Re: Does BioMed actually work for Autism ?

November 30, 2011

Thanks for posting this. It is so great to hear about your daughter's progress.

I once read a post about a woman starting biomed with her forty-something son,

and it helped him. These kinds of examples show that it is not a matter of

'growing out' of the medical problems and struggles, although some kids do

improve with age.

When I took my son in for his initial three day assessment, one of the

professionals there said something that struck me about a test my son was really

fighting against. " It will only get harder as he ages, so we might as well get

it done now " . That was her experience after years of testing ASD kids. The

older they were, the harder it became. My son, although nowhere near recovered,

is improved in many ways. The test would be much, much easier for him now.

Anita

>

> Hi

>

> I have an 18 year old daughter who has very severe autism. She has had no

medical help from the NHS. Her behaviour problems and aggression meant that no

Doctor ever dared examine her.

>

> Regrettably we did not start biomedical interventions till 3 years ago when we

started on a gluten free caesin free diet and basic vitamin/ mineral

supplementation.

>

> The improvements in her behaviour began fairly quickly. Her aggression melted

away and she became much more manageable, speech and language improved and she

became much more interactive.

>

> Because she was more manageable we were able to embark on blood testing

which has uncovered a whole host of underlying health problems which had gone

untreated for 18 years.

>

> Everyone involved with my daughter has been amazed at her progress since we

started biomed.. I just wish we had started it years ago instead of

concentrating on ABA and educational matters

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

November 30, 2011

Thanks for posting this. It is so great to hear about your daughter's progress.

I once read a post about a woman starting biomed with her forty-something son,

and it helped him. These kinds of examples show that it is not a matter of

'growing out' of the medical problems and struggles, although some kids do

improve with age.

When I took my son in for his initial three day assessment, one of the

professionals there said something that struck me about a test my son was really

fighting against. " It will only get harder as he ages, so we might as well get

it done now " . That was her experience after years of testing ASD kids. The

older they were, the harder it became. My son, although nowhere near recovered,

is improved in many ways. The test would be much, much easier for him now.

Anita

>

> Hi

>

> I have an 18 year old daughter who has very severe autism. She has had no

medical help from the NHS. Her behaviour problems and aggression meant that no

Doctor ever dared examine her.

>

> Regrettably we did not start biomedical interventions till 3 years ago when we

started on a gluten free caesin free diet and basic vitamin/ mineral

supplementation.

>

> The improvements in her behaviour began fairly quickly. Her aggression melted

away and she became much more manageable, speech and language improved and she

became much more interactive.

>

> Because she was more manageable we were able to embark on blood testing

which has uncovered a whole host of underlying health problems which had gone

untreated for 18 years.

>

> Everyone involved with my daughter has been amazed at her progress since we

started biomed.. I just wish we had started it years ago instead of

concentrating on ABA and educational matters

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>

November 30, 2011

I agree with everything that all of you have written and I am going to give my two pence as well ....

Does biomed helps all in the same way ? no it doesn't but I do not know one child that has stayed in the same position that before......by that mean being in pain or not well in their self because of a array of problems that should not be overlooked because they are autistic, it does not takes a genius to know that if you feel better physically you are more motivated to learn and so on ....

I hate the affirmation that "they improve with age any way ...." really then why my son regressed when he made 5 and continue on this path till we started the diet when he was 7 ??? other is expectations .....I am always astonished to how little is expected of them, as everyone (I mean medical class) seem to be contempt with the natural evolution of someone with autism ......but one thing is a natural age progression being autistic or not and the other is the progression that someone can have when he or she has the right interventions , biomedical and others all helps to the end result that is a person socially integrated.

last we do not have big wows but we do have small improvements and I am quiet happy that I have maintained what I accomplished and not find that my son has lost another skill like it was happening one of the things that happen was that he was potty trained at 5 and by 7 was back on nappies only to have them removed successfully a year ago.

The only downfall is that this should be available oh the NHS instead you mortgage your life to provide this to your child, I wish that more people listen to what we as parents have to say and help more by sending our children to regular tests .....to start would not be bad.

November 30, 2011

I agree with everything that all of you have written and I am going to give my two pence as well ....

Does biomed helps all in the same way ? no it doesn't but I do not know one child that has stayed in the same position that before......by that mean being in pain or not well in their self because of a array of problems that should not be overlooked because they are autistic, it does not takes a genius to know that if you feel better physically you are more motivated to learn and so on ....

I hate the affirmation that "they improve with age any way ...." really then why my son regressed when he made 5 and continue on this path till we started the diet when he was 7 ??? other is expectations .....I am always astonished to how little is expected of them, as everyone (I mean medical class) seem to be contempt with the natural evolution of someone with autism ......but one thing is a natural age progression being autistic or not and the other is the progression that someone can have when he or she has the right interventions , biomedical and others all helps to the end result that is a person socially integrated.

last we do not have big wows but we do have small improvements and I am quiet happy that I have maintained what I accomplished and not find that my son has lost another skill like it was happening one of the things that happen was that he was potty trained at 5 and by 7 was back on nappies only to have them removed successfully a year ago.

The only downfall is that this should be available oh the NHS instead you mortgage your life to provide this to your child, I wish that more people listen to what we as parents have to say and help more by sending our children to regular tests .....to start would not be bad.

November 30, 2011

I agree with everything that all of you have written and I am going to give my two pence as well ....

Does biomed helps all in the same way ? no it doesn't but I do not know one child that has stayed in the same position that before......by that mean being in pain or not well in their self because of a array of problems that should not be overlooked because they are autistic, it does not takes a genius to know that if you feel better physically you are more motivated to learn and so on ....

I hate the affirmation that "they improve with age any way ...." really then why my son regressed when he made 5 and continue on this path till we started the diet when he was 7 ??? other is expectations .....I am always astonished to how little is expected of them, as everyone (I mean medical class) seem to be contempt with the natural evolution of someone with autism ......but one thing is a natural age progression being autistic or not and the other is the progression that someone can have when he or she has the right interventions , biomedical and others all helps to the end result that is a person socially integrated.

last we do not have big wows but we do have small improvements and I am quiet happy that I have maintained what I accomplished and not find that my son has lost another skill like it was happening one of the things that happen was that he was potty trained at 5 and by 7 was back on nappies only to have them removed successfully a year ago.

The only downfall is that this should be available oh the NHS instead you mortgage your life to provide this to your child, I wish that more people listen to what we as parents have to say and help more by sending our children to regular tests .....to start would not be bad.

November 30, 2011

Hi Sayani

How great that you are a GP and yet you have come to a group of mum's for advice

and help! Wouldn't that be great if it was the other way around? The parents

on this list have become researchers, teachers and doctors to help their

children reach their full potential, as there is no one out there in mainstream

medicine prepared to help our children and treat their medical issues.

As you read this list and the files you will be amazed at the overwhelming

evidence that biomedical interventions can most definitely help children with

autism. My son is 12 years old and has

been receiving biomedical interventions since he was about 4 years old. Yes he

is still 'autistic' (whatever that label means), regressing at aged 2 and

becoming non verbal. However he has gone from a failure to thrive, sickly child

to a strong happy boy. During chelation over a two year period he jumped from

the 2nd percentile to the 95th in his NHS red book!!!

I am so sorry that your son has been given a diagnosis of autism but hope that

as parents in the medical profession are faced with the option of 'go away and

love your child, they will end up in an institution after you are dead' or

research and understand what is going on with your child's health and do

something about it, things have a chance of changing for the better.

Thank you for joining the list.

Sally

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

November 30, 2011

Hi Sayani

How great that you are a GP and yet you have come to a group of mum's for advice

and help! Wouldn't that be great if it was the other way around? The parents

on this list have become researchers, teachers and doctors to help their

children reach their full potential, as there is no one out there in mainstream

medicine prepared to help our children and treat their medical issues.

As you read this list and the files you will be amazed at the overwhelming

evidence that biomedical interventions can most definitely help children with

autism. My son is 12 years old and has

been receiving biomedical interventions since he was about 4 years old. Yes he

is still 'autistic' (whatever that label means), regressing at aged 2 and

becoming non verbal. However he has gone from a failure to thrive, sickly child

to a strong happy boy. During chelation over a two year period he jumped from

the 2nd percentile to the 95th in his NHS red book!!!

I am so sorry that your son has been given a diagnosis of autism but hope that

as parents in the medical profession are faced with the option of 'go away and

love your child, they will end up in an institution after you are dead' or

research and understand what is going on with your child's health and do

something about it, things have a chance of changing for the better.

Thank you for joining the list.

Sally

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

November 30, 2011

Thank you Sally and all others for your kind comments.

THis has certainly brought tears to my eyes. I will certainly try out Biomedical

interventions now - as I said before Lack of evidence does not mean that a

treatment does not work. If I have annoed anyone with my comments " they improve

with age " - I apologize . Certainly my son has not to date.

We are looking at going to the Autism Treatment Trust in Edinburgh. Any comments

folks?

Just wondering how we( medical folk) are still not taking on board Bio Med

seriously.

If Biomed does help my son - I can assure you that there will be one more DAN

doctor to offer assistance. It looks like I have found a new meaning to being a

medic .

thank you folk . thank you very much.

sayani

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that Biomed

actually work or makes any difference. Some children improve as they get older

anyways.

> >

> > The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

> >

> > I am not to or for biomed as of yet but would be interested in getting

parents opinion on bio med . Lack of evidence is not proof that something does

not work . In traditional medicine research and trials are important but would

be difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Thank you Sally and all others for your kind comments.

THis has certainly brought tears to my eyes. I will certainly try out Biomedical

interventions now - as I said before Lack of evidence does not mean that a

treatment does not work. If I have annoed anyone with my comments " they improve

with age " - I apologize . Certainly my son has not to date.

We are looking at going to the Autism Treatment Trust in Edinburgh. Any comments

folks?

Just wondering how we( medical folk) are still not taking on board Bio Med

seriously.

If Biomed does help my son - I can assure you that there will be one more DAN

doctor to offer assistance. It looks like I have found a new meaning to being a

medic .

thank you folk . thank you very much.

sayani

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that Biomed

actually work or makes any difference. Some children improve as they get older

anyways.

> >

> > The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

> >

> > I am not to or for biomed as of yet but would be interested in getting

parents opinion on bio med . Lack of evidence is not proof that something does

not work . In traditional medicine research and trials are important but would

be difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Thank you Sally and all others for your kind comments.

THis has certainly brought tears to my eyes. I will certainly try out Biomedical

interventions now - as I said before Lack of evidence does not mean that a

treatment does not work. If I have annoed anyone with my comments " they improve

with age " - I apologize . Certainly my son has not to date.

We are looking at going to the Autism Treatment Trust in Edinburgh. Any comments

folks?

Just wondering how we( medical folk) are still not taking on board Bio Med

seriously.

If Biomed does help my son - I can assure you that there will be one more DAN

doctor to offer assistance. It looks like I have found a new meaning to being a

medic .

thank you folk . thank you very much.

sayani

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that Biomed

actually work or makes any difference. Some children improve as they get older

anyways.

> >

> > The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

> >

> > I am not to or for biomed as of yet but would be interested in getting

parents opinion on bio med . Lack of evidence is not proof that something does

not work . In traditional medicine research and trials are important but would

be difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Hi Sayani,

We got a diagnosis of severe autism for our son in January 2009. We were told

there was nothing we could do.

We were dealing with a boy who had no eye contact and was self harming through

constant head banging. He spun in circles and could not be reached.

It turned out that with supplements his eye contact came back and he stopped

spinning around. With the right testing and more supplements he gradually

stopped head banging.

Our son was allergic to milk and soy and by cutting out those two he lost his

eczema. By eliminating gluten he had his first real bowel movements ever. We

went on to remove further foods that were irritating him and implemented a

healthy diet to help repair his gut.

Our son has also had clostridia along the way which was causing major discomfort

(made him aggressive) and that also hindered toilet training.

We've also had allot of sleep problems but now know he is low in seratonin and

supplement accordingly which makes a huge difference.

We found out he was toxic which led us to start low and frequent dose chelation

which has also brought about lots of improvements.

There's more and I'm probably jumping all over the place here but the point is

that my my child has had real physical symptoms and we got no help here from the

doctors. They dismissed the lot as autism, even the green diarrhea.

In desperation I turned to parents and enlisted the help of a few overseas

doctors for testing. Today I'm happy to report that our son is improving all the

time. He's bubbling with small words, some small phrases but he's engaged, we

have his full attention, eye contact and relieving allot of the pain has made

him a much happier boy. He's now learning at a much faster rate and I have allot

of hope which is more then I had to start with!

I hope that you use your knowledge to help your child.

Good luck in your journey,

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

November 30, 2011

Hi Sayani

We have experience of using the Autism Treatment Trust in Edinburgh and also the

Breaksphere medical group.

The ATT is a charitable organisation headed by Dr Lorene Amet. She is extremely

knowledgable about biomedical treatments and autism, and set us off on the right

path for our daughter.

She convinced us to start GF/CF diet,even threatening to visit us at home.

The main drawback of the ATT is that Dr Amet is a research scientist rather than

a medical doctor. If prescriptions are required they have to come from a DAN

doctor in Paris called Dr Corine Scorupka. Obviously this would not be a problem

for yourself.

I am sure ATT would love to have a medical doctor in the Uk on the team. Do you

live near Edinburgh? Dr Amet has lots of useful research contacts in Paris. She

started doing research in autism after her own son regressed into autism at a

late stage.She is quite outspoken but really does have our kids best interests

at heart

I hope that helps

Best wishes

Kath

Sent from my iPad

November 30, 2011

Hi Sayani

We have experience of using the Autism Treatment Trust in Edinburgh and also the

Breaksphere medical group.

The ATT is a charitable organisation headed by Dr Lorene Amet. She is extremely

knowledgable about biomedical treatments and autism, and set us off on the right

path for our daughter.

She convinced us to start GF/CF diet,even threatening to visit us at home.

The main drawback of the ATT is that Dr Amet is a research scientist rather than

a medical doctor. If prescriptions are required they have to come from a DAN

doctor in Paris called Dr Corine Scorupka. Obviously this would not be a problem

for yourself.

I am sure ATT would love to have a medical doctor in the Uk on the team. Do you

live near Edinburgh? Dr Amet has lots of useful research contacts in Paris. She

started doing research in autism after her own son regressed into autism at a

late stage.She is quite outspoken but really does have our kids best interests

at heart

I hope that helps

Best wishes

Kath

Sent from my iPad

November 30, 2011

Hi Sayani

We have experience of using the Autism Treatment Trust in Edinburgh and also the

Breaksphere medical group.

The ATT is a charitable organisation headed by Dr Lorene Amet. She is extremely

knowledgable about biomedical treatments and autism, and set us off on the right

path for our daughter.

She convinced us to start GF/CF diet,even threatening to visit us at home.

The main drawback of the ATT is that Dr Amet is a research scientist rather than

a medical doctor. If prescriptions are required they have to come from a DAN

doctor in Paris called Dr Corine Scorupka. Obviously this would not be a problem

for yourself.

I am sure ATT would love to have a medical doctor in the Uk on the team. Do you

live near Edinburgh? Dr Amet has lots of useful research contacts in Paris. She

started doing research in autism after her own son regressed into autism at a

late stage.She is quite outspoken but really does have our kids best interests

at heart

I hope that helps

Best wishes

Kath

Sent from my iPad

November 30, 2011

Hi Sayani and welcome! I second what Sally said – it is great to

have a GP come a parents' autism forum (although really it should be the other

way round, but we are not living in an ideal world….).

Sorry for the long post, I really hope you

find time to read it J

I totally agree with you saying that there is

no firm evidence that biomed works for autism. There will probably NEVER ever

be a firm proof that biomed works for autism – not until we can with all

certainty define what Autism(s) really is, and what Biomed really means.

`Autism'

(or ADHD for that matter) is only a descriptive term, defined and diagnosed

solely by surface symptoms. Those symptoms are only surface manifestations of some

of body's biology gone awry. Even if we suppose, for sake of an argument, that

those body systems are not functioning properly because of faulty genes, there

is STILL something dysfunctional on the very basic physiological level that is

causing the child to exhibit symptoms of autism. Autism does not exist as an entity in itself

(KantJ), it is merely a collection of observable symptoms, which can by

the way be completely different from child to child.

No one has really got a clue on what Autism

REALLY is. All that a diagnostic psych `expert'

can do is to describe common symptoms (which again will vary greatly) into

oblivion. They cannot even start to scratch the surface of what and how causes

those symptoms. They will try to tell you that it is all genetic, but again

without having a clue about what is going on on the biological level.

So lets suppose for a moment that all

symptoms of autism are caused by genes. The exact pathology will differ greatly

from child to child. So for example a great majority of monogenetic SLO

syndrome kids exhibit symptoms of autism, but so do most of Syndrome

individuals, and very many PKU kids, and very many Fragile X, omst of Retts

etc. So in those monogenetic disorder individuals their Autism is not caused by

the same gene and probably not the same downstream pathways (although some of

them probably overlap imo, but that is another long story…), and ccording we

would not attempt to address their autism in the same way. For example SLO is a

monogenetic disorder of dysregulated cholesterol metabolism/caveolin signalling.

The affected children are very sick and great majority of them also have

autism. There is lots anecdotal evidence that SLO kids, when treated with

supplemental cholesterol, also lose their autism symptoms. In this case

supplemental cholesterol IS their Biomed intervention for autism.

Syndrome is due to a monogenetic

mutation affecting membrane calcium trafficking. Great majority of those kids

also have autism. There is good reason to believe (lots of research in this

area) that blocking calcium channels might work in this case.

So if you were designing a study to test

whether cholesterol supplementation improves symptoms of autism, would you

include syndrome kids alongside SLO kids? Would you also throw some

Rett's and Fragile X kids into the mix? Similarly, if calcium blockers are shown to diminish

autism in kids, would you automatically assume that it will work the

same way for autism in kids with Fragile X?

There is every reason to believe that

`idiopathic' autism is a big mixture of genetic susceptibility to a variety of

environmental insults. So the exact pathology will be different in each case…

The best we can hope for at the moment in my opinion is to get a clearer idea

of different `subgroups' of autism. And to get clear biomarkers for those

subgroups (some will be overlapping and fluctuating, no doubt). Only then it

will become possible to design meaningful treatment studies, that can `prove'

anything beyond doubt.

Having said that … while there is little we

know little about exact pathology and how it differs between individuals, what

we DO know is that there is lots and lots that is very abnormal in idiopathic

autism. There are plenty of good quality studies showing the following going on

in our kids:

generalised immune dysfunction and inflammation including microgliosis

(inflammation of brain microglia), vascular endothelial inflammation,

vasoconstriction and permeability, reduced blood flow to brain, oxidative

stress, systemic glutathione depletion(37,38),

mitochondrial dysfunction(39,40),

gluten and casein reactivity(41),

autoimmune reactivity(33,34),

glutamate toxicity(34-36,51),

intestinal permeability(41),

microbial translocation(45),

hyperplasia of intestinal epithelial cells(42),

pancreatic enzyme deficiency, disaccharide intolerance and malabsorption(43,44), autonomic/vagal stem

dysfunction(52-55),

abnormal cytokine profiles(26,28),

abnormal gene methylation(46,47),

celebral folate deficiency, and increased levels of osteopontin (that correlate

to degree of neurological impairment). (I can send you those reference if needed…)

Again these will vary slightly from individual to individual, and

so will the symptoms and severity of autism. Biggest challenge now is to sort

them into some kind of groups in order to study interventions.

The other big problem encountered by anyone wishing to study

biomedical interventions for autism is FUNDING. Good quality large scale double

blind placebo studies require lots of money. Most fund money goes to

psychological and behavioural `eye-gaze' studies and to gene hunt research

(which have all to date come back empty handed). Most large institutes, those

that can apply and carry out large scale studies, are led by

psychiatrist/psychologists etc. Vicious cycle. I know of a researcher who was

granted a large amount of money by a US gov body to study one particular

biomedical intervention, only to hit a wall when he approached those autism institutes.

He already had the money, only needed their cooperation, but they were not

interested or organised enough. So his large scale well controlled study is not

going to happen L. He managed to find a willing institute in another country, but

their numbers of children are very small. If you wish to try that biomedical

intervention you will have to rely on anecdotal reports and that small scale study

that might not mean much when it comes out.

There was a fantastic article recently on CFS/ME by Tuller, Prof

of Journalism and Public Health at Berkley University (this is another

`mysterious' disease with no known cause, no `proof' of a biological mechanism

and no `solid proof' that it can be treated by biomedical means, which btw

shares most of pathological findings with autism).

Just swap the words CFS with

autism below, and you get what I think holds very true for autism, in every

way.

… once

you start paying attention and reading papers, this looks like a chronic or

hyper-immune activation. These patients have a lot of signs that their immune

systems are firing almost constantly."

According to this view, the revved up immune

system is actually much less effective at controlling other infections, and

studies have found associations between CFS and a grab-bag of pathogens,

including members of the herpesvirus, parvovirus, and enterovirus families.

Recent research from Norway has also lent support to the hypothesis that at

least some people with CFS are suffering from a form of autoimmune disorder,

perhaps triggered by one or multiple infections. Neurological impairments are also virtually always part of the complex;

a study last year in the journal PLoS One found that people with CFS and a form

of Lyme disease have patterns of proteins in their cerebrospinal fluid that

clearly distinguish them from each other as well as from healthy controls.

In many cases, additional research has failed

to confirm associations from prior studies. Yet there is a reasonable epidemiologic explanation for such

divergent results: Most experts believe that there are likely many sub-groups

or clusters of CFS patients, with a variety of infectious and possibly

environmental exposures; studies that don't account for such distinctions—and

most haven't–are much less likely to reach consistent results about causation

or treatment. Moreover, different research groups have used different methods

of identifying people with chronic fatigue syndrome, making it even harder to

compare findings across studies—a situation that can encourage

speculation that the roots of the illness lie in patients' psyches.

"This ambiguity over definitions has made it difficult for researchers

to pinpoint a biological cause," …

And just another quote from that article :"

When Schweitzer experiences post-exertional

malaise, she said, she loses her formidable communications skills."Natasa

>> Hi all > > I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. > > I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. > > The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? > > I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. > > ANy comments would be appreciated. > > thanks>

November 30, 2011

I highly recommend Dr Goyal at Breakspear Medical! I know of many

children who were helped, including my son (who has made great progress

over the years).

http://breakspearmedical.com/

Natasa

> > >

> > > Hi all

> > >

> > > I was wondering if you could advice me. I have a 5 yr old boy who

has no language development as of yet along with difficulties is social

interaction. No ADHD and otherwise he is a very happy boy.

> > >

> > > I am a GP and I am unable to find any scientific evidence that

Biomed actually work or makes any difference. Some children improve as

they get older anyways.

> > >

> > > The question is - how do we know that biomed actually works - were

the benefits that showed (months to years) after starting biomed

actually due to the bio med or were these children who would have

improved anyways?

> > >

> > > I am not to or for biomed as of yet but would be interested in

getting parents opinion on bio med . Lack of evidence is not proof that

something does not work . In traditional medicine research and trials

are important but would be difficult to subject children (atleast in

the developed world ) to such unproven treatments which make getting the

evidence even harder..

> > >

> > > ANy comments would be appreciated.

> > >

> > > thanks

> > >

> >

>

November 30, 2011

I highly recommend Dr Goyal at Breakspear Medical! I know of many

children who were helped, including my son (who has made great progress

over the years).

http://breakspearmedical.com/

Natasa

> > >

> > > Hi all

> > >

> > > I was wondering if you could advice me. I have a 5 yr old boy who

has no language development as of yet along with difficulties is social

interaction. No ADHD and otherwise he is a very happy boy.

> > >

> > > I am a GP and I am unable to find any scientific evidence that

Biomed actually work or makes any difference. Some children improve as

they get older anyways.

> > >

> > > The question is - how do we know that biomed actually works - were

the benefits that showed (months to years) after starting biomed

actually due to the bio med or were these children who would have

improved anyways?

> > >

> > > I am not to or for biomed as of yet but would be interested in

getting parents opinion on bio med . Lack of evidence is not proof that

something does not work . In traditional medicine research and trials

are important but would be difficult to subject children (atleast in

the developed world ) to such unproven treatments which make getting the

evidence even harder..

> > >

> > > ANy comments would be appreciated.

> > >

> > > thanks

> > >

> >

>

November 30, 2011

I highly recommend Dr Goyal at Breakspear Medical! I know of many

children who were helped, including my son (who has made great progress

over the years).

http://breakspearmedical.com/

Natasa

> > >

> > > Hi all

> > >

> > > I was wondering if you could advice me. I have a 5 yr old boy who

has no language development as of yet along with difficulties is social

interaction. No ADHD and otherwise he is a very happy boy.

> > >

> > > I am a GP and I am unable to find any scientific evidence that

Biomed actually work or makes any difference. Some children improve as

they get older anyways.

> > >

> > > The question is - how do we know that biomed actually works - were

the benefits that showed (months to years) after starting biomed

actually due to the bio med or were these children who would have

improved anyways?

> > >

> > > I am not to or for biomed as of yet but would be interested in

getting parents opinion on bio med . Lack of evidence is not proof that

something does not work . In traditional medicine research and trials

are important but would be difficult to subject children (atleast in

the developed world ) to such unproven treatments which make getting the

evidence even harder..

> > >

> > > ANy comments would be appreciated.

> > >

> > > thanks

> > >

> >

>

November 30, 2011

Apologies for bad text formatting in my post below Sayani (I did

prepare a nicely formatted spell-checked version, but my dog ate it

Natasa

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who

has

> no language development as of yet along with difficulties is social

> interaction. No ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that

Biomed

> actually work or makes any difference. Some children improve as they

get

> older anyways.

> >

> > The question is - how do we know that biomed actually works - were

the

> benefits that showed (months to years) after starting biomed actually

> due to the bio med or were these children who would have improved

> anyways?

> >

> > I am not to or for biomed as of yet but would be interested in

getting

> parents opinion on bio med . Lack of evidence is not proof that

> something does not work . In traditional medicine research and trials

> are important but would be difficult to subject children (atleast in

> the developed world ) to such unproven treatments which make getting

the

> evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Apologies for bad text formatting in my post below Sayani (I did

prepare a nicely formatted spell-checked version, but my dog ate it

Natasa

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who

has

> no language development as of yet along with difficulties is social

> interaction. No ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that

Biomed

> actually work or makes any difference. Some children improve as they

get

> older anyways.

> >

> > The question is - how do we know that biomed actually works - were

the

> benefits that showed (months to years) after starting biomed actually

> due to the bio med or were these children who would have improved

> anyways?

> >

> > I am not to or for biomed as of yet but would be interested in

getting

> parents opinion on bio med . Lack of evidence is not proof that

> something does not work . In traditional medicine research and trials

> are important but would be difficult to subject children (atleast in

> the developed world ) to such unproven treatments which make getting

the

> evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Apologies for bad text formatting in my post below Sayani (I did

prepare a nicely formatted spell-checked version, but my dog ate it

Natasa

> >

> > Hi all

> >

> > I was wondering if you could advice me. I have a 5 yr old boy who

has

> no language development as of yet along with difficulties is social

> interaction. No ADHD and otherwise he is a very happy boy.

> >

> > I am a GP and I am unable to find any scientific evidence that

Biomed

> actually work or makes any difference. Some children improve as they

get

> older anyways.

> >

> > The question is - how do we know that biomed actually works - were

the

> benefits that showed (months to years) after starting biomed actually

> due to the bio med or were these children who would have improved

> anyways?

> >

> > I am not to or for biomed as of yet but would be interested in

getting

> parents opinion on bio med . Lack of evidence is not proof that

> something does not work . In traditional medicine research and trials

> are important but would be difficult to subject children (atleast in

> the developed world ) to such unproven treatments which make getting

the

> evidence even harder..

> >

> > ANy comments would be appreciated.

> >

> > thanks

> >

>

November 30, 2011

Sayani

We started biomedical 3 years ago. My son still doesn't have any diagnosis

because he is improving so fast. When we started he was 3.5 and barely verbal,

he would have horrible tantrums till he would fall asleep from exhaustion. He

banged his head, hit us, didn't always react when we called him, ran away

without looking back. We returned to the UK, from a 2 year break abroad, to our

flat, which we bought when he was 1 and a perfect baby. I got out of the car and

realised how busy the street was. I said to my mum, that's it I will have to

spend the rest of my life inside the flat for fear that he will be killed by a

car. At this point we started questioning and researching what was going on with

him.

I can totally understand what you are feeling: I am a psychologist and had

worked in psychiatric hospitals both in Poland and the UK and had seen kids,

behaving like my son at age 3, in residential units. Jumping into biomedical has

been life changing for me: the whole concept of " mental health " has been

destroyed and re-organised . I no longer believe you can separate mental from

physical because I myself witnessed the changes biomedical treatments caused in

my son. He is 98% fine now; for an outsider he looks and behaves like an average

6 year old. The only problems which are left are a bit of language delay and

weak pencil skills, but his systems are still struggling.

He stole a bit of cream from our fridge a month ago and started lining up

everything, woke up in the middle of the night very agitated and said he didn't

know what was going on but he felt sad and angry, started hitting us and crying

at the same time. All this passed the next day, but it gave us a fright.

I hope his systems will recover to the point that eating something he is

sensitive to will not affect him so much, and I hope he will not have to be on a

special diet for the rest of his life, but if he does it's still worth it. I

already have my perfect boy back ))))))))))

All the best. We are in Edinburgh if you would like to chat or borrow some books

Kasia

November 30, 2011