Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Sam is 11 and wears the Goodnights most of the time.. She does now however go to the potty more often than she used to but she Fights when it comes to putting on panties.. Oh yeah my son who will be 10 wants to know what day in June.. Jenn B In SWMO Mom 2 age 11 Developmental delays (mental & physical 1-4 years), BiPolar, & Siezure Disorder, possible autism (undiagnosed) & Tiny aka ADHD Age 9 Typically Good kid, Just likes to drive me batty. Aunt to 16 Girls and Boys Re: Rude people! Jen, JUST turned 5 in May Crystal Crystal B St. Clair Shores http://crystalbreger.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2005 Report Share Posted June 1, 2005 Sam is 11 and wears the Goodnights most of the time.. She does now however go to the potty more often than she used to but she Fights when it comes to putting on panties.. Oh yeah my son who will be 10 wants to know what day in June.. Jenn B In SWMO Mom 2 age 11 Developmental delays (mental & physical 1-4 years), BiPolar, & Siezure Disorder, possible autism (undiagnosed) & Tiny aka ADHD Age 9 Typically Good kid, Just likes to drive me batty. Aunt to 16 Girls and Boys Re: Rude people! Jen, JUST turned 5 in May Crystal Crystal B St. Clair Shores http://crystalbreger.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Hi Aimee. I am new to this forum. My daughter is 26 months old an dhas PDD-NOS. She is non-verbal and can now sign more, all done, help, ball, open, and sometimes go. We have had to change all of these signs a little bit (except for more) because she has some issues using both hands and crossing midline too. We just started Methyl B12 injections every 3 days. I have heard more babbling with different sounds coming out. It has been really exciting to see her progress. here is the website http://www.drneubrander.com/page1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Hi Aimee. I am new to this forum. My daughter is 26 months old an dhas PDD-NOS. She is non-verbal and can now sign more, all done, help, ball, open, and sometimes go. We have had to change all of these signs a little bit (except for more) because she has some issues using both hands and crossing midline too. We just started Methyl B12 injections every 3 days. I have heard more babbling with different sounds coming out. It has been really exciting to see her progress. here is the website http://www.drneubrander.com/page1.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, we worked hard to teach Alyssa to speak, and she's quite verbal at 6, but still not real interactive and certainly not conversational. Using other means of communication teach COMMUNICATION, and now that we're using RDI, we're seeing some of that emerging, finally. (ABA did everything BUT encourage this interactive communication. All ABA taught her was to request, demand, comment, but not to interact. And Amnesty, we had great consultants and super therapists; it was, in my opinion, ABA done well, and it still failed in that one respect.) Looking into some sort of FC is not a cop-out, in my opinion, if it teaches interaction with communication, because without that, these kids are really hurting as adults...really on the 'outside'. It's a core deficit, and what keeps these kids dependent as adults. > Amnesty, > I have my concerns abou teaching ella other means of communication, because what I really want is for her to speek. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, we worked hard to teach Alyssa to speak, and she's quite verbal at 6, but still not real interactive and certainly not conversational. Using other means of communication teach COMMUNICATION, and now that we're using RDI, we're seeing some of that emerging, finally. (ABA did everything BUT encourage this interactive communication. All ABA taught her was to request, demand, comment, but not to interact. And Amnesty, we had great consultants and super therapists; it was, in my opinion, ABA done well, and it still failed in that one respect.) Looking into some sort of FC is not a cop-out, in my opinion, if it teaches interaction with communication, because without that, these kids are really hurting as adults...really on the 'outside'. It's a core deficit, and what keeps these kids dependent as adults. > Amnesty, > I have my concerns abou teaching ella other means of communication, because what I really want is for her to speek. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, we worked hard to teach Alyssa to speak, and she's quite verbal at 6, but still not real interactive and certainly not conversational. Using other means of communication teach COMMUNICATION, and now that we're using RDI, we're seeing some of that emerging, finally. (ABA did everything BUT encourage this interactive communication. All ABA taught her was to request, demand, comment, but not to interact. And Amnesty, we had great consultants and super therapists; it was, in my opinion, ABA done well, and it still failed in that one respect.) Looking into some sort of FC is not a cop-out, in my opinion, if it teaches interaction with communication, because without that, these kids are really hurting as adults...really on the 'outside'. It's a core deficit, and what keeps these kids dependent as adults. > Amnesty, > I have my concerns abou teaching ella other means of communication, because what I really want is for her to speek. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, glad to help. With Allie, she would say a word once in a great while, like every 2-3 mos. She'd say it one time with eye contact and everything, like a switch had come on. Then in a blink it was like she was gone again. When we put her on gfcf she began to speak without losing it. I feel very blessed because i know many people do not find benefit from gfcf, so in no way saying it will do the same for everyone, just for our situation. If she utters a word here and there, it's my op that it's just God's promise of the future. Temple Grandin says if a child can hear a word and repeat it, that is proof that all the parts of the brain are properly functioning to learn language. I thought that was very hopeful. Keep trying to have patience, she is still so young, it will come. Your little one is showing awesome potential by being able to sign. Allie never could, her proprioceptive delay was too great a challenge. Temple Grandin's book, Thinking in Pictures, really helped me understand the importance of PECS. I was like you, I felt Allie could be verbal and didn't want a therapist to settle for something less. Temple's book explained that she could not make verbal language without the pictures, so it is significant for many people with autism. Some people with autism state they don't get that much from pictures, but get a lot from written words. Most PECS has both. I still use lots of PECS for Allie, she learns so much faster how to speak with PECS than without. HTH, Debi > Debi, > I love this group...its my rock! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, glad to help. With Allie, she would say a word once in a great while, like every 2-3 mos. She'd say it one time with eye contact and everything, like a switch had come on. Then in a blink it was like she was gone again. When we put her on gfcf she began to speak without losing it. I feel very blessed because i know many people do not find benefit from gfcf, so in no way saying it will do the same for everyone, just for our situation. If she utters a word here and there, it's my op that it's just God's promise of the future. Temple Grandin says if a child can hear a word and repeat it, that is proof that all the parts of the brain are properly functioning to learn language. I thought that was very hopeful. Keep trying to have patience, she is still so young, it will come. Your little one is showing awesome potential by being able to sign. Allie never could, her proprioceptive delay was too great a challenge. Temple Grandin's book, Thinking in Pictures, really helped me understand the importance of PECS. I was like you, I felt Allie could be verbal and didn't want a therapist to settle for something less. Temple's book explained that she could not make verbal language without the pictures, so it is significant for many people with autism. Some people with autism state they don't get that much from pictures, but get a lot from written words. Most PECS has both. I still use lots of PECS for Allie, she learns so much faster how to speak with PECS than without. HTH, Debi > Debi, > I love this group...its my rock! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Aimee, glad to help. With Allie, she would say a word once in a great while, like every 2-3 mos. She'd say it one time with eye contact and everything, like a switch had come on. Then in a blink it was like she was gone again. When we put her on gfcf she began to speak without losing it. I feel very blessed because i know many people do not find benefit from gfcf, so in no way saying it will do the same for everyone, just for our situation. If she utters a word here and there, it's my op that it's just God's promise of the future. Temple Grandin says if a child can hear a word and repeat it, that is proof that all the parts of the brain are properly functioning to learn language. I thought that was very hopeful. Keep trying to have patience, she is still so young, it will come. Your little one is showing awesome potential by being able to sign. Allie never could, her proprioceptive delay was too great a challenge. Temple Grandin's book, Thinking in Pictures, really helped me understand the importance of PECS. I was like you, I felt Allie could be verbal and didn't want a therapist to settle for something less. Temple's book explained that she could not make verbal language without the pictures, so it is significant for many people with autism. Some people with autism state they don't get that much from pictures, but get a lot from written words. Most PECS has both. I still use lots of PECS for Allie, she learns so much faster how to speak with PECS than without. HTH, Debi > Debi, > I love this group...its my rock! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 First, I want to address your concerns about PECS. Really, PECS is the easiest way to teach functional communication b/c it doesn't require ANY pre-requiesit skills. Also, often you will see a HUGE reduction in frustration behaviors, almost immediately. The other thing it does is teach the concept of communication, basically lets her know that there is a reason she wants to communicate with you, to get what she wants quickly. Teaching PECS does NOT prevent or delay the acquisiton of spoken communication, in fact, it usually does exactly the opposite. I have seen kids 4 or 5 yrs old who have never had any verbal language start talking after PECS was introduced. Signing is a little trickier to use b/c of the fine motor skills and imitation skills it requires, same for vocalizing, she first needs imitation and oral motor, etc. As far as the self stims, they could increase if she's feeling frustrated, or trying to escape, etc. Are they occurring more specificly when you place demands on her, or just in general? It may just be a way for her to calm/relax herself. Try teaching other relaxation techniques (asking for a massage, or swinging, rocking, listening to music or watching a favorite video) and make sure you are giving her unstructured breaks every hour. HTH, Amnesty > > > Has always been verbal? > > > Ella is 21 months and still completely nonverbal although she > > babbles all day sometimes. > > > > > > Aimee > > > > > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 First, I want to address your concerns about PECS. Really, PECS is the easiest way to teach functional communication b/c it doesn't require ANY pre-requiesit skills. Also, often you will see a HUGE reduction in frustration behaviors, almost immediately. The other thing it does is teach the concept of communication, basically lets her know that there is a reason she wants to communicate with you, to get what she wants quickly. Teaching PECS does NOT prevent or delay the acquisiton of spoken communication, in fact, it usually does exactly the opposite. I have seen kids 4 or 5 yrs old who have never had any verbal language start talking after PECS was introduced. Signing is a little trickier to use b/c of the fine motor skills and imitation skills it requires, same for vocalizing, she first needs imitation and oral motor, etc. As far as the self stims, they could increase if she's feeling frustrated, or trying to escape, etc. Are they occurring more specificly when you place demands on her, or just in general? It may just be a way for her to calm/relax herself. Try teaching other relaxation techniques (asking for a massage, or swinging, rocking, listening to music or watching a favorite video) and make sure you are giving her unstructured breaks every hour. HTH, Amnesty > > > Has always been verbal? > > > Ella is 21 months and still completely nonverbal although she > > babbles all day sometimes. > > > > > > Aimee > > > > > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 First, I want to address your concerns about PECS. Really, PECS is the easiest way to teach functional communication b/c it doesn't require ANY pre-requiesit skills. Also, often you will see a HUGE reduction in frustration behaviors, almost immediately. The other thing it does is teach the concept of communication, basically lets her know that there is a reason she wants to communicate with you, to get what she wants quickly. Teaching PECS does NOT prevent or delay the acquisiton of spoken communication, in fact, it usually does exactly the opposite. I have seen kids 4 or 5 yrs old who have never had any verbal language start talking after PECS was introduced. Signing is a little trickier to use b/c of the fine motor skills and imitation skills it requires, same for vocalizing, she first needs imitation and oral motor, etc. As far as the self stims, they could increase if she's feeling frustrated, or trying to escape, etc. Are they occurring more specificly when you place demands on her, or just in general? It may just be a way for her to calm/relax herself. Try teaching other relaxation techniques (asking for a massage, or swinging, rocking, listening to music or watching a favorite video) and make sure you are giving her unstructured breaks every hour. HTH, Amnesty > > > Has always been verbal? > > > Ella is 21 months and still completely nonverbal although she > > babbles all day sometimes. > > > > > > Aimee > > > > > > > > > > > > > > > > Autism_in_Girls-subscribe > > ------------------------ > > Autism_in_Girls-unsubscribe > > > > > > > > --------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 I had consultants and therapists trained in VB, too. The big emphasis was on manding, not on interaction. We did as much incidental and natural teaching and as little table time as possible. I mean, we did everything right...and no one addressed the stuff RDI is addressing now. > I think it just depends on the company/individuals you have doing > the ABA. The company I am with now for example, our number one focus > is verbal behavior and functional communication. ABA is just the > reasoning behind the teaching techniques we use. I think a lot of > places (and I know b/c I have worked for good and less good > organizations) confuse discrete trail teaching with ABA, when in > fact they are two totally seperate things. DTT is the how, ABA is > the WHY... > Hope that makes sense! > Amnesty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2005 Report Share Posted June 16, 2005 I didn't see her on Oprah :-( My advice to anyone considering gfcf is to start with a list of what she will eat. From that you can begin looking for replacements. Once you have your replacements you can start working on trying to offer new foods. There are lots of good pretzels and such. gfcfrecipes is a yahoo group full of info. There's also something in the files section called " debis...) It's a collection of recipes I made while doing gfcf. I tried to categorize them to make it easier to go through. You said peanut butter in an earlier post. Good news, Jif is gfcf! (or at least is was last I knew) You can also get all-natural pb that will eliminate the excess sugar. Really, the only thing left for that food is the bread. I think kinnikinnick's is the closest to descent. honestly I never ate any gfcf that was anything to rave about. I'm the same way with autism message boards, this is my therapy. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Any good web sites about RDI? Aimee Debi wrote: When I started learning about RDI techniques I realized there was a speech path and Allie's 3 yr old teacher who used many RDI principles during ABA-type activities. The speech path said she thinks a good speech path will use many of the techniques. That said of course, the earliest RDI stuff has to be done by the parents because they are teaching the child to look to their parents for those skills infancts would have learned. It's so subtle in so many ways. Debi Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 What is VB? Aimee penelope_fam wrote: I had consultants and therapists trained in VB, too. The big emphasis was on manding, not on interaction. We did as much incidental and natural teaching and as little table time as possible. I mean, we did everything right...and no one addressed the stuff RDI is addressing now. > I think it just depends on the company/individuals you have doing > the ABA. The company I am with now for example, our number one focus > is verbal behavior and functional communication. ABA is just the > reasoning behind the teaching techniques we use. I think a lot of > places (and I know b/c I have worked for good and less good > organizations) confuse discrete trail teaching with ABA, when in > fact they are two totally seperate things. DTT is the how, ABA is > the WHY... > Hope that makes sense! > Amnesty Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 What is VB? Aimee penelope_fam wrote: I had consultants and therapists trained in VB, too. The big emphasis was on manding, not on interaction. We did as much incidental and natural teaching and as little table time as possible. I mean, we did everything right...and no one addressed the stuff RDI is addressing now. > I think it just depends on the company/individuals you have doing > the ABA. The company I am with now for example, our number one focus > is verbal behavior and functional communication. ABA is just the > reasoning behind the teaching techniques we use. I think a lot of > places (and I know b/c I have worked for good and less good > organizations) confuse discrete trail teaching with ABA, when in > fact they are two totally seperate things. DTT is the how, ABA is > the WHY... > Hope that makes sense! > Amnesty Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 What is VB? Aimee penelope_fam wrote: I had consultants and therapists trained in VB, too. The big emphasis was on manding, not on interaction. We did as much incidental and natural teaching and as little table time as possible. I mean, we did everything right...and no one addressed the stuff RDI is addressing now. > I think it just depends on the company/individuals you have doing > the ABA. The company I am with now for example, our number one focus > is verbal behavior and functional communication. ABA is just the > reasoning behind the teaching techniques we use. I think a lot of > places (and I know b/c I have worked for good and less good > organizations) confuse discrete trail teaching with ABA, when in > fact they are two totally seperate things. DTT is the how, ABA is > the WHY... > Hope that makes sense! > Amnesty Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Debi, Silly question what does HTH mean? Aimee Debi wrote: Honestly I find it difficult to decipher any info from the rdiconnect.com site. It's like they are under some marketing guise of " pay us more and we'll tell you more " . Maybe someone else here knows of some good sites that really explains it. There's also some good RDI message boards if you do a search. HTH, Debi > Any good web sites about RDI? > > Aimee Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 Debi, Silly question what does HTH mean? Aimee Debi wrote: Honestly I find it difficult to decipher any info from the rdiconnect.com site. It's like they are under some marketing guise of " pay us more and we'll tell you more " . Maybe someone else here knows of some good sites that really explains it. There's also some good RDI message boards if you do a search. HTH, Debi > Any good web sites about RDI? > > Aimee Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2005 Report Share Posted June 17, 2005 My favorite is the Yahoo group called RDI Mid Atlantic. They keep files jam packed with ideas for each stage, and there are a bunch of really creative parents on that list. RDI North Carolina is good, but hasn't been as active as the Mid Atlantic list lately. the michigan list is new, and small, and we are all in the learning stages. > > Any good web sites about RDI? > > > > Aimee Quote Link to comment Share on other sites More sharing options...
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