Re: NHS referrals - metabolics, brain scan, eeg.

[Guest guest]

Hi nah,

We have done loads for inflammation (and oxidative stress which is closely

related) including 190 rounds of chelation, HBOT, loads of supplements, the

right kind of diet, but it's not enough, and of course with something like HBOT,

which really did help while we were doing it, we cannot keep it up. I know

kids who have seen marked improvement with these interventions. Marked,

sustained improvement, but we're still missing pieces for what my son needs.

Anita

> > >

> > > Hi,

> > >

> > > We saw the paed. yesterday (3rd visit ever) - I went in with v. few

expectations.

> > >

> > > We mentioned the following: he regressed several times when he got ill

(colds, gut) and didn't regain progress on recovery; he " zones " in and out; that

we've worked hard on him immune system to avoid illness (and regressions),

which is going well, and that we've had gains on scd/antibiotics coinciding with

gut recovery.

> > >

> > > She said she was concerned that this might be something metabolic (!) and

that she'd like to do some metabolic testing, at which point I showed her his

most recent H & B and OAT.

> > >

> > > She looked at them, asked to copy to fwd to metabollic team, then said

she'd like to make the follow referals:

> > > 1) metabolic team;

> > > 2) brain scan;

> > > 3) eeg;

> > > 4) forward all results to GOSH and refer him there.

> > >

> > > I think this is a result, but also terrified at the implications! I

pressed her for what she might be looking for - eeg for seizure activity - we

don't have seizures to my knowledge - other wise she couldn't specify.

> > >

> > > Does anyone know what they might be looking for?

> > >

> > > Thanks in advance for any comments,

> > >

> > > nah

> > >

> >

>

[Guest guest]

Hi nah,

We have done loads for inflammation (and oxidative stress which is closely

related) including 190 rounds of chelation, HBOT, loads of supplements, the

right kind of diet, but it's not enough, and of course with something like HBOT,

which really did help while we were doing it, we cannot keep it up. I know

kids who have seen marked improvement with these interventions. Marked,

sustained improvement, but we're still missing pieces for what my son needs.

Anita

> > >

> > > Hi,

> > >

> > > We saw the paed. yesterday (3rd visit ever) - I went in with v. few

expectations.

> > >

> > > We mentioned the following: he regressed several times when he got ill

(colds, gut) and didn't regain progress on recovery; he " zones " in and out; that

we've worked hard on him immune system to avoid illness (and regressions),

which is going well, and that we've had gains on scd/antibiotics coinciding with

gut recovery.

> > >

> > > She said she was concerned that this might be something metabolic (!) and

that she'd like to do some metabolic testing, at which point I showed her his

most recent H & B and OAT.

> > >

> > > She looked at them, asked to copy to fwd to metabollic team, then said

she'd like to make the follow referals:

> > > 1) metabolic team;

> > > 2) brain scan;

> > > 3) eeg;

> > > 4) forward all results to GOSH and refer him there.

> > >

> > > I think this is a result, but also terrified at the implications! I

pressed her for what she might be looking for - eeg for seizure activity - we

don't have seizures to my knowledge - other wise she couldn't specify.

> > >

> > > Does anyone know what they might be looking for?

> > >

> > > Thanks in advance for any comments,

> > >

> > > nah

> > >

> >

>