Re: Price for DOCbands added vent sorry y'all for the vent!!

[Guest guest]

Sheri,

Vent away. It's what we are here for. The DOCband is $3000.00 not

$6000.00. STARbands and locally made helmets are a lot cheaper. You

can always look into that. Here is the web site for the STARband

http://www.orthomerica.com

Maybe can always do a fund raiser in your own area? I'd call medicaid

and ask them if they cover ANY cranial orthotic. You never know, it's

worth a shot.

I'm sorry things have been so rough for , but I'm sure with

you as a Mom, he'll be fine!!

You may take him to CT and they may tell you he is too mild for a

band. Repositioning can do wonders!

> The web site is a great idea but I am soooo stupid when it comes to

> computers I know I will never be able to figure that one out. I

have

> tried and tried to make a webpage for him just to show his pics and

I

> have no luck at all. Maybe I will practice over the weekend. I am

> not going to let the price stop me but it sure is a shock that it

> cost so much and I can't believe medicaid won't pay for it. Do

they

> think that Plagiocephaly is something that is not important to

> correct or what? What happens to children whose parents just can't

> come up with $6,000? Do they just suffer and go without

treatment?

> I don't know how in the world we will come up with $6,000 but I

won't

> stop til I do. I am just getting so upset thinking of the whole

> thing. has other medical issues too and money is sooo hard

> to come by. He has been diagnosed with Bilateral Kidney Reflux

Grade

> 3. He has been in and out of hospitals since 3 weeks of age with

> those problems. Medicaid does cover those problems but since we

live

> in a tiny town we still have to travel each time he has an appt and

> it cost money for us in gas, food, and sometimes hotel stays. I

just

> feel like crying when I think of him having a problem that needs

> attention and money plays such a big part in getting him help

> is my miracle baby after 3 miscarriages and 11 years of

> infertility problems and it saddens me so much that he is going

> through all this at such a young age. I will do anything to make

him

> better but now it looks like it may take a little time so I can

find

> the money first. I am sorry for the vent but I feel so helpless

> about everything from the pediatrician not getting us a referral

from

> the torticollis (if she had helped us maybe he wouldn't have the

> plagiocephaly now)to medicaid not helping with the price of the

> DOCband if needed.

>

>

> > ok here is one i think i can answer: The payment plan we were

> offered was

> > $600 a month for 5 months. That is still steep, they might be

able

> to works

> > omething a little more reasonable out with you if you ask. There

> are lots of

> > other ways to try to raise the funds, I made gracie a webpage on

> geocities

> > and people started sending me dollar bills in the mail. no

kidding!

> The idea

> > was, if everyone who saw my page sent a dollar, then that would

go

> a log way

> > towards the cost. i offered to pay it all back but they all came

> without

> > return addresses. There are also churches and stuff who might be

> able to

> > help you out. i would say dont let $$ stop you from doing this

for

> him if he

> > needs it, i know all too well thats easier said than done. And if

> you do

> > make him a webpage I will donate to the cause!

> >

> > kari & gracie DOCBand escapee

> > north carolina