Re: Re: appt with metabolics consultant

[Guest guest]

These are hormone related tests and you should be able to get those on NHS if Goyal asks

Mx

He asked me to mention these tests to Dr..Hormones;Dhea-s L.H Estradiol Free testesterone S.H.B.Q..I don't know what it means all but I will ask to drGoyal in January.

[Guest guest]

These are hormone related tests and you should be able to get those on NHS if Goyal asks

Mx

He asked me to mention these tests to Dr..Hormones;Dhea-s L.H Estradiol Free testesterone S.H.B.Q..I don't know what it means all but I will ask to drGoyal in January.

[Guest guest]

Mandi, I so agree with you about Amy Yasko sitting down with Dr Houston - there are several things shes not quite getting right here.Very interesting about riboflavin.  We had methylation panel (bloods) done at Breakspear.  Showed huge findings for both kids (from a clinical point of view). Charlie is low in riboflavin but is very deficient.  Interestingly she had been having problems with eyes - blurred vision.  Tests showed borderline glaucoma in one eye.  I think added riboflavin has fixed this - hoping any way.

Nevin - interesting abut hormones.  I've too had this conversation with Dr G. Was originally asking his advice about using progesterone cream on kids.  He told me to look for hormone panel test and get back to him.

Are these ones that an endocrinologist should be able to do?Alison R

 

These are hormone related tests and you should be able to get those on NHS if Goyal asks

 

Mx

 

He asked me to mention these tests to Dr..Hormones;Dhea-s L.H Estradiol Free testesterone S.H.B.Q..I don't know what it means all but I will ask to drGoyal in January.

[Guest guest]

Mandi, I so agree with you about Amy Yasko sitting down with Dr Houston - there are several things shes not quite getting right here.Very interesting about riboflavin.  We had methylation panel (bloods) done at Breakspear.  Showed huge findings for both kids (from a clinical point of view). Charlie is low in riboflavin but is very deficient.  Interestingly she had been having problems with eyes - blurred vision.  Tests showed borderline glaucoma in one eye.  I think added riboflavin has fixed this - hoping any way.

Nevin - interesting abut hormones.  I've too had this conversation with Dr G. Was originally asking his advice about using progesterone cream on kids.  He told me to look for hormone panel test and get back to him.

Are these ones that an endocrinologist should be able to do?Alison R

 

These are hormone related tests and you should be able to get those on NHS if Goyal asks

 

Mx

 

He asked me to mention these tests to Dr..Hormones;Dhea-s L.H Estradiol Free testesterone S.H.B.Q..I don't know what it means all but I will ask to drGoyal in January.

[Guest guest]

Mandi, I so agree with you about Amy Yasko sitting down with Dr Houston - there are several things shes not quite getting right here.Very interesting about riboflavin.  We had methylation panel (bloods) done at Breakspear.  Showed huge findings for both kids (from a clinical point of view). Charlie is low in riboflavin but is very deficient.  Interestingly she had been having problems with eyes - blurred vision.  Tests showed borderline glaucoma in one eye.  I think added riboflavin has fixed this - hoping any way.

Nevin - interesting abut hormones.  I've too had this conversation with Dr G. Was originally asking his advice about using progesterone cream on kids.  He told me to look for hormone panel test and get back to him.

Are these ones that an endocrinologist should be able to do?Alison R

 

These are hormone related tests and you should be able to get those on NHS if Goyal asks

 

Mx

 

He asked me to mention these tests to Dr..Hormones;Dhea-s L.H Estradiol Free testesterone S.H.B.Q..I don't know what it means all but I will ask to drGoyal in January.

[Guest guest]

Hi NevinHave you found doing the CPR useful? I've just completed it for and await results.Just a couple of things to point out - you may already know these points but if not they may be useful.

Lithium - she normally recommends lithium orotate starting with a tiny, tiny bit working up to only about 1/8 capsule I think - check out this dose on forum.  If you discuss with Dr G make sure he knows what type of dose you are talking about as its only a physiological dose.

PS - This caused huge detox signs for both mine and myself - totally bearable but god to know.  Also we only started on one tiny drop done by piercing capsule.  Myself and have worked up to 2 drops but Charlie is still on 1.  I didn't know there was a soy free version (I think Charlie reacts to the soya).  The amount of PS in methylmate A is equivalent to 2 drops of PS complex.  When started both kids wet bed - just the once.  Yasko refers to this as peetox!  I felt like I had a water infection - conitually needed a wee and stomach was very tended.  This did pass of its own accord after a week - I also increased ora kidney to help in this period.

Methylmate B -massive detox signs.  Charlie went very anxious and even more moody (would be good to get lithium in before adding this).   went quite aggresive.  I just felt like I had the worse PMT ever - not ill at all just really firey - fell out wit mother in law big time!!!  This was just on 1 drop. now on 3 drops.  Me and Charlie went back to 1/4 folapro.  He is better on this also Yasko says its not as well tolerated.  Will re-visit methylmate B at some point.  Seen huge gains in both kids since adding this much needed form of folic acid.

Revita pop - just to make sure you are aware that these are methyl B12 - are you at a stage ready to add methyl donors.  We're using the metabolics liquid B12.  Which form has she recomended.  I've mixed hydroxy, cyano and adeno at a ratio of 4:1:1. (if you chooses to do this may be worth checking ut with her ist - don't want you to waste your money.  These drops are not nearly as strong as HHI mega drops but I fel a good way of introducing B12 without going too fast so as to prevent too fast detox.

Detox/elimination of metals - I understand just by supporting the organs you can cause detox.  I think every step in the right direction to fix/by pass something that is not working optimally will cause some degree of detox.

Communication with yasko - if you have any more questions fro her I would e mail straight away in response to her comments or you loose the opportunity for communication with her until you run more tests.

Best wishes with all this Nevin - at least you now have a plan.  I have found Yasko very 2 steps forward, 1 step back.  Also now you have her recommendations it will be easier to post specific questions on the forum as you address each point.

Alison R

 

Hello Alison,

WE completed several tests.DrYasko made her comments on the test results and also wrote a one page comments and added her view for the supplement lists. Anyway what she says;

CSA....my son's lysozme is just above the ref range, she is recommending Bowel RNA,Negeral inflammation RNA and Cytokine RNA for this. Candida is+2, so she recom.Mycology RNA+candisol+nystatin or IMF 7

In bacterial culture there are some strep....she recom.STRX+IMF5+naturomycin

lithium is low,she recom.lithium then B12

She hasn't made much comments about the metals which were low on the test,she says minimal comments until the seizures under control

My son's metabolic profile...Riboflavin and ultimate B she suggests,because looks they are in high need

Amino acids in urine...kidney RNA.SHMT spray,leaky gut RNA,once they ar ein place adding PS,Amino Assists spray

Says..wait to stop any added taurine until it climbs on its own with methylation support..,all the values here are within the ref.range..include ammonia...but creatinine is high..,that's why she recom.kindney supports and also rhodiola root...

In neurotransmitters...(urine) epinephrine and norepinephrine were low..she says when ready start PS

Serotonin is low...recom.seromood....ofcourse checking with the dr to see if it is ok with the seizure medication.

Special digestive enzymes which are higher inpancreatin is recom.

The test from GOSH Amino acids in plasma was High glycine....she recom.methlmate A+B+B12 and again neruotransmitters in CSF dhydrobiopterin was high..she says..NADH or ALA98C caps.

In her notes;she suggests;start with lithium then B12,soy free PS,then SHMT spray,then methymateA+B

creatinine needs attention, to be loweredsome gut bugs needs to be dealth with.She is not sure H.pylori plays a role here/.

I ordered supplements which she recommended except probiotics,they don't send outside USA.However Breakspears " profolora " from BioBotanical has one or two elements similar which she recommends, s it will be OK I think.

So..I would like to follow her recommendation, I sent a message to DrGoyal ..We will see him in January but I don't want to wait as my son's seizures are still in present.I would like to give him lithium but I am a bit timid.Revita pop i think is OK for B12.

As a summary I am happy for all these interpretation, if I can get DrG.support ,it will be nice.I have difficulty for following her forum though.

As you know my son had so many tests to see if we can catch any clue for his seizures, so far they haven't found something significant.Yasko thinks (and also send me an article )..lack of B12 can cause seizures..MY suspicion is hormonal now, testesterone level.I will ask dr G to check this in tests..

Another reason ofocurse is the metals perhaps hidden.But DrYasko made a comment on his toxic metal test..that he is excreting despite the low B12...Suggesting more frequentFMT alternate HMT+UTM

She wrote a word " ...as he is excreting well without methylation,so there may be a jump in excration with methylation.... This is complicated,I need more understanding how could it be possible if one pathway doesn't work properly, how can he eliminate the metals if he has, ofcourse he has..If anyone would like to make a comment, please do.

This is the situation now.

Nevin

> > >

> > > Thought it would be useful to update on our recent metabolic appt. Hope

> > you're reading this Nevin. (sorry this is long)

> > >

> > > Saw NHS metabolic consultant and presented YASKO genetic results along

> > with clinical tests done at Breakspear (methylation panel) to show

> > suggested genetic predisposition and actual clinical situation.

> > >

> > > Concentrated on CBS upregualtion and probable low BH4(as these are key

> > to my 2 kids).

> > >

> > > Dr (although very nice) was not aware of a role of BH4 in elimination of

> > ammonia - this worries me as it is well documented and you don't have to

> > look far to find this info. Apparantly they can test BH4 levels with a

> > finger prick and send card to switzerland (this would usually be for PKU

> > patients) I didn't push for this test as we are considering doing it at

> > Breakspear. If we do test we also need to test for BH2 conversion to BH4

> > not just overall BH4 levels. We have also been working hard to increase BH4

> > naturally for last 6 months and I thought if they did test and result is

> > not too low it would discredit all I was presenting.

> > >

> > > He kept comparing to PKU patients who are low in BH4 and said they did

> > not have urea cycle problems. I could not drum in that this was probably

> > because they don't have the other problems causing the big increase in

> > ammonia.

> > >

> > > He said that urine ammonia levels were not accurate and they would only

> > look at blood - again I could not get it through to him that we also need

> > to look at what the body is eliminating. Even if blood levels are not

> > elevated, if ammonia is continually produced at higher levels what effect

> > does this have on the body i.e low levels of BH4 and kidney stress. The

> > symptoms my kids suffer are not high ammonia - they are low BH$ because of

> > having to remove too much ammonia!!!

> > >

> > > In relation to CBS upregulation, he read the info and said if this was

> > the case we would see low methionine on amino acid test. At this point I

> > handed urine amino acid tests for both kids showing very low methionine -

> > he started to listen but then said again they would only consider blood

> > results. He actually did blood AA's on my kids last year and methionine was

> > only 14. This actually confirmed the problem with NHS testing - their range

> > for methionine is from 0 so if someone has continually low methionine

> > unless this is been looked for it would not get picked up.

> > >

> > > He did confirm that continual low methionine needed treatment (this is

> > why Breakspear have suggested methyl B12 injections). I asked if he would

> > do bloods to check and he agreed but only when the Kids are having venous

> > sample taken for something else.

> > >

> > > I plan to write to him asking for these tests to be done straight away

> > as otherwise we will have corrected it AGAIN taking any resposibility from

> > NHS.

> > >

> > > For Charlie (asd) I am quite happy to go this journey without NHS input

> > but for my daughter who has blood disorder I can't. She is under so

> > many consultants I have no choice but to tell them what I am doing. The

> > YASKO testing has uncovered how to help her blood disorder by bypassing her

> > gentic mutations and I'm determined to make them treat her (LOL!!!)

> > >

> > > I have also eventually managed to get some BH4 - currently in freezer,

> > waiting until after Christmas to be brave enough to try (understand can

> > cause huge detox initially)!.

> > >

> > > Have appt with genetics just after Christmas to investigate link with

> > Charlie (asd) and , (blood disorder no asd but lots of asd traits). In

> > our case they are definitely connected and both a result of biochemical

> > inbalances/errors.

> > >

> > > BW

> > >

> > > Alison R

> > >

> >

> >

> >

>

[Guest guest]

Hi NevinHave you found doing the CPR useful? I've just completed it for and await results.Just a couple of things to point out - you may already know these points but if not they may be useful.

Lithium - she normally recommends lithium orotate starting with a tiny, tiny bit working up to only about 1/8 capsule I think - check out this dose on forum.  If you discuss with Dr G make sure he knows what type of dose you are talking about as its only a physiological dose.

PS - This caused huge detox signs for both mine and myself - totally bearable but god to know.  Also we only started on one tiny drop done by piercing capsule.  Myself and have worked up to 2 drops but Charlie is still on 1.  I didn't know there was a soy free version (I think Charlie reacts to the soya).  The amount of PS in methylmate A is equivalent to 2 drops of PS complex.  When started both kids wet bed - just the once.  Yasko refers to this as peetox!  I felt like I had a water infection - conitually needed a wee and stomach was very tended.  This did pass of its own accord after a week - I also increased ora kidney to help in this period.

Methylmate B -massive detox signs.  Charlie went very anxious and even more moody (would be good to get lithium in before adding this).   went quite aggresive.  I just felt like I had the worse PMT ever - not ill at all just really firey - fell out wit mother in law big time!!!  This was just on 1 drop. now on 3 drops.  Me and Charlie went back to 1/4 folapro.  He is better on this also Yasko says its not as well tolerated.  Will re-visit methylmate B at some point.  Seen huge gains in both kids since adding this much needed form of folic acid.

Revita pop - just to make sure you are aware that these are methyl B12 - are you at a stage ready to add methyl donors.  We're using the metabolics liquid B12.  Which form has she recomended.  I've mixed hydroxy, cyano and adeno at a ratio of 4:1:1. (if you chooses to do this may be worth checking ut with her ist - don't want you to waste your money.  These drops are not nearly as strong as HHI mega drops but I fel a good way of introducing B12 without going too fast so as to prevent too fast detox.

Detox/elimination of metals - I understand just by supporting the organs you can cause detox.  I think every step in the right direction to fix/by pass something that is not working optimally will cause some degree of detox.

Communication with yasko - if you have any more questions fro her I would e mail straight away in response to her comments or you loose the opportunity for communication with her until you run more tests.

Best wishes with all this Nevin - at least you now have a plan.  I have found Yasko very 2 steps forward, 1 step back.  Also now you have her recommendations it will be easier to post specific questions on the forum as you address each point.

Alison R

 

Hello Alison,

WE completed several tests.DrYasko made her comments on the test results and also wrote a one page comments and added her view for the supplement lists. Anyway what she says;

CSA....my son's lysozme is just above the ref range, she is recommending Bowel RNA,Negeral inflammation RNA and Cytokine RNA for this. Candida is+2, so she recom.Mycology RNA+candisol+nystatin or IMF 7

In bacterial culture there are some strep....she recom.STRX+IMF5+naturomycin

lithium is low,she recom.lithium then B12

She hasn't made much comments about the metals which were low on the test,she says minimal comments until the seizures under control

My son's metabolic profile...Riboflavin and ultimate B she suggests,because looks they are in high need

Amino acids in urine...kidney RNA.SHMT spray,leaky gut RNA,once they ar ein place adding PS,Amino Assists spray

Says..wait to stop any added taurine until it climbs on its own with methylation support..,all the values here are within the ref.range..include ammonia...but creatinine is high..,that's why she recom.kindney supports and also rhodiola root...

In neurotransmitters...(urine) epinephrine and norepinephrine were low..she says when ready start PS

Serotonin is low...recom.seromood....ofcourse checking with the dr to see if it is ok with the seizure medication.

Special digestive enzymes which are higher inpancreatin is recom.

The test from GOSH Amino acids in plasma was High glycine....she recom.methlmate A+B+B12 and again neruotransmitters in CSF dhydrobiopterin was high..she says..NADH or ALA98C caps.

In her notes;she suggests;start with lithium then B12,soy free PS,then SHMT spray,then methymateA+B

creatinine needs attention, to be loweredsome gut bugs needs to be dealth with.She is not sure H.pylori plays a role here/.

I ordered supplements which she recommended except probiotics,they don't send outside USA.However Breakspears " profolora " from BioBotanical has one or two elements similar which she recommends, s it will be OK I think.

So..I would like to follow her recommendation, I sent a message to DrGoyal ..We will see him in January but I don't want to wait as my son's seizures are still in present.I would like to give him lithium but I am a bit timid.Revita pop i think is OK for B12.

As a summary I am happy for all these interpretation, if I can get DrG.support ,it will be nice.I have difficulty for following her forum though.

As you know my son had so many tests to see if we can catch any clue for his seizures, so far they haven't found something significant.Yasko thinks (and also send me an article )..lack of B12 can cause seizures..MY suspicion is hormonal now, testesterone level.I will ask dr G to check this in tests..

Another reason ofocurse is the metals perhaps hidden.But DrYasko made a comment on his toxic metal test..that he is excreting despite the low B12...Suggesting more frequentFMT alternate HMT+UTM

She wrote a word " ...as he is excreting well without methylation,so there may be a jump in excration with methylation.... This is complicated,I need more understanding how could it be possible if one pathway doesn't work properly, how can he eliminate the metals if he has, ofcourse he has..If anyone would like to make a comment, please do.

This is the situation now.

Nevin

> > >

> > > Thought it would be useful to update on our recent metabolic appt. Hope

> > you're reading this Nevin. (sorry this is long)

> > >

> > > Saw NHS metabolic consultant and presented YASKO genetic results along

> > with clinical tests done at Breakspear (methylation panel) to show

> > suggested genetic predisposition and actual clinical situation.

> > >

> > > Concentrated on CBS upregualtion and probable low BH4(as these are key

> > to my 2 kids).

> > >

> > > Dr (although very nice) was not aware of a role of BH4 in elimination of

> > ammonia - this worries me as it is well documented and you don't have to

> > look far to find this info. Apparantly they can test BH4 levels with a

> > finger prick and send card to switzerland (this would usually be for PKU

> > patients) I didn't push for this test as we are considering doing it at

> > Breakspear. If we do test we also need to test for BH2 conversion to BH4

> > not just overall BH4 levels. We have also been working hard to increase BH4

> > naturally for last 6 months and I thought if they did test and result is

> > not too low it would discredit all I was presenting.

> > >

> > > He kept comparing to PKU patients who are low in BH4 and said they did

> > not have urea cycle problems. I could not drum in that this was probably

> > because they don't have the other problems causing the big increase in

> > ammonia.

> > >

> > > He said that urine ammonia levels were not accurate and they would only

> > look at blood - again I could not get it through to him that we also need

> > to look at what the body is eliminating. Even if blood levels are not

> > elevated, if ammonia is continually produced at higher levels what effect

> > does this have on the body i.e low levels of BH4 and kidney stress. The

> > symptoms my kids suffer are not high ammonia - they are low BH$ because of

> > having to remove too much ammonia!!!

> > >

> > > In relation to CBS upregulation, he read the info and said if this was

> > the case we would see low methionine on amino acid test. At this point I

> > handed urine amino acid tests for both kids showing very low methionine -

> > he started to listen but then said again they would only consider blood

> > results. He actually did blood AA's on my kids last year and methionine was

> > only 14. This actually confirmed the problem with NHS testing - their range

> > for methionine is from 0 so if someone has continually low methionine

> > unless this is been looked for it would not get picked up.

> > >

> > > He did confirm that continual low methionine needed treatment (this is

> > why Breakspear have suggested methyl B12 injections). I asked if he would

> > do bloods to check and he agreed but only when the Kids are having venous

> > sample taken for something else.

> > >

> > > I plan to write to him asking for these tests to be done straight away

> > as otherwise we will have corrected it AGAIN taking any resposibility from

> > NHS.

> > >

> > > For Charlie (asd) I am quite happy to go this journey without NHS input

> > but for my daughter who has blood disorder I can't. She is under so

> > many consultants I have no choice but to tell them what I am doing. The

> > YASKO testing has uncovered how to help her blood disorder by bypassing her

> > gentic mutations and I'm determined to make them treat her (LOL!!!)

> > >

> > > I have also eventually managed to get some BH4 - currently in freezer,

> > waiting until after Christmas to be brave enough to try (understand can

> > cause huge detox initially)!.

> > >

> > > Have appt with genetics just after Christmas to investigate link with

> > Charlie (asd) and , (blood disorder no asd but lots of asd traits). In

> > our case they are definitely connected and both a result of biochemical

> > inbalances/errors.

> > >

> > > BW

> > >

> > > Alison R

> > >

> >

> >

> >

>

[Guest guest]

Hi NevinHave you found doing the CPR useful? I've just completed it for and await results.Just a couple of things to point out - you may already know these points but if not they may be useful.

Lithium - she normally recommends lithium orotate starting with a tiny, tiny bit working up to only about 1/8 capsule I think - check out this dose on forum.  If you discuss with Dr G make sure he knows what type of dose you are talking about as its only a physiological dose.

PS - This caused huge detox signs for both mine and myself - totally bearable but god to know.  Also we only started on one tiny drop done by piercing capsule.  Myself and have worked up to 2 drops but Charlie is still on 1.  I didn't know there was a soy free version (I think Charlie reacts to the soya).  The amount of PS in methylmate A is equivalent to 2 drops of PS complex.  When started both kids wet bed - just the once.  Yasko refers to this as peetox!  I felt like I had a water infection - conitually needed a wee and stomach was very tended.  This did pass of its own accord after a week - I also increased ora kidney to help in this period.

Methylmate B -massive detox signs.  Charlie went very anxious and even more moody (would be good to get lithium in before adding this).   went quite aggresive.  I just felt like I had the worse PMT ever - not ill at all just really firey - fell out wit mother in law big time!!!  This was just on 1 drop. now on 3 drops.  Me and Charlie went back to 1/4 folapro.  He is better on this also Yasko says its not as well tolerated.  Will re-visit methylmate B at some point.  Seen huge gains in both kids since adding this much needed form of folic acid.

Revita pop - just to make sure you are aware that these are methyl B12 - are you at a stage ready to add methyl donors.  We're using the metabolics liquid B12.  Which form has she recomended.  I've mixed hydroxy, cyano and adeno at a ratio of 4:1:1. (if you chooses to do this may be worth checking ut with her ist - don't want you to waste your money.  These drops are not nearly as strong as HHI mega drops but I fel a good way of introducing B12 without going too fast so as to prevent too fast detox.

Detox/elimination of metals - I understand just by supporting the organs you can cause detox.  I think every step in the right direction to fix/by pass something that is not working optimally will cause some degree of detox.

Communication with yasko - if you have any more questions fro her I would e mail straight away in response to her comments or you loose the opportunity for communication with her until you run more tests.

Best wishes with all this Nevin - at least you now have a plan.  I have found Yasko very 2 steps forward, 1 step back.  Also now you have her recommendations it will be easier to post specific questions on the forum as you address each point.

Alison R

 

Hello Alison,

WE completed several tests.DrYasko made her comments on the test results and also wrote a one page comments and added her view for the supplement lists. Anyway what she says;

CSA....my son's lysozme is just above the ref range, she is recommending Bowel RNA,Negeral inflammation RNA and Cytokine RNA for this. Candida is+2, so she recom.Mycology RNA+candisol+nystatin or IMF 7

In bacterial culture there are some strep....she recom.STRX+IMF5+naturomycin

lithium is low,she recom.lithium then B12

She hasn't made much comments about the metals which were low on the test,she says minimal comments until the seizures under control

My son's metabolic profile...Riboflavin and ultimate B she suggests,because looks they are in high need

Amino acids in urine...kidney RNA.SHMT spray,leaky gut RNA,once they ar ein place adding PS,Amino Assists spray

Says..wait to stop any added taurine until it climbs on its own with methylation support..,all the values here are within the ref.range..include ammonia...but creatinine is high..,that's why she recom.kindney supports and also rhodiola root...

In neurotransmitters...(urine) epinephrine and norepinephrine were low..she says when ready start PS

Serotonin is low...recom.seromood....ofcourse checking with the dr to see if it is ok with the seizure medication.

Special digestive enzymes which are higher inpancreatin is recom.

The test from GOSH Amino acids in plasma was High glycine....she recom.methlmate A+B+B12 and again neruotransmitters in CSF dhydrobiopterin was high..she says..NADH or ALA98C caps.

In her notes;she suggests;start with lithium then B12,soy free PS,then SHMT spray,then methymateA+B

creatinine needs attention, to be loweredsome gut bugs needs to be dealth with.She is not sure H.pylori plays a role here/.

I ordered supplements which she recommended except probiotics,they don't send outside USA.However Breakspears " profolora " from BioBotanical has one or two elements similar which she recommends, s it will be OK I think.

So..I would like to follow her recommendation, I sent a message to DrGoyal ..We will see him in January but I don't want to wait as my son's seizures are still in present.I would like to give him lithium but I am a bit timid.Revita pop i think is OK for B12.

As a summary I am happy for all these interpretation, if I can get DrG.support ,it will be nice.I have difficulty for following her forum though.

As you know my son had so many tests to see if we can catch any clue for his seizures, so far they haven't found something significant.Yasko thinks (and also send me an article )..lack of B12 can cause seizures..MY suspicion is hormonal now, testesterone level.I will ask dr G to check this in tests..

Another reason ofocurse is the metals perhaps hidden.But DrYasko made a comment on his toxic metal test..that he is excreting despite the low B12...Suggesting more frequentFMT alternate HMT+UTM

She wrote a word " ...as he is excreting well without methylation,so there may be a jump in excration with methylation.... This is complicated,I need more understanding how could it be possible if one pathway doesn't work properly, how can he eliminate the metals if he has, ofcourse he has..If anyone would like to make a comment, please do.

This is the situation now.

Nevin

> > >

> > > Thought it would be useful to update on our recent metabolic appt. Hope

> > you're reading this Nevin. (sorry this is long)

> > >

> > > Saw NHS metabolic consultant and presented YASKO genetic results along

> > with clinical tests done at Breakspear (methylation panel) to show

> > suggested genetic predisposition and actual clinical situation.

> > >

> > > Concentrated on CBS upregualtion and probable low BH4(as these are key

> > to my 2 kids).

> > >

> > > Dr (although very nice) was not aware of a role of BH4 in elimination of

> > ammonia - this worries me as it is well documented and you don't have to

> > look far to find this info. Apparantly they can test BH4 levels with a

> > finger prick and send card to switzerland (this would usually be for PKU

> > patients) I didn't push for this test as we are considering doing it at

> > Breakspear. If we do test we also need to test for BH2 conversion to BH4

> > not just overall BH4 levels. We have also been working hard to increase BH4

> > naturally for last 6 months and I thought if they did test and result is

> > not too low it would discredit all I was presenting.

> > >

> > > He kept comparing to PKU patients who are low in BH4 and said they did

> > not have urea cycle problems. I could not drum in that this was probably

> > because they don't have the other problems causing the big increase in

> > ammonia.

> > >

> > > He said that urine ammonia levels were not accurate and they would only

> > look at blood - again I could not get it through to him that we also need

> > to look at what the body is eliminating. Even if blood levels are not

> > elevated, if ammonia is continually produced at higher levels what effect

> > does this have on the body i.e low levels of BH4 and kidney stress. The

> > symptoms my kids suffer are not high ammonia - they are low BH$ because of

> > having to remove too much ammonia!!!

> > >

> > > In relation to CBS upregulation, he read the info and said if this was

> > the case we would see low methionine on amino acid test. At this point I

> > handed urine amino acid tests for both kids showing very low methionine -

> > he started to listen but then said again they would only consider blood

> > results. He actually did blood AA's on my kids last year and methionine was

> > only 14. This actually confirmed the problem with NHS testing - their range

> > for methionine is from 0 so if someone has continually low methionine

> > unless this is been looked for it would not get picked up.

> > >

> > > He did confirm that continual low methionine needed treatment (this is

> > why Breakspear have suggested methyl B12 injections). I asked if he would

> > do bloods to check and he agreed but only when the Kids are having venous

> > sample taken for something else.

> > >

> > > I plan to write to him asking for these tests to be done straight away

> > as otherwise we will have corrected it AGAIN taking any resposibility from

> > NHS.

> > >

> > > For Charlie (asd) I am quite happy to go this journey without NHS input

> > but for my daughter who has blood disorder I can't. She is under so

> > many consultants I have no choice but to tell them what I am doing. The

> > YASKO testing has uncovered how to help her blood disorder by bypassing her

> > gentic mutations and I'm determined to make them treat her (LOL!!!)

> > >

> > > I have also eventually managed to get some BH4 - currently in freezer,

> > waiting until after Christmas to be brave enough to try (understand can

> > cause huge detox initially)!.

> > >

> > > Have appt with genetics just after Christmas to investigate link with

> > Charlie (asd) and , (blood disorder no asd but lots of asd traits). In

> > our case they are definitely connected and both a result of biochemical

> > inbalances/errors.

> > >

> > > BW

> > >

> > > Alison R

> > >

> >

> >

> >

>

[Guest guest]

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Yes I think it would be less traumatic for all concerned, plus its difficlut to do with school, can you imagine them getting their heads around just Phase 1? Tee hee - NOT! Sam did well oh Phase 1 and the gut herns, all fell apart adding Folapro, bonkerdom...........

Mandi x

Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

[Guest guest]

Yes I think it would be less traumatic for all concerned, plus its difficlut to do with school, can you imagine them getting their heads around just Phase 1? Tee hee - NOT! Sam did well oh Phase 1 and the gut herns, all fell apart adding Folapro, bonkerdom...........

Mandi x

Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

[Guest guest]

Yes I think it would be less traumatic for all concerned, plus its difficlut to do with school, can you imagine them getting their heads around just Phase 1? Tee hee - NOT! Sam did well oh Phase 1 and the gut herns, all fell apart adding Folapro, bonkerdom...........

Mandi x

Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

[Guest guest]

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol. Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol. Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol. Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC.  I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation.  In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

 

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only  start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation?  Notice ala is metionned but don't know yet how that fits in with her protocol.

 Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

 

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC.  I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation.  In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

 

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only  start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation?  Notice ala is metionned but don't know yet how that fits in with her protocol.

 Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

 

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC.  I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation.  In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

 

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only  start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation?  Notice ala is metionned but don't know yet how that fits in with her protocol.

 Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

 

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Right - so you would use ac chelation rather than the rna metals, or as well as? Do you think by correcting methalyation the body can deal with viruses rather than needing virus protocol? -am such a novice with all this yasko business, can't see me ever getting my head round it! Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 14:03:49 +0000Subject: Re: Re: appt with metabolics consultant

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC. I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation. In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol.

Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Right - so you would use ac chelation rather than the rna metals, or as well as? Do you think by correcting methalyation the body can deal with viruses rather than needing virus protocol? -am such a novice with all this yasko business, can't see me ever getting my head round it! Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 14:03:49 +0000Subject: Re: Re: appt with metabolics consultant

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC. I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation. In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol.

Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

Right - so you would use ac chelation rather than the rna metals, or as well as? Do you think by correcting methalyation the body can deal with viruses rather than needing virus protocol? -am such a novice with all this yasko business, can't see me ever getting my head round it! Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 14:03:49 +0000Subject: Re: Re: appt with metabolics consultant

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC. I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation. In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol.

Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

Mandi x

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

I understand Yasko aims to eliminate viruses then the metal should follow as often the metal are bound to viruses. Protocol would advise testing at that stage and plotting excretion.  Don't know too much as not yet at that stage.  Its taken months to get step 1 supplements on board here and even then there are a lot we can't use.  However he has made vast improvements already.  I'm doing protocol alongside and certainly feel better

Have you read the pathways to discovery book - its a purple hardback and an absolute necessity to follow programme or even understand it (I'm not referring to purple parent guide)

BWAlison R

 

Right - so you would use ac chelation rather than the rna metals, or as well as? Do you think by correcting methalyation the body can deal with viruses rather than needing virus protocol? -am such a novice with all this yasko business, can't see me ever getting my head round it!

 Janet  To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 14:03:49 +0000Subject: Re: Re: appt with metabolics consultant

 

Janetif/when we get to the point where we need chelation/additional support to excrete metals/viruses, at this point I will add AC.  I won't be using ALA as per yasko but I understand some reach recovery just by focusing on methylation.  In our case of genetics there are some yasko recommendations we will have to follow for life or will without a doubt have problems.

Alison R

 

Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only  start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation?  Notice ala is metionned but don't know yet how that fits in with her protocol.

 Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...

Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: Re: appt with metabolics consultant

 

Mandi, that is  the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up?Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox.  I bet to do it again you will be able to go quite  a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.

Alison R

 

When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin.

 

Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself

 

This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever.............

 

Mandi x

 

So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.

[Guest guest]

I could not afford testing in phase 2, HH refused to work with Caudwell because they didn;t want to give them the bank details so they could have my £2K in advance..sigh, that's not Amy that's her husband.Don't forget Amy is guessing, good guesses much of the time but guessing anyways (same as us and the DAN docs). If you are planning to do AC why not just do it, won't effect things if you have to go back to Yasko and unless your child is very poorly likes Alisons or fails to respond to any other treatments, like Nevins then Yasko is second line or tidy up (Like Sandy & Tim & ) due to the expense, the amount of parent input required, dealing with changes, that was what did my head in, just as I got summat it changed and the sheer brain numbing complicatedness of it. Protocol all very very child specific. If you already have the Genomics done (by Yasko that is not in the UK where they miss of the most important SNP's) then I think its a good idea to have the phase 1 supports in while you carry on with biomed. If anybody here is going boss-eyed from Yasko posts, I do have a GAR for Sam - that's Genetoic Analysis Review by Yasko on Sam's results as a PDF which I am happy to send so you see what you used to get. Its supplementation in a specific order to support and address the Methylation cycle, just email and ask, its 78 pages so you have to read it on PC unless they grew another rainforest for all the paper! Mx Nevin/Mandi/Alison, What are your thoughts when it comes to the metals part of yasko vs ac chelation and tackling viruses independtly? I'm a bit confused over it because i'm assuming you can only start doing the metals bit when methalaytion is fixed otherwise wouldn't you just be activating these viruses and their metals but not able to rid the body of them compared to ac chelation that picks the metals up and escorts them out of the body. I think with us we'll only be able to go so far with yasko (fiancially) and do ac alongside - am guessing that some people do mixture of yasko and ac chelation? Notice ala is metionned but don't know yet how that fits in with her protocol. Janet To: Autism-Biomedical-Europe From: rowbotham.alison@...Date: Tue, 20 Dec 2011 02:10:04 +0000Subject: Re: [Autism-Biomedical- Europe] Re: appt with metabolics consultant Mandi, that is the part I don't fully understand about AC - I was also thinking that long term methylation also needs to be corrected or the metals will continue building up? Do you think to revisit after so much chelation might make it a bit easier to do as you won't keep hitting so much detox. I bet to do it again you will be able to go quite a bit faster, also saving on some of finances as I don't imagine you would need to do so many tests.Alison R When Yasko says EDTA just use Activated Liquid Zeolites instead, still not sure why she hasn't got her head around this supp because it soaks up ammonia very effectively also but she is the same with enzymes, wish we could get her to sit down with Devin. Making that switch and keeping going with the Methylation supports sounds as if it would fit better for you at the mo than AC chelation, he will already be detoxing from the ALA he had before, well for approx 2 years post his first dose and by then you may have his cycle spinning properly and he'll be doing it all by himself This is why I know I have to revisit Yasko or I'll be chelating Sam for ever unless I get real lucky and removing metals fixes Methylation, I think it is a bit and can but it takes like forever............. Mandi x So, I want to go for a while with Yasko if I can, to support his organs then when she starts recommending EDTA or any other chealation agents,I would like to try AC with lower dose.having said that I know it will be so complicated as I am already managing all these supplements and their effects with difficulty and he is very sensitive now..I am still suspicious about the herpes virus,I need to discuss this with drG.