Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi, I have only just found this site, and i think it is fantastic where you can write to other people with such similar problems. My daughter will be 7 this year, she is the middle child and is High- functioning Autistic. Now that i am through the denial stage, which is what i was in for quite sometime, i am now trying to do what i can for her. she is in regular school, with a government funded teachers aid, which is really tremendous. we can see progress, which is so wonderful. she is finally grasping reading and spelling and numbers, which was always a fear of mine, as i thought if she could not read, how would she ever cope!!!!She has a wonderful memory, which i hope in years to come, will be very useful to her.She will have her days where she does not want to co-operate,but it is to be expected i guess. bye for now, cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Welcome in !! new to group > Hi All, > I just wanted to say hi real quick and introduce myself. I just > joined the group today. I have two step-children, one with Autism, > and the other with Aspergers. I just recently got married back in > Feb. and it has definitely been a challenge for me to care for these > kids when they come to visit us every other weekend. However, I am > really wanting to learn more about it and I think the best way is to > learn from others that have experienced the same thing. I welcome any > suggestions, advice, etc. > > Looking forward to meeting some new friends and learning more about > Autism/Aspergers! > > thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Welcome in !! new to group > Hi All, > I just wanted to say hi real quick and introduce myself. I just > joined the group today. I have two step-children, one with Autism, > and the other with Aspergers. I just recently got married back in > Feb. and it has definitely been a challenge for me to care for these > kids when they come to visit us every other weekend. However, I am > really wanting to learn more about it and I think the best way is to > learn from others that have experienced the same thing. I welcome any > suggestions, advice, etc. > > Looking forward to meeting some new friends and learning more about > Autism/Aspergers! > > thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Welcome in !! new to group > Hi All, > I just wanted to say hi real quick and introduce myself. I just > joined the group today. I have two step-children, one with Autism, > and the other with Aspergers. I just recently got married back in > Feb. and it has definitely been a challenge for me to care for these > kids when they come to visit us every other weekend. However, I am > really wanting to learn more about it and I think the best way is to > learn from others that have experienced the same thing. I welcome any > suggestions, advice, etc. > > Looking forward to meeting some new friends and learning more about > Autism/Aspergers! > > thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hello ! I have 4 boys. 13yrs ADHD/Aspergers Geoffrey 12 yrs ADHD Jabari 8yrs ODD 6yrs ADHD/Asperger tendencies. Welcome to the group. If you have any questions no question is too small. We have all been through similar struggles. I homeschool & Geoffrey and am going to be homeschooling Jabari in the fall. Here you can vent your frustrations, boast of accomplishments or just get advice on how to get through the day. Have a good week. Chat with you later. Dawn.....Mom of 4 dstar39@... Why Wait? Move to EarthLink. new to group Hi All, I just wanted to say hi real quick and introduce myself. I just joined the group today. I have two step-children, one with Autism, and the other with Aspergers. I just recently got married back in Feb. and it has definitely been a challenge for me to care for these kids when they come to visit us every other weekend. However, I am really wanting to learn more about it and I think the best way is to learn from others that have experienced the same thing. I welcome any suggestions, advice, etc. Looking forward to meeting some new friends and learning more about Autism/Aspergers! thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hello ! I have 4 boys. 13yrs ADHD/Aspergers Geoffrey 12 yrs ADHD Jabari 8yrs ODD 6yrs ADHD/Asperger tendencies. Welcome to the group. If you have any questions no question is too small. We have all been through similar struggles. I homeschool & Geoffrey and am going to be homeschooling Jabari in the fall. Here you can vent your frustrations, boast of accomplishments or just get advice on how to get through the day. Have a good week. Chat with you later. Dawn.....Mom of 4 dstar39@... Why Wait? Move to EarthLink. new to group Hi All, I just wanted to say hi real quick and introduce myself. I just joined the group today. I have two step-children, one with Autism, and the other with Aspergers. I just recently got married back in Feb. and it has definitely been a challenge for me to care for these kids when they come to visit us every other weekend. However, I am really wanting to learn more about it and I think the best way is to learn from others that have experienced the same thing. I welcome any suggestions, advice, etc. Looking forward to meeting some new friends and learning more about Autism/Aspergers! thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Hello ! I have 4 boys. 13yrs ADHD/Aspergers Geoffrey 12 yrs ADHD Jabari 8yrs ODD 6yrs ADHD/Asperger tendencies. Welcome to the group. If you have any questions no question is too small. We have all been through similar struggles. I homeschool & Geoffrey and am going to be homeschooling Jabari in the fall. Here you can vent your frustrations, boast of accomplishments or just get advice on how to get through the day. Have a good week. Chat with you later. Dawn.....Mom of 4 dstar39@... Why Wait? Move to EarthLink. new to group Hi All, I just wanted to say hi real quick and introduce myself. I just joined the group today. I have two step-children, one with Autism, and the other with Aspergers. I just recently got married back in Feb. and it has definitely been a challenge for me to care for these kids when they come to visit us every other weekend. However, I am really wanting to learn more about it and I think the best way is to learn from others that have experienced the same thing. I welcome any suggestions, advice, etc. Looking forward to meeting some new friends and learning more about Autism/Aspergers! thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Glad to meet you, ! I'm Annie in Albuquerque (NM). Our crew is: Ron, almost 54, world's greatest husband of 30 years (almost), cancer & stroke survivor (although it looks like the cancer may be flaring up again), super musician (blues harp & bass) and all-around great guy. Kris, 35, our daughter in Arizona, either ADD or ADHD (misdiagnosed as bi-polar for ages), working for American Express, super kid. Louie, 24, our son here in town, HFA/AS, in assisted living, working as assistant janitor at a church, volunteer gigs filling bird feeders at a wildlife nature center up the road and visiting several older folks at a local nursing home/retirement center, super guy with a strange sense of humor, Special Olympic medalist 2 years running (literally; his medals are in track). Me, 56, M.A. in literature (n mainly) gotten in my 50's, HCV victim on the liver transplant list, retired (due to health) and enjoying it. Rounding out the crew is Chuckles, my husbands blue-crowned conure (small S. Amer. parrot; if you've seen " ie, " just like him) with a big mouth, an occasionally charming personality, and a wide vocabulary. And a tank fulla guppies, who shall remain nameless. You've found a good place both for information and to vent as needed. Welcome! Annie, who loves ya annie@... -- We have enough youth .... How about a fountain of smart? -- Skoge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2004 Report Share Posted June 21, 2004 Glad to meet you, ! I'm Annie in Albuquerque (NM). Our crew is: Ron, almost 54, world's greatest husband of 30 years (almost), cancer & stroke survivor (although it looks like the cancer may be flaring up again), super musician (blues harp & bass) and all-around great guy. Kris, 35, our daughter in Arizona, either ADD or ADHD (misdiagnosed as bi-polar for ages), working for American Express, super kid. Louie, 24, our son here in town, HFA/AS, in assisted living, working as assistant janitor at a church, volunteer gigs filling bird feeders at a wildlife nature center up the road and visiting several older folks at a local nursing home/retirement center, super guy with a strange sense of humor, Special Olympic medalist 2 years running (literally; his medals are in track). Me, 56, M.A. in literature (n mainly) gotten in my 50's, HCV victim on the liver transplant list, retired (due to health) and enjoying it. Rounding out the crew is Chuckles, my husbands blue-crowned conure (small S. Amer. parrot; if you've seen " ie, " just like him) with a big mouth, an occasionally charming personality, and a wide vocabulary. And a tank fulla guppies, who shall remain nameless. You've found a good place both for information and to vent as needed. Welcome! Annie, who loves ya annie@... -- We have enough youth .... How about a fountain of smart? -- Skoge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , my daughter was over 2 when we started casting and she has done wonderfully. She started at 70 degrees and now she is 35 out of cast, she was 15 in her last cast which was her 6th. She gets her 7th Jan. 27th. You will go through alot physically and emotionally but you guys will be okay! Always remember that your grandson, although he's young, will be able to handle this better than any adult could. Nora has always faired better than I possibly ever could've. It won't take long before he's himself again, which if he's like Nora means getting into everything possible! lol Please keep us updated and feel free to rant and rave as much as you like! And remember there is always someone here for you thats going through or has gone through the same things and have had the same feelings! Tonya Asheboro,nc mother of Nora,3 Subject: New to groupTo: infantile_scoliosis Date: Wednesday, December 30, 2009, 2:15 PM Hi, I am new to this group. I am raising my 2 year, 5 month old grandson. He has infantile scoliosis at 58 degrees and neurofibromatosis Type 1. He is scheduled for his first cast on January 19th. I don't know if his orthopedist at Loma University Medical Center in California has been trained in Mehta casting, although he did refer us to ISOP website. We are going to ask this question at his next appointment. Since we are just beginning the casting journey, I don't have much to say, but thought we could learn much from those who have traveled this road. Any words of wisdom at this point? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 you will be ok. I'm new to this group as well. My daughter Payge is 15 months and is sceduled to be casted feb 10. Her curve is not as bad as most the kids here. In nov it was 22* they plan to measure again before they cast but when we started this journey she was 4 months old and at 13* it was always let's wait and see what happens. So in a year she has gone up by 10* I have only been part of this group for a couple weeks now and i already learned so much. Way more than any dr could tell you unless they themselfs have went through it. It's all about experience in my eyes (to an extent) this group and everyone in it is amazing. They have made me realize I'm not alone in this. I'm still very scared bet not as much as before I met the CAST family. So you are welcome here glad to have you. I might not be able to answer many questions, but I'm a great listener. If you ever wanna vent Sent from my iPod Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hello Shauna I live in Vancouver and my son see the DR at BCCH. i will email you privately and give you some details Mom to Thaddeus 1 Year > > Hello, > > My name is Shauna Leamy. My Children are Kieran Leamy, Kelsey Leamy and a baby due in April who we are planning on naming at this time. My husband is . We live in Sooke BC, Canada. > > My son Kieran has had scoliosis since he was born, but was not diagnosed until he was 4 months old, Christmas of 2008. He is now 18 months old. His treatment has been " wait and see " until very recently and his curve is now 71 degrees (0.05 degrees from 72, usually stated as 72 by doctor.) He is in his first brace, custom made as the boston brace company had no brace for him. We are just starting to explore treatment options and the possibility of a congenital condition existing. > > We are hoping for the very best outcomes for our son, but it feels like time is passing so fast. We're starting to reach out to medical professionals beyond the doctor in our area, whose professional opinion of best treatment has been " wait and see " and finishes all his notes with " I expect his curve will in time fully self correct. " and does not believe in diagnostics. In my opinion, in the last week or two, he has reevaluated this rosy view of infantile scoliosis, but we are still several weeks off from seeing him again. In the mean time we are being referred to a medical professional in a bigger center, in Vancouver, although we don't really know what to think of the kinds of treatments he prefers until we know more about why our son has scoliosis and we are exploring the direction of the Shriners. > > > My husband has also recently joined the group too. We are very glad to be a part of this group and look forward to getting better acquainted. > The journeys I have read so far on this group are amazing, and so full of success, valuable and critical information, and good advice. The journeys of your children I have read are amazing too and very comforting. Thank you for having me in your group and I am so very pleased to meet you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 and Nate I can't give any info on Salt Lake Shriners but as far as what to experience at home I would say the first 2 days are by far the hardest. Keep telling yourself it will get better because it does. I would suggest having your daughter sit in a chair while at the hospital and make sure she can sit up without falling backwards. Our sons cast didn't get cut down enough on the bottom of the front side of the cast and we had to go back the next day to get it cut down. I would suggest purchasing a couple pairs of suspenders to help keep pants/shorts up so they don't fall down. I would suggest pull-up diapers (we tuck into the bottom of the cast but it is very tight at first but will loosen up with time). And getting shirts that are a size or 2 bigger then what she is currently wearing. Kids adapt a lot quicker then adults do and if you can get past the first couple days it is amazing how quickly they learn to do pretty much everything they were doing before. Maintaining balance is an issue at first but they build up new muscles to adapt very quickly but just be careful because she will fall over quite a bit at first because she will be so much top heavier.Hope some of this helps. Jammie (Dad to Wyatt down to 37 degrees from 74 degrees in cast #2) To: infantile_scoliosis Sent: Wed, February 17, 2010 2:42:22 PMSubject: New to group Hi everyone,We are new to the group. Our 2-year old daughter Audrey will be receiving a cast next week in Salt Lake City. She has been wearing a brace the past four months, and we would like to know what to expect from our stay at Shriners, as well as any advice you have for us and for taking care of Audrey in a cast.Thanks, and Nate Dawson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 and Nate I can't give any info on Salt Lake Shriners but as far as what to experience at home I would say the first 2 days are by far the hardest. Keep telling yourself it will get better because it does. I would suggest having your daughter sit in a chair while at the hospital and make sure she can sit up without falling backwards. Our sons cast didn't get cut down enough on the bottom of the front side of the cast and we had to go back the next day to get it cut down. I would suggest purchasing a couple pairs of suspenders to help keep pants/shorts up so they don't fall down. I would suggest pull-up diapers (we tuck into the bottom of the cast but it is very tight at first but will loosen up with time). And getting shirts that are a size or 2 bigger then what she is currently wearing. Kids adapt a lot quicker then adults do and if you can get past the first couple days it is amazing how quickly they learn to do pretty much everything they were doing before. Maintaining balance is an issue at first but they build up new muscles to adapt very quickly but just be careful because she will fall over quite a bit at first because she will be so much top heavier.Hope some of this helps. Jammie (Dad to Wyatt down to 37 degrees from 74 degrees in cast #2) To: infantile_scoliosis Sent: Wed, February 17, 2010 2:42:22 PMSubject: New to group Hi everyone,We are new to the group. Our 2-year old daughter Audrey will be receiving a cast next week in Salt Lake City. She has been wearing a brace the past four months, and we would like to know what to expect from our stay at Shriners, as well as any advice you have for us and for taking care of Audrey in a cast.Thanks, and Nate Dawson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 and Nate I can't give any info on Salt Lake Shriners but as far as what to experience at home I would say the first 2 days are by far the hardest. Keep telling yourself it will get better because it does. I would suggest having your daughter sit in a chair while at the hospital and make sure she can sit up without falling backwards. Our sons cast didn't get cut down enough on the bottom of the front side of the cast and we had to go back the next day to get it cut down. I would suggest purchasing a couple pairs of suspenders to help keep pants/shorts up so they don't fall down. I would suggest pull-up diapers (we tuck into the bottom of the cast but it is very tight at first but will loosen up with time). And getting shirts that are a size or 2 bigger then what she is currently wearing. Kids adapt a lot quicker then adults do and if you can get past the first couple days it is amazing how quickly they learn to do pretty much everything they were doing before. Maintaining balance is an issue at first but they build up new muscles to adapt very quickly but just be careful because she will fall over quite a bit at first because she will be so much top heavier.Hope some of this helps. Jammie (Dad to Wyatt down to 37 degrees from 74 degrees in cast #2) To: infantile_scoliosis Sent: Wed, February 17, 2010 2:42:22 PMSubject: New to group Hi everyone,We are new to the group. Our 2-year old daughter Audrey will be receiving a cast next week in Salt Lake City. She has been wearing a brace the past four months, and we would like to know what to expect from our stay at Shriners, as well as any advice you have for us and for taking care of Audrey in a cast.Thanks, and Nate Dawson Quote Link to comment Share on other sites More sharing options...
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