Guest guest Posted January 4, 2012 Report Share Posted January 4, 2012 Hi i have a son who is 21/2 years old just diagnosed with low functioning autism. He is non verbal at present. From 6 weeks old he has had gut problems. Was operated on at 6 weeks for pyloric stenosis,(Its an overgrowth of muscle just below the stomach that stops food passing through to the intestine) He has never really recovered from this. Reflux for first year was horrendous was Under childrens hospital for observation. Now has bowels issues mainly constapation. where do i begin do i try diet or getting him tested and if so how. please help anyadvice would be great. Ready to learn and try anyting but what first?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 Hello Sally Our son got a diagnosis of autism in August (he was just about to turn 2, and we had to get the diagnosis privately, as the NHS said come back in a couple of years if things don't sort themselves out by then!!!). We did a lot of research, and found a specialist clinic in Israel that only takes children up to 2 1/2 years old - called the Mifne Centre - after coming across a passing reference to it in one of Margot Sutherland's books (The Science of Parenting). We did some research, and decided to take him there. It was phenominally expensive, but probably not really, considering that the clinic and all of the therapists are dedicated to one family for the full 3 weeks of our stay. Our son was really turned around - he went from lying on the floor all the time, not responding to his name or our voices, not being able to interact with us, not being able to eat by himself, getting extremely distressed at the slightest reason, and so on, to being a child who now interacts lovingly with us, gives us more and more eye contact, sits at the table with us and eats by himself, does what we instruct him to do, without fighting most of the time. Things we thought we would never have. We still have a therapy programme to put him through here at home (he is in a room with one of us at a time for several hours each day), and there is still some way to go, but the direction is right now, and we see further improvements all the time. He is starting a regular nursery next week for 2 mornings, with 1-1 support. They taught us that a lot of the symptoms of autism are made worse and made permanent by the parent's not knowing what to do about it, and giving the wrong message to the child. We were certainly doing that, even though we thought at the time that we were good parents. It is a different approach - theraputic rather than biomedical, but it had remarkable results. Check them out - http://www.mifne-autism.com/ - but if it seems like something you want to go ahead with, contact them asap, as your son may be right at the older end of who they can take. (Their website doesn't give too much info, but there are links to interesting press articles - and I would be happy to talk to you about our experiences there if you are interested in it). > > Hi i have a son who is 21/2 years old just diagnosed with low functioning autism. He is non verbal at present. From 6 weeks old he has had gut problems. Was operated on at 6 weeks for pyloric stenosis,(Its an overgrowth of muscle just below the stomach that stops food passing through to the intestine) He has never really recovered from this. Reflux for first year was horrendous was Under childrens hospital for observation. Now has bowels issues mainly constapation. where do i begin do i try diet or getting him tested and if so how. > please help anyadvice would be great. > Ready to learn and try anyting but what first?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 Hello Sally Our son got a diagnosis of autism in August (he was just about to turn 2, and we had to get the diagnosis privately, as the NHS said come back in a couple of years if things don't sort themselves out by then!!!). We did a lot of research, and found a specialist clinic in Israel that only takes children up to 2 1/2 years old - called the Mifne Centre - after coming across a passing reference to it in one of Margot Sutherland's books (The Science of Parenting). We did some research, and decided to take him there. It was phenominally expensive, but probably not really, considering that the clinic and all of the therapists are dedicated to one family for the full 3 weeks of our stay. Our son was really turned around - he went from lying on the floor all the time, not responding to his name or our voices, not being able to interact with us, not being able to eat by himself, getting extremely distressed at the slightest reason, and so on, to being a child who now interacts lovingly with us, gives us more and more eye contact, sits at the table with us and eats by himself, does what we instruct him to do, without fighting most of the time. Things we thought we would never have. We still have a therapy programme to put him through here at home (he is in a room with one of us at a time for several hours each day), and there is still some way to go, but the direction is right now, and we see further improvements all the time. He is starting a regular nursery next week for 2 mornings, with 1-1 support. They taught us that a lot of the symptoms of autism are made worse and made permanent by the parent's not knowing what to do about it, and giving the wrong message to the child. We were certainly doing that, even though we thought at the time that we were good parents. It is a different approach - theraputic rather than biomedical, but it had remarkable results. Check them out - http://www.mifne-autism.com/ - but if it seems like something you want to go ahead with, contact them asap, as your son may be right at the older end of who they can take. (Their website doesn't give too much info, but there are links to interesting press articles - and I would be happy to talk to you about our experiences there if you are interested in it). > > Hi i have a son who is 21/2 years old just diagnosed with low functioning autism. He is non verbal at present. From 6 weeks old he has had gut problems. Was operated on at 6 weeks for pyloric stenosis,(Its an overgrowth of muscle just below the stomach that stops food passing through to the intestine) He has never really recovered from this. Reflux for first year was horrendous was Under childrens hospital for observation. Now has bowels issues mainly constapation. where do i begin do i try diet or getting him tested and if so how. > please help anyadvice would be great. > Ready to learn and try anyting but what first?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2012 Report Share Posted January 5, 2012 Hello Sally Our son got a diagnosis of autism in August (he was just about to turn 2, and we had to get the diagnosis privately, as the NHS said come back in a couple of years if things don't sort themselves out by then!!!). We did a lot of research, and found a specialist clinic in Israel that only takes children up to 2 1/2 years old - called the Mifne Centre - after coming across a passing reference to it in one of Margot Sutherland's books (The Science of Parenting). We did some research, and decided to take him there. It was phenominally expensive, but probably not really, considering that the clinic and all of the therapists are dedicated to one family for the full 3 weeks of our stay. Our son was really turned around - he went from lying on the floor all the time, not responding to his name or our voices, not being able to interact with us, not being able to eat by himself, getting extremely distressed at the slightest reason, and so on, to being a child who now interacts lovingly with us, gives us more and more eye contact, sits at the table with us and eats by himself, does what we instruct him to do, without fighting most of the time. Things we thought we would never have. We still have a therapy programme to put him through here at home (he is in a room with one of us at a time for several hours each day), and there is still some way to go, but the direction is right now, and we see further improvements all the time. He is starting a regular nursery next week for 2 mornings, with 1-1 support. They taught us that a lot of the symptoms of autism are made worse and made permanent by the parent's not knowing what to do about it, and giving the wrong message to the child. We were certainly doing that, even though we thought at the time that we were good parents. It is a different approach - theraputic rather than biomedical, but it had remarkable results. Check them out - http://www.mifne-autism.com/ - but if it seems like something you want to go ahead with, contact them asap, as your son may be right at the older end of who they can take. (Their website doesn't give too much info, but there are links to interesting press articles - and I would be happy to talk to you about our experiences there if you are interested in it). > > Hi i have a son who is 21/2 years old just diagnosed with low functioning autism. He is non verbal at present. From 6 weeks old he has had gut problems. Was operated on at 6 weeks for pyloric stenosis,(Its an overgrowth of muscle just below the stomach that stops food passing through to the intestine) He has never really recovered from this. Reflux for first year was horrendous was Under childrens hospital for observation. Now has bowels issues mainly constapation. where do i begin do i try diet or getting him tested and if so how. > please help anyadvice would be great. > Ready to learn and try anyting but what first?? > Quote Link to comment Share on other sites More sharing options...
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