Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 June, I am with you on the lying down thing. I use 7 pillows at night so that I sleep pretty much sitting up. I typically sleep for about 30 minutes and then lay awake for an hour trying to breathe. I continue like this all night. When my breathing is bad I don't sleep at all. What does a CAT scan tell you? I had a dr. tell me to get one, but I was not insured and could not justify the expense. This was last winter when I was having a really bad time. My dr. told me that I was too severe and it was too much of a risk for him to treat me anymore. At the time I was so severe that I truly thought that I would die before the end of winter. It has improved somewhat since then. Winter is always the worst though. I am hoping that it won't be too bad this year. I am only 25 so hopeful the cure will be in my lifetime as well. I hope you start to feel better soon. June Fraser wrote: Hi , this is so helpful to hear from you your symptoms are so like mine. I'm going through a really bad patch, only managed 5 hours sleep in 2 bouts last night. Lying down is a nightmare, I can't breathe even though our bed is propped up. I'm coughing buckets of "wallpaper paste" and that is the real problem. I'm so worried about developing diabetes like you have, that is so tough on top of asthma! I just cannot seem to live without the Prednisolone, it's the devils drug for sure. Ten days till my next Brompton appointment to see my latest CAT scan result and my sputum culture. Hope it isn't too bad news. Oh for the day when they can cure asthma, I guess I won't be around to see that but my son is asthmatic (26) so I don't want him to go through this!Love June__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 , lovely to hear from you. A Cat scan is like a 3d image picture of your lungs, far better than an x ray or ultra sound. It shows them where there is permanent lung damage and how bad. I'm so lucky the British National Health pays for the scan to be done. I believe it costs around £1000 each scan so you only get one if you are really bad. It sounds like you and I have very similar problems, I prop my bed head on 2 bricks which does help but not at the moment because I have a lung infection. I'll try an extra pillow tonite to see if it helps. I get about 4 to 5 hours sleep on average and then have to work! Life is not too easy just now but there are those worse off than me. Yes sometimes I too think I'm going to die, the other night my peak flow went down to 230 and I spent several hours on nebuliser just trying to breathe. Today I managed top whack of 300 so not out of the wood yet. I know I should go to hospital but I don't want to so I struggle on. Will think of you tonight when I'm up at my usual 3 am Lots of love June in London > June, I am with you on the lying down thing. I use 7 pillows at night > so that I sleep pretty much sitting up. I typically sleep for about 30 > minutes and then lay awake for an hour trying to breathe. I continue > like this all night. When my breathing is bad I don't sleep at all. > What does a CAT scan tell you? I had a dr. tell me to get one, but I > was not insured and could not justify the expense. This was last > winter when I was having a really bad time. My dr. told me that I was > too severe and it was too much of a risk for him to treat me anymore. > At the time I was so severe that I truly thought that I would die > before the end of winter. It has improved somewhat since then. Winter > is always the worst though. I am hoping that it won't be too bad this > year. I am only 25 so hopeful the cure will be in my lifetime as well. > I hope you start to feel better soon. > > > June Fraser wrote: > > Hi , this is so helpful to hear from you your symptoms are so like > mine. I'm going through a really bad patch, only managed 5 hours sleep > in 2 bouts last night. Lying down is a nightmare, I can't breathe even > though our bed is propped up. I'm coughing buckets of " wallpaper > paste " > and that is the real problem. I'm so worried about developing diabetes > like you have, that is so tough on top of asthma! I just cannot seem > to > live without the Prednisolone, it's the devils drug for sure. Ten days > till my next Brompton appointment to see my latest CAT scan result and > my sputum culture. Hope it isn't too bad news. Oh for the day when > they > can cure asthma, I guess I won't be around to see that but my son is > asthmatic (26) so I don't want him to go through this! > Love June > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 In my case, what I found out is lying down on my left side causes more asthma then lying on my right. Don't know why. So I try to avoid lying down on my left. Have you tried this? I also never have anything to eat or drink for at least two hours before lying down. When I do eat or drink something, sometimes digestive gas from my stomach moves up to cause an asthma attack. My doctor recommends using Flovent regularly. But when I use it's no less then about an hour before going to bed. For me, Flovent appears to cause some an attacks if I use it then lie down right away. I also find that a sudden change in breathing rate sometimes triggers an attack. Therefore I try to relax my breathing before lying down in a way that I'll be breathing when I do lie down. In other words, it's not good to run around the house, be out of breath and to suddenly lie down. Tony --- June Fraser wrote: > > Hi , this is so helpful to hear from you your symptoms > are so like > mine. I'm going through a really bad patch, only managed 5 > hours sleep > in 2 bouts last night. Lying down is a nightmare, I can't > breathe even > though our bed is propped up. I'm coughing buckets of > " wallpaper paste " > and that is the real problem. I'm so worried about developing > diabetes > like you have, that is so tough on top of asthma! I just > cannot seem to > live without the Prednisolone, it's the devils drug for sure. > Ten days > till my next Brompton appointment to see my latest CAT scan > result and > my sputum culture. Hope it isn't too bad news. Oh for the day > when they > can cure asthma, I guess I won't be around to see that but my > son is > asthmatic (26) so I don't want him to go through this! > Love June ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Thanks Tony, I'll try shifting sides but in my case I have more lung damage(Bronchiectasis) on right side so it will be interesting to see. I don't have the gastric problems thank goodness. I'll ask about Flovent, is that a short acting inhaler or what? Thank goodness the antibiotics are working at last managed 5 hours kip last night, bliss. I'm going onto inhaled A/B's next week so hoping that will help. Isn't asthma just the worst illness, people have no idea. Yesterday I struggled to get the peak flow reading above 250 all day, couldn't even walk on flat without struggling for breath. Regards June > > In my case, what I found out is lying down on my left side > causes more asthma then lying on my right. Don't know why. > So I try to avoid lying down on my left. Have you tried this? > > I also never have anything to eat or drink for at least two > hours before lying down. When I do eat or drink something, > sometimes digestive gas from my stomach moves up to cause an > asthma attack. > > My doctor recommends using Flovent regularly. But when I use > it's > no less then about an hour before going to bed. For me, Flovent > appears to cause some an attacks if I use it then lie down right > > away. > > I also find that a sudden change in breathing rate sometimes > triggers an attack. Therefore I try to relax my breathing before > > lying down in a way that I'll be breathing when I do lie down. > In other words, it's not good to run around the house, be out of > > breath and to suddenly lie down. > > Tony > > --- June Fraser wrote: >> >> Hi , this is so helpful to hear from you your symptoms >> are so like >> mine. I'm going through a really bad patch, only managed 5 >> hours sleep >> in 2 bouts last night. Lying down is a nightmare, I can't >> breathe even >> though our bed is propped up. I'm coughing buckets of >> " wallpaper paste " >> and that is the real problem. I'm so worried about developing >> diabetes >> like you have, that is so tough on top of asthma! I just >> cannot seem to >> live without the Prednisolone, it's the devils drug for sure. >> Ten days >> till my next Brompton appointment to see my latest CAT scan >> result and >> my sputum culture. Hope it isn't too bad news. Oh for the day >> when they >> can cure asthma, I guess I won't be around to see that but my >> son is >> asthmatic (26) so I don't want him to go through this! >> Love June > > > > ______________________________________________________________________ > Post your free ad now! http://personals.yahoo.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2004 Report Share Posted November 28, 2004 Thanks Tony, I'll try shifting sides but in my case I have more lung damage(Bronchiectasis) on right side so it will be interesting to see. I don't have the gastric problems thank goodness. I'll ask about Flovent, is that a short acting inhaler or what? Thank goodness the antibiotics are working at last managed 5 hours kip last night, bliss. I'm going onto inhaled A/B's next week so hoping that will help. Isn't asthma just the worst illness, people have no idea. Yesterday I struggled to get the peak flow reading above 250 all day, couldn't even walk on flat without struggling for breath. Regards June > > In my case, what I found out is lying down on my left side > causes more asthma then lying on my right. Don't know why. > So I try to avoid lying down on my left. Have you tried this? > > I also never have anything to eat or drink for at least two > hours before lying down. When I do eat or drink something, > sometimes digestive gas from my stomach moves up to cause an > asthma attack. > > My doctor recommends using Flovent regularly. But when I use > it's > no less then about an hour before going to bed. For me, Flovent > appears to cause some an attacks if I use it then lie down right > > away. > > I also find that a sudden change in breathing rate sometimes > triggers an attack. Therefore I try to relax my breathing before > > lying down in a way that I'll be breathing when I do lie down. > In other words, it's not good to run around the house, be out of > > breath and to suddenly lie down. > > Tony > > --- June Fraser wrote: >> >> Hi , this is so helpful to hear from you your symptoms >> are so like >> mine. I'm going through a really bad patch, only managed 5 >> hours sleep >> in 2 bouts last night. Lying down is a nightmare, I can't >> breathe even >> though our bed is propped up. I'm coughing buckets of >> " wallpaper paste " >> and that is the real problem. I'm so worried about developing >> diabetes >> like you have, that is so tough on top of asthma! I just >> cannot seem to >> live without the Prednisolone, it's the devils drug for sure. >> Ten days >> till my next Brompton appointment to see my latest CAT scan >> result and >> my sputum culture. Hope it isn't too bad news. Oh for the day >> when they >> can cure asthma, I guess I won't be around to see that but my >> son is >> asthmatic (26) so I don't want him to go through this! >> Love June > > > > ______________________________________________________________________ > Post your free ad now! http://personals.yahoo.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 --- June Fraser wrote: > > Thanks Tony, I'll try shifting sides but in my case I have > more lung > damage(Bronchiectasis) on right side so it will be interesting > to see. > I don't have the gastric problems thank goodness. I'll ask > about > Flovent, is that a short acting inhaler or what? How can you have asthma and not know about it? When Flovent is used regularly, overtime (long term) it helps prevent asthma attacks. Since taking Flovent I very seldom have to take pills. Sometimes however I have to use another puffer (Salbutamol HFA at 100MCG) to stop an asthma attack. That usually happens when I forget to use Flovent like doc told me. Perhaps your asthma is worst then mine? Or your lung damage prevents the use of Flovent? Some info. about Flovent on the web: http://66.94.231.168/search/cache?ei=UTF-8 & p=flovent & u=us.gsk.com/products/asset\ s/us_flovent.pdf & w=flovent & d=B0DD7CB4BB & icp=1 & .intl=ca Tony > Thank goodness the > antibiotics are working at last managed 5 hours kip last > night, bliss. > I'm going onto inhaled A/B's next week so hoping that will > help. Isn't asthma just the worst illness, people have no > idea. Yesterday I struggled to get the peak flow reading > above 250 all day, couldn't even walk on flat without > struggling for breath. Regards June > > > > In my case, what I found out is lying down on my left side > > causes more asthma then lying on my right. Don't know why. > > So I try to avoid lying down on my left. Have you tried > this? > > > > I also never have anything to eat or drink for at least two > > hours before lying down. When I do eat or drink something, > > sometimes digestive gas from my stomach moves up to cause an > > asthma attack. > > > > My doctor recommends using Flovent regularly. But when I use > > it's no less then about an hour before going to bed. For me, > > Flovent appears to cause some attacks if I use it then down > > lie down right away. > > > > I also find that a sudden change in breathing rate sometimes > > triggers an attack. Therefore I try to relax my breathing > before lying down in a way that I'll be breathing when I do > lie down. > > In other words, it's not good to be out of breath and to > suddenly lie down. > > > > Tony ===== Tony ttony_at@... .. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 --- June Fraser wrote: > > Thanks Tony, I'll try shifting sides but in my case I have > more lung > damage(Bronchiectasis) on right side so it will be interesting > to see. > I don't have the gastric problems thank goodness. I'll ask > about > Flovent, is that a short acting inhaler or what? How can you have asthma and not know about it? When Flovent is used regularly, overtime (long term) it helps prevent asthma attacks. Since taking Flovent I very seldom have to take pills. Sometimes however I have to use another puffer (Salbutamol HFA at 100MCG) to stop an asthma attack. That usually happens when I forget to use Flovent like doc told me. Perhaps your asthma is worst then mine? Or your lung damage prevents the use of Flovent? Some info. about Flovent on the web: http://66.94.231.168/search/cache?ei=UTF-8 & p=flovent & u=us.gsk.com/products/asset\ s/us_flovent.pdf & w=flovent & d=B0DD7CB4BB & icp=1 & .intl=ca Tony > Thank goodness the > antibiotics are working at last managed 5 hours kip last > night, bliss. > I'm going onto inhaled A/B's next week so hoping that will > help. Isn't asthma just the worst illness, people have no > idea. Yesterday I struggled to get the peak flow reading > above 250 all day, couldn't even walk on flat without > struggling for breath. Regards June > > > > In my case, what I found out is lying down on my left side > > causes more asthma then lying on my right. Don't know why. > > So I try to avoid lying down on my left. Have you tried > this? > > > > I also never have anything to eat or drink for at least two > > hours before lying down. When I do eat or drink something, > > sometimes digestive gas from my stomach moves up to cause an > > asthma attack. > > > > My doctor recommends using Flovent regularly. But when I use > > it's no less then about an hour before going to bed. For me, > > Flovent appears to cause some attacks if I use it then down > > lie down right away. > > > > I also find that a sudden change in breathing rate sometimes > > triggers an attack. Therefore I try to relax my breathing > before lying down in a way that I'll be breathing when I do > lie down. > > In other words, it's not good to be out of breath and to > suddenly lie down. > > > > Tony ===== Tony ttony_at@... .. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 June, I am also typically up at 3. I am up most of the night though. I work 40 hours a week as a special education preschool teacher. It is crazy to try to keep up with the kids. Today I lifted one of my students who has severe CP. After a couple of minutes I was not breathing at all. After about 6 nebulizer doses I finally got to where I could produce single syllables. It is frightening. I rarely hit 230 on my peak flow. Last winter it was usually under 100. I am hoping it does not get that bad this year. June Fraser wrote: , lovely to hear from you. A Cat scan is like a 3d image picture of your lungs, far better than an x ray or ultra sound. It shows them where there is permanent lung damage and how bad. I'm so lucky the British National Health pays for the scan to be done. I believe it costs around £1000 each scan so you only get one if you are really bad.It sounds like you and I have very similar problems, I prop my bed head on 2 bricks which does help but not at the moment because I have a lung infection. I'll try an extra pillow tonite to see if it helps. I get about 4 to 5 hours sleep on average and then have to work! Life is not too easy just now but there are those worse off than me.Yes sometimes I too think I'm going to die, the other night my peak flow went down to 230 and I spent several hours on nebuliser just trying to breathe. Today I managed top whack of 300 so not out of the wood yet. I know I should go to hospital but I don't want to so I struggle on.Will think of you tonight when I'm up at my usual 3 am Lots of love June in London> June, I am with you on the lying down thing. I use 7 pillows at night > so that I sleep pretty much sitting up. I typically sleep for about 30 > minutes and then lay awake for an hour trying to breathe. I continue > like this all night. When my breathing is bad I don't sleep at all. > What does a CAT scan tell you? I had a dr. tell me to get one, but I > was not insured and could not justify the expense. This was last > winter when I was having a really bad time. My dr. told me that I was > too severe and it was too much of a risk for him to treat me anymore. > At the time I was so severe that I truly thought that I would die > before the end of winter. It has improved somewhat since then. Winter > is always the worst though. I am hoping that it won't be too bad this > year. I am only 25 so hopeful the cure will be in my lifetime as well. > I hope you start to feel better soon.> >> June Fraser wrote:>> Hi , this is so helpful to hear from you your symptoms are so like> mine. I'm going through a really bad patch, only managed 5 hours sleep> in 2 bouts last night. Lying down is a nightmare, I can't breathe even> though our bed is propped up. I'm coughing buckets of "wallpaper > paste"> and that is the real problem. I'm so worried about developing diabetes> like you have, that is so tough on top of asthma! I just cannot seem > to> live without the Prednisolone, it's the devils drug for sure. Ten days> till my next Brompton appointment to see my latest CAT scan result and> my sputum culture. Hope it isn't too bad news. Oh for the day when > they> can cure asthma, I guess I won't be around to see that but my son is> asthmatic (26) so I don't want him to go through this!> Love June>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 June, I am also typically up at 3. I am up most of the night though. I work 40 hours a week as a special education preschool teacher. It is crazy to try to keep up with the kids. Today I lifted one of my students who has severe CP. After a couple of minutes I was not breathing at all. After about 6 nebulizer doses I finally got to where I could produce single syllables. It is frightening. I rarely hit 230 on my peak flow. Last winter it was usually under 100. I am hoping it does not get that bad this year. June Fraser wrote: , lovely to hear from you. A Cat scan is like a 3d image picture of your lungs, far better than an x ray or ultra sound. It shows them where there is permanent lung damage and how bad. I'm so lucky the British National Health pays for the scan to be done. I believe it costs around £1000 each scan so you only get one if you are really bad.It sounds like you and I have very similar problems, I prop my bed head on 2 bricks which does help but not at the moment because I have a lung infection. I'll try an extra pillow tonite to see if it helps. I get about 4 to 5 hours sleep on average and then have to work! Life is not too easy just now but there are those worse off than me.Yes sometimes I too think I'm going to die, the other night my peak flow went down to 230 and I spent several hours on nebuliser just trying to breathe. Today I managed top whack of 300 so not out of the wood yet. I know I should go to hospital but I don't want to so I struggle on.Will think of you tonight when I'm up at my usual 3 am Lots of love June in London> June, I am with you on the lying down thing. I use 7 pillows at night > so that I sleep pretty much sitting up. I typically sleep for about 30 > minutes and then lay awake for an hour trying to breathe. I continue > like this all night. When my breathing is bad I don't sleep at all. > What does a CAT scan tell you? I had a dr. tell me to get one, but I > was not insured and could not justify the expense. This was last > winter when I was having a really bad time. My dr. told me that I was > too severe and it was too much of a risk for him to treat me anymore. > At the time I was so severe that I truly thought that I would die > before the end of winter. It has improved somewhat since then. Winter > is always the worst though. I am hoping that it won't be too bad this > year. I am only 25 so hopeful the cure will be in my lifetime as well. > I hope you start to feel better soon.> >> June Fraser wrote:>> Hi , this is so helpful to hear from you your symptoms are so like> mine. I'm going through a really bad patch, only managed 5 hours sleep> in 2 bouts last night. Lying down is a nightmare, I can't breathe even> though our bed is propped up. I'm coughing buckets of "wallpaper > paste"> and that is the real problem. I'm so worried about developing diabetes> like you have, that is so tough on top of asthma! I just cannot seem > to> live without the Prednisolone, it's the devils drug for sure. Ten days> till my next Brompton appointment to see my latest CAT scan result and> my sputum culture. Hope it isn't too bad news. Oh for the day when > they> can cure asthma, I guess I won't be around to see that but my son is> asthmatic (26) so I don't want him to go through this!> Love June>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2004 Report Share Posted November 30, 2004 June, I am also typically up at 3. I am up most of the night though. I work 40 hours a week as a special education preschool teacher. It is crazy to try to keep up with the kids. Today I lifted one of my students who has severe CP. After a couple of minutes I was not breathing at all. After about 6 nebulizer doses I finally got to where I could produce single syllables. It is frightening. I rarely hit 230 on my peak flow. Last winter it was usually under 100. I am hoping it does not get that bad this year. June Fraser wrote: , lovely to hear from you. A Cat scan is like a 3d image picture of your lungs, far better than an x ray or ultra sound. It shows them where there is permanent lung damage and how bad. I'm so lucky the British National Health pays for the scan to be done. I believe it costs around £1000 each scan so you only get one if you are really bad.It sounds like you and I have very similar problems, I prop my bed head on 2 bricks which does help but not at the moment because I have a lung infection. I'll try an extra pillow tonite to see if it helps. I get about 4 to 5 hours sleep on average and then have to work! Life is not too easy just now but there are those worse off than me.Yes sometimes I too think I'm going to die, the other night my peak flow went down to 230 and I spent several hours on nebuliser just trying to breathe. Today I managed top whack of 300 so not out of the wood yet. I know I should go to hospital but I don't want to so I struggle on.Will think of you tonight when I'm up at my usual 3 am Lots of love June in London> June, I am with you on the lying down thing. I use 7 pillows at night > so that I sleep pretty much sitting up. I typically sleep for about 30 > minutes and then lay awake for an hour trying to breathe. I continue > like this all night. When my breathing is bad I don't sleep at all. > What does a CAT scan tell you? I had a dr. tell me to get one, but I > was not insured and could not justify the expense. This was last > winter when I was having a really bad time. My dr. told me that I was > too severe and it was too much of a risk for him to treat me anymore. > At the time I was so severe that I truly thought that I would die > before the end of winter. It has improved somewhat since then. Winter > is always the worst though. I am hoping that it won't be too bad this > year. I am only 25 so hopeful the cure will be in my lifetime as well. > I hope you start to feel better soon.> >> June Fraser wrote:>> Hi , this is so helpful to hear from you your symptoms are so like> mine. I'm going through a really bad patch, only managed 5 hours sleep> in 2 bouts last night. Lying down is a nightmare, I can't breathe even> though our bed is propped up. I'm coughing buckets of "wallpaper > paste"> and that is the real problem. I'm so worried about developing diabetes> like you have, that is so tough on top of asthma! I just cannot seem > to> live without the Prednisolone, it's the devils drug for sure. Ten days> till my next Brompton appointment to see my latest CAT scan result and> my sputum culture. Hope it isn't too bad news. Oh for the day when > they> can cure asthma, I guess I won't be around to see that but my son is> asthmatic (26) so I don't want him to go through this!> Love June>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Tony many thanks for the info about Flovent. At present I am on Seretide which appears to be doing nothing for me at all. I have heard of Flovent but never been prescribed it. Have an appointment at the Brompton Thursday week, will ask the consultant if I can try it. Do you have the inhaler version or rotadisk and how long on it before you saw an improvement? Regards from June > > --- June Fraser wrote: >> >> Thanks Tony, I'll try shifting sides but in my case I have >> more lung >> damage(Bronchiectasis) on right side so it will be interesting >> to see. >> I don't have the gastric problems thank goodness. I'll ask >> about >> Flovent, is that a short acting inhaler or what? > > How can you have asthma and not know about it? When Flovent is > used regularly, overtime (long term) it helps prevent asthma > attacks. > > Since taking Flovent I very seldom have to take pills. Sometimes > however I have to use another puffer (Salbutamol HFA at 100MCG) > to stop an asthma attack. That usually happens when I forget to > use Flovent like doc told me. Perhaps your asthma is worst then > mine? Or your lung damage prevents the use of Flovent? > > Some info. about Flovent on the web: > http://66.94.231.168/search/cache?ei=UTF-8 & p=flovent & u=us.gsk.com/ > products/assets/us_flovent.pdf & w=flovent & d=B0DD7CB4BB & icp=1 & .intl=ca > > Tony > >> Thank goodness the >> antibiotics are working at last managed 5 hours kip last >> night, bliss. >> I'm going onto inhaled A/B's next week so hoping that will >> help. Isn't asthma just the worst illness, people have no >> idea. Yesterday I struggled to get the peak flow reading >> above 250 all day, couldn't even walk on flat without >> struggling for breath. Regards June > >> >> >>> In my case, what I found out is lying down on my left side >>> causes more asthma then lying on my right. Don't know why. >>> So I try to avoid lying down on my left. Have you tried >> this? >>> >>> I also never have anything to eat or drink for at least two >>> hours before lying down. When I do eat or drink something, >>> sometimes digestive gas from my stomach moves up to cause an >>> asthma attack. >>> >>> My doctor recommends using Flovent regularly. But when I use >>> it's no less then about an hour before going to bed. For me, >>> Flovent appears to cause some attacks if I use it then down >>> lie down right away. >>> >>> I also find that a sudden change in breathing rate sometimes >>> triggers an attack. Therefore I try to relax my breathing >> before lying down in a way that I'll be breathing when I do >> lie down. >>> In other words, it's not good to be out of breath and to >> suddenly lie down. >>> >>> Tony > > > ===== > Tony > ttony_at@... > > > . > > ______________________________________________________________________ > Post your free ad now! http://personals.yahoo.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Tony many thanks for the info about Flovent. At present I am on Seretide which appears to be doing nothing for me at all. I have heard of Flovent but never been prescribed it. Have an appointment at the Brompton Thursday week, will ask the consultant if I can try it. Do you have the inhaler version or rotadisk and how long on it before you saw an improvement? Regards from June > > --- June Fraser wrote: >> >> Thanks Tony, I'll try shifting sides but in my case I have >> more lung >> damage(Bronchiectasis) on right side so it will be interesting >> to see. >> I don't have the gastric problems thank goodness. I'll ask >> about >> Flovent, is that a short acting inhaler or what? > > How can you have asthma and not know about it? When Flovent is > used regularly, overtime (long term) it helps prevent asthma > attacks. > > Since taking Flovent I very seldom have to take pills. Sometimes > however I have to use another puffer (Salbutamol HFA at 100MCG) > to stop an asthma attack. That usually happens when I forget to > use Flovent like doc told me. Perhaps your asthma is worst then > mine? Or your lung damage prevents the use of Flovent? > > Some info. about Flovent on the web: > http://66.94.231.168/search/cache?ei=UTF-8 & p=flovent & u=us.gsk.com/ > products/assets/us_flovent.pdf & w=flovent & d=B0DD7CB4BB & icp=1 & .intl=ca > > Tony > >> Thank goodness the >> antibiotics are working at last managed 5 hours kip last >> night, bliss. >> I'm going onto inhaled A/B's next week so hoping that will >> help. Isn't asthma just the worst illness, people have no >> idea. Yesterday I struggled to get the peak flow reading >> above 250 all day, couldn't even walk on flat without >> struggling for breath. Regards June > >> >> >>> In my case, what I found out is lying down on my left side >>> causes more asthma then lying on my right. Don't know why. >>> So I try to avoid lying down on my left. Have you tried >> this? >>> >>> I also never have anything to eat or drink for at least two >>> hours before lying down. When I do eat or drink something, >>> sometimes digestive gas from my stomach moves up to cause an >>> asthma attack. >>> >>> My doctor recommends using Flovent regularly. But when I use >>> it's no less then about an hour before going to bed. For me, >>> Flovent appears to cause some attacks if I use it then down >>> lie down right away. >>> >>> I also find that a sudden change in breathing rate sometimes >>> triggers an attack. Therefore I try to relax my breathing >> before lying down in a way that I'll be breathing when I do >> lie down. >>> In other words, it's not good to be out of breath and to >> suddenly lie down. >>> >>> Tony > > > ===== > Tony > ttony_at@... > > > . > > ______________________________________________________________________ > Post your free ad now! http://personals.yahoo.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Tony many thanks for the info about Flovent. At present I am on Seretide which appears to be doing nothing for me at all. I have heard of Flovent but never been prescribed it. Have an appointment at the Brompton Thursday week, will ask the consultant if I can try it. Do you have the inhaler version or rotadisk and how long on it before you saw an improvement? Regards from June > > --- June Fraser wrote: >> >> Thanks Tony, I'll try shifting sides but in my case I have >> more lung >> damage(Bronchiectasis) on right side so it will be interesting >> to see. >> I don't have the gastric problems thank goodness. I'll ask >> about >> Flovent, is that a short acting inhaler or what? > > How can you have asthma and not know about it? When Flovent is > used regularly, overtime (long term) it helps prevent asthma > attacks. > > Since taking Flovent I very seldom have to take pills. Sometimes > however I have to use another puffer (Salbutamol HFA at 100MCG) > to stop an asthma attack. That usually happens when I forget to > use Flovent like doc told me. Perhaps your asthma is worst then > mine? Or your lung damage prevents the use of Flovent? > > Some info. about Flovent on the web: > http://66.94.231.168/search/cache?ei=UTF-8 & p=flovent & u=us.gsk.com/ > products/assets/us_flovent.pdf & w=flovent & d=B0DD7CB4BB & icp=1 & .intl=ca > > Tony > >> Thank goodness the >> antibiotics are working at last managed 5 hours kip last >> night, bliss. >> I'm going onto inhaled A/B's next week so hoping that will >> help. Isn't asthma just the worst illness, people have no >> idea. Yesterday I struggled to get the peak flow reading >> above 250 all day, couldn't even walk on flat without >> struggling for breath. Regards June > >> >> >>> In my case, what I found out is lying down on my left side >>> causes more asthma then lying on my right. Don't know why. >>> So I try to avoid lying down on my left. Have you tried >> this? >>> >>> I also never have anything to eat or drink for at least two >>> hours before lying down. When I do eat or drink something, >>> sometimes digestive gas from my stomach moves up to cause an >>> asthma attack. >>> >>> My doctor recommends using Flovent regularly. But when I use >>> it's no less then about an hour before going to bed. For me, >>> Flovent appears to cause some attacks if I use it then down >>> lie down right away. >>> >>> I also find that a sudden change in breathing rate sometimes >>> triggers an attack. Therefore I try to relax my breathing >> before lying down in a way that I'll be breathing when I do >> lie down. >>> In other words, it's not good to be out of breath and to >> suddenly lie down. >>> >>> Tony > > > ===== > Tony > ttony_at@... > > > . > > ______________________________________________________________________ > Post your free ad now! http://personals.yahoo.ca > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 --- June Fraser wrote: > Tony many thanks for the info about Flovent. At present I am > on > Seretide which appears to be doing nothing for me at all. I > have heard > of Flovent but never been prescribed it. Have an appointment > at the > Brompton Thursday week, will ask the consultant if I can try > it. Do you > have the inhaler version or rotadisk and how long on it before > you saw > an improvement? Inhaler version. In my case, I was told to take two puffs twice a day. It's orange and it's printed on it: Flovent HFA Fluticasone propionate inhalation at 125MCG metered dose. I'm told it's a type of steriod. When I started having asthma several years ago, I had to use it for several days until I noticed the frequency of attacks decreasing more and more until I rarely had an attack. When I use it as directed, it prevent or reduces my asthma attacks so that I don't have to use the other puffer (the bluie one) to stop an attack. When I forget to use Flovent for a few days I begin having attacks again and have to use the other one. And if I forget Flovent for a long time, using it again sometimes causes an attack. I don't know why that is. I'm in Canada but I know Flovent was advertised on US TV some time ago (I'm assuming you're in the US). You're doctor must know about it. Let me know what the doc says. Tony > Regards from June [text snipped to save space] ===== Tony ttony_at@... .. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 --- June Fraser wrote: > Tony many thanks for the info about Flovent. At present I am > on > Seretide which appears to be doing nothing for me at all. I > have heard > of Flovent but never been prescribed it. Have an appointment > at the > Brompton Thursday week, will ask the consultant if I can try > it. Do you > have the inhaler version or rotadisk and how long on it before > you saw > an improvement? Inhaler version. In my case, I was told to take two puffs twice a day. It's orange and it's printed on it: Flovent HFA Fluticasone propionate inhalation at 125MCG metered dose. I'm told it's a type of steriod. When I started having asthma several years ago, I had to use it for several days until I noticed the frequency of attacks decreasing more and more until I rarely had an attack. When I use it as directed, it prevent or reduces my asthma attacks so that I don't have to use the other puffer (the bluie one) to stop an attack. When I forget to use Flovent for a few days I begin having attacks again and have to use the other one. And if I forget Flovent for a long time, using it again sometimes causes an attack. I don't know why that is. I'm in Canada but I know Flovent was advertised on US TV some time ago (I'm assuming you're in the US). You're doctor must know about it. Let me know what the doc says. Tony > Regards from June [text snipped to save space] ===== Tony ttony_at@... .. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 --- June Fraser wrote: > Tony many thanks for the info about Flovent. At present I am > on > Seretide which appears to be doing nothing for me at all. I > have heard > of Flovent but never been prescribed it. Have an appointment > at the > Brompton Thursday week, will ask the consultant if I can try > it. Do you > have the inhaler version or rotadisk and how long on it before > you saw > an improvement? Inhaler version. In my case, I was told to take two puffs twice a day. It's orange and it's printed on it: Flovent HFA Fluticasone propionate inhalation at 125MCG metered dose. I'm told it's a type of steriod. When I started having asthma several years ago, I had to use it for several days until I noticed the frequency of attacks decreasing more and more until I rarely had an attack. When I use it as directed, it prevent or reduces my asthma attacks so that I don't have to use the other puffer (the bluie one) to stop an attack. When I forget to use Flovent for a few days I begin having attacks again and have to use the other one. And if I forget Flovent for a long time, using it again sometimes causes an attack. I don't know why that is. I'm in Canada but I know Flovent was advertised on US TV some time ago (I'm assuming you're in the US). You're doctor must know about it. Let me know what the doc says. Tony > Regards from June [text snipped to save space] ===== Tony ttony_at@... .. ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Tony thanks for all the info on Flovent. I'm in London England and yes it is available here. My Becotide steroid inhaler is not working so I will insist on trying Flov ent instead. Trouble is nothing works for long as I have chronic asthma but it is worth a try. Where in Canada are you, I have relatives in Calgary Alberta and Vancouver. Always wanted to visit the Rockies but not well enough to do that trip, hopefully one day! June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Hi Tony thanks for all the info on Flovent. I'm in London England and yes it is available here. My Becotide steroid inhaler is not working so I will insist on trying Flov ent instead. Trouble is nothing works for long as I have chronic asthma but it is worth a try. Where in Canada are you, I have relatives in Calgary Alberta and Vancouver. Always wanted to visit the Rockies but not well enough to do that trip, hopefully one day! June Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Vancouver. I just remembered that My mother had chronic asthma and found Flovent becoming less usefull after several years as her asthma worsend. She was put on high doses of Prednisone and other stuff. --- June Fraser wrote: > > > Hi Tony thanks for all the info on Flovent. I'm in London > England and > yes it is available here. My Becotide steroid inhaler is not > working so > I will insist on trying Flov ent instead. Trouble is nothing > works for > long as I have chronic asthma but it is worth a try. Where in > Canada > are you, I have relatives in Calgary Alberta and Vancouver. > Always > wanted to visit the Rockies but not well enough to do that > trip, > hopefully one day! > June > ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Vancouver. I just remembered that My mother had chronic asthma and found Flovent becoming less usefull after several years as her asthma worsend. She was put on high doses of Prednisone and other stuff. --- June Fraser wrote: > > > Hi Tony thanks for all the info on Flovent. I'm in London > England and > yes it is available here. My Becotide steroid inhaler is not > working so > I will insist on trying Flov ent instead. Trouble is nothing > works for > long as I have chronic asthma but it is worth a try. Where in > Canada > are you, I have relatives in Calgary Alberta and Vancouver. > Always > wanted to visit the Rockies but not well enough to do that > trip, > hopefully one day! > June > ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Vancouver. I just remembered that My mother had chronic asthma and found Flovent becoming less usefull after several years as her asthma worsend. She was put on high doses of Prednisone and other stuff. --- June Fraser wrote: > > > Hi Tony thanks for all the info on Flovent. I'm in London > England and > yes it is available here. My Becotide steroid inhaler is not > working so > I will insist on trying Flov ent instead. Trouble is nothing > works for > long as I have chronic asthma but it is worth a try. Where in > Canada > are you, I have relatives in Calgary Alberta and Vancouver. > Always > wanted to visit the Rockies but not well enough to do that > trip, > hopefully one day! > June > ______________________________________________________________________ Post your free ad now! http://personals.yahoo.ca Quote Link to comment Share on other sites More sharing options...
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