Lipocell – 4 x 5ml per day> > > Thorne Adrenal Cortex - 1 capsule am> > > NOW Biotin - 1 capsule 3 x per day> > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > Kirkman Sacc. B - 1 x capsule bedtime> > > Candex - 1 capsule bedtime> > > Custom CP1 Probiotics - 2 capsule bedtime> > > Lee Silsby Magnesium Sulfate Cream - as required> > >> > > (I have a spreadsheet listing all the individual quantities if of> > interest)> > >> > > I plan to add ALA between round 5 and 10.> > >> > > The problems we are seeing are due to anxiety and stress I think,but> > I don't know why. He doesn't seem to want to do anything or goanywhere> > anymore. Over the school holidays he's only had a handful of daysout.> > He's only happy in the garden for about 10 minutes at a time beforehis> > mood changes. Even the park stresses him at the moment. He's lost> > interest in toys, puzzles, drawing, and TV seems to bring on> > anxiety/stress. He wont get in the bath anymore even if I carry himin,> > he wont put any part of his body in the water, holds on to me and> > screams. So I have to wash him all over with a sponge next to thebath> > (this he doesn't mind). At one time he would spend about an hourlaying> > in the bath and loved it.. Since starting chelation he's now cryingin> > the car before we've even got anywhere. So I upped the probioticsand> > the Candex and added Biotin and Sacc B to help with yeast.> > >> > > He has always hummed since regression and very little speech butthe> > humming is getting louder and he's puffing out his cheeks andholding> > his breath. When he lets it out he's usually rolling around thefloor if> > at home or throwing himself on the sofa. He does have a good> > understanding of what's being said to him and not shutting down atall> > but the speech is very repetitive in between the humming. I knownone of> > this behaviour is unusual in Autism but I've not seen any gains in 2> > years and was hoping that someone could advise if I'm missingsomething> > or doing something wrong. My worst fear is that I am making himworse.> > >> > > Thank you> > >> > > Helen> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Janet, In our case I am absolutely sure it is heavy metal toxicity. regressed after the MMR but I think the problem started when I was carrying. Ate loads of Tuna for starters (long story), then the story is the same as so many other parents, injections, fillings, etc etc. We have photos like most, which show exactly when we 'lost him'. is now nearly fourteen and we are doing chelation. Never wanted to but I have to say, we are seeing the most positive things especially concerning those problems which occurred early on such as hearing sensitivities. Hi , Am not that knowledgeable as still finding feet ourselves, but do you have any indications as to why he regressed? I ask because my dd who began with a mild stammer shortly after her mmr booster and has gone downhill from there over the years looks likely to be fighting a viral overload and subsequently dealing with heavy metal toxicity. I had no idea at the time of the connection, but it's helpful to some extent now in terms of understanding best route for her if that makes sense. Janet To: Autism-Biomedical-Europe From: Thorpeheather@...Date: Thu, 1 Sep 2011 12:59:17 -0400Subject: Re: Re: Help! I'm running out of ideas... I don't know about the other supplements but always felt stressed until recently when we introduced Inositol and Adrenal Cortex (I think you said you give one of these). Now he is very laid back most of the time. fwiw my son didn't react well to most probiotics - much better off thanon them. Also many multivitamins contain things that some kids do badlyon (in our case it is folinic, some B vits, calcium...).And yes could be the dosage. In you place I would stop all you aregiving right now, observe if any changes for say 2 weeks, then slowlyreintroduce some of the things - those you think he does well, but notat dosages he is on right now if they are high.Even if things don't hurt him in obvious ways, imo there is no point ingiving high doses of anything that does not make him better in obviousways.> > >> > > Hi,> > >> > > Sorry, it's a long one but might be relevant. My son is 6 yearsold> > and has a diagnosis of ASD. He regressed at age 3 years 4 months.Since> > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > difference (eye contact, a little speech, eating better and usingthe> > toilet). In addition to this I've been giving supps for 2 years.He's> > been seen by 3 well known specialist, including Dr Goyal, hadnumerous> > tests and tried many treatments but still no gains. Dr Goyalreferred> > him to an Immunologist who did more blood test but nothing came back> > abnormal. So we've now started chelation which I'm hoping will startto> > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.The> > supps he's currently taking to support the chelation are as follows:> > >> > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > Milk Thistle Extract - 1/4 cap 4 x per day> > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > Biocare Vit A - 1 drop 4 x / day> > > Biocare Molybdenum - 1 drop 2 x / day> > > Biocare Lipocell – 4 x 5ml per day> > > Thorne Adrenal Cortex - 1 capsule am> > > NOW Biotin - 1 capsule 3 x per day> > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > Kirkman Sacc. B - 1 x capsule bedtime> > > Candex - 1 capsule bedtime> > > Custom CP1 Probiotics - 2 capsule bedtime> > > Lee Silsby Magnesium Sulfate Cream - as required> > >> > > (I have a spreadsheet listing all the individual quantities if of> > interest)> > >> > > I plan to add ALA between round 5 and 10.> > >> > > The problems we are seeing are due to anxiety and stress I think,but> > I don't know why. He doesn't seem to want to do anything or goanywhere> > anymore. Over the school holidays he's only had a handful of daysout.> > He's only happy in the garden for about 10 minutes at a time beforehis> > mood changes. Even the park stresses him at the moment. He's lost> > interest in toys, puzzles, drawing, and TV seems to bring on> > anxiety/stress. He wont get in the bath anymore even if I carry himin,> > he wont put any part of his body in the water, holds on to me and> > screams. So I have to wash him all over with a sponge next to thebath> > (this he doesn't mind). At one time he would spend about an hourlaying> > in the bath and loved it.. Since starting chelation he's now cryingin> > the car before we've even got anywhere. So I upped the probioticsand> > the Candex and added Biotin and Sacc B to help with yeast.> > >> > > He has always hummed since regression and very little speech butthe> > humming is getting louder and he's puffing out his cheeks andholding> > his breath. When he lets it out he's usually rolling around thefloor if> > at home or throwing himself on the sofa. He does have a good> > understanding of what's being said to him and not shutting down atall> > but the speech is very repetitive in between the humming. I knownone of> > this behaviour is unusual in Autism but I've not seen any gains in 2> > years and was hoping that someone could advise if I'm missingsomething> > or doing something wrong. My worst fear is that I am making himworse.> > >> > > Thank you> > >> > > Helen> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Might it be worth looking into CEASE therapy.. if regression started post MMR.. posted recently of positive gains she is having and release of measles virus... ?If his immune system is very low... he may benefit from constitutional remedy support ahead of anything more stressful on his system... Again homeopath may be able to help? Tracey Hi Janet, I believe my son regressed due to having the MMR booster when he possibly had very low immunity. He had the jab in August 2008 and 2 months later he totally regressed. He was speaking in sentences, using the toilet and a very happy boy before this. Looking back I remember he developed OCD and started having tantrums in the 2 months prior to regression. When I saw Dr Goyal he was sure he had viruses and put him on Imunovir, Azithromycin and Metronidazole all caused serious problems so we had to stop that. I was referred to an NHS Immunologist who thought that Dr Goyal was away with the fairies! So that was the end of that investigation. So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Helen > > > > > > > > > Hi, > > > > > > > > Sorry, it's a > long one but might be relevant. My son is 6 years > old > > > and has > a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made > a > > > difference (eye contact, a little speech, eating better and > using > the > > > toilet). In addition to this I've been giving supps > for 2 years. > He's > > > been seen by 3 well known specialist, > including Dr Goyal, had > numerous > > > tests and tried many > treatments but still no gains. Dr Goyal > referred > > > him to an > Immunologist who did more blood test but nothing came back > > > > abnormal. So we've now started chelation which I'm hoping will > start > to > > > work as we get into it. He's had 2 rounds of DMSA at > 5mg per dose. > The > > > supps he's currently taking to support the > chelation are as follows: > > > > > > > > Everything > Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk > Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum > Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 > x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > > Biocare Lipocell – 4 x 5ml per day > > > > Thorne Adrenal > Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per > day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with > meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 > capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as > required > > > > > > > > (I have a spreadsheet listing all > the individual quantities if of > > > interest) > > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > > The problems we are seeing are due to anxiety and > stress I think, > but > > > I don't know why. He doesn't seem to want > to do anything or go > anywhere > > > anymore. Over the school > holidays he's only had a handful of days > out. > > > He's only happy > in the garden for about 10 minutes at a time before > his > > > mood > changes. Even the park stresses him at the moment. He's lost > > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > > anxiety/stress. He wont get in the bath anymore even if I carry > him > in, > > > he wont put any part of his body in the water, holds > on to me and > > > screams. So I have to wash him all over with a > sponge next to the > bath > > > (this he doesn't mind). At one time he > would spend about an hour > laying > > > in the bath and loved it.. > Since starting chelation he's now crying > in > > > the car before > we've even got anywhere. So I upped the probiotics > and > > > the > Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > > He has always hummed since regression and very little > speech but > the > > > humming is getting louder and he's puffing out > his cheeks and > holding > > > his breath. When he lets it out he's > usually rolling around the > floor if > > > at home or throwing > himself on the sofa. He does have a good > > > understanding of what's > being said to him and not shutting down at > all > > > but the speech > is very repetitive in between the humming. I know > none of > > > this > behaviour is unusual in Autism but I've not seen any gains in 2 > > > > years and was hoping that someone could advise if I'm > missing > something > > > or doing something wrong. My worst fear is > that I am making him > worse. > > > > > > > > Thank > you > > > > > > > > Helen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Might it be worth looking into CEASE therapy.. if regression started post MMR.. posted recently of positive gains she is having and release of measles virus... ?If his immune system is very low... he may benefit from constitutional remedy support ahead of anything more stressful on his system... Again homeopath may be able to help? Tracey Hi Janet, I believe my son regressed due to having the MMR booster when he possibly had very low immunity. He had the jab in August 2008 and 2 months later he totally regressed. He was speaking in sentences, using the toilet and a very happy boy before this. Looking back I remember he developed OCD and started having tantrums in the 2 months prior to regression. When I saw Dr Goyal he was sure he had viruses and put him on Imunovir, Azithromycin and Metronidazole all caused serious problems so we had to stop that. I was referred to an NHS Immunologist who thought that Dr Goyal was away with the fairies! So that was the end of that investigation. So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Helen > > > > > > > > > Hi, > > > > > > > > Sorry, it's a > long one but might be relevant. My son is 6 years > old > > > and has > a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made > a > > > difference (eye contact, a little speech, eating better and > using > the > > > toilet). In addition to this I've been giving supps > for 2 years. > He's > > > been seen by 3 well known specialist, > including Dr Goyal, had > numerous > > > tests and tried many > treatments but still no gains. Dr Goyal > referred > > > him to an > Immunologist who did more blood test but nothing came back > > > > abnormal. So we've now started chelation which I'm hoping will > start > to > > > work as we get into it. He's had 2 rounds of DMSA at > 5mg per dose. > The > > > supps he's currently taking to support the > chelation are as follows: > > > > > > > > Everything > Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk > Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum > Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 > x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > > Biocare Lipocell – 4 x 5ml per day > > > > Thorne Adrenal > Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per > day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with > meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 > capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as > required > > > > > > > > (I have a spreadsheet listing all > the individual quantities if of > > > interest) > > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > > The problems we are seeing are due to anxiety and > stress I think, > but > > > I don't know why. He doesn't seem to want > to do anything or go > anywhere > > > anymore. Over the school > holidays he's only had a handful of days > out. > > > He's only happy > in the garden for about 10 minutes at a time before > his > > > mood > changes. Even the park stresses him at the moment. He's lost > > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > > anxiety/stress. He wont get in the bath anymore even if I carry > him > in, > > > he wont put any part of his body in the water, holds > on to me and > > > screams. So I have to wash him all over with a > sponge next to the > bath > > > (this he doesn't mind). At one time he > would spend about an hour > laying > > > in the bath and loved it.. > Since starting chelation he's now crying > in > > > the car before > we've even got anywhere. So I upped the probiotics > and > > > the > Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > > He has always hummed since regression and very little > speech but > the > > > humming is getting louder and he's puffing out > his cheeks and > holding > > > his breath. When he lets it out he's > usually rolling around the > floor if > > > at home or throwing > himself on the sofa. He does have a good > > > understanding of what's > being said to him and not shutting down at > all > > > but the speech > is very repetitive in between the humming. I know > none of > > > this > behaviour is unusual in Autism but I've not seen any gains in 2 > > > > years and was hoping that someone could advise if I'm > missing > something > > > or doing something wrong. My worst fear is > that I am making him > worse. > > > > > > > > Thank > you > > > > > > > > Helen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Might it be worth looking into CEASE therapy.. if regression started post MMR.. posted recently of positive gains she is having and release of measles virus... ?If his immune system is very low... he may benefit from constitutional remedy support ahead of anything more stressful on his system... Again homeopath may be able to help? Tracey Hi Janet, I believe my son regressed due to having the MMR booster when he possibly had very low immunity. He had the jab in August 2008 and 2 months later he totally regressed. He was speaking in sentences, using the toilet and a very happy boy before this. Looking back I remember he developed OCD and started having tantrums in the 2 months prior to regression. When I saw Dr Goyal he was sure he had viruses and put him on Imunovir, Azithromycin and Metronidazole all caused serious problems so we had to stop that. I was referred to an NHS Immunologist who thought that Dr Goyal was away with the fairies! So that was the end of that investigation. So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Helen > > > > > > > > > Hi, > > > > > > > > Sorry, it's a > long one but might be relevant. My son is 6 years > old > > > and has > a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made > a > > > difference (eye contact, a little speech, eating better and > using > the > > > toilet). In addition to this I've been giving supps > for 2 years. > He's > > > been seen by 3 well known specialist, > including Dr Goyal, had > numerous > > > tests and tried many > treatments but still no gains. Dr Goyal > referred > > > him to an > Immunologist who did more blood test but nothing came back > > > > abnormal. So we've now started chelation which I'm hoping will > start > to > > > work as we get into it. He's had 2 rounds of DMSA at > 5mg per dose. > The > > > supps he's currently taking to support the > chelation are as follows: > > > > > > > > Everything > Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk > Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum > Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 > x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > > Biocare Lipocell – 4 x 5ml per day > > > > Thorne Adrenal > Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per > day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with > meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 > capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as > required > > > > > > > > (I have a spreadsheet listing all > the individual quantities if of > > > interest) > > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > > The problems we are seeing are due to anxiety and > stress I think, > but > > > I don't know why. He doesn't seem to want > to do anything or go > anywhere > > > anymore. Over the school > holidays he's only had a handful of days > out. > > > He's only happy > in the garden for about 10 minutes at a time before > his > > > mood > changes. Even the park stresses him at the moment. He's lost > > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > > anxiety/stress. He wont get in the bath anymore even if I carry > him > in, > > > he wont put any part of his body in the water, holds > on to me and > > > screams. So I have to wash him all over with a > sponge next to the > bath > > > (this he doesn't mind). At one time he > would spend about an hour > laying > > > in the bath and loved it.. > Since starting chelation he's now crying > in > > > the car before > we've even got anywhere. So I upped the probiotics > and > > > the > Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > > He has always hummed since regression and very little > speech but > the > > > humming is getting louder and he's puffing out > his cheeks and > holding > > > his breath. When he lets it out he's > usually rolling around the > floor if > > > at home or throwing > himself on the sofa. He does have a good > > > understanding of what's > being said to him and not shutting down at > all > > > but the speech > is very repetitive in between the humming. I know > none of > > > this > behaviour is unusual in Autism but I've not seen any gains in 2 > > > > years and was hoping that someone could advise if I'm > missing > something > > > or doing something wrong. My worst fear is > that I am making him > worse. > > > > > > > > Thank > you > > > > > > > > Helen > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I'd look into some adrenal support Mx Hi, Sorry, it's a long one but might be relevant. My son is 6 years old and has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye contact, a little speech, eating better and using the toilet). In addition to this I've been giving supps for 2 years. He's been seen by 3 well known specialist, including Dr Goyal, had numerous tests and tried many treatments but still no gains. Dr Goyal referred him to an Immunologist who did more blood test but nothing came back abnormal. So we've now started chelation which I'm hoping will start to work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. The supps he's currently taking to support the chelation are as follows:Everything Spectrum Essential Multi - 1 capsule 3 x per dayMilk Thistle Extract - 1/4 cap 4 x per day Everything Spectrum Essential 4 - 1 capsule 4 x per dayBiocare Vit A - 1 drop 4 x / day Biocare Molybdenum - 1 drop 2 x / day Biocare Lipocell – 4 x 5ml per dayThorne Adrenal Cortex - 1 capsule am NOW Biotin - 1 capsule 3 x per day TriEnza Digestive Enzymes - 1 cap 4 x per day with mealsKirkman Sacc. B - 1 x capsule bedtimeCandex - 1 capsule bedtimeCustom CP1 Probiotics - 2 capsule bedtimeLee Silsby Magnesium Sulfate Cream - as required (I have a spreadsheet listing all the individual quantities if of interest)I plan to add ALA between round 5 and 10. The problems we are seeing are due to anxiety and stress I think, but I don't know why. He doesn't seem to want to do anything or go anywhere anymore. Over the school holidays he's only had a handful of days out. He's only happy in the garden for about 10 minutes at a time before his mood changes. Even the park stresses him at the moment. He's lost interest in toys, puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the bath anymore even if I carry him in, he wont put any part of his body in the water, holds on to me and screams. So I have to wash him all over with a sponge next to the bath (this he doesn't mind). At one time he would spend about an hour laying in the bath and loved it. Since starting chelation he's now crying in the car before we've even got anywhere. So I upped the probiotics and the Candex and added Biotin and Sacc B to help with yeast. He has always hummed since regression and very little speech but the humming is getting louder and he's puffing out his cheeks and holding his breath. When he lets it out he's usually rolling around the floor if at home or throwing himself on the sofa. He does have a good understanding of what's being said to him and not shutting down at all but the speech is very repetitive in between the humming. I know none of this behaviour is unusual in Autism but I've not seen any gains in 2 years and was hoping that someone could advise if I'm missing something or doing something wrong. My worst fear is that I am making him worse.Thank youHelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I'd look into some adrenal support Mx Hi, Sorry, it's a long one but might be relevant. My son is 6 years old and has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye contact, a little speech, eating better and using the toilet). In addition to this I've been giving supps for 2 years. He's been seen by 3 well known specialist, including Dr Goyal, had numerous tests and tried many treatments but still no gains. Dr Goyal referred him to an Immunologist who did more blood test but nothing came back abnormal. So we've now started chelation which I'm hoping will start to work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. The supps he's currently taking to support the chelation are as follows:Everything Spectrum Essential Multi - 1 capsule 3 x per dayMilk Thistle Extract - 1/4 cap 4 x per day Everything Spectrum Essential 4 - 1 capsule 4 x per dayBiocare Vit A - 1 drop 4 x / day Biocare Molybdenum - 1 drop 2 x / day Biocare Lipocell – 4 x 5ml per dayThorne Adrenal Cortex - 1 capsule am NOW Biotin - 1 capsule 3 x per day TriEnza Digestive Enzymes - 1 cap 4 x per day with mealsKirkman Sacc. B - 1 x capsule bedtimeCandex - 1 capsule bedtimeCustom CP1 Probiotics - 2 capsule bedtimeLee Silsby Magnesium Sulfate Cream - as required (I have a spreadsheet listing all the individual quantities if of interest)I plan to add ALA between round 5 and 10. The problems we are seeing are due to anxiety and stress I think, but I don't know why. He doesn't seem to want to do anything or go anywhere anymore. Over the school holidays he's only had a handful of days out. He's only happy in the garden for about 10 minutes at a time before his mood changes. Even the park stresses him at the moment. He's lost interest in toys, puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the bath anymore even if I carry him in, he wont put any part of his body in the water, holds on to me and screams. So I have to wash him all over with a sponge next to the bath (this he doesn't mind). At one time he would spend about an hour laying in the bath and loved it. Since starting chelation he's now crying in the car before we've even got anywhere. So I upped the probiotics and the Candex and added Biotin and Sacc B to help with yeast. He has always hummed since regression and very little speech but the humming is getting louder and he's puffing out his cheeks and holding his breath. When he lets it out he's usually rolling around the floor if at home or throwing himself on the sofa. He does have a good understanding of what's being said to him and not shutting down at all but the speech is very repetitive in between the humming. I know none of this behaviour is unusual in Autism but I've not seen any gains in 2 years and was hoping that someone could advise if I'm missing something or doing something wrong. My worst fear is that I am making him worse.Thank youHelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I'd look into some adrenal support Mx Hi, Sorry, it's a long one but might be relevant. My son is 6 years old and has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye contact, a little speech, eating better and using the toilet). In addition to this I've been giving supps for 2 years. He's been seen by 3 well known specialist, including Dr Goyal, had numerous tests and tried many treatments but still no gains. Dr Goyal referred him to an Immunologist who did more blood test but nothing came back abnormal. So we've now started chelation which I'm hoping will start to work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. The supps he's currently taking to support the chelation are as follows:Everything Spectrum Essential Multi - 1 capsule 3 x per dayMilk Thistle Extract - 1/4 cap 4 x per day Everything Spectrum Essential 4 - 1 capsule 4 x per dayBiocare Vit A - 1 drop 4 x / day Biocare Molybdenum - 1 drop 2 x / day Biocare Lipocell – 4 x 5ml per dayThorne Adrenal Cortex - 1 capsule am NOW Biotin - 1 capsule 3 x per day TriEnza Digestive Enzymes - 1 cap 4 x per day with mealsKirkman Sacc. B - 1 x capsule bedtimeCandex - 1 capsule bedtimeCustom CP1 Probiotics - 2 capsule bedtimeLee Silsby Magnesium Sulfate Cream - as required (I have a spreadsheet listing all the individual quantities if of interest)I plan to add ALA between round 5 and 10. The problems we are seeing are due to anxiety and stress I think, but I don't know why. He doesn't seem to want to do anything or go anywhere anymore. Over the school holidays he's only had a handful of days out. He's only happy in the garden for about 10 minutes at a time before his mood changes. Even the park stresses him at the moment. He's lost interest in toys, puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the bath anymore even if I carry him in, he wont put any part of his body in the water, holds on to me and screams. So I have to wash him all over with a sponge next to the bath (this he doesn't mind). At one time he would spend about an hour laying in the bath and loved it. Since starting chelation he's now crying in the car before we've even got anywhere. So I upped the probiotics and the Candex and added Biotin and Sacc B to help with yeast. He has always hummed since regression and very little speech but the humming is getting louder and he's puffing out his cheeks and holding his breath. When he lets it out he's usually rolling around the floor if at home or throwing himself on the sofa. He does have a good understanding of what's being said to him and not shutting down at all but the speech is very repetitive in between the humming. I know none of this behaviour is unusual in Autism but I've not seen any gains in 2 years and was hoping that someone could advise if I'm missing something or doing something wrong. My worst fear is that I am making him worse.Thank youHelen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give? Thanks Helen > > > > > > > > Hi, > > > > > > > > Sorry, it's a long one but might be relevant. My son is 6 years > old > > > and has a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a > > > difference (eye contact, a little speech, eating better and using > the > > > toilet). In addition to this I've been giving supps for 2 years. > He's > > > been seen by 3 well known specialist, including Dr Goyal, had > numerous > > > tests and tried many treatments but still no gains. Dr Goyal > referred > > > him to an Immunologist who did more blood test but nothing came back > > > abnormal. So we've now started chelation which I'm hoping will start > to > > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. > The > > > supps he's currently taking to support the chelation are as follows: > > > > > > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > Biocare Lipocell †" 4 x 5ml per day > > > > Thorne Adrenal Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as required > > > > > > > > (I have a spreadsheet listing all the individual quantities if of > > > interest) > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > The problems we are seeing are due to anxiety and stress I think, > but > > > I don't know why. He doesn't seem to want to do anything or go > anywhere > > > anymore. Over the school holidays he's only had a handful of days > out. > > > He's only happy in the garden for about 10 minutes at a time before > his > > > mood changes. Even the park stresses him at the moment. He's lost > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > anxiety/stress. He wont get in the bath anymore even if I carry him > in, > > > he wont put any part of his body in the water, holds on to me and > > > screams. So I have to wash him all over with a sponge next to the > bath > > > (this he doesn't mind). At one time he would spend about an hour > laying > > > in the bath and loved it. Since starting chelation he's now crying > in > > > the car before we've even got anywhere. So I upped the probiotics > and > > > the Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > He has always hummed since regression and very little speech but > the > > > humming is getting louder and he's puffing out his cheeks and > holding > > > his breath. When he lets it out he's usually rolling around the > floor if > > > at home or throwing himself on the sofa. He does have a good > > > understanding of what's being said to him and not shutting down at > all > > > but the speech is very repetitive in between the humming. I know > none of > > > this behaviour is unusual in Autism but I've not seen any gains in 2 > > > years and was hoping that someone could advise if I'm missing > something > > > or doing something wrong. My worst fear is that I am making him > worse. > > > > > > > > Thank you > > > > > > > > Helen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give? Thanks Helen > > > > > > > > Hi, > > > > > > > > Sorry, it's a long one but might be relevant. My son is 6 years > old > > > and has a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a > > > difference (eye contact, a little speech, eating better and using > the > > > toilet). In addition to this I've been giving supps for 2 years. > He's > > > been seen by 3 well known specialist, including Dr Goyal, had > numerous > > > tests and tried many treatments but still no gains. Dr Goyal > referred > > > him to an Immunologist who did more blood test but nothing came back > > > abnormal. So we've now started chelation which I'm hoping will start > to > > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. > The > > > supps he's currently taking to support the chelation are as follows: > > > > > > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > Biocare Lipocell †" 4 x 5ml per day > > > > Thorne Adrenal Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as required > > > > > > > > (I have a spreadsheet listing all the individual quantities if of > > > interest) > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > The problems we are seeing are due to anxiety and stress I think, > but > > > I don't know why. He doesn't seem to want to do anything or go > anywhere > > > anymore. Over the school holidays he's only had a handful of days > out. > > > He's only happy in the garden for about 10 minutes at a time before > his > > > mood changes. Even the park stresses him at the moment. He's lost > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > anxiety/stress. He wont get in the bath anymore even if I carry him > in, > > > he wont put any part of his body in the water, holds on to me and > > > screams. So I have to wash him all over with a sponge next to the > bath > > > (this he doesn't mind). At one time he would spend about an hour > laying > > > in the bath and loved it. Since starting chelation he's now crying > in > > > the car before we've even got anywhere. So I upped the probiotics > and > > > the Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > He has always hummed since regression and very little speech but > the > > > humming is getting louder and he's puffing out his cheeks and > holding > > > his breath. When he lets it out he's usually rolling around the > floor if > > > at home or throwing himself on the sofa. He does have a good > > > understanding of what's being said to him and not shutting down at > all > > > but the speech is very repetitive in between the humming. I know > none of > > > this behaviour is unusual in Autism but I've not seen any gains in 2 > > > years and was hoping that someone could advise if I'm missing > something > > > or doing something wrong. My worst fear is that I am making him > worse. > > > > > > > > Thank you > > > > > > > > Helen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give? Thanks Helen > > > > > > > > Hi, > > > > > > > > Sorry, it's a long one but might be relevant. My son is 6 years > old > > > and has a diagnosis of ASD. He regressed at age 3 years 4 months. > Since > > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a > > > difference (eye contact, a little speech, eating better and using > the > > > toilet). In addition to this I've been giving supps for 2 years. > He's > > > been seen by 3 well known specialist, including Dr Goyal, had > numerous > > > tests and tried many treatments but still no gains. Dr Goyal > referred > > > him to an Immunologist who did more blood test but nothing came back > > > abnormal. So we've now started chelation which I'm hoping will start > to > > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. > The > > > supps he's currently taking to support the chelation are as follows: > > > > > > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > > > > Milk Thistle Extract - 1/4 cap 4 x per day > > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day > > > > Biocare Vit A - 1 drop 4 x / day > > > > Biocare Molybdenum - 1 drop 2 x / day > > > > Biocare Lipocell †" 4 x 5ml per day > > > > Thorne Adrenal Cortex - 1 capsule am > > > > NOW Biotin - 1 capsule 3 x per day > > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > > > > Kirkman Sacc. B - 1 x capsule bedtime > > > > Candex - 1 capsule bedtime > > > > Custom CP1 Probiotics - 2 capsule bedtime > > > > Lee Silsby Magnesium Sulfate Cream - as required > > > > > > > > (I have a spreadsheet listing all the individual quantities if of > > > interest) > > > > > > > > I plan to add ALA between round 5 and 10. > > > > > > > > The problems we are seeing are due to anxiety and stress I think, > but > > > I don't know why. He doesn't seem to want to do anything or go > anywhere > > > anymore. Over the school holidays he's only had a handful of days > out. > > > He's only happy in the garden for about 10 minutes at a time before > his > > > mood changes. Even the park stresses him at the moment. He's lost > > > interest in toys, puzzles, drawing, and TV seems to bring on > > > anxiety/stress. He wont get in the bath anymore even if I carry him > in, > > > he wont put any part of his body in the water, holds on to me and > > > screams. So I have to wash him all over with a sponge next to the > bath > > > (this he doesn't mind). At one time he would spend about an hour > laying > > > in the bath and loved it. Since starting chelation he's now crying > in > > > the car before we've even got anywhere. So I upped the probiotics > and > > > the Candex and added Biotin and Sacc B to help with yeast. > > > > > > > > He has always hummed since regression and very little speech but > the > > > humming is getting louder and he's puffing out his cheeks and > holding > > > his breath. When he lets it out he's usually rolling around the > floor if > > > at home or throwing himself on the sofa. He does have a good > > > understanding of what's being said to him and not shutting down at > all > > > but the speech is very repetitive in between the humming. I know > none of > > > this behaviour is unusual in Autism but I've not seen any gains in 2 > > > years and was hoping that someone could advise if I'm missing > something > > > or doing something wrong. My worst fear is that I am making him > worse. > > > > > > > > Thank you > > > > > > > > Helen > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Mandi How much should I give? I give 1 capsule (50mg) at the moment. Can I give it after 4pm? > > I'd look into some adrenal support > > Mx > > > In a message dated 01/09/2011 12:16:05 GMT Daylight Time, > helen.nicolson@... writes: > > > > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and > has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age > of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye > contact, a little speech, eating better and using the toilet). In addition > to this I've been giving supps for 2 years. He's been seen by 3 well known > specialist, including Dr Goyal, had numerous tests and tried many treatments > but still no gains. Dr Goyal referred him to an Immunologist who did more > blood test but nothing came back abnormal. So we've now started chelation > which I'm hoping will start to work as we get into it. He's had 2 rounds of > DMSA at 5mg per dose. The supps he's currently taking to support the > chelation are as follows: > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day > Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell †" 4 x 5ml per day > Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > Kirkman Sacc. B - 1 x capsule bedtime > Candex - 1 capsule bedtime > Custom CP1 Probiotics - 2 capsule bedtime > Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest) > > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I > don't know why. He doesn't seem to want to do anything or go anywhere > anymore. Over the school holidays he's only had a handful of days out. He's only > happy in the garden for about 10 minutes at a time before his mood changes. > Even the park stresses him at the moment. He's lost interest in toys, > puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the > bath anymore even if I carry him in, he wont put any part of his body in the > water, holds on to me and screams. So I have to wash him all over with a > sponge next to the bath (this he doesn't mind). At one time he would spend > about an hour laying in the bath and loved it. Since starting chelation he's > now crying in the car before we've even got anywhere. So I upped the > probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the > humming is getting louder and he's puffing out his cheeks and holding his > breath. When he lets it out he's usually rolling around the floor if at home or > throwing himself on the sofa. He does have a good understanding of what's > being said to him and not shutting down at all but the speech is very > repetitive in between the humming. I know none of this behaviour is unusual in > Autism but I've not seen any gains in 2 years and was hoping that someone > could advise if I'm missing something or doing something wrong. My worst fear > is that I am making him worse. > > Thank you > > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Mandi How much should I give? I give 1 capsule (50mg) at the moment. Can I give it after 4pm? > > I'd look into some adrenal support > > Mx > > > In a message dated 01/09/2011 12:16:05 GMT Daylight Time, > helen.nicolson@... writes: > > > > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and > has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age > of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye > contact, a little speech, eating better and using the toilet). In addition > to this I've been giving supps for 2 years. He's been seen by 3 well known > specialist, including Dr Goyal, had numerous tests and tried many treatments > but still no gains. Dr Goyal referred him to an Immunologist who did more > blood test but nothing came back abnormal. So we've now started chelation > which I'm hoping will start to work as we get into it. He's had 2 rounds of > DMSA at 5mg per dose. The supps he's currently taking to support the > chelation are as follows: > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day > Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell †" 4 x 5ml per day > Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > Kirkman Sacc. B - 1 x capsule bedtime > Candex - 1 capsule bedtime > Custom CP1 Probiotics - 2 capsule bedtime > Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest) > > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I > don't know why. He doesn't seem to want to do anything or go anywhere > anymore. Over the school holidays he's only had a handful of days out. He's only > happy in the garden for about 10 minutes at a time before his mood changes. > Even the park stresses him at the moment. He's lost interest in toys, > puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the > bath anymore even if I carry him in, he wont put any part of his body in the > water, holds on to me and screams. So I have to wash him all over with a > sponge next to the bath (this he doesn't mind). At one time he would spend > about an hour laying in the bath and loved it. Since starting chelation he's > now crying in the car before we've even got anywhere. So I upped the > probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the > humming is getting louder and he's puffing out his cheeks and holding his > breath. When he lets it out he's usually rolling around the floor if at home or > throwing himself on the sofa. He does have a good understanding of what's > being said to him and not shutting down at all but the speech is very > repetitive in between the humming. I know none of this behaviour is unusual in > Autism but I've not seen any gains in 2 years and was hoping that someone > could advise if I'm missing something or doing something wrong. My worst fear > is that I am making him worse. > > Thank you > > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Hi Mandi How much should I give? I give 1 capsule (50mg) at the moment. Can I give it after 4pm? > > I'd look into some adrenal support > > Mx > > > In a message dated 01/09/2011 12:16:05 GMT Daylight Time, > helen.nicolson@... writes: > > > > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and > has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age > of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye > contact, a little speech, eating better and using the toilet). In addition > to this I've been giving supps for 2 years. He's been seen by 3 well known > specialist, including Dr Goyal, had numerous tests and tried many treatments > but still no gains. Dr Goyal referred him to an Immunologist who did more > blood test but nothing came back abnormal. So we've now started chelation > which I'm hoping will start to work as we get into it. He's had 2 rounds of > DMSA at 5mg per dose. The supps he's currently taking to support the > chelation are as follows: > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day > Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell †" 4 x 5ml per day > Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > Kirkman Sacc. B - 1 x capsule bedtime > Candex - 1 capsule bedtime > Custom CP1 Probiotics - 2 capsule bedtime > Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest) > > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I > don't know why. He doesn't seem to want to do anything or go anywhere > anymore. Over the school holidays he's only had a handful of days out. He's only > happy in the garden for about 10 minutes at a time before his mood changes. > Even the park stresses him at the moment. He's lost interest in toys, > puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the > bath anymore even if I carry him in, he wont put any part of his body in the > water, holds on to me and screams. So I have to wash him all over with a > sponge next to the bath (this he doesn't mind). At one time he would spend > about an hour laying in the bath and loved it. Since starting chelation he's > now crying in the car before we've even got anywhere. So I upped the > probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the > humming is getting louder and he's puffing out his cheeks and holding his > breath. When he lets it out he's usually rolling around the floor if at home or > throwing himself on the sofa. He does have a good understanding of what's > being said to him and not shutting down at all but the speech is very > repetitive in between the humming. I know none of this behaviour is unusual in > Autism but I've not seen any gains in 2 years and was hoping that someone > could advise if I'm missing something or doing something wrong. My worst fear > is that I am making him worse. > > Thank you > > Helen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I give one a day when not on chelation round and one am and one pm when he is. He gets one Inositol daily. Do remember though that is a six footer with a rugby player build !! I am not the best one to talk about this though. Mandi or Kirsty will hopefully chip in. Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give?ThanksHelen> > > >> > > > Hi,> > > >> > > > Sorry, it's a long one but might be relevant. My son is 6 years> old> > > and has a diagnosis of ASD. He regressed at age 3 years 4 months.> Since> > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > > difference (eye contact, a little speech, eating better and using> the> > > toilet). In addition to this I've been giving supps for 2 years.> He's> > > been seen by 3 well known specialist, including Dr Goyal, had> numerous> > > tests and tried many treatments but still no gains. Dr Goyal> referred> > > him to an Immunologist who did more blood test but nothing came back> > > abnormal. So we've now started chelation which I'm hoping will start> to> > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.> The> > > supps he's currently taking to support the chelation are as follows:> > > >> > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > > Milk Thistle Extract - 1/4 cap 4 x per day> > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > > Biocare Vit A - 1 drop 4 x / day> > > > Biocare Molybdenum - 1 drop 2 x / day> > > > Biocare Lipocell â€" 4 x 5ml per day> > > > Thorne Adrenal Cortex - 1 capsule am> > > > NOW Biotin - 1 capsule 3 x per day> > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > > Kirkman Sacc. B - 1 x capsule bedtime> > > > Candex - 1 capsule bedtime> > > > Custom CP1 Probiotics - 2 capsule bedtime> > > > Lee Silsby Magnesium Sulfate Cream - as required> > > >> > > > (I have a spreadsheet listing all the individual quantities if of> > > interest)> > > >> > > > I plan to add ALA between round 5 and 10.> > > >> > > > The problems we are seeing are due to anxiety and stress I think,> but> > > I don't know why. He doesn't seem to want to do anything or go> anywhere> > > anymore. Over the school holidays he's only had a handful of days> out.> > > He's only happy in the garden for about 10 minutes at a time before> his> > > mood changes. Even the park stresses him at the moment. He's lost> > > interest in toys, puzzles, drawing, and TV seems to bring on> > > anxiety/stress. He wont get in the bath anymore even if I carry him> in,> > > he wont put any part of his body in the water, holds on to me and> > > screams. So I have to wash him all over with a sponge next to the> bath> > > (this he doesn't mind). At one time he would spend about an hour> laying> > > in the bath and loved it. Since starting chelation he's now crying> in> > > the car before we've even got anywhere. So I upped the probiotics> and> > > the Candex and added Biotin and Sacc B to help with yeast.> > > >> > > > He has always hummed since regression and very little speech but> the> > > humming is getting louder and he's puffing out his cheeks and> holding> > > his breath. When he lets it out he's usually rolling around the> floor if> > > at home or throwing himself on the sofa. He does have a good> > > understanding of what's being said to him and not shutting down at> all> > > but the speech is very repetitive in between the humming. I know> none of> > > this behaviour is unusual in Autism but I've not seen any gains in 2> > > years and was hoping that someone could advise if I'm missing> something> > > or doing something wrong. My worst fear is that I am making him> worse.> > > >> > > > Thank you> > > >> > > > Helen> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I give one a day when not on chelation round and one am and one pm when he is. He gets one Inositol daily. Do remember though that is a six footer with a rugby player build !! I am not the best one to talk about this though. Mandi or Kirsty will hopefully chip in. Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give?ThanksHelen> > > >> > > > Hi,> > > >> > > > Sorry, it's a long one but might be relevant. My son is 6 years> old> > > and has a diagnosis of ASD. He regressed at age 3 years 4 months.> Since> > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > > difference (eye contact, a little speech, eating better and using> the> > > toilet). In addition to this I've been giving supps for 2 years.> He's> > > been seen by 3 well known specialist, including Dr Goyal, had> numerous> > > tests and tried many treatments but still no gains. Dr Goyal> referred> > > him to an Immunologist who did more blood test but nothing came back> > > abnormal. So we've now started chelation which I'm hoping will start> to> > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.> The> > > supps he's currently taking to support the chelation are as follows:> > > >> > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > > Milk Thistle Extract - 1/4 cap 4 x per day> > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > > Biocare Vit A - 1 drop 4 x / day> > > > Biocare Molybdenum - 1 drop 2 x / day> > > > Biocare Lipocell â€" 4 x 5ml per day> > > > Thorne Adrenal Cortex - 1 capsule am> > > > NOW Biotin - 1 capsule 3 x per day> > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > > Kirkman Sacc. B - 1 x capsule bedtime> > > > Candex - 1 capsule bedtime> > > > Custom CP1 Probiotics - 2 capsule bedtime> > > > Lee Silsby Magnesium Sulfate Cream - as required> > > >> > > > (I have a spreadsheet listing all the individual quantities if of> > > interest)> > > >> > > > I plan to add ALA between round 5 and 10.> > > >> > > > The problems we are seeing are due to anxiety and stress I think,> but> > > I don't know why. He doesn't seem to want to do anything or go> anywhere> > > anymore. Over the school holidays he's only had a handful of days> out.> > > He's only happy in the garden for about 10 minutes at a time before> his> > > mood changes. Even the park stresses him at the moment. He's lost> > > interest in toys, puzzles, drawing, and TV seems to bring on> > > anxiety/stress. He wont get in the bath anymore even if I carry him> in,> > > he wont put any part of his body in the water, holds on to me and> > > screams. So I have to wash him all over with a sponge next to the> bath> > > (this he doesn't mind). At one time he would spend about an hour> laying> > > in the bath and loved it. Since starting chelation he's now crying> in> > > the car before we've even got anywhere. So I upped the probiotics> and> > > the Candex and added Biotin and Sacc B to help with yeast.> > > >> > > > He has always hummed since regression and very little speech but> the> > > humming is getting louder and he's puffing out his cheeks and> holding> > > his breath. When he lets it out he's usually rolling around the> floor if> > > at home or throwing himself on the sofa. He does have a good> > > understanding of what's being said to him and not shutting down at> all> > > but the speech is very repetitive in between the humming. I know> none of> > > this behaviour is unusual in Autism but I've not seen any gains in 2> > > years and was hoping that someone could advise if I'm missing> something> > > or doing something wrong. My worst fear is that I am making him> worse.> > > >> > > > Thank you> > > >> > > > Helen> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 I give one a day when not on chelation round and one am and one pm when he is. He gets one Inositol daily. Do remember though that is a six footer with a rugby player build !! I am not the best one to talk about this though. Mandi or Kirsty will hopefully chip in. Hi How much Adrenal Cortex do you give? I was giving 1/2 am and half noon but now he's in school I give 1 (50mg) am. I'm not sure what the problem is with giving it after 4pm though. I've given Inositol in a multi at some point before because it's on my list. How much of this do you give?ThanksHelen> > > >> > > > Hi,> > > >> > > > Sorry, it's a long one but might be relevant. My son is 6 years> old> > > and has a diagnosis of ASD. He regressed at age 3 years 4 months.> Since> > > the age of 4 he's been on GF/CF diet, only this and Omega 3 made a> > > difference (eye contact, a little speech, eating better and using> the> > > toilet). In addition to this I've been giving supps for 2 years.> He's> > > been seen by 3 well known specialist, including Dr Goyal, had> numerous> > > tests and tried many treatments but still no gains. Dr Goyal> referred> > > him to an Immunologist who did more blood test but nothing came back> > > abnormal. So we've now started chelation which I'm hoping will start> to> > > work as we get into it. He's had 2 rounds of DMSA at 5mg per dose.> The> > > supps he's currently taking to support the chelation are as follows:> > > >> > > > Everything Spectrum Essential Multi - 1 capsule 3 x per day> > > > Milk Thistle Extract - 1/4 cap 4 x per day> > > > Everything Spectrum Essential 4 - 1 capsule 4 x per day> > > > Biocare Vit A - 1 drop 4 x / day> > > > Biocare Molybdenum - 1 drop 2 x / day> > > > Biocare Lipocell â€" 4 x 5ml per day> > > > Thorne Adrenal Cortex - 1 capsule am> > > > NOW Biotin - 1 capsule 3 x per day> > > > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> > > > Kirkman Sacc. B - 1 x capsule bedtime> > > > Candex - 1 capsule bedtime> > > > Custom CP1 Probiotics - 2 capsule bedtime> > > > Lee Silsby Magnesium Sulfate Cream - as required> > > >> > > > (I have a spreadsheet listing all the individual quantities if of> > > interest)> > > >> > > > I plan to add ALA between round 5 and 10.> > > >> > > > The problems we are seeing are due to anxiety and stress I think,> but> > > I don't know why. He doesn't seem to want to do anything or go> anywhere> > > anymore. Over the school holidays he's only had a handful of days> out.> > > He's only happy in the garden for about 10 minutes at a time before> his> > > mood changes. Even the park stresses him at the moment. He's lost> > > interest in toys, puzzles, drawing, and TV seems to bring on> > > anxiety/stress. He wont get in the bath anymore even if I carry him> in,> > > he wont put any part of his body in the water, holds on to me and> > > screams. So I have to wash him all over with a sponge next to the> bath> > > (this he doesn't mind). At one time he would spend about an hour> laying> > > in the bath and loved it. Since starting chelation he's now crying> in> > > the car before we've even got anywhere. So I upped the probiotics> and> > > the Candex and added Biotin and Sacc B to help with yeast.> > > >> > > > He has always hummed since regression and very little speech but> the> > > humming is getting louder and he's puffing out his cheeks and> holding> > > his breath. When he lets it out he's usually rolling around the> floor if> > > at home or throwing himself on the sofa. He does have a good> > > understanding of what's being said to him and not shutting down at> all> > > but the speech is very repetitive in between the humming. I know> none of> > > this behaviour is unusual in Autism but I've not seen any gains in 2> > > years and was hoping that someone could advise if I'm missing> something> > > or doing something wrong. My worst fear is that I am making him> worse.> > > >> > > > Thank you> > > >> > > > Helen> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 You could stop the Multi and just keep the Esentaill 4 in, thos eare the ones that are minimum per Andy although people that have used ALA and no supporting supps for a while until the supps could be tolerated Mx So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 You could stop the Multi and just keep the Esentaill 4 in, thos eare the ones that are minimum per Andy although people that have used ALA and no supporting supps for a while until the supps could be tolerated Mx So now we are trying AC Chelation but if the supplements that I'm giving are causing further regression then I have to put chelation on hold, stop the supps and reintroduce one by one again, unless anyone suggest anything else. However I have a suspicion it's the multi that's the problem and not the DMSA - we'll see. I have plenty of others to choose from in my cupboard! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Some kids need lots and lots, Anita's lad is one of them. DO you think you see any changes from 1 cap and how long has he been on it. Some kids take a while to respond Mx Hi MandiHow much should I give? I give 1 capsule (50mg) at the moment. Can I give it after 4pm?>> I'd look into some adrenal support> > Mx> > > > > > > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and > has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age > of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye > contact, a little speech, eating better and using the toilet). In addition > to this I've been giving supps for 2 years. He's been seen by 3 well known > specialist, including Dr Goyal, had numerous tests and tried many treatments > but still no gains. Dr Goyal referred him to an Immunologist who did more > blood test but nothing came back abnormal. So we've now started chelation > which I'm hoping will start to work as we get into it. He's had 2 rounds of > DMSA at 5mg per dose. The supps he's currently taking to support the > chelation are as follows:> > Everything Spectrum Essential Multi - 1 capsule 3 x per day> Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day> Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell â€" 4 x 5ml per day> Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> Kirkman Sacc. B - 1 x capsule bedtime> Candex - 1 capsule bedtime> Custom CP1 Probiotics - 2 capsule bedtime> Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest)> > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I > don't know why. He doesn't seem to want to do anything or go anywhere > anymore. Over the school holidays he's only had a handful of days out. He's only > happy in the garden for about 10 minutes at a time before his mood changes. > Even the park stresses him at the moment. He's lost interest in toys, > puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the > bath anymore even if I carry him in, he wont put any part of his body in the > water, holds on to me and screams. So I have to wash him all over with a > sponge next to the bath (this he doesn't mind). At one time he would spend > about an hour laying in the bath and loved it. Since starting chelation he's > now crying in the car before we've even got anywhere. So I upped the > probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the > humming is getting louder and he's puffing out his cheeks and holding his > breath. When he lets it out he's usually rolling around the floor if at home or > throwing himself on the sofa. He does have a good understanding of what's > being said to him and not shutting down at all but the speech is very > repetitive in between the humming. I know none of this behaviour is unusual in > Autism but I've not seen any gains in 2 years and was hoping that someone > could advise if I'm missing something or doing something wrong. My worst fear > is that I am making him worse.> > Thank you> > Helen> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Some kids need lots and lots, Anita's lad is one of them. DO you think you see any changes from 1 cap and how long has he been on it. Some kids take a while to respond Mx Hi MandiHow much should I give? I give 1 capsule (50mg) at the moment. Can I give it after 4pm?>> I'd look into some adrenal support> > Mx> > > > > > > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and > has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age > of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye > contact, a little speech, eating better and using the toilet). In addition > to this I've been giving supps for 2 years. He's been seen by 3 well known > specialist, including Dr Goyal, had numerous tests and tried many treatments > but still no gains. Dr Goyal referred him to an Immunologist who did more > blood test but nothing came back abnormal. So we've now started chelation > which I'm hoping will start to work as we get into it. He's had 2 rounds of > DMSA at 5mg per dose. The supps he's currently taking to support the > chelation are as follows:> > Everything Spectrum Essential Multi - 1 capsule 3 x per day> Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day> Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell â€" 4 x 5ml per day> Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals> Kirkman Sacc. B - 1 x capsule bedtime> Candex - 1 capsule bedtime> Custom CP1 Probiotics - 2 capsule bedtime> Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest)> > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I > don't know why. He doesn't seem to want to do anything or go anywhere > anymore. Over the school holidays he's only had a handful of days out. He's only > happy in the garden for about 10 minutes at a time before his mood changes. > Even the park stresses him at the moment. He's lost interest in toys, > puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the > bath anymore even if I carry him in, he wont put any part of his body in the > water, holds on to me and screams. So I have to wash him all over with a > sponge next to the bath (this he doesn't mind). At one time he would spend > about an hour laying in the bath and loved it. Since starting chelation he's > now crying in the car before we've even got anywhere. So I upped the > probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the > humming is getting louder and he's puffing out his cheeks and holding his > breath. When he lets it out he's usually rolling around the floor if at home or > throwing himself on the sofa. He does have a good understanding of what's > being said to him and not shutting down at all but the speech is very > repetitive in between the humming. I know none of this behaviour is unusual in > Autism but I've not seen any gains in 2 years and was hoping that someone > could advise if I'm missing something or doing something wrong. My worst fear > is that I am making him worse.> > Thank you> > Helen> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 first of all want to say there has been many kids who have improved remarkably on ac chelation so you are trying a good thing. second of all..when my son is going balistic i will cut out all supps..give him a couple days of my veggie soup with veggies i feel he does well with. then i slowly add foods in one every couple days wait for reaction. then after his foods i add in supps one at a time and wait for bad or good reaction. you need a journal write down all behaviors good or bad and what he ate supps ect..even bowel movements tell you al lot! my son started a new supp last night. he went nuts a hour later..this morning his poop was yellow and thin..that to me is sign of inflammation. so i dont give said supp anymore..(well it goes in my cupboard wehwere i take all my sons leftover sups) point is be a detective..oh and i tought i heard creatine is helpful for the inccestant humming in some kids. hope this helps some. channa > > Hi, > > Sorry, it's a long one but might be relevant. My son is 6 years old and has a diagnosis of ASD. He regressed at age 3 years 4 months. Since the age of 4 he's been on GF/CF diet, only this and Omega 3 made a difference (eye contact, a little speech, eating better and using the toilet). In addition to this I've been giving supps for 2 years. He's been seen by 3 well known specialist, including Dr Goyal, had numerous tests and tried many treatments but still no gains. Dr Goyal referred him to an Immunologist who did more blood test but nothing came back abnormal. So we've now started chelation which I'm hoping will start to work as we get into it. He's had 2 rounds of DMSA at 5mg per dose. The supps he's currently taking to support the chelation are as follows: > > Everything Spectrum Essential Multi - 1 capsule 3 x per day > Milk Thistle Extract - 1/4 cap 4 x per day > Everything Spectrum Essential 4 - 1 capsule 4 x per day > Biocare Vit A - 1 drop 4 x / day > Biocare Molybdenum - 1 drop 2 x / day > Biocare Lipocell – 4 x 5ml per day > Thorne Adrenal Cortex - 1 capsule am > NOW Biotin - 1 capsule 3 x per day > TriEnza Digestive Enzymes - 1 cap 4 x per day with meals > Kirkman Sacc. B - 1 x capsule bedtime > Candex - 1 capsule bedtime > Custom CP1 Probiotics - 2 capsule bedtime > Lee Silsby Magnesium Sulfate Cream - as required > > (I have a spreadsheet listing all the individual quantities if of interest) > > I plan to add ALA between round 5 and 10. > > The problems we are seeing are due to anxiety and stress I think, but I don't know why. He doesn't seem to want to do anything or go anywhere anymore. Over the school holidays he's only had a handful of days out. He's only happy in the garden for about 10 minutes at a time before his mood changes. Even the park stresses him at the moment. He's lost interest in toys, puzzles, drawing, and TV seems to bring on anxiety/stress. He wont get in the bath anymore even if I carry him in, he wont put any part of his body in the water, holds on to me and screams. So I have to wash him all over with a sponge next to the bath (this he doesn't mind). At one time he would spend about an hour laying in the bath and loved it. Since starting chelation he's now crying in the car before we've even got anywhere. So I upped the probiotics and the Candex and added Biotin and Sacc B to help with yeast. > > He has always hummed since regression and very little speech but the humming is getting louder and he's puffing out his cheeks and holding his breath. When he lets it out he's usually rolling around the floor if at home or throwing himself on the sofa. He does have a good understanding of what's being said to him and not shutting down at all but the speech is very repetitive in between the humming. I know none of this behaviour is unusual in Autism but I've not seen any gains in 2 years and was hoping that someone could advise if I'm missing something or doing something wrong. My worst fear is that I am making him worse. > > Thank you > > Helen > Quote Link to comment Share on other sites More sharing options...
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