Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 no but a frieind has pointed this out recently and i am going to read up on it, any idea where i can get the best quality vit A? whats the best place to read up on it? i am not doing any tst right now Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 no but a frieind has pointed this out recently and i am going to read up on it, any idea where i can get the best quality vit A? whats the best place to read up on it? i am not doing any tst right now Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 hello, thanks for the response, dr goyal seems to think that the immunovir is the most obvious place to start the will be to do the methylation and then chelation. however his seizures, poor gut condition do worry me. they have been going on for 5 yrs now,i only wish they would stop.i am also considering the ketogenic diet as when he gets older this will be a very difficult option.Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 hello, thanks for the response, dr goyal seems to think that the immunovir is the most obvious place to start the will be to do the methylation and then chelation. however his seizures, poor gut condition do worry me. they have been going on for 5 yrs now,i only wish they would stop.i am also considering the ketogenic diet as when he gets older this will be a very difficult option.Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 hello, thanks for the response, dr goyal seems to think that the immunovir is the most obvious place to start the will be to do the methylation and then chelation. however his seizures, poor gut condition do worry me. they have been going on for 5 yrs now,i only wish they would stop.i am also considering the ketogenic diet as when he gets older this will be a very difficult option.Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2011 Report Share Posted November 30, 2011 Hi Tahira, My daughters doctor has prescribed Goldenseal to start with as she has very high herpes titers. She has said that she might use an anti viral after a couple of months. Georgia has been on it a week she has a small rash around her mouth. Not sure what this means but am hopeing the Goldenseal is working. No behavioural changes though! We are also going to try vitamin A protocal and we were prescribed Mycellized A from kirkmans. I haven't started this yet though. Best wishes Sue > > > From: > Mum231ASD@... > Subject: Re: > IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 > November, 2011, 5:33 > > > >  > > > We were offered same thing and I declined, Sam has > been on Valtrex before and mad, aggressive and totally > bonkers, he is too big now to be in that situation. I might > have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO > ASK IF THERE IS ANYONE USING > ANTIVIRALS  FOR THEIR CHILD. PLEASE > COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT > THEIR EX[PERIENCE  WITH > ANTIVIRALS. MY CHILD HAS  > SEIZURES AND HAS BEEN RECOMMENDED TO > TAKE COVER FOR SHORT > PERIOD WITH STEROIDS TOO IN > THE EVENT THA ANY REACTION OR > SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS > BEING PUT UP  SO I AM > HOPING SOMEONE WILL GIVE  > SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2011 Report Share Posted November 30, 2011 Hi Tahira, My daughters doctor has prescribed Goldenseal to start with as she has very high herpes titers. She has said that she might use an anti viral after a couple of months. Georgia has been on it a week she has a small rash around her mouth. Not sure what this means but am hopeing the Goldenseal is working. No behavioural changes though! We are also going to try vitamin A protocal and we were prescribed Mycellized A from kirkmans. I haven't started this yet though. Best wishes Sue > > > From: > Mum231ASD@... > Subject: Re: > IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 > November, 2011, 5:33 > > > >  > > > We were offered same thing and I declined, Sam has > been on Valtrex before and mad, aggressive and totally > bonkers, he is too big now to be in that situation. I might > have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO > ASK IF THERE IS ANYONE USING > ANTIVIRALS  FOR THEIR CHILD. PLEASE > COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT > THEIR EX[PERIENCE  WITH > ANTIVIRALS. MY CHILD HAS  > SEIZURES AND HAS BEEN RECOMMENDED TO > TAKE COVER FOR SHORT > PERIOD WITH STEROIDS TOO IN > THE EVENT THA ANY REACTION OR > SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS > BEING PUT UP  SO I AM > HOPING SOMEONE WILL GIVE  > SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2011 Report Share Posted December 1, 2011 hello sue, Thanks for this, can i ask who you are meaning by she? also the vitamin a am i right in thinking it is very high doses as i read it is good for high measles titers aswell. is goldenseal an antiviral? how long do you need to use this before adding vit A. iam afraid for my sons seizures so i would like to use antivirals as last resort really.From: sprtrdg Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Thursday, 1 December, 2011, 0:02 Hi Tahira, My daughters doctor has prescribed Goldenseal to start with as she has very high herpes titers. She has said that she might use an anti viral after a couple of months. Georgia has been on it a week she has a small rash around her mouth. Not sure what this means but am hopeing the Goldenseal is working. No behavioural changes though! We are also going to try vitamin A protocal and we were prescribed Mycellized A from kirkmans. I haven't started this yet though. Best wishes Sue > > > From: > Mum231ASD@... > Subject: Re: > IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 > November, 2011, 5:33 > > > >  > > > We were offered same thing and I declined, Sam has > been on Valtrex before and mad, aggressive and totally > bonkers, he is too big now to be in that situation. I might > have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO > ASK IF THERE IS ANYONE USING > ANTIVIRALS  FOR THEIR CHILD. PLEASE > COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT > THEIR EX[PERIENCE  WITH > ANTIVIRALS. MY CHILD HAS  > SEIZURES AND HAS BEEN RECOMMENDED TO > TAKE COVER FOR SHORT > PERIOD WITH STEROIDS TOO IN > THE EVENT THA ANY REACTION OR > SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS > BEING PUT UP  SO I AM > HOPING SOMEONE WILL GIVE  > SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2011 Report Share Posted December 1, 2011 hello sue, Thanks for this, can i ask who you are meaning by she? also the vitamin a am i right in thinking it is very high doses as i read it is good for high measles titers aswell. is goldenseal an antiviral? how long do you need to use this before adding vit A. iam afraid for my sons seizures so i would like to use antivirals as last resort really.From: sprtrdg Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Thursday, 1 December, 2011, 0:02 Hi Tahira, My daughters doctor has prescribed Goldenseal to start with as she has very high herpes titers. She has said that she might use an anti viral after a couple of months. Georgia has been on it a week she has a small rash around her mouth. Not sure what this means but am hopeing the Goldenseal is working. No behavioural changes though! We are also going to try vitamin A protocal and we were prescribed Mycellized A from kirkmans. I haven't started this yet though. Best wishes Sue > > > From: > Mum231ASD@... > Subject: Re: > IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 > November, 2011, 5:33 > > > >  > > > We were offered same thing and I declined, Sam has > been on Valtrex before and mad, aggressive and totally > bonkers, he is too big now to be in that situation. I might > have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO > ASK IF THERE IS ANYONE USING > ANTIVIRALS  FOR THEIR CHILD. PLEASE > COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT > THEIR EX[PERIENCE  WITH > ANTIVIRALS. MY CHILD HAS  > SEIZURES AND HAS BEEN RECOMMENDED TO > TAKE COVER FOR SHORT > PERIOD WITH STEROIDS TOO IN > THE EVENT THA ANY REACTION OR > SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS > BEING PUT UP  SO I AM > HOPING SOMEONE WILL GIVE  > SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 HI everyone My 18 year old dd has tested positive for varicella zoster IgG (very high) 17 years after having chicken pox. Dr G has recommended a lengthy course of valtrex/immunovir. I know some of you have tried going down this route and wondered what your experiences of it were. Do you think it is better to go down the natural antiviral route or dive straight in with valtrex.? I am worried about reemergence of aggressive behaviour . Am I right to be worried? Does anyone have any good experience of using this? TIA Kath TIA Kat Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2011 Report Share Posted December 14, 2011 Valtrex has been much more effective here than natural antivirals – although ds was always a good responder to naturals, if I had to chose again I'd go for the rx stuff straight away, no doubt. Give a good gap between starting those two. If aggression happens worth trying 5-htp, GABA, theanine, or whatever else you have that could help raise brain serotonin, and minimise glutamate. If those don't help consult drG (he might have some ideas now on what to do to avoid or minimise those, worth asking about propranolol etc).We didn't have aggression when starting valtrex, but all hell broke lose when we added nystatin! Pulled it after 2 days and all was good. Saying because sometimes it can be antifungals or something else that is usually given alongside valtrex that can cause issues. Reply-To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Date: Wed, 14 Dec 2011 23:25:22 +0000To: "Autism-Biomedical-Europe " <Autism-Biomedical-Europe >Subject: RE: IMMUNOVIR USE PLEASE HELP HI everyone My 18 year old dd has tested positive for varicella zoster IgG (very high) 17 years after having chicken pox. Dr G has recommended a lengthy course of valtrex/immunovir. I know some of you have tried going down this route and wondered what your experiences of it were. Do you think it is better to go down the natural antiviral route or dive straight in with valtrex.? I am worried about reemergence of aggressive behaviour . Am I right to be worried? Does anyone have any good experience of using this? TIA Kath TIA Kat Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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