State Directors for Plagio!

[Guest guest]

As you all know Jaya is handling this I just want to tell you what we have started to do on the Cranio side that is how we can work things on the Plagio side because I plan to combine them. I am going to have a page with the 50 states, Canada and International. If you come to the CAPPS site you will click State Contacts and go to your state and I hope to have one cranio contact and one plagio contact. Now what this starts to mean is that you offer your email address for someone to contact to learn about the clinics in your state, doctors, insurance those things. What I want for the future is to have CAPPS Chapters in every state and major city so you all are on the right track. But I agree please join our CAPSORG to talk about those ideas you have. We need all the help we can get to get the word out. I think it is great that you want to start a support group, I right now have one family from Montana and one from Idaho that are working on that with their state.

If you are interested in being a State Contact please let Jaya or me know. I am going to start to work on that on the website now. I will need.

Name

City, State

Email Addy

Other info you think might be good to tell them.

Like with cranio I will tell them the suture closing they dealt with.

Also as most of you see we are talking about CAPPS (Craniosynostosis and Positional Plagiocephaly Support) I just want you to know the only reason why it hasn't changed on the website is because for business and IRS status it for now is CAPS. I am moving the office up to Virginia in the next few months and plan to work to get it incorporated under CAPPS in VA before the end of the year and then will change it with the IRS office. Just want you to all know that I am committed to having us work together and I hope you all are too.

Pitchke

-----Original Message-----From: Tami Warner [mailto:twarner@...]Sent: Thursday, October 19, 2000 12:10 AMPlagiocephalyegroupsSubject: Re: support groups - OK (Marci)Marci, I think OKC and Tulsa might be able to work together on this. The only drawback I see is that if we have meetings in one city, some parents may not participate if there is a two-hour round-trip with a baby. Perhaps alternate cities when we get to that point? I think I'd be inclined to see what literature etc. and Jaya offer in the new CAPPS organization and perhaps become involved with that at the local level. Let us know what your orthotist thinks about all this! TamiThere > Tami-> > Thank you for your response. I am going to see my orthotist tomorrow and I > plan to ask him if he would help me distribute a tri-fold pamphlet I am > working on regarding a plagio support group. I am also going to ask my > pediatrician if I could display the pamphlets in our clinic office for people > to pick up if they are interested. I would like to see monthly meetings in > which we could have guest speakers, panel discussions with parents of > helmet/band graduates, Q & A sessions, information sharing and also work on > generating ideas about heightening awareness. (not to mention fellowship, fun > and shoulders to cry on!)> > What do you think - could the people from Oklahoma City and Tulsa work on > this together or do you think the distance is too great? I would love to hear > your comments and/or suggestions.> > Thanks> Marci

[Guest guest]

,

I would be interested in helping in Texas:

Becky Keck

Plano, Texas

becky@...

FYI, Plano is a suburb just north of Dallas.

You may remember that we went through the cranio scare, so I'm familiar

with both cranio and plagio. And like so many others, I've gone

" against " 's ped to get her treatment.

Becky

> Pitchke wrote:

>

> As you all know Jaya is handling this I just want to tell you what we

> have started to do on the Cranio side that is how we can work things

> on the Plagio side because I plan to combine them. I am going to have

> a page with the 50 states, Canada and International. If you come to

> the CAPPS site you will click State Contacts and go to your state and

> I hope to have one cranio contact and one plagio contact. Now what

> this starts to mean is that you offer your email address for someone

> to contact to learn about the clinics in your state, doctors,

> insurance those things. What I want for the future is to have CAPPS

> Chapters in every state and major city so you all are on the right

> track. But I agree please join our CAPSORG to talk about those ideas

> you have. We need all the help we can get to get the word out. I

> think it is great that you want to start a support group, I right now

> have one family from Montana and one from Idaho that are working on

> that with their state.

> If you are interested in being a State Contact please let Jaya or me

> know. I am going to start to work on that on the website now. I will

> need.

>

> Name

> City, State

> Email Addy

> Other info you think might be good to tell them.

> Like with cranio I will tell them the suture closing they dealt with.

>

> Also as most of you see we are talking about CAPPS (Craniosynostosis

> and Positional Plagiocephaly Support) I just want you to know the

> only reason why it hasn't changed on the website is because for

> business and IRS status it for now is CAPS. I am moving the office up

> to Virginia in the next few months and plan to work to get it

> incorporated under CAPPS in VA before the end of the year and then

> will change it with the IRS office. Just want you to all know that I

> am committed to having us work together and I hope you all are too.

> Pitchke

>

> -----Original Message-----

> From: Tami Warner [mailto:twarner@...]

> Sent: Thursday, October 19, 2000 12:10 AM

> Plagiocephalyegroups

> Subject: Re: support groups - OK (Marci)

>

> Marci,

>

> I think OKC and Tulsa might be able to work together on

> this. The

> only drawback I see is that if we have meetings in one city,

> some

> parents may not participate if there is a two-hour

> round-trip with a

> baby. Perhaps alternate cities when we get to that point?

>

> I think I'd be inclined to see what literature etc.

> and Jaya

> offer in the new CAPPS organization and perhaps become

> involved with

> that at the local level.

>

> Let us know what your orthotist thinks about all this!

>

> Tami

>

> There

> > Tami-

> >

> > Thank you for your response. I am going to see my

> orthotist

> tomorrow and I

> > plan to ask him if he would help me distribute a tri-fold

> pamphlet

> I am

> > working on regarding a plagio support group. I am also

> going to ask

> my

> > pediatrician if I could display the pamphlets in our

> clinic office

> for people

> > to pick up if they are interested. I would like to see

> monthly

> meetings in

> > which we could have guest speakers, panel discussions with

> parents

> of

> > helmet/band graduates, Q & A sessions, information sharing

> and also

> work on

> > generating ideas about heightening awareness. (not to

> mention

> fellowship, fun

> > and shoulders to cry on!)

> >

> > What do you think - could the people from Oklahoma City

> and Tulsa

> work on

> > this together or do you think the distance is too great? I

> would

> love to hear

> > your comments and/or suggestions.

> >

> > Thanks

> > Marci

>

>

[Guest guest]

Becky,

Please e-mail me privately with your information so that I can get it

into a designated folder, making it easier to pass the information

onto .

Sincerely,

Jaya Dong

> > > Tami-

> > >

> > > Thank you for your response. I am going to see my

> > orthotist

> > tomorrow and I

> > > plan to ask him if he would help me distribute a tri-fold

> > pamphlet

> > I am

> > > working on regarding a plagio support group. I am also

> > going to ask

> > my

> > > pediatrician if I could display the pamphlets in our

> > clinic office

> > for people

> > > to pick up if they are interested. I would like to see

> > monthly

> > meetings in

> > > which we could have guest speakers, panel discussions with

> > parents

> > of

> > > helmet/band graduates, Q & A sessions, information sharing

> > and also

> > work on

> > > generating ideas about heightening awareness. (not to

> > mention

> > fellowship, fun

> > > and shoulders to cry on!)

> > >

> > > What do you think - could the people from Oklahoma City

> > and Tulsa

> > work on

> > > this together or do you think the distance is too great? I

> > would

> > love to hear

> > > your comments and/or suggestions.

> > >

> > > Thanks

> > > Marci

> >

> >

[Guest guest]

Wow! I can't believe this is all coming together so fast! It's

great!

I would be happy to be a Canadian contact!

Kendra Garvey

Calgary, Alberta, Canada

kbgarv@...

(403)249-0265 (for those without internet access!)

Mom to Hanna Elise (10/25/99), DOC Band graduate.

Let me know if I can do anything on this end!

Kendra

Pitchke wrote:

As

you all know Jaya is handling this I just want to tell you what we have

started to do on the Cranio side that is how we can work things on the

Plagio side because I plan to combine them. I am going to have a

page with the 50 states, Canada and International. If you come to

the CAPPS site you will click State Contacts and go to your state and I

hope to have one cranio contact and one plagio contact. Now what

this starts to mean is that you offer your email address for someone to

contact to learn about the clinics in your state, doctors, insurance those

things. What I want for the future is to have CAPPS Chapters in every

state and major city so you all are on the right track. But I agree

please join our CAPSORG to talk about those ideas you have. We need

all the help we can get to get the word out. I think it is great

that you want to start a support group, I right now have one family from

Montana and one from Idaho that are working on that with their state.If

you are interested in being a State Contact please let Jaya or me know.

I am going to start to work on that on the website now. I will need.NameCity,

StateEmail

AddyOther

info you think might be good to tell them.Like

with cranio I will tell them the suture closing they dealt with.Also

as most of you see we are talking about CAPPS (Craniosynostosis and Positional

Plagiocephaly Support) I just want you to know the only reason why

it hasn't changed on the website is because for business and IRS status

it for now is CAPS. I am moving the office up to Virginia in the

next few months and plan to work to get it incorporated under CAPPS in

VA before the end of the year and then will change it with the IRS office.

Just want you to all know that I am committed to having us work together

and I hope you all are too.

Pitchke

-----Original

Message-----

From: Tami Warner [mailto:twarner@...]

Sent: Thursday, October 19,

2000 12:10 AM

Plagiocephalyegroups

Subject: Re: support

groups - OK (Marci)

Marci,

I think OKC and Tulsa might be able to work together on this.

The

only drawback I see is that if we have meetings in one city, some

parents may not participate if there is a two-hour round-trip with

a

baby. Perhaps alternate cities when we get to that point?

I think I'd be inclined to see what literature etc. and

Jaya

offer in the new CAPPS organization and perhaps become involved

with

that at the local level.

Let us know what your orthotist thinks about all this!

Tami

There

> Tami-

>

> Thank you for your response. I am going to see my orthotist

tomorrow and I

> plan to ask him if he would help me distribute a tri-fold pamphlet

I am

> working on regarding a plagio support group. I am also going

to ask

my

> pediatrician if I could display the pamphlets in our clinic office

for people

> to pick up if they are interested. I would like to see monthly

meetings in

> which we could have guest speakers, panel discussions with parents

of

> helmet/band graduates, Q & A sessions, information sharing

and also

work on

> generating ideas about heightening awareness. (not to mention

fellowship, fun

> and shoulders to cry on!)

>

> What do you think - could the people from Oklahoma City and Tulsa

work on

> this together or do you think the distance is too great? I would

love to hear

> your comments and/or suggestions.

>

> Thanks

> Marci

[Guest guest]

In a message dated 10/19/00 5:22:35 AM Pacific Daylight Time,

CAPS2000@... writes:

<< interested in being a State Contact >>

....Count me in on this!! Belinda(Indiana)

[Guest guest]

Okay Belinda I just need your full name, City and State, and email addy you want the mail to go to! I am in fact setting up the ones I have right now!

Pitchke

-----Original Message-----From: bgles2@... [mailto:bgles2@...]Sent: Thursday, October 19, 2000 9:23 PMPlagiocephalyegroupsSubject: Re: State Directors for Plagio!In a message dated 10/19/00 5:22:35 AM Pacific Daylight Time, CAPS2000@... writes:<< interested in being a State Contact >>....Count me in on this!! Belinda(Indiana)

[Guest guest]

.....Here is my info.

Belinda Galvan Ivetich

Dyer, Indiana

bgles2@...

[Guest guest]

,

Sign me up for New York state.

Jill

295 Mettacahonts Rd #B

Accord, NY 12404

Thanks!

--- Pitchke <CAPS2000@...> wrote:

> Okay Belinda I just need your full name, City and

> State, and email addy you

> want the mail to go to! I am in fact setting up the

> ones I have right now!

> Pitchke

> -----Original Message-----

> From: bgles2@... [mailto:bgles2@...]

> Sent: Thursday, October 19, 2000 9:23 PM

> Plagiocephalyegroups

> Subject: Re: State Directors for Plagio!

>

>

> In a message dated 10/19/00 5:22:35 AM Pacific

> Daylight Time,

> CAPS2000@... writes:

>

> << interested in being a State Contact >>

> ....Count me in on this!!

> Belinda(Indiana)

>

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>

>

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