Re: & Lucas

[Guest guest]

-

So glad to hear the casting went well and the ride home was so

pleasant!

I can feel your frustration with the drives. It is so hard driving

with two kids of that age. I can't imagine doing it alone every

other week! Yikes! I'm glad Caleb was able to entertain himself.

Hope the band comes in quickly and this one works like a charm!

Marci says such wonderful things about Bill. It's just too bad he

wasn't closer to you!

Have you ever considered Angel Flight to avoid the long car rides?

Dane's mom DOC Grad

[Guest guest]

Well we made it. I was really debating about what I should do, and if we should try and see CT in KC. I spent a lot of time praying and considering our options. I decided that since Bill is so experienced I still felt it was in Lucas best interests to stay with his office. I have had a very hard time with putting him in a second band. I finally decided that it was the best thing for him and it would be 100X worse for me then him. I knew that I needed to continue to make the sacrifice of the driving etc so he could have the 2nd band and the improvement. Lucas did so great during the casting I was amazed, I was prepared for him to handle it much worse then he did. Bill was amazed that there has been some change in just the 2 weeks since we were there. The measurements improved and his helmet was more snug. He did say it still was not enough change to explain everything though. My Dh and I thought we were imagining the changes, guess not! Bill said he talked with Orthomerica and they were expecting our casting. He put a rush on it so it should be ready the first part of next week, we hope!

So as frustrated as I am with 3 1/2 months and very little change I think maybe we are on the right track. I can only hope at least. Thanks to Debbie and for your support and encouragement. This past few months have been so hard I am so thankful I have had you both.

Caleb was an angel the whole ride home. I was amazed!!! I spent $5 at the Dollar Tree and he was entertained all 6 hours in the car!!!!!!! He has never done that before, best $5 I ever spent. I actually didn't even have to stop and drove the whole way.

The office should call the first part of the week when the helmet comes in, I will let you know.

in SW MissouriCaleb 2 1/2 and Lucas 10 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas

Hi :)So how did the 2nd casting go for Lucas yesterday? When will his new band be in? Hope it went well & you had a good trip (if that's possible with 2 young kids!!!).Debbie Abby's mom DOCGradMIFor more plagio info

[Guest guest]

Hi !

I'm SOOO happy to hear how well your trip and the dreaded casting

went yesterday. Sounds like Lucas handled it well and both they boys

enjoyed their car ride. I think you'll have to make more trips to

the dollar tree prior to your visits - LOL.

I hope they get the new band in soon & I hope it does the trick.

Keep us posted & thank you for your kind words

Debbie Abby's mom DOCGrad

MI

> Well we made it. I was really debating about what I should do, and

if we should try and see CT in KC. I spent a lot of time praying and

considering our options. I decided that since Bill is so experienced

I still felt it was in Lucas best interests to stay with his office.

I have had a very hard time with putting him in a second band. I

finally decided that it was the best thing for him and it would be

100X worse for me then him. I knew that I needed to continue to make

the sacrifice of the driving etc so he could have the 2nd band and

the improvement. Lucas did so great during the casting I was amazed,

I was prepared for him to handle it much worse then he did. Bill was

amazed that there has been some change in just the 2 weeks since we

were there. The measurements improved and his helmet was more snug.

He did say it still was not enough change to explain everything

though. My Dh and I thought we were imagining the changes, guess not!

Bill said he talked with Orthomerica and they were expecting our

casting. He put a rush on it so it should be ready the first part of

next week, we hope!

> So as frustrated as I am with 3 1/2 months and very little change I

think maybe we are on the right track. I can only hope at least.

Thanks to Debbie and for your support and encouragement. This

past few months have been so hard I am so thankful I have had you

both.

> Caleb was an angel the whole ride home. I was amazed!!! I spent $5

at the Dollar Tree and he was entertained all 6 hours in the

car!!!!!!! He has never done that before, best $5 I ever spent. I

actually didn't even have to stop and drove the whole way.

> The office should call the first part of the week when the helmet

comes in, I will let you know.

>

>

> in SW Missouri

> Caleb 2 1/2 and Lucas 10 months (starbanded 1st time 8/26/2 and

banded 2nd time on 12/12/2)

> & Lucas

>

>

> Hi

> So how did the 2nd casting go for Lucas yesterday? When will his

new

> band be in? Hope it went well & you had a good trip (if that's

> possible with 2 young kids!!!).

> Debbie Abby's mom DOCGrad

> MI

>

>

> For more plagio info

[Guest guest]

Debbie,

Hello!!!! Yes we are still here and plugging away on this helmet. Lucas goes back on Thursday.............and I am dreading it. I DO NOT want to go. UGH!!!!!! I am really beginning to hate that band. I hope his ears really do align because that is one of the things that bothers me the most. I can not wait until we get to post our graduation announcement!! How I look forward to that day.Hope you and Abby are well,

in SW MissouriCaleb 2 1/2 and Lucas 11 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas

Hi :Curious how Lucas is doing in his band? Please give us a GOOD update :)Debbie Abby's mom DOCGradMIFor more plagio info

[Guest guest]

Hi ,

I don't have the drive like many of you. I just wanted to agree with you about my Jenna's ears. It is the thing that bothers me the most. I don't think they have improved to much. I really am praying for improvement. She will probably have her Starband until sometime in February. I hope they improve. Good luck with Lucas!

Angie and Jenna(Starbanded 10/21)

& Lucas

Hi :Curious how Lucas is doing in his band? Please give us a GOOD update :)Debbie Abby's mom DOCGradMIFor more plagio info

[Guest guest]

Let us know how your appt goes Thursday. I remember dreading our

next trip as soon as we got home from our current trip!! LOL - and I

only had ONE kid and our drive was " only " 4 hrs one way, not 8 hrs

like your drive!

I hope Bill sees a big old growth spurt

Drive safe.

Debbie abby's mom DOCGrad

MI

> Debbie,

> Hello!!!! Yes we are still here and plugging away on this helmet.

Lucas goes back on Thursday.............and I am dreading it. I DO

NOT want to go. UGH!!!!!! I am really beginning to hate that band. I

hope his ears really do align because that is one of the things that

bothers me the most. I can not wait until we get to post our

graduation announcement!! How I look forward to that day.

> Hope you and Abby are well,

>

>

> in SW Missouri

> Caleb 2 1/2 and Lucas 11 months (starbanded 1st time 8/26/2 and

banded 2nd time on 12/12/2)

> & Lucas

>

>

> Hi :

> Curious how Lucas is doing in his band? Please give us a GOOD

update

> Debbie Abby's mom DOCGrad

> MI

>

>

>

[Guest guest]

Thanks for the encouragement. I will not be taking Lucas this week, actually our appt was today. I have had some health concerns this week and my DR wants me to stay here. Also Lucas has had massive diarrhea and I mean MASSIVE. This child has never had a blowout, never. If anything his diapers are hard, very, very rarely are they soft. Last night it was every where, the back, the legs, even all over the front, and got Dad really good too. I wasn't even home to help clean him up and my DH did it all by himself, I was so proud. Well I digress, sorry for talking about poop!!!! LOL

in SW MissouriCaleb 2 1/2 and Lucas 11 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas> > > Hi :> Curious how Lucas is doing in his band? Please give us a GOOD update > Debbie Abby's mom DOCGrad> MI> > >

[Guest guest]

-

I hope you and Lucas mend up quickly!

Dane's mom DOC Grad

[Guest guest]

Yuk !

I hope you all get better soon. Diarrhea is horrible, Abby had it

for like a month straight when she was 8 or 9 mos old, then of course

you're guaranteed a major diaper rash to go along with it. It's no

fun. I got the good old " it's a virus & has to run it's course " . I

was so totally frustrated! Threw away countless onesies & sleepers -

they just weren't worth washing & cleaning!

Take it easy

Debbie Abby's mom DOCGrad

MI

[Guest guest]

We hope you are all feeling better soon.

Angie and Jenna

& Lucas> > > Hi :> Curious how Lucas is doing in his band? Please give us a GOOD update > Debbie Abby's mom DOCGrad> MI> > >

[Guest guest]

Oh no - poor mom and poor Lucas. Diarrhea is no fun at all! It's

amazing how important and appropriate it becomes to discuss

poop when you become a mom! LOL!

Marci

> > Debbie,

> > Hello!!!! Yes we are still here and plugging away on this

helmet.

> Lucas goes back on Thursday.............and I am dreading it. I

DO

> NOT want to go. UGH!!!!!! I am really beginning to hate that

band. I

> hope his ears really do align because that is one of the things

that

> bothers me the most. I can not wait until we get to post our

> graduation announcement!! How I look forward to that day.

> > Hope you and Abby are well,

> >

> >

> > in SW Missouri

> > Caleb 2 1/2 and Lucas 11 months (starbanded 1st time

8/26/2 and

> banded 2nd time on 12/12/2)

> > & Lucas

> >

> >

> > Hi :

> > Curious how Lucas is doing in his band? Please give us

a GOOD

> update

> > Debbie Abby's mom DOCGrad

> > MI

> >

> >

> >

[Guest guest]

,

Oh poor Lucas! I hope he's over the diarrhea and feeling better soon!

' Mom

[Guest guest]

Thanks it has been no fun but hopefully we should be over soon

Hello to ,

in SW MissouriCaleb 2 1/2 and Lucas 11 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas> > > > > > Hi :> > Curious how Lucas is doing in his band? Please give us a GOOD > update > > Debbie Abby's mom DOCGrad> > MI> > > > > >

[Guest guest]

Thanks me too

in SW MissouriCaleb 2 1/2 and Lucas 11 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas> > > Hi :> Curious how Lucas is doing in his band? Please give us a GOOD update > Debbie Abby's mom DOCGrad> MI> > >

[Guest guest]

hope you both are better soon.

Beck

[Guest guest]

Debbie,

Thanks for asking. Lucas has not been in his band because it was causing those dreaded red spots and he was starting to take it off! He has not been technically discharged as of yet. I suspect that he will be when we go back for all the tests in two weeks.

We do see lots of improvement in the forehead bossing and flatness. The ear alignment is still off, but not noticeable to most people.

I hate to admit it, but I have really put the plagio on the back burner. I have been so overwhelmed with all of his other needs. I went through a really deep depression when we were told about the PPD and hearing loss. It was all I could do to feed and clothe my boys everyday. So in a nutshell I think we are done with the band. I can not wait to post the "graduation' post after waiting 9 very long months!!

Thanks to all!!

Hi!!Boy have I missed you all. Thank you for all your well wishes and prayers they are much appreciated. Baby Alisia and I are doing well.She's a tiny little girl, she is up to 5 lbs 6 oz. Thankfully she is healthy!! Welcome to all new members, you've come to the right place for support. This is a great group!I hope everyone's babies are rounding nicely.For more plagio info

[Guest guest]

Oh :I'm so sorry to hear about his hearing loss & other concerns. I can only imagine how upsetting this is for you & your family. I don't know how I'd handle it. You're obviously one helluva great and strong mom, he's so fortunate he has you.

It does sound like it's time to be done w/the band. My goodness, I'm sure you're more than ready to retire that thing!! I'm happy he did finally receive some correction, any little bit is better than nothing.

Please keep us posted on him...Give him and Caleb a kiss from Abby

HUGS

Debbie Abby's mom DOCGrad

MI and Aley <aleys@...> wrote:

Debbie,

Thanks for asking. Lucas has not been in his band because it was causing those dreaded red spots and he was starting to take it off! He has not been technically discharged as of yet. I suspect that he will be when we go back for all the tests in two weeks.

We do see lots of improvement in the forehead bossing and flatness. The ear alignment is still off, but not noticeable to most people.

I hate to admit it, but I have really put the plagio on the back burner. I have been so overwhelmed with all of his other needs. I went through a really deep depression when we were told about the PPD and hearing loss. It was all I could do to feed and clothe my boys everyday. So in a nutshell I think we are done with the band. I can not wait to post the "graduation' post after waiting 9 very long months!!

Thanks to all!!

Hi!!Boy have I missed you all. Thank you for all your well wishes and prayers they are much appreciated. Baby Alisia and I are doing well.She's a tiny little girl, she is up to 5 lbs 6 oz. Thankfully she is healthy!! Welcome to all new members, you've come to the right place for support. This is a great group!I hope everyone's babies are rounding nicely.For more plagio info

[Guest guest]

Debbie,

Oh boy, you give me to much credit. I haven't handled it well at all, but hey I am not in denial anymore. That is progress and a step in the right direction. I agree, I guess we are done with band. I am anxious to make it official. I am glad we did and thankful we got as much correction as we did. I will keep you posted and watch for the graduation announcement. We will go back on approx. May 9. Thanks for all your encouraging words, I appreciate it!

in SW MissouriCaleb 2 1/2 and Lucas 14 months (starbanded 1st time 8/26/2 and banded 2nd time on 12/12/2)

& Lucas

Hi :How is Lucas progressing in his band? Any more correction. I hope he's doing well with everything

Hugs!

Debbie Abby's mom DOCGrad

MI

[Guest guest]

Debbie,

You are so sweet and thoughtful to ask. Yes we are okay. Lucas is doing well. We return to the ped. neuro in OKC on Weds. Hopefully we get the diagnosis of PDD "officially". This make it possible for Lucas to qualify for those "extra" services. The EI and therapy has been an absolute "god send", quite literally. I am holding up fairly well, the first few weeks were hard, but now I have accepted it and moved on. So what if things are more difficult for Lucas in some areas, things could be a lot worse. I know that there are some moms on the list who have kids facing more struggles then we are. The hardest part is when he is around other kids his age and it is painfully obvious that there is some serious deficits.

I am soooooo glad we did the helmet. People have asked me how he his doing, I am so thrilled to tell them of his results. I hope others in my area will not be afraid to treat their kids, even if it is so far to go for treatment.

We are keeping are fingers crossed that Caleb gets a spot for preschool this fall. I should know more on Tuesday afternoon. I start the BIG potty training adventure on Thursday. I can not believe he will be 3 a week from Weds. They really do grow so fast.

Okay, sorry for rambling....this was probably more than you asked for. LOL

Take care and have a nice holiday,

in SW MissouriCaleb 2 1/2 and Lucas 15 months (starbanded 1st time 8/26/2 and banded 2nd time from 12/12/2 to 5/9/2003)

and Aley aleys@...

-----Original Message-----From: Debbie [mailto:dj2kirby@...] Sent: Sunday, May 25, 2003 8:47 PMPlagiocephaly Subject: & Lucas

Hi :Just checking in on your family. I hope things are going ok w/Lucas. Hugs!!

Debbie Abby's mom and Aley <aleys@...> wrote:

Wanda,

Wow you are really amazing to stay so positive. I am sure everything Kassidy is facing with helmet, and having 2 little one(and 3 on it's way) it must be overwhelming. You are doing a great job...............my hats off to you.

in SW MissouriCaleb 2 1/2 and Lucas 15 months (starbanded 1st time 8/26/2 and banded 2nd time from 12/12/2 to 5/9/2003)

For more plagio info