Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi Tahira, we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen.... Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel > > HELLO, > I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer. Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32 Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer. Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32 Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer. Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32 Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Dr G said antivirals WILL almost definitely make the seizures worse during treatment but the end result is generally an improvement Mandi Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer. Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32 Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 And there was no way I could sell that to the school, he stays 4 nights a week residential which was why I declined FWIW Mx Dr G said antivirals WILL almost definitely make the seizures worse during treatment but the end result is generally an improvement Mandi Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer. Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32 Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 You can use the one from then, if it is the right test, as unless you have chelated him in teh meantime, little will have changed. You may want to consider using something like CEASE to try to clear viral issues, if you are concerned about seizures, as anti-virals in my experience can increase/manifest them. Anita > > > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 You can use the one from then, if it is the right test, as unless you have chelated him in teh meantime, little will have changed. You may want to consider using something like CEASE to try to clear viral issues, if you are concerned about seizures, as anti-virals in my experience can increase/manifest them. Anita > > > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 You can use the one from then, if it is the right test, as unless you have chelated him in teh meantime, little will have changed. You may want to consider using something like CEASE to try to clear viral issues, if you are concerned about seizures, as anti-virals in my experience can increase/manifest them. Anita > > > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: > Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Have you ever done or discussed the high dose Vitamin A protocol re the measles. Still doing TST? MAndi x my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not? Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hallo, Our daughter is doing great at Acyclovir. We are using it for about 3 years now and it helped her a lot with her obsessive behaviour and it stopped her sore lips(herpes virus). We are afraid to stop it. Wimmie > > > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Hallo, Our daughter is doing great at Acyclovir. We are using it for about 3 years now and it helped her a lot with her obsessive behaviour and it stopped her sore lips(herpes virus). We are afraid to stop it. Wimmie > > > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Imunovir is not valtrex, completely different things. Imunovir is isoprinosine http://www.rivexpharma.com/products_imunovir.html Natasa > > From: Mum231ASD@... Mum231ASD@... > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2011 Report Share Posted November 28, 2011 Imunovir is not valtrex, completely different things. Imunovir is isoprinosine http://www.rivexpharma.com/products_imunovir.html Natasa > > From: Mum231ASD@... Mum231ASD@... > Subject: Re: IMMUNOVIR USE PLEASE HELP > To: Autism-Biomedical-Europe > Date: Monday, 28 November, 2011, 5:33 > > > > > > > > > > > > > > > > >  > > > > > > > > > > > > > We were offered same thing and I declined, Sam has been on Valtrex before > and mad, aggressive and totally bonkers, he is too big now to be in that > situation. I might have continued if he was smaller >  > Mandi >  > > In a message dated 28/11/2011 09:49:30 GMT Standard Time, > tahirasufi@... writes: >  > > > > > > > HELLO, >               I > HAVE  WRITTEN TWICE TO ASK IF THERE > IS ANYONE USING ANTIVIRALS  FOR THEIR CHILD. > PLEASE COULD  SOMEONE JUST DROP > ME  A LINE OR TWO ABOUT THEIR > EX[PERIENCE  WITH ANTIVIRALS. MY > CHILD HAS  SEIZURES AND HAS BEEN > RECOMMENDED TO TAKE COVER FOR SHORT PERIOD > WITH STEROIDS TOO IN THE EVENT THA ANY > REACTION OR SEIZURES GETS  WORSE. I > CAN SEE THAT THERE ARE POSTS BEING PUT > UP  SO I AM HOPING SOMEONE WILL > GIVE  SOME IDEA TO ME. THKS > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2011 Report Share Posted November 29, 2011 no but a frieind has pointed this out recently and i am going to read up on it, any idea where i can get the best quality vit A? whats the best place to read up on it? i am not doing any tst right now Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33 We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller Mandi HELLO, I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS Quote Link to comment Share on other sites More sharing options...
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