Guest guest Posted June 27, 2001 Report Share Posted June 27, 2001 Hi Tamara- don't worry about the length of your posts around here! I've been guilty a time or two. Sounds like you have had alot of experiences that can be helpful to other people. My cousin is 28, diagnosed autistic at 13, you can imagine what was not available to my aunt in her small, rural community back then. Welcome, Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , my daughter was over 2 when we started casting and she has done wonderfully. She started at 70 degrees and now she is 35 out of cast, she was 15 in her last cast which was her 6th. She gets her 7th Jan. 27th. You will go through alot physically and emotionally but you guys will be okay! Always remember that your grandson, although he's young, will be able to handle this better than any adult could. Nora has always faired better than I possibly ever could've. It won't take long before he's himself again, which if he's like Nora means getting into everything possible! lol Please keep us updated and feel free to rant and rave as much as you like! And remember there is always someone here for you thats going through or has gone through the same things and have had the same feelings! Tonya Asheboro,nc mother of Nora,3 Subject: New to groupTo: infantile_scoliosis Date: Wednesday, December 30, 2009, 2:15 PM Hi, I am new to this group. I am raising my 2 year, 5 month old grandson. He has infantile scoliosis at 58 degrees and neurofibromatosis Type 1. He is scheduled for his first cast on January 19th. I don't know if his orthopedist at Loma University Medical Center in California has been trained in Mehta casting, although he did refer us to ISOP website. We are going to ask this question at his next appointment. Since we are just beginning the casting journey, I don't have much to say, but thought we could learn much from those who have traveled this road. Any words of wisdom at this point? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , my daughter was over 2 when we started casting and she has done wonderfully. She started at 70 degrees and now she is 35 out of cast, she was 15 in her last cast which was her 6th. She gets her 7th Jan. 27th. You will go through alot physically and emotionally but you guys will be okay! Always remember that your grandson, although he's young, will be able to handle this better than any adult could. Nora has always faired better than I possibly ever could've. It won't take long before he's himself again, which if he's like Nora means getting into everything possible! lol Please keep us updated and feel free to rant and rave as much as you like! And remember there is always someone here for you thats going through or has gone through the same things and have had the same feelings! Tonya Asheboro,nc mother of Nora,3 Subject: New to groupTo: infantile_scoliosis Date: Wednesday, December 30, 2009, 2:15 PM Hi, I am new to this group. I am raising my 2 year, 5 month old grandson. He has infantile scoliosis at 58 degrees and neurofibromatosis Type 1. He is scheduled for his first cast on January 19th. I don't know if his orthopedist at Loma University Medical Center in California has been trained in Mehta casting, although he did refer us to ISOP website. We are going to ask this question at his next appointment. Since we are just beginning the casting journey, I don't have much to say, but thought we could learn much from those who have traveled this road. Any words of wisdom at this point? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 you will be ok. I'm new to this group as well. My daughter Payge is 15 months and is sceduled to be casted feb 10. Her curve is not as bad as most the kids here. In nov it was 22* they plan to measure again before they cast but when we started this journey she was 4 months old and at 13* it was always let's wait and see what happens. So in a year she has gone up by 10* I have only been part of this group for a couple weeks now and i already learned so much. Way more than any dr could tell you unless they themselfs have went through it. It's all about experience in my eyes (to an extent) this group and everyone in it is amazing. They have made me realize I'm not alone in this. I'm still very scared bet not as much as before I met the CAST family. So you are welcome here glad to have you. I might not be able to answer many questions, but I'm a great listener. If you ever wanna vent Sent from my iPod Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hello Shauna I live in Vancouver and my son see the DR at BCCH. i will email you privately and give you some details Mom to Thaddeus 1 Year > > Hello, > > My name is Shauna Leamy. My Children are Kieran Leamy, Kelsey Leamy and a baby due in April who we are planning on naming at this time. My husband is . We live in Sooke BC, Canada. > > My son Kieran has had scoliosis since he was born, but was not diagnosed until he was 4 months old, Christmas of 2008. He is now 18 months old. His treatment has been " wait and see " until very recently and his curve is now 71 degrees (0.05 degrees from 72, usually stated as 72 by doctor.) He is in his first brace, custom made as the boston brace company had no brace for him. We are just starting to explore treatment options and the possibility of a congenital condition existing. > > We are hoping for the very best outcomes for our son, but it feels like time is passing so fast. We're starting to reach out to medical professionals beyond the doctor in our area, whose professional opinion of best treatment has been " wait and see " and finishes all his notes with " I expect his curve will in time fully self correct. " and does not believe in diagnostics. In my opinion, in the last week or two, he has reevaluated this rosy view of infantile scoliosis, but we are still several weeks off from seeing him again. In the mean time we are being referred to a medical professional in a bigger center, in Vancouver, although we don't really know what to think of the kinds of treatments he prefers until we know more about why our son has scoliosis and we are exploring the direction of the Shriners. > > > My husband has also recently joined the group too. We are very glad to be a part of this group and look forward to getting better acquainted. > The journeys I have read so far on this group are amazing, and so full of success, valuable and critical information, and good advice. The journeys of your children I have read are amazing too and very comforting. Thank you for having me in your group and I am so very pleased to meet you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2010 Report Share Posted February 10, 2010 Hello Shauna I live in Vancouver and my son see the DR at BCCH. i will email you privately and give you some details Mom to Thaddeus 1 Year > > Hello, > > My name is Shauna Leamy. My Children are Kieran Leamy, Kelsey Leamy and a baby due in April who we are planning on naming at this time. My husband is . We live in Sooke BC, Canada. > > My son Kieran has had scoliosis since he was born, but was not diagnosed until he was 4 months old, Christmas of 2008. He is now 18 months old. His treatment has been " wait and see " until very recently and his curve is now 71 degrees (0.05 degrees from 72, usually stated as 72 by doctor.) He is in his first brace, custom made as the boston brace company had no brace for him. We are just starting to explore treatment options and the possibility of a congenital condition existing. > > We are hoping for the very best outcomes for our son, but it feels like time is passing so fast. We're starting to reach out to medical professionals beyond the doctor in our area, whose professional opinion of best treatment has been " wait and see " and finishes all his notes with " I expect his curve will in time fully self correct. " and does not believe in diagnostics. In my opinion, in the last week or two, he has reevaluated this rosy view of infantile scoliosis, but we are still several weeks off from seeing him again. In the mean time we are being referred to a medical professional in a bigger center, in Vancouver, although we don't really know what to think of the kinds of treatments he prefers until we know more about why our son has scoliosis and we are exploring the direction of the Shriners. > > > My husband has also recently joined the group too. We are very glad to be a part of this group and look forward to getting better acquainted. > The journeys I have read so far on this group are amazing, and so full of success, valuable and critical information, and good advice. The journeys of your children I have read are amazing too and very comforting. Thank you for having me in your group and I am so very pleased to meet you all. > Quote Link to comment Share on other sites More sharing options...
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