Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 The web site is a great idea but I am soooo stupid when it comes to computers I know I will never be able to figure that one out. I have tried and tried to make a webpage for him just to show his pics and I have no luck at all. Maybe I will practice over the weekend. I am not going to let the price stop me but it sure is a shock that it cost so much and I can't believe medicaid won't pay for it. Do they think that Plagiocephaly is something that is not important to correct or what? What happens to children whose parents just can't come up with $6,000? Do they just suffer and go without treatment? I don't know how in the world we will come up with $6,000 but I won't stop til I do. I am just getting so upset thinking of the whole thing. has other medical issues too and money is sooo hard to come by. He has been diagnosed with Bilateral Kidney Reflux Grade 3. He has been in and out of hospitals since 3 weeks of age with those problems. Medicaid does cover those problems but since we live in a tiny town we still have to travel each time he has an appt and it cost money for us in gas, food, and sometimes hotel stays. I just feel like crying when I think of him having a problem that needs attention and money plays such a big part in getting him help is my miracle baby after 3 miscarriages and 11 years of infertility problems and it saddens me so much that he is going through all this at such a young age. I will do anything to make him better but now it looks like it may take a little time so I can find the money first. I am sorry for the vent but I feel so helpless about everything from the pediatrician not getting us a referral from the torticollis (if she had helped us maybe he wouldn't have the plagiocephaly now)to medicaid not helping with the price of the DOCband if needed. > ok here is one i think i can answer: The payment plan we were offered was > $600 a month for 5 months. That is still steep, they might be able to works > omething a little more reasonable out with you if you ask. There are lots of > other ways to try to raise the funds, I made gracie a webpage on geocities > and people started sending me dollar bills in the mail. no kidding! The idea > was, if everyone who saw my page sent a dollar, then that would go a log way > towards the cost. i offered to pay it all back but they all came without > return addresses. There are also churches and stuff who might be able to > help you out. i would say dont let $$ stop you from doing this for him if he > needs it, i know all too well thats easier said than done. And if you do > make him a webpage I will donate to the cause! > > kari & gracie DOCBand escapee > north carolina Quote Link to comment Share on other sites More sharing options...
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