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Re: IMMUNOVIR USE PLEASE HELP

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Hi Tahira,

we do anti virals for a long time but my son does not have seizures, I am sure

someone will help you with advice, dr goyal did reccommend steroids alongside

anti virals quite recently but this was for anti inflammatory but in the end we

aggreed to use ibuprofen....

Any one on anti virals should probably take anti inflammatories as well... we

did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel

>

> HELLO,

>               I  HAVE   WRITTEN  TWICE  TO ASK  IF  THERE IS ANYONE  USING 

ANTIVIRALS   FOR THEIR CHILD. PLEASE  COULD   SOMEONE  JUST  DROP ME   A LINE 

OR  TWO  ABOUT THEIR  EX[PERIENCE   WITH  ANTIVIRALS.  MY  CHILD  HAS  

SEIZURES  AND HAS  BEEN  RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD  WITH 

STEROIDS  TOO IN THE  EVENT THA  ANY  REACTION  OR SEIZURES  GETS   WORSE. I 

CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT UP   SO I AM  HOPING  SOMEONE  WILL 

GIVE   SOME  IDEA  TO ME. THKS

>

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We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer.

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32

Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING

ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS>

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Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer.

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32

Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING

ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS>

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Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer.

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32

Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING

ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS>

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Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Tahira - I don't have experience with seizures but our son was prescribed Immunovir (valtrex) directly after a course of acyclovir during chickenpox in adolescence. It was terrible for him and produced scary hallucinations and delusions which he was able to verbalise (eg he started screaming that people were leaping out of the kitchen bin) - we stopped it immediately. I hope you find a solution.All the bestcatherine (DS aged 16)Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Dr G said antivirals WILL almost definitely make the seizures worse during treatment but the end result is generally an improvement

Mandi

Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer.

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32

Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS>

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And there was no way I could sell that to the school, he stays 4 nights a week residential which was why I declined

FWIW

Mx

Dr G said antivirals WILL almost definitely make the seizures worse during treatment but the end result is generally an improvement

Mandi

Hi isobel, thanks for this. i am little afraid that the seizures could become severer with antivirals. the neurviral screen shows very high antibodies titers to measles so he said this really shows he quite clearly needs treatment. other drs that look at this dont seem to find a problem with the high level antibodies. i wrote off to steve kurtz to get info from him, but so far no answer.

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 10:32

Hi Tahira,we do anti virals for a long time but my son does not have seizures, I am sure someone will help you with advice, dr goyal did reccommend steroids alongside anti virals quite recently but this was for anti inflammatory but in the end we aggreed to use ibuprofen....Any one on anti virals should probably take anti inflammatories as well... we did immunovoir about 2 yrs ago for 3 months, which wasnt long enough... Isobel>> HELLO,> I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS>

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my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP

my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP

my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Hi Tahira, Not particuarly knowledgeable about all this but it's probably not as simple as the measles issue - my dd has different issues to your ds but her regression also began after mmr (booster in her case). I know that it contributed to her regression but i think it was probably the last straw if that makes sense. If she was tested she may well also show up with high antibodies to different virus including measles but i don't think it will be as straightforward as tackling the measles or whatever first off, it is so complex as to why they didn't cope well with the immunizations in the first place. What was going on that meant their bodies didn't sort this out - metals, fighting other latent viruses, poor methalyation ? It would be interesting if anyone on list had success straight off with tackling these viruses before any other intervention to help guide you, just thinking aloud really... Probably something you need to discuss at length with Dr. Goyal about his experience with all this. Janet To: Autism-Biomedical-Europe From: tahirasufi@...Date: Mon, 28 Nov 2011 12:58:22 +0000Subject: Re: IMMUNOVIR USE PLEASE HELP

my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?Subject: Re: IMMUNOVIR USE PLEASE HELPTo:

Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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You can use the one from then, if it is the right test, as unless you have

chelated him in teh meantime, little will have changed.

You may want to consider using something like CEASE to try to clear viral

issues, if you are concerned about seizures, as anti-virals in my experience can

increase/manifest them.

Anita

>

>

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To:

> Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

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>  

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> We were offered same thing and I declined, Sam has been on Valtrex before

> and mad, aggressive and totally bonkers, he is too big now to be in that

> situation. I might have continued if he was smaller

>  

> Mandi

>  

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

>  

>

>

>

>

>

>

> HELLO,

>               I 

> HAVE   WRITTEN  TWICE  TO ASK  IF  THERE

> IS ANYONE  USING  ANTIVIRALS   FOR THEIR CHILD.

> PLEASE  COULD   SOMEONE  JUST  DROP

> ME   A LINE  OR  TWO  ABOUT THEIR 

> EX[PERIENCE   WITH  ANTIVIRALS.  MY 

> CHILD  HAS   SEIZURES  AND HAS  BEEN 

> RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD 

> WITH  STEROIDS  TOO IN THE  EVENT THA  ANY 

> REACTION  OR SEIZURES  GETS   WORSE. I 

> CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT

> UP   SO I AM  HOPING  SOMEONE  WILL 

> GIVE   SOME  IDEA  TO ME. THKS

>

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Share on other sites

You can use the one from then, if it is the right test, as unless you have

chelated him in teh meantime, little will have changed.

You may want to consider using something like CEASE to try to clear viral

issues, if you are concerned about seizures, as anti-virals in my experience can

increase/manifest them.

Anita

>

>

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To:

> Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

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>

> We were offered same thing and I declined, Sam has been on Valtrex before

> and mad, aggressive and totally bonkers, he is too big now to be in that

> situation. I might have continued if he was smaller

>  

> Mandi

>  

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

>  

>

>

>

>

>

>

> HELLO,

>               I 

> HAVE   WRITTEN  TWICE  TO ASK  IF  THERE

> IS ANYONE  USING  ANTIVIRALS   FOR THEIR CHILD.

> PLEASE  COULD   SOMEONE  JUST  DROP

> ME   A LINE  OR  TWO  ABOUT THEIR 

> EX[PERIENCE   WITH  ANTIVIRALS.  MY 

> CHILD  HAS   SEIZURES  AND HAS  BEEN 

> RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD 

> WITH  STEROIDS  TOO IN THE  EVENT THA  ANY 

> REACTION  OR SEIZURES  GETS   WORSE. I 

> CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT

> UP   SO I AM  HOPING  SOMEONE  WILL 

> GIVE   SOME  IDEA  TO ME. THKS

>

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Share on other sites

You can use the one from then, if it is the right test, as unless you have

chelated him in teh meantime, little will have changed.

You may want to consider using something like CEASE to try to clear viral

issues, if you are concerned about seizures, as anti-virals in my experience can

increase/manifest them.

Anita

>

>

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To:

> Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

> We were offered same thing and I declined, Sam has been on Valtrex before

> and mad, aggressive and totally bonkers, he is too big now to be in that

> situation. I might have continued if he was smaller

>  

> Mandi

>  

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

>  

>

>

>

>

>

>

> HELLO,

>               I 

> HAVE   WRITTEN  TWICE  TO ASK  IF  THERE

> IS ANYONE  USING  ANTIVIRALS   FOR THEIR CHILD.

> PLEASE  COULD   SOMEONE  JUST  DROP

> ME   A LINE  OR  TWO  ABOUT THEIR 

> EX[PERIENCE   WITH  ANTIVIRALS.  MY 

> CHILD  HAS   SEIZURES  AND HAS  BEEN 

> RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD 

> WITH  STEROIDS  TOO IN THE  EVENT THA  ANY 

> REACTION  OR SEIZURES  GETS   WORSE. I 

> CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT

> UP   SO I AM  HOPING  SOMEONE  WILL 

> GIVE   SOME  IDEA  TO ME. THKS

>

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Have you ever done or discussed the high dose Vitamin A protocol re the measles.

Still doing TST?

MAndi x

my son is mostly nonverbal so i shudder to think of this happening and him not even able to let us know this. but problem is how to deal with the measles issue to suppress it. is it the antivirals or nothing else. i need to be thinking of chelation too but would like to get hair test done. i have one from when he was three yrs but not sure if this can still be used to check the deranged mineral transport or not?

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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Hallo,

Our daughter is doing great at Acyclovir.

We are using it for about 3 years now and it helped her a lot with her obsessive

behaviour and it stopped her sore lips(herpes virus).

We are afraid to stop it.

Wimmie

>

>

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To: Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

> We were offered same thing and I declined, Sam has been on Valtrex before

> and mad, aggressive and totally bonkers, he is too big now to be in that

> situation. I might have continued if he was smaller

>  

> Mandi

>  

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

>  

>

>

>

>

>

>

> HELLO,

>               I 

> HAVE   WRITTEN  TWICE  TO ASK  IF  THERE

> IS ANYONE  USING  ANTIVIRALS   FOR THEIR CHILD.

> PLEASE  COULD   SOMEONE  JUST  DROP

> ME   A LINE  OR  TWO  ABOUT THEIR 

> EX[PERIENCE   WITH  ANTIVIRALS.  MY 

> CHILD  HAS   SEIZURES  AND HAS  BEEN 

> RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD 

> WITH  STEROIDS  TOO IN THE  EVENT THA  ANY 

> REACTION  OR SEIZURES  GETS   WORSE. I 

> CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT

> UP   SO I AM  HOPING  SOMEONE  WILL 

> GIVE   SOME  IDEA  TO ME. THKS

>

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Share on other sites

Hallo,

Our daughter is doing great at Acyclovir.

We are using it for about 3 years now and it helped her a lot with her obsessive

behaviour and it stopped her sore lips(herpes virus).

We are afraid to stop it.

Wimmie

>

>

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To: Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>  

>

>

>

>

>

>

>

>

>

>

>

>

> We were offered same thing and I declined, Sam has been on Valtrex before

> and mad, aggressive and totally bonkers, he is too big now to be in that

> situation. I might have continued if he was smaller

>  

> Mandi

>  

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

>  

>

>

>

>

>

>

> HELLO,

>               I 

> HAVE   WRITTEN  TWICE  TO ASK  IF  THERE

> IS ANYONE  USING  ANTIVIRALS   FOR THEIR CHILD.

> PLEASE  COULD   SOMEONE  JUST  DROP

> ME   A LINE  OR  TWO  ABOUT THEIR 

> EX[PERIENCE   WITH  ANTIVIRALS.  MY 

> CHILD  HAS   SEIZURES  AND HAS  BEEN 

> RECOMMENDED TO TAKE  COVER  FOR  SHORT  PERIOD 

> WITH  STEROIDS  TOO IN THE  EVENT THA  ANY 

> REACTION  OR SEIZURES  GETS   WORSE. I 

> CAN  SEE  THAT THERE  ARE POSTS  BEING  PUT

> UP   SO I AM  HOPING  SOMEONE  WILL 

> GIVE   SOME  IDEA  TO ME. THKS

>

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Imunovir is not valtrex, completely different things. Imunovir is

isoprinosine http://www.rivexpharma.com/products_imunovir.html

Natasa

>

> From: Mum231ASD@... Mum231ASD@...

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To: Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

>

>

>

> We were offered same thing and I declined, Sam has been on Valtrex

before

> and mad, aggressive and totally bonkers, he is too big now to be in

that

> situation. I might have continued if he was smaller

> Â

> Mandi

> Â

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

> Â

>

>

>

>

>

>

> HELLO,

> Â Â Â Â Â Â Â Â Â Â Â Â

  IÂ

> HAVEÂ Â WRITTENÂ TWICEÂ TO ASKÂ IFÂ

THERE

> IS ANYONEÂ USINGÂ ANTIVIRALSÂ Â FOR THEIR

CHILD.

> PLEASEÂ COULDÂ Â SOMEONEÂ JUSTÂ DROP

> MEÂ Â A LINEÂ ORÂ TWOÂ ABOUT THEIRÂ

> EX[PERIENCE  WITH ANTIVIRALS. MYÂ

> CHILDÂ HASÂ Â SEIZURESÂ AND HASÂ BEENÂ

> RECOMMENDED TO TAKEÂ COVERÂ FORÂ SHORTÂ

PERIODÂ

> WITHÂ STEROIDSÂ TOO IN THEÂ EVENT THAÂ ANYÂ

> REACTIONÂ OR SEIZURESÂ GETSÂ Â WORSE. IÂ

> CANÂ SEEÂ THAT THEREÂ ARE POSTSÂ BEINGÂ

PUT

> UPÂ Â SO I AMÂ HOPINGÂ SOMEONEÂ WILLÂ

> GIVEÂ Â SOMEÂ IDEAÂ TO ME. THKS

>

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Share on other sites

Imunovir is not valtrex, completely different things. Imunovir is

isoprinosine http://www.rivexpharma.com/products_imunovir.html

Natasa

>

> From: Mum231ASD@... Mum231ASD@...

> Subject: Re: IMMUNOVIR USE PLEASE HELP

> To: Autism-Biomedical-Europe

> Date: Monday, 28 November, 2011, 5:33

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Â

>

>

>

>

>

>

>

>

>

>

>

>

> We were offered same thing and I declined, Sam has been on Valtrex

before

> and mad, aggressive and totally bonkers, he is too big now to be in

that

> situation. I might have continued if he was smaller

> Â

> Mandi

> Â

>

> In a message dated 28/11/2011 09:49:30 GMT Standard Time,

> tahirasufi@... writes:

> Â

>

>

>

>

>

>

> HELLO,

> Â Â Â Â Â Â Â Â Â Â Â Â

  IÂ

> HAVEÂ Â WRITTENÂ TWICEÂ TO ASKÂ IFÂ

THERE

> IS ANYONEÂ USINGÂ ANTIVIRALSÂ Â FOR THEIR

CHILD.

> PLEASEÂ COULDÂ Â SOMEONEÂ JUSTÂ DROP

> MEÂ Â A LINEÂ ORÂ TWOÂ ABOUT THEIRÂ

> EX[PERIENCE  WITH ANTIVIRALS. MYÂ

> CHILDÂ HASÂ Â SEIZURESÂ AND HASÂ BEENÂ

> RECOMMENDED TO TAKEÂ COVERÂ FORÂ SHORTÂ

PERIODÂ

> WITHÂ STEROIDSÂ TOO IN THEÂ EVENT THAÂ ANYÂ

> REACTIONÂ OR SEIZURESÂ GETSÂ Â WORSE. IÂ

> CANÂ SEEÂ THAT THEREÂ ARE POSTSÂ BEINGÂ

PUT

> UPÂ Â SO I AMÂ HOPINGÂ SOMEONEÂ WILLÂ

> GIVEÂ Â SOMEÂ IDEAÂ TO ME. THKS

>

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no but a frieind has pointed this out recently and i am going to read up on it, any idea where i can get the best quality vit A? whats the best place to read up on it? i am not doing any tst right now

Subject: Re: IMMUNOVIR USE PLEASE HELPTo: Autism-Biomedical-Europe Date: Monday, 28 November, 2011, 5:33

We were offered same thing and I declined, Sam has been on Valtrex before and mad, aggressive and totally bonkers, he is too big now to be in that situation. I might have continued if he was smaller

Mandi

HELLO,

I HAVE WRITTEN TWICE TO ASK IF THERE IS ANYONE USING ANTIVIRALS FOR THEIR CHILD. PLEASE COULD SOMEONE JUST DROP ME A LINE OR TWO ABOUT THEIR EX[PERIENCE WITH ANTIVIRALS. MY CHILD HAS SEIZURES AND HAS BEEN RECOMMENDED TO TAKE COVER FOR SHORT PERIOD WITH STEROIDS TOO IN THE EVENT THA ANY REACTION OR SEIZURES GETS WORSE. I CAN SEE THAT THERE ARE POSTS BEING PUT UP SO I AM HOPING SOMEONE WILL GIVE SOME IDEA TO ME. THKS

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