Re: Does BioMed actually work for Autism ?

[Guest guest]

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

[Guest guest]

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

[Guest guest]

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

[Guest guest]

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved? Janet To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

[Guest guest]

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

'They' being ARI and 27,000+ parents and physicians

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

Mx

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved? Janet

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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[Guest guest]

Hi

I have an 18 year old daughter who has very severe autism. She has had no

medical help from the NHS. Her behaviour problems and aggression meant that no

Doctor ever dared examine her.

Regrettably we did not start biomedical interventions till 3 years ago when we

started on a gluten free caesin free diet and basic vitamin/ mineral

supplementation.

The improvements in her behaviour began fairly quickly. Her aggression melted

away and she became much more manageable, speech and language improved and she

became much more interactive.

Because she was more manageable we were able to embark on blood testing which

has uncovered a whole host of underlying health problems which had gone

untreated for 18 years.

Everyone involved with my daughter has been amazed at her progress since we

started biomed.. I just wish we had started it years ago instead of

concentrating on ABA and educational matters

Best wishes

Kath

Sent from my iPad

[Guest guest]

This is true; the research money doesn't go into researching the efficacy of

educational and biomedical interventions but into useless projects that build

the careers of the researchers. Did you knoe the Autism research centre is

researching whether it's intelligent and systematic types such as engineers

marrying each other that casues more autism. What is the use of that to anyone?

Why not spend the money on something useful - for example comparing TEACCH as

implemented in special schools with ABA?

Margaret

>

> The lad I talk about below got that far on just DMSA, not used ALA yet, he

> also has cerebal palsy and viral issues.

>

> What they say is 75% of the kids improve with chelation, that's more than

> with diet drugs or any other supplements. 25% must have other issues, most

> likely viral/immune.

>

> 'They' being ARI and 27,000+ parents and physicians

>

> and for original poster, the reason we have little in the way of studies or

> research is the powers that be don;t want to know what happened because at

> that point the realisation will dawn that they got this way by something

> other than genetics and if kids get better then there must have been

> something wrong other than brain wiring, not least when the kid progresses

well

> until 18-24 months

>

> Mx

>

>

> In a message dated 30/11/2011 12:56:00 GMT Standard Time, Proctja@...

> writes:

>

>

>

>

> So when Andy Cutler says around 3/4s of autistic children have mercury

> causing them problems (higher %age in pdd-nos etc) and after reading your

> response below Mandi- once that mercury is cleared from the brain is the

> recovery rate in line with that or is it more of a case that 3/4s of autistic

> children have mercury probs but that alone will not sort things out - ie more

> complexities involved?

>

>

> Janet

>

>

> ____________________________________

> To: Autism-Biomedical-Europe

> From: Mum231ASD@...

> Date: Wed, 30 Nov 2011 07:24:26 -0500

> Subject: Re: Does BioMed actually work for

> Autism ?

>

>

>

>

> What you ask is individual, yes my son has improved 500% with biomed and

> when you start that low functioning, he didn't just grow out of it, my son

> was and is happy too

>

> I know one parent who has tried most everything in 12 years and he really

> isn;t any different to when he started, his gut is in very bad shape and he

> likely has PANDAS so that alone could count for masking any gains he might

> have made.

>

> I also have met fully recovered kids x 3 although I have read of more I

> believe its the exception rather than the rule.

>

> My friends son has moved from not walking, communicating, unable to grasp

> ABC, 123 to Menza level intelligence, still not talking much but uses FC,

> that was chelation, and I quote " Chelation made my brain feel better, I want

> more chelation "

>

> He is still in nappies, is riddled with measles virus, has biomed helped

> yes, is he like my son still impaired yes indeed.

>

> As there are no mainstream treatments for our kids, even if they present

> with mainstream problems, what choice do we have?

>

> Mandi x

>

>

> In a message dated 30/11/2011 11:46:38 GMT Standard Time,

> sayani_sainudeen@... writes:

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

> language development as of yet along with difficulties is social

> interaction. No ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed

> actually work or makes any difference. Some children improve as they get

older

> anyways.

>

> The question is - how do we know that biomed actually works - were the

> benefits that showed (months to years) after starting biomed actually due to

> the bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting

> parents opinion on bio med . Lack of evidence is not proof that something

does

> not work . In traditional medicine research and trials are important but

> would be difficult to subject children (atleast in the developed world ) to

> such unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _Reply to sender_

>

(mailto:proctja@...?subject=RE:%20 %20Does%20BioMed%20a\

ctually%20work%20for%20Autism%20?) | _Reply to

> group_

>

(mailto:Autism-Biomedical-Europe ?subject=RE:%20[Autism-Biomedica\

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[Guest guest]

This is true; the research money doesn't go into researching the efficacy of

educational and biomedical interventions but into useless projects that build

the careers of the researchers. Did you knoe the Autism research centre is

researching whether it's intelligent and systematic types such as engineers

marrying each other that casues more autism. What is the use of that to anyone?

Why not spend the money on something useful - for example comparing TEACCH as

implemented in special schools with ABA?

Margaret

>

> The lad I talk about below got that far on just DMSA, not used ALA yet, he

> also has cerebal palsy and viral issues.

>

> What they say is 75% of the kids improve with chelation, that's more than

> with diet drugs or any other supplements. 25% must have other issues, most

> likely viral/immune.

>

> 'They' being ARI and 27,000+ parents and physicians

>

> and for original poster, the reason we have little in the way of studies or

> research is the powers that be don;t want to know what happened because at

> that point the realisation will dawn that they got this way by something

> other than genetics and if kids get better then there must have been

> something wrong other than brain wiring, not least when the kid progresses

well

> until 18-24 months

>

> Mx

>

>

> In a message dated 30/11/2011 12:56:00 GMT Standard Time, Proctja@...

> writes:

>

>

>

>

> So when Andy Cutler says around 3/4s of autistic children have mercury

> causing them problems (higher %age in pdd-nos etc) and after reading your

> response below Mandi- once that mercury is cleared from the brain is the

> recovery rate in line with that or is it more of a case that 3/4s of autistic

> children have mercury probs but that alone will not sort things out - ie more

> complexities involved?

>

>

> Janet

>

>

> ____________________________________

> To: Autism-Biomedical-Europe

> From: Mum231ASD@...

> Date: Wed, 30 Nov 2011 07:24:26 -0500

> Subject: Re: Does BioMed actually work for

> Autism ?

>

>

>

>

> What you ask is individual, yes my son has improved 500% with biomed and

> when you start that low functioning, he didn't just grow out of it, my son

> was and is happy too

>

> I know one parent who has tried most everything in 12 years and he really

> isn;t any different to when he started, his gut is in very bad shape and he

> likely has PANDAS so that alone could count for masking any gains he might

> have made.

>

> I also have met fully recovered kids x 3 although I have read of more I

> believe its the exception rather than the rule.

>

> My friends son has moved from not walking, communicating, unable to grasp

> ABC, 123 to Menza level intelligence, still not talking much but uses FC,

> that was chelation, and I quote " Chelation made my brain feel better, I want

> more chelation "

>

> He is still in nappies, is riddled with measles virus, has biomed helped

> yes, is he like my son still impaired yes indeed.

>

> As there are no mainstream treatments for our kids, even if they present

> with mainstream problems, what choice do we have?

>

> Mandi x

>

>

> In a message dated 30/11/2011 11:46:38 GMT Standard Time,

> sayani_sainudeen@... writes:

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

> language development as of yet along with difficulties is social

> interaction. No ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed

> actually work or makes any difference. Some children improve as they get

older

> anyways.

>

> The question is - how do we know that biomed actually works - were the

> benefits that showed (months to years) after starting biomed actually due to

> the bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting

> parents opinion on bio med . Lack of evidence is not proof that something

does

> not work . In traditional medicine research and trials are important but

> would be difficult to subject children (atleast in the developed world ) to

> such unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> _Reply to sender_

>

(mailto:proctja@...?subject=RE:%20 %20Does%20BioMed%20a\

ctually%20work%20for%20Autism%20?) | _Reply to

> group_

>

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> | _Reply via web post_

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[Guest guest]

I suppose whether bio med will work for an individual depends on what is causing the presentation which gets the label of asd in that individual.For my son I am no longer concentrating on the asd label but more on bio chemical imbalances. We are carrying out testing to find out what nutritional difficiencies he has taking into account his genetics (through yasko) and as we override his genetic differences and supplement where is difficiences are we are seeing the distress and dificulties that gve him his asd label to be slowly disappearing.

The way I have presented this to my sons mainstream doctors is that it is no different to how mainstream medicine treat many illnesses.eg - type 2 diabetes - usually genetic but the error is bypassed and managed by giving insulin.

Pernicious anaemia - bypasses by giving B12 injectionsAlso many metabolic disorders such as PKU - strict no no protein diet as the body cannot proccess it without ill effect.

Even basics such as lactose intollerece is managed by avoiding lactose - its because the body does not have enough lactase enzymes to break it down.Managing autism through biomed is no different - the difficulties are is identifying where the problems are in the ist place.

I always find the basic info on Breakspear website is very useful to show mainstream drs. If you go onto wesite, then services then autism it gives a good description of how they investigate.

Mainstream work very much on a non individual basis and only accept things work if the same thing works for everyone with the diagnosis.  As asd is a spectrum this will never happen as it depends what is causing it in the ist place.

Many accepted genetic disorders such as downs syndrome have asd alongside but their primary disorder is not ignored.My daughter who does not have autism has an accepted blood disorder called diamond blackfan anaemia.  The appraoch we are taking is also managing her condition where blood transfusions are usually required every 4 weeks - she has only had 1 in last 3 years thankt to the bio med approach and correcting the way her body is working.

BWAlison R

 

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

 

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

 

'They' being ARI and 27,000+ parents and physicians

 

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

 

Mx

 

 

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved?  Janet 

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ? 

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

 

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

 

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

 

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote " Chelation made my brain feel better, I want more chelation "

 

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

 

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

 

Mandi x

 

  Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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..0.0.0.924528300R:00021d20 E:48981.992562523 V:10f4.138c.1.1.16.1.US S:LMRN48 [N3]3]]N]]sCollision [mN]

[Guest guest]

I suppose whether bio med will work for an individual depends on what is causing the presentation which gets the label of asd in that individual.For my son I am no longer concentrating on the asd label but more on bio chemical imbalances. We are carrying out testing to find out what nutritional difficiencies he has taking into account his genetics (through yasko) and as we override his genetic differences and supplement where is difficiences are we are seeing the distress and dificulties that gve him his asd label to be slowly disappearing.

The way I have presented this to my sons mainstream doctors is that it is no different to how mainstream medicine treat many illnesses.eg - type 2 diabetes - usually genetic but the error is bypassed and managed by giving insulin.

Pernicious anaemia - bypasses by giving B12 injectionsAlso many metabolic disorders such as PKU - strict no no protein diet as the body cannot proccess it without ill effect.

Even basics such as lactose intollerece is managed by avoiding lactose - its because the body does not have enough lactase enzymes to break it down.Managing autism through biomed is no different - the difficulties are is identifying where the problems are in the ist place.

I always find the basic info on Breakspear website is very useful to show mainstream drs. If you go onto wesite, then services then autism it gives a good description of how they investigate.

Mainstream work very much on a non individual basis and only accept things work if the same thing works for everyone with the diagnosis.  As asd is a spectrum this will never happen as it depends what is causing it in the ist place.

Many accepted genetic disorders such as downs syndrome have asd alongside but their primary disorder is not ignored.My daughter who does not have autism has an accepted blood disorder called diamond blackfan anaemia.  The appraoch we are taking is also managing her condition where blood transfusions are usually required every 4 weeks - she has only had 1 in last 3 years thankt to the bio med approach and correcting the way her body is working.

BWAlison R

 

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

 

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

 

'They' being ARI and 27,000+ parents and physicians

 

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

 

Mx

 

 

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved?  Janet 

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ? 

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

 

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

 

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

 

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote " Chelation made my brain feel better, I want more chelation "

 

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

 

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

 

Mandi x

 

  Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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..0.0.0.924528300R:00021d20 E:48981.992562523 V:10f4.138c.1.1.16.1.US S:LMRN48 [N3]3]]N]]sCollision [mN]

[Guest guest]

I suppose whether bio med will work for an individual depends on what is causing the presentation which gets the label of asd in that individual.For my son I am no longer concentrating on the asd label but more on bio chemical imbalances. We are carrying out testing to find out what nutritional difficiencies he has taking into account his genetics (through yasko) and as we override his genetic differences and supplement where is difficiences are we are seeing the distress and dificulties that gve him his asd label to be slowly disappearing.

The way I have presented this to my sons mainstream doctors is that it is no different to how mainstream medicine treat many illnesses.eg - type 2 diabetes - usually genetic but the error is bypassed and managed by giving insulin.

Pernicious anaemia - bypasses by giving B12 injectionsAlso many metabolic disorders such as PKU - strict no no protein diet as the body cannot proccess it without ill effect.

Even basics such as lactose intollerece is managed by avoiding lactose - its because the body does not have enough lactase enzymes to break it down.Managing autism through biomed is no different - the difficulties are is identifying where the problems are in the ist place.

I always find the basic info on Breakspear website is very useful to show mainstream drs. If you go onto wesite, then services then autism it gives a good description of how they investigate.

Mainstream work very much on a non individual basis and only accept things work if the same thing works for everyone with the diagnosis.  As asd is a spectrum this will never happen as it depends what is causing it in the ist place.

Many accepted genetic disorders such as downs syndrome have asd alongside but their primary disorder is not ignored.My daughter who does not have autism has an accepted blood disorder called diamond blackfan anaemia.  The appraoch we are taking is also managing her condition where blood transfusions are usually required every 4 weeks - she has only had 1 in last 3 years thankt to the bio med approach and correcting the way her body is working.

BWAlison R

 

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

 

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

 

'They' being ARI and 27,000+ parents and physicians

 

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

 

Mx

 

 

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved?  Janet 

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ? 

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

 

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

 

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

 

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote " Chelation made my brain feel better, I want more chelation "

 

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

 

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

 

Mandi x

 

  Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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..0.0.0.924528300R:00021d20 E:48981.992562523 V:10f4.138c.1.1.16.1.US S:LMRN48 [N3]3]]N]]sCollision [mN]

[Guest guest]

Thanks, that's something have puzzled on before- the distinction between improvment and recovery when the 75% figure is quoted. As you say it's all so individual as to what causes what. Apologies to butting in on your original post - personally think at some point in the future (probably in the far off future) mainstream medicine will have to look into why rates of autism and other developmental disorders are going up far quicker than any genetics explanation will allow for. Some of the writings of people like Andy Cutler, Amy Yasko and others do show another side to the debate that there is nothing that can be done. JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 08:09:22 -0500Subject: Re: Does BioMed actually work for Autism ?

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

'They' being ARI and 27,000+ parents and physicians

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

Mx

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved? Janet

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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..0.0.0.924528300R:00021d20 E:48981.992562523 V:10f4.138c.1.1.16.1.US S:LMRN48 [N3]3]]N]]sCollision [mN]

[Guest guest]

Thanks, that's something have puzzled on before- the distinction between improvment and recovery when the 75% figure is quoted. As you say it's all so individual as to what causes what. Apologies to butting in on your original post - personally think at some point in the future (probably in the far off future) mainstream medicine will have to look into why rates of autism and other developmental disorders are going up far quicker than any genetics explanation will allow for. Some of the writings of people like Andy Cutler, Amy Yasko and others do show another side to the debate that there is nothing that can be done. JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 08:09:22 -0500Subject: Re: Does BioMed actually work for Autism ?

The lad I talk about below got that far on just DMSA, not used ALA yet, he also has cerebal palsy and viral issues.

What they say is 75% of the kids improve with chelation, that's more than with diet drugs or any other supplements. 25% must have other issues, most likely viral/immune.

'They' being ARI and 27,000+ parents and physicians

and for original poster, the reason we have little in the way of studies or research is the powers that be don;t want to know what happened because at that point the realisation will dawn that they got this way by something other than genetics and if kids get better then there must have been something wrong other than brain wiring, not least when the kid progresses well until 18-24 months

Mx

So when Andy Cutler says around 3/4s of autistic children have mercury causing them problems (higher %age in pdd-nos etc) and after reading your response below Mandi- once that mercury is cleared from the brain is the recovery rate in line with that or is it more of a case that 3/4s of autistic children have mercury probs but that alone will not sort things out - ie more complexities involved? Janet

To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Wed, 30 Nov 2011 07:24:26 -0500Subject: Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy. I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways. The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways? I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder.. ANy comments would be appreciated. thanks

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..0.0.0.924528300R:00021d20 E:48981.992562523 V:10f4.138c.1.1.16.1.US S:LMRN48 [N3]3]]N]]sCollision [mN]

[Guest guest]

Not Mandi but my opinion fwiw is some children are considerably more damaged than others.

My youngest is 14 and profoundly autistic, he has made amazing strides with biomedical but mostly in the area of his general health and negative behaviours, he remains profound cognitively.

My older son who is 16 did not speak until shortly before starting school at 5yrs old, he had no interventions but began to speak, so clearly some children can improve without biomed, the question though is which children, and how much will they improve? Until someone can answer that question with certainty and/or offer a good alternative I shall continue to plug away, without biomed would still be screaming 24/7 irrespecitve of his brothers presentation or improvements. My other son is also being chelated and on supplements as language aquisition did NOT mean he was out of the woods.

Vicky

Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all

I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy.

I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways.

The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways?

I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder..

ANy comments would be appreciated.

thanks

[Guest guest]

Not Mandi but my opinion fwiw is some children are considerably more damaged than others.

My youngest is 14 and profoundly autistic, he has made amazing strides with biomedical but mostly in the area of his general health and negative behaviours, he remains profound cognitively.

My older son who is 16 did not speak until shortly before starting school at 5yrs old, he had no interventions but began to speak, so clearly some children can improve without biomed, the question though is which children, and how much will they improve? Until someone can answer that question with certainty and/or offer a good alternative I shall continue to plug away, without biomed would still be screaming 24/7 irrespecitve of his brothers presentation or improvements. My other son is also being chelated and on supplements as language aquisition did NOT mean he was out of the woods.

Vicky

Re: Does BioMed actually work for Autism ?

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote "Chelation made my brain feel better, I want more chelation"

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

Mandi x

Hi all

I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy.

I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways.

The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways?

I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder..

ANy comments would be appreciated.

thanks

[Guest guest]

Kath this is so great to hear especially when the older kids move forward, congratulations to you and your daughter and thanks for posting

Mandi x

Hi I have an 18 year old daughter who has very severe autism. She has had no medical help from the NHS. Her behaviour problems and aggression meant that no Doctor ever dared examine her.Regrettably we did not start biomedical interventions till 3 years ago when we started on a gluten free caesin free diet and basic vitamin/ mineral supplementation.The improvements in her behaviour began fairly quickly. Her aggression melted away and she became much more manageable, speech and language improved and she became much more interactive.Because she was more manageable we were able to embark on blood testing which has uncovered a whole host of underlying health problems which had gone untreated for 18 years.Everyone involved with my daughter has been amazed at her progress since we started biomed.. I just wish we had started it years ago instead of concentrating on ABA and educational mattersBest wishesKathSent from my iPad

[Guest guest]

Kath this is so great to hear especially when the older kids move forward, congratulations to you and your daughter and thanks for posting

Mandi x

Hi I have an 18 year old daughter who has very severe autism. She has had no medical help from the NHS. Her behaviour problems and aggression meant that no Doctor ever dared examine her.Regrettably we did not start biomedical interventions till 3 years ago when we started on a gluten free caesin free diet and basic vitamin/ mineral supplementation.The improvements in her behaviour began fairly quickly. Her aggression melted away and she became much more manageable, speech and language improved and she became much more interactive.Because she was more manageable we were able to embark on blood testing which has uncovered a whole host of underlying health problems which had gone untreated for 18 years.Everyone involved with my daughter has been amazed at her progress since we started biomed.. I just wish we had started it years ago instead of concentrating on ABA and educational mattersBest wishesKathSent from my iPad

[Guest guest]

My son also improved almost miraculously with biomed, almost all of the DAN protocol (sorting out diet, gut healing, basic supplementing) brought him very far.  His digestion is sorted (and it was horrible, even by conventional medical standards), he eats a wide variety of foods and he lost his autism diagnosis several years ago.   

However, we have also run an ABA program for 5 1/2 years now so I cannot attribute his recovery entirely to biomed but had he not had biomed he would never ever be as far along as he is now and he would not have been available for the learning that he did on his ABA program.  

Also, for whatever reason for my son, simple melatonin supplement makes the difference between a very very high functioning child and a low medium functioning child.  Fortunate for us we found out that melatonin was for him almost miraculous when he was only 2 years old.  I shudder to think where we would be now if he had not had melatonin for these last 6 years.  All the other supplements that he was on, I was able to take him off of them and maintain the gains but not with melatonin, as soon as he's off it, he regresses.  Maybe someday we will understand why.  This is categorically not true for many other children (that melatonin helps them) but I am so glad that we gave biomed a shot early on, it really made a difference for us. 

all the best. Darla

 

Not Mandi but my opinion fwiw is some children are considerably more damaged than others.

 My youngest is 14 and profoundly autistic, he has made amazing strides with biomedical but mostly in the area of his general health and negative behaviours, he remains profound cognitively.

My older son who is 16 did not speak until shortly before starting school at 5yrs old, he had no interventions but began to speak, so clearly some children can improve without biomed, the question though is which children, and how much will they improve?    Until someone can answer that question with certainty and/or offer a good alternative I shall continue to plug away, without biomed would still be screaming 24/7 irrespecitve of his brothers presentation or improvements.  My other son is also being chelated and on supplements as language aquisition did NOT mean he was out of the woods.

Vicky

  

Re: Does BioMed actually work for Autism ?

 

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

 

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

 

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

 

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote " Chelation made my brain feel better, I want more chelation "

 

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

 

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

 

Mandi x

 

 

Hi all

I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy.

I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways.

The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways?

I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder..

ANy comments would be appreciated.

thanks

[Guest guest]

My son also improved almost miraculously with biomed, almost all of the DAN protocol (sorting out diet, gut healing, basic supplementing) brought him very far.  His digestion is sorted (and it was horrible, even by conventional medical standards), he eats a wide variety of foods and he lost his autism diagnosis several years ago.   

However, we have also run an ABA program for 5 1/2 years now so I cannot attribute his recovery entirely to biomed but had he not had biomed he would never ever be as far along as he is now and he would not have been available for the learning that he did on his ABA program.  

Also, for whatever reason for my son, simple melatonin supplement makes the difference between a very very high functioning child and a low medium functioning child.  Fortunate for us we found out that melatonin was for him almost miraculous when he was only 2 years old.  I shudder to think where we would be now if he had not had melatonin for these last 6 years.  All the other supplements that he was on, I was able to take him off of them and maintain the gains but not with melatonin, as soon as he's off it, he regresses.  Maybe someday we will understand why.  This is categorically not true for many other children (that melatonin helps them) but I am so glad that we gave biomed a shot early on, it really made a difference for us. 

all the best. Darla

 

Not Mandi but my opinion fwiw is some children are considerably more damaged than others.

 My youngest is 14 and profoundly autistic, he has made amazing strides with biomedical but mostly in the area of his general health and negative behaviours, he remains profound cognitively.

My older son who is 16 did not speak until shortly before starting school at 5yrs old, he had no interventions but began to speak, so clearly some children can improve without biomed, the question though is which children, and how much will they improve?    Until someone can answer that question with certainty and/or offer a good alternative I shall continue to plug away, without biomed would still be screaming 24/7 irrespecitve of his brothers presentation or improvements.  My other son is also being chelated and on supplements as language aquisition did NOT mean he was out of the woods.

Vicky

  

Re: Does BioMed actually work for Autism ?

 

What you ask is individual, yes my son has improved 500% with biomed and when you start that low functioning, he didn't just grow out of it, my son was and is happy too

 

I know one parent who has tried most everything in 12 years and he really isn;t any different to when he started, his gut is in very bad shape and he likely has PANDAS so that alone could count for masking any gains he might have made.

 

I also have met fully recovered kids x 3 although I have read of more I believe its the exception rather than the rule.

 

My friends son has moved from not walking, communicating, unable to grasp ABC, 123 to Menza level intelligence, still not talking much but uses FC, that was chelation, and I quote " Chelation made my brain feel better, I want more chelation "

 

He is still in nappies, is riddled with measles virus, has biomed helped yes, is he like my son still impaired yes indeed.

 

As there are no mainstream treatments for our kids, even if they present with mainstream problems, what choice do we have?

 

Mandi x

 

 

Hi all

I was wondering if you could advice me. I have a 5 yr old boy who has no language development as of yet along with difficulties is social interaction. No ADHD and otherwise he is a very happy boy.

I am a GP and I am unable to find any scientific evidence that Biomed actually work or makes any difference. Some children improve as they get older anyways.

The question is - how do we know that biomed actually works - were the benefits that showed (months to years) after starting biomed actually due to the bio med or were these children who would have improved anyways?

I am not to or for biomed as of yet but would be interested in getting parents opinion on bio med . Lack of evidence is not proof that something does not work . In traditional medicine research and trials are important but would be difficult to subject children (atleast in the developed world ) to such unproven treatments which make getting the evidence even harder..

ANy comments would be appreciated.

thanks

[Guest guest]

Our charity, Treating Autism, conducted a survey and the results might be

interesting for you http://www.treatingautism.co.uk/why-biomedical/. Our

charity receives reports from parents all the time about how biomedical

interventions have improved the lives of their kids. They work. Not all the

time. Not always to the same degree. But they work. There is more and more

research revealing what is going on inside of our children. Knowing these

things, we can make educated decisions about biomedical interventions. You

might find this site helpful too: http://autismbiomed.com/home.html

Anita

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

[Guest guest]

Our charity, Treating Autism, conducted a survey and the results might be

interesting for you http://www.treatingautism.co.uk/why-biomedical/. Our

charity receives reports from parents all the time about how biomedical

interventions have improved the lives of their kids. They work. Not all the

time. Not always to the same degree. But they work. There is more and more

research revealing what is going on inside of our children. Knowing these

things, we can make educated decisions about biomedical interventions. You

might find this site helpful too: http://autismbiomed.com/home.html

Anita

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

[Guest guest]

Our charity, Treating Autism, conducted a survey and the results might be

interesting for you http://www.treatingautism.co.uk/why-biomedical/. Our

charity receives reports from parents all the time about how biomedical

interventions have improved the lives of their kids. They work. Not all the

time. Not always to the same degree. But they work. There is more and more

research revealing what is going on inside of our children. Knowing these

things, we can make educated decisions about biomedical interventions. You

might find this site helpful too: http://autismbiomed.com/home.html

Anita

>

> Hi all

>

> I was wondering if you could advice me. I have a 5 yr old boy who has no

language development as of yet along with difficulties is social interaction. No

ADHD and otherwise he is a very happy boy.

>

> I am a GP and I am unable to find any scientific evidence that Biomed actually

work or makes any difference. Some children improve as they get older anyways.

>

> The question is - how do we know that biomed actually works - were the

benefits that showed (months to years) after starting biomed actually due to the

bio med or were these children who would have improved anyways?

>

> I am not to or for biomed as of yet but would be interested in getting parents

opinion on bio med . Lack of evidence is not proof that something does not work

.. In traditional medicine research and trials are important but would be

difficult to subject children (atleast in the developed world ) to such

unproven treatments which make getting the evidence even harder..

>

> ANy comments would be appreciated.

>

> thanks

>

[Guest guest]

There trouble it with *****'s like Baron Cohen bleating on about genetics and ASD couples having babies casuing things it won;t happen, this rise started 20 years ago, it couldn;t have been genetic then anymore than it is now and still we bash our heads against brick wall.

My son is 15 in January, he is on the tidle wave of soon to be young adults that will hit soon, money talks and we are talking lots and lots of money, that might get their attention.

Its not like they don;t know anyways, Governmn=ent I mean, why agree to indemnify vaccine manufacturers against being sued? They think they are untouchable these politicians, they are aware of how much it would cost to compensate, pretty clueless they must be not to have worked out what not doing anything is going to cost them soon

Mandi x

Apologies to butting in on your original post - personally think at some point in the future (probably in the far off future) mainstream medicine will have to look into why rates of autism and other developmental disorders are going up far quicker than any genetics explanation will allow for. Some of the writings of people like Andy Cutler, Amy Yasko and others do show another side to the debate that there is nothing that can be done.

[Guest guest]

There trouble it with *****'s like Baron Cohen bleating on about genetics and ASD couples having babies casuing things it won;t happen, this rise started 20 years ago, it couldn;t have been genetic then anymore than it is now and still we bash our heads against brick wall.

My son is 15 in January, he is on the tidle wave of soon to be young adults that will hit soon, money talks and we are talking lots and lots of money, that might get their attention.

Its not like they don;t know anyways, Governmn=ent I mean, why agree to indemnify vaccine manufacturers against being sued? They think they are untouchable these politicians, they are aware of how much it would cost to compensate, pretty clueless they must be not to have worked out what not doing anything is going to cost them soon

Mandi x

Apologies to butting in on your original post - personally think at some point in the future (probably in the far off future) mainstream medicine will have to look into why rates of autism and other developmental disorders are going up far quicker than any genetics explanation will allow for. Some of the writings of people like Andy Cutler, Amy Yasko and others do show another side to the debate that there is nothing that can be done.

[Guest guest]

Thanks for posting this. It is so great to hear about your daughter's progress.

I once read a post about a woman starting biomed with her forty-something son,

and it helped him. These kinds of examples show that it is not a matter of

'growing out' of the medical problems and struggles, although some kids do

improve with age.

When I took my son in for his initial three day assessment, one of the

professionals there said something that struck me about a test my son was really

fighting against. " It will only get harder as he ages, so we might as well get

it done now " . That was her experience after years of testing ASD kids. The

older they were, the harder it became. My son, although nowhere near recovered,

is improved in many ways. The test would be much, much easier for him now.

Anita

>

> Hi

>

> I have an 18 year old daughter who has very severe autism. She has had no

medical help from the NHS. Her behaviour problems and aggression meant that no

Doctor ever dared examine her.

>

> Regrettably we did not start biomedical interventions till 3 years ago when we

started on a gluten free caesin free diet and basic vitamin/ mineral

supplementation.

>

> The improvements in her behaviour began fairly quickly. Her aggression melted

away and she became much more manageable, speech and language improved and she

became much more interactive.

>

> Because she was more manageable we were able to embark on blood testing

which has uncovered a whole host of underlying health problems which had gone

untreated for 18 years.

>

> Everyone involved with my daughter has been amazed at her progress since we

started biomed.. I just wish we had started it years ago instead of

concentrating on ABA and educational matters

>

> Best wishes

>

> Kath

>

> Sent from my iPad

>