Re: Puberty and Oral Contraceptives

[Guest guest]

Hi Jill my name is Bridget, My daughter is 8 and I am dreading this issue. I am

not a Doctor but I cannot imagine giving anyone let alone a young girl a pill so

she does not get her period. I will find info.for you on the Pill and Breast

cancer and other health related issues. It does not seem at all safe and I know

" they " have come out with more info on periods and the pill. How about something

Homeopathic? I could ask my doctor if you would like?

Bridget

8 PDD-NOS, Isaac 7, 5, 3, Lydia 2, ph 6 months.

Re: Puberty and Oral Contraceptives

Hello, Jill,

I am new to this group and this is exactly the topic I am trying to

get information on as well. My daughter is going on 10 and is

already showing the early signs. I had a long conversation with my

pediatrician who acknowledged that she was not very familiar with

handling this issue with girls with disabilities and has agreed to

contact a gynecologist in the area that specializes in adolescents.

The first question I had was of course on birth control as my

daughter will not be able to manage this herself. I have heard

anything from starting the pill right away to waiting a year. It has

also been suggested that I look at diproprovera (spelling?) which

stops the period for 3 months.

Have you discussed this with your gynecologist? It has been my

experience that it is usually best to speak with a specialist than a

pediatrician (my original pediatrician missed diagnosing my

daughter's Celiac disease). I am meeting with my current ped again

next week and I'll let you know what she found out from the other

doctor.

Best regards,

Barb

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her

first period

> Father's Day, and has been having a period every 3 weeks. The

first one was

> light, but since then they have been pretty heavy. We have been

working with

> her to wear her pad, but she often wants to sneak and remove it...a

big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral

contraceptives to

> regulate and lighten her periods, but normally they don't like to

start those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

Hi Jill my name is Bridget, My daughter is 8 and I am dreading this issue. I am

not a Doctor but I cannot imagine giving anyone let alone a young girl a pill so

she does not get her period. I will find info.for you on the Pill and Breast

cancer and other health related issues. It does not seem at all safe and I know

" they " have come out with more info on periods and the pill. How about something

Homeopathic? I could ask my doctor if you would like?

Bridget

8 PDD-NOS, Isaac 7, 5, 3, Lydia 2, ph 6 months.

Re: Puberty and Oral Contraceptives

Hello, Jill,

I am new to this group and this is exactly the topic I am trying to

get information on as well. My daughter is going on 10 and is

already showing the early signs. I had a long conversation with my

pediatrician who acknowledged that she was not very familiar with

handling this issue with girls with disabilities and has agreed to

contact a gynecologist in the area that specializes in adolescents.

The first question I had was of course on birth control as my

daughter will not be able to manage this herself. I have heard

anything from starting the pill right away to waiting a year. It has

also been suggested that I look at diproprovera (spelling?) which

stops the period for 3 months.

Have you discussed this with your gynecologist? It has been my

experience that it is usually best to speak with a specialist than a

pediatrician (my original pediatrician missed diagnosing my

daughter's Celiac disease). I am meeting with my current ped again

next week and I'll let you know what she found out from the other

doctor.

Best regards,

Barb

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her

first period

> Father's Day, and has been having a period every 3 weeks. The

first one was

> light, but since then they have been pretty heavy. We have been

working with

> her to wear her pad, but she often wants to sneak and remove it...a

big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral

contraceptives to

> regulate and lighten her periods, but normally they don't like to

start those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

Hi Jill my name is Bridget, My daughter is 8 and I am dreading this issue. I am

not a Doctor but I cannot imagine giving anyone let alone a young girl a pill so

she does not get her period. I will find info.for you on the Pill and Breast

cancer and other health related issues. It does not seem at all safe and I know

" they " have come out with more info on periods and the pill. How about something

Homeopathic? I could ask my doctor if you would like?

Bridget

8 PDD-NOS, Isaac 7, 5, 3, Lydia 2, ph 6 months.

Re: Puberty and Oral Contraceptives

Hello, Jill,

I am new to this group and this is exactly the topic I am trying to

get information on as well. My daughter is going on 10 and is

already showing the early signs. I had a long conversation with my

pediatrician who acknowledged that she was not very familiar with

handling this issue with girls with disabilities and has agreed to

contact a gynecologist in the area that specializes in adolescents.

The first question I had was of course on birth control as my

daughter will not be able to manage this herself. I have heard

anything from starting the pill right away to waiting a year. It has

also been suggested that I look at diproprovera (spelling?) which

stops the period for 3 months.

Have you discussed this with your gynecologist? It has been my

experience that it is usually best to speak with a specialist than a

pediatrician (my original pediatrician missed diagnosing my

daughter's Celiac disease). I am meeting with my current ped again

next week and I'll let you know what she found out from the other

doctor.

Best regards,

Barb

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her

first period

> Father's Day, and has been having a period every 3 weeks. The

first one was

> light, but since then they have been pretty heavy. We have been

working with

> her to wear her pad, but she often wants to sneak and remove it...a

big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral

contraceptives to

> regulate and lighten her periods, but normally they don't like to

start those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

Hello, Jill,

I am new to this group and this is exactly the topic I am trying to

get information on as well. My daughter is going on 10 and is

already showing the early signs. I had a long conversation with my

pediatrician who acknowledged that she was not very familiar with

handling this issue with girls with disabilities and has agreed to

contact a gynecologist in the area that specializes in adolescents.

The first question I had was of course on birth control as my

daughter will not be able to manage this herself. I have heard

anything from starting the pill right away to waiting a year. It has

also been suggested that I look at diproprovera (spelling?) which

stops the period for 3 months.

Have you discussed this with your gynecologist? It has been my

experience that it is usually best to speak with a specialist than a

pediatrician (my original pediatrician missed diagnosing my

daughter's Celiac disease). I am meeting with my current ped again

next week and I'll let you know what she found out from the other

doctor.

Best regards,

Barb

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her

first period

> Father's Day, and has been having a period every 3 weeks. The

first one was

> light, but since then they have been pretty heavy. We have been

working with

> her to wear her pad, but she often wants to sneak and remove it...a

big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral

contraceptives to

> regulate and lighten her periods, but normally they don't like to

start those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

What about tampons? I know they can be more difficult to teach

because of fine motor issues, but they made me feel much better

because I didn't have to feel the cycle.

Also, evening primrose oil in small amounts can help some young

ladies.

Debi

> Dear Listmates:

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

[Guest guest]

What about tampons? I know they can be more difficult to teach

because of fine motor issues, but they made me feel much better

because I didn't have to feel the cycle.

Also, evening primrose oil in small amounts can help some young

ladies.

Debi

> Dear Listmates:

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

[Guest guest]

What about tampons? I know they can be more difficult to teach

because of fine motor issues, but they made me feel much better

because I didn't have to feel the cycle.

Also, evening primrose oil in small amounts can help some young

ladies.

Debi

> Dear Listmates:

> Have any of you used oral contraceptives with your girls and at

what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

[Guest guest]

I was a virgin and used them beginning at 12 yrs of age, with my

second period. Allie has an issue with her vagina being partially

grown together, called a labial adhesion, so I can understand your

concerns. The only think I'm thinking about the pill is that it can

make it difficult, behavior-wise. I could never take the pill

without feeling absolutely horrid, and I know a couple of girls who

became violent when put on them. But, there are plenty of young

ladies who take it with no problem.

Have you tried different brands or different thicknesses? I read

somewhere that they have an entire disposable panty for periods now.

I don't know if the urinary incontinence pads would work, or not.

I hope you find something to work. I was laying in bed last night

thinking of the issue and it suddenly hit me in the face, " I'm gonna

have to deal with this with ALLIE! "

HTH,

Debi

> We haven't used contraceptives but the tampon thing we did try.

>

> As Annie's hymen still is intact (virgin) she cannot use them.

Guess a OBGYN could fix the hymen issue but we still stick with pads.

>

> Annie's mother

> Dianna

>

>

>

[Guest guest]

I was a virgin and used them beginning at 12 yrs of age, with my

second period. Allie has an issue with her vagina being partially

grown together, called a labial adhesion, so I can understand your

concerns. The only think I'm thinking about the pill is that it can

make it difficult, behavior-wise. I could never take the pill

without feeling absolutely horrid, and I know a couple of girls who

became violent when put on them. But, there are plenty of young

ladies who take it with no problem.

Have you tried different brands or different thicknesses? I read

somewhere that they have an entire disposable panty for periods now.

I don't know if the urinary incontinence pads would work, or not.

I hope you find something to work. I was laying in bed last night

thinking of the issue and it suddenly hit me in the face, " I'm gonna

have to deal with this with ALLIE! "

HTH,

Debi

> We haven't used contraceptives but the tampon thing we did try.

>

> As Annie's hymen still is intact (virgin) she cannot use them.

Guess a OBGYN could fix the hymen issue but we still stick with pads.

>

> Annie's mother

> Dianna

>

>

>

[Guest guest]

My personal opinion is that there are many medical risks involved with going on

" the pill " for all of us, and I wouldn't subject my daughter to those without

there being a reason other than to keep her periods at bay. I could see it if

menstruation was a real nightmare for her--causing meltdowns, for instance, or

to help even out a totally unpredictable cycle--but even then I think I'd try to

make my daughter see that it's a natural part of being a woman. There's a lot

to be said for (the newest version of) natural family planning even when it

isn't used for birth control--it let's women know about their entire cycle, not

just the week of their period. It can give the girls a way to determine when

they can expect their periods so they have time to be prepared and feel more " in

control " over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

jillplato@... wrote:

Dear Listmates:

Hi! I have a 13 yr old daughter with autism. She started her first period

Father's Day, and has been having a period every 3 weeks. The first one was

light, but since then they have been pretty heavy. We have been working with

her to wear her pad, but she often wants to sneak and remove it...a big

challenge.

When I spoke to her pediatrician in July, we discussed oral contraceptives to

regulate and lighten her periods, but normally they don't like to start those

until the girls has had her period for 2 yrs.

Have any of you used oral contraceptives with your girls and at what age?

Any suggestions or info would help so much!

Jill

(never a dull moment in Illinois, but I am sure ready for one!!)

[Guest guest]

My personal opinion is that there are many medical risks involved with going on

" the pill " for all of us, and I wouldn't subject my daughter to those without

there being a reason other than to keep her periods at bay. I could see it if

menstruation was a real nightmare for her--causing meltdowns, for instance, or

to help even out a totally unpredictable cycle--but even then I think I'd try to

make my daughter see that it's a natural part of being a woman. There's a lot

to be said for (the newest version of) natural family planning even when it

isn't used for birth control--it let's women know about their entire cycle, not

just the week of their period. It can give the girls a way to determine when

they can expect their periods so they have time to be prepared and feel more " in

control " over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

jillplato@... wrote:

Dear Listmates:

Hi! I have a 13 yr old daughter with autism. She started her first period

Father's Day, and has been having a period every 3 weeks. The first one was

light, but since then they have been pretty heavy. We have been working with

her to wear her pad, but she often wants to sneak and remove it...a big

challenge.

When I spoke to her pediatrician in July, we discussed oral contraceptives to

regulate and lighten her periods, but normally they don't like to start those

until the girls has had her period for 2 yrs.

Have any of you used oral contraceptives with your girls and at what age?

Any suggestions or info would help so much!

Jill

(never a dull moment in Illinois, but I am sure ready for one!!)

[Guest guest]

My personal opinion is that there are many medical risks involved with going on

" the pill " for all of us, and I wouldn't subject my daughter to those without

there being a reason other than to keep her periods at bay. I could see it if

menstruation was a real nightmare for her--causing meltdowns, for instance, or

to help even out a totally unpredictable cycle--but even then I think I'd try to

make my daughter see that it's a natural part of being a woman. There's a lot

to be said for (the newest version of) natural family planning even when it

isn't used for birth control--it let's women know about their entire cycle, not

just the week of their period. It can give the girls a way to determine when

they can expect their periods so they have time to be prepared and feel more " in

control " over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

jillplato@... wrote:

Dear Listmates:

Hi! I have a 13 yr old daughter with autism. She started her first period

Father's Day, and has been having a period every 3 weeks. The first one was

light, but since then they have been pretty heavy. We have been working with

her to wear her pad, but she often wants to sneak and remove it...a big

challenge.

When I spoke to her pediatrician in July, we discussed oral contraceptives to

regulate and lighten her periods, but normally they don't like to start those

until the girls has had her period for 2 yrs.

Have any of you used oral contraceptives with your girls and at what age?

Any suggestions or info would help so much!

Jill

(never a dull moment in Illinois, but I am sure ready for one!!)

[Guest guest]

My daughter has had wacking periods since June of 2003, and has had blood

work, ultrasounds and internal examination. Fortunately, it is due to her

being somewhat overweight, and we are working on increasing her exercise.

She is as active as we would like. Anyway, she is 14 and the new female

gyno we visited suggested DEPO injections. NO WAY. She had inplied that

when my daughter was older she may be having " sex in the classroom " (yeah,

could happen, but Highly unlikely). I didn't care for her general attitude

in general. Some women/girls react badly to contraceptive drugs, mood

swings, weight gains, high blood pressure, clots, etc. and we DO NOT need

that either. Having a wacky period with tolerable mood swings is better

than a hormonally induced injection. Not all contraceptives react badly,

and I know many girls are helped. I just don't want to experiment on

. She is 14. S.

Re: Puberty and Oral Contraceptives

> My personal opinion is that there are many medical risks involved with

going on " the pill " for all of us, and I wouldn't subject my daughter to

those without there being a reason other than to keep her periods at bay. I

could see it if menstruation was a real nightmare for her--causing

meltdowns, for instance, or to help even out a totally unpredictable

cycle--but even then I think I'd try to make my daughter see that it's a

natural part of being a woman. There's a lot to be said for (the newest

version of) natural family planning even when it isn't used for birth

control--it let's women know about their entire cycle, not just the week of

their period. It can give the girls a way to determine when they can expect

their periods so they have time to be prepared and feel more " in control "

over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

>

>

> jillplato@... wrote:

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her first

period

> Father's Day, and has been having a period every 3 weeks. The first one

was

> light, but since then they have been pretty heavy. We have been working

with

> her to wear her pad, but she often wants to sneak and remove it...a big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral contraceptives

to

> regulate and lighten her periods, but normally they don't like to start

those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

My daughter has had wacking periods since June of 2003, and has had blood

work, ultrasounds and internal examination. Fortunately, it is due to her

being somewhat overweight, and we are working on increasing her exercise.

She is as active as we would like. Anyway, she is 14 and the new female

gyno we visited suggested DEPO injections. NO WAY. She had inplied that

when my daughter was older she may be having " sex in the classroom " (yeah,

could happen, but Highly unlikely). I didn't care for her general attitude

in general. Some women/girls react badly to contraceptive drugs, mood

swings, weight gains, high blood pressure, clots, etc. and we DO NOT need

that either. Having a wacky period with tolerable mood swings is better

than a hormonally induced injection. Not all contraceptives react badly,

and I know many girls are helped. I just don't want to experiment on

. She is 14. S.

Re: Puberty and Oral Contraceptives

> My personal opinion is that there are many medical risks involved with

going on " the pill " for all of us, and I wouldn't subject my daughter to

those without there being a reason other than to keep her periods at bay. I

could see it if menstruation was a real nightmare for her--causing

meltdowns, for instance, or to help even out a totally unpredictable

cycle--but even then I think I'd try to make my daughter see that it's a

natural part of being a woman. There's a lot to be said for (the newest

version of) natural family planning even when it isn't used for birth

control--it let's women know about their entire cycle, not just the week of

their period. It can give the girls a way to determine when they can expect

their periods so they have time to be prepared and feel more " in control "

over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

>

>

> jillplato@... wrote:

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her first

period

> Father's Day, and has been having a period every 3 weeks. The first one

was

> light, but since then they have been pretty heavy. We have been working

with

> her to wear her pad, but she often wants to sneak and remove it...a big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral contraceptives

to

> regulate and lighten her periods, but normally they don't like to start

those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

My daughter has had wacking periods since June of 2003, and has had blood

work, ultrasounds and internal examination. Fortunately, it is due to her

being somewhat overweight, and we are working on increasing her exercise.

She is as active as we would like. Anyway, she is 14 and the new female

gyno we visited suggested DEPO injections. NO WAY. She had inplied that

when my daughter was older she may be having " sex in the classroom " (yeah,

could happen, but Highly unlikely). I didn't care for her general attitude

in general. Some women/girls react badly to contraceptive drugs, mood

swings, weight gains, high blood pressure, clots, etc. and we DO NOT need

that either. Having a wacky period with tolerable mood swings is better

than a hormonally induced injection. Not all contraceptives react badly,

and I know many girls are helped. I just don't want to experiment on

. She is 14. S.

Re: Puberty and Oral Contraceptives

> My personal opinion is that there are many medical risks involved with

going on " the pill " for all of us, and I wouldn't subject my daughter to

those without there being a reason other than to keep her periods at bay. I

could see it if menstruation was a real nightmare for her--causing

meltdowns, for instance, or to help even out a totally unpredictable

cycle--but even then I think I'd try to make my daughter see that it's a

natural part of being a woman. There's a lot to be said for (the newest

version of) natural family planning even when it isn't used for birth

control--it let's women know about their entire cycle, not just the week of

their period. It can give the girls a way to determine when they can expect

their periods so they have time to be prepared and feel more " in control "

over their bodies. Plus, it helps them recognize why they feel so

different--physically and emotionally--at different stages of their cycle.

>

>

> jillplato@... wrote:

> Dear Listmates:

>

> Hi! I have a 13 yr old daughter with autism. She started her first

period

> Father's Day, and has been having a period every 3 weeks. The first one

was

> light, but since then they have been pretty heavy. We have been working

with

> her to wear her pad, but she often wants to sneak and remove it...a big

> challenge.

>

> When I spoke to her pediatrician in July, we discussed oral contraceptives

to

> regulate and lighten her periods, but normally they don't like to start

those

> until the girls has had her period for 2 yrs.

>

> Have any of you used oral contraceptives with your girls and at what age?

>

> Any suggestions or info would help so much!

>

> Jill

> (never a dull moment in Illinois, but I am sure ready for one!!)

>

>

>

[Guest guest]

-

Hi

My autistic daughter started her periods at 11, and the first one

arrived very heavy indeed, had large clots and lasted for 13 days.

The next one arrived 20 days later. She had a temper, self injury,

3 days after finishing her period, and then again 4 days before her

period. This went on for nearly 2 years. Our GP said that we

should leave her for 2 years to let them settle. They did not. So

finally at 13 she has meds to lighten the period, they did not. So

at 13 1/2 she went on 'the pill'. Since then her periods have

lightened to approx 5 days, and are lightish to moderate. No

clots. Still has a temper maybe every 9 weeks ish just before the

period. I do not agree with young children being on the pill, but I

do not agree with my daughter suffering like that either. She also

has a chromozome partial deletion on her X chrom. which may be

contributing to her problems.

She will now wear a pad, and call out 'oh dear' if it needs

changing. She still needs help with this as she sometimes doesn't

position it correctly.

Liz

-- In Autism_in_Girls , " L Sherwood "

<cutestuff@s...> wrote:

> My daughter has had wacking periods since June of 2003, and has

had blood

> work, ultrasounds and internal examination. Fortunately, it is

due to her

> being somewhat overweight, and we are working on increasing her

exercise.

> She is as active as we would like. Anyway, she is 14 and the new

female

> gyno we visited suggested DEPO injections. NO WAY. She had

inplied that

> when my daughter was older she may be having " sex in the

classroom " (yeah,

> could happen, but Highly unlikely). I didn't care for her general

attitude

> in general. Some women/girls react badly to contraceptive drugs,

mood

> swings, weight gains, high blood pressure, clots, etc. and we DO

NOT need

> that either. Having a wacky period with tolerable mood swings is

better

> than a hormonally induced injection. Not all contraceptives react

badly,

> and I know many girls are helped. I just don't want to experiment

on

> . She is 14. S.

> Re: Puberty and Oral Contraceptives

>

>

> > My personal opinion is that there are many medical risks

involved with

> going on " the pill " for all of us, and I wouldn't subject my

daughter to

> those without there being a reason other than to keep her periods

at bay. I

> could see it if menstruation was a real nightmare for her--causing

> meltdowns, for instance, or to help even out a totally

unpredictable

> cycle--but even then I think I'd try to make my daughter see that

it's a

> natural part of being a woman. There's a lot to be said for (the

newest

> version of) natural family planning even when it isn't used for

birth

> control--it let's women know about their entire cycle, not just

the week of

> their period. It can give the girls a way to determine when they

can expect

> their periods so they have time to be prepared and feel more " in

control "

> over their bodies. Plus, it helps them recognize why they feel so

> different--physically and emotionally--at different stages of

their cycle.

> >

> >

> > jillplato@a... wrote:

> > Dear Listmates:

> >

> > Hi! I have a 13 yr old daughter with autism. She started her

first

> period

> > Father's Day, and has been having a period every 3 weeks. The

first one

> was

> > light, but since then they have been pretty heavy. We have been

working

> with

> > her to wear her pad, but she often wants to sneak and remove

it...a big

> > challenge.

> >

> > When I spoke to her pediatrician in July, we discussed oral

contraceptives

> to

> > regulate and lighten her periods, but normally they don't like

to start

> those

> > until the girls has had her period for 2 yrs.

> >

> > Have any of you used oral contraceptives with your girls and at

what age?

> >

> > Any suggestions or info would help so much!

> >

> > Jill

> > (never a dull moment in Illinois, but I am sure ready for one!!)

> >

> >

> >

[Guest guest]

-

Hi

My autistic daughter started her periods at 11, and the first one

arrived very heavy indeed, had large clots and lasted for 13 days.

The next one arrived 20 days later. She had a temper, self injury,

3 days after finishing her period, and then again 4 days before her

period. This went on for nearly 2 years. Our GP said that we

should leave her for 2 years to let them settle. They did not. So

finally at 13 she has meds to lighten the period, they did not. So

at 13 1/2 she went on 'the pill'. Since then her periods have

lightened to approx 5 days, and are lightish to moderate. No

clots. Still has a temper maybe every 9 weeks ish just before the

period. I do not agree with young children being on the pill, but I

do not agree with my daughter suffering like that either. She also

has a chromozome partial deletion on her X chrom. which may be

contributing to her problems.

She will now wear a pad, and call out 'oh dear' if it needs

changing. She still needs help with this as she sometimes doesn't

position it correctly.

Liz

-- In Autism_in_Girls , " L Sherwood "

<cutestuff@s...> wrote:

> My daughter has had wacking periods since June of 2003, and has

had blood

> work, ultrasounds and internal examination. Fortunately, it is

due to her

> being somewhat overweight, and we are working on increasing her

exercise.

> She is as active as we would like. Anyway, she is 14 and the new

female

> gyno we visited suggested DEPO injections. NO WAY. She had

inplied that

> when my daughter was older she may be having " sex in the

classroom " (yeah,

> could happen, but Highly unlikely). I didn't care for her general

attitude

> in general. Some women/girls react badly to contraceptive drugs,

mood

> swings, weight gains, high blood pressure, clots, etc. and we DO

NOT need

> that either. Having a wacky period with tolerable mood swings is

better

> than a hormonally induced injection. Not all contraceptives react

badly,

> and I know many girls are helped. I just don't want to experiment

on

> . She is 14. S.

> Re: Puberty and Oral Contraceptives

>

>

> > My personal opinion is that there are many medical risks

involved with

> going on " the pill " for all of us, and I wouldn't subject my

daughter to

> those without there being a reason other than to keep her periods

at bay. I

> could see it if menstruation was a real nightmare for her--causing

> meltdowns, for instance, or to help even out a totally

unpredictable

> cycle--but even then I think I'd try to make my daughter see that

it's a

> natural part of being a woman. There's a lot to be said for (the

newest

> version of) natural family planning even when it isn't used for

birth

> control--it let's women know about their entire cycle, not just

the week of

> their period. It can give the girls a way to determine when they

can expect

> their periods so they have time to be prepared and feel more " in

control "

> over their bodies. Plus, it helps them recognize why they feel so

> different--physically and emotionally--at different stages of

their cycle.

> >

> >

> > jillplato@a... wrote:

> > Dear Listmates:

> >

> > Hi! I have a 13 yr old daughter with autism. She started her

first

> period

> > Father's Day, and has been having a period every 3 weeks. The

first one

> was

> > light, but since then they have been pretty heavy. We have been

working

> with

> > her to wear her pad, but she often wants to sneak and remove

it...a big

> > challenge.

> >

> > When I spoke to her pediatrician in July, we discussed oral

contraceptives

> to

> > regulate and lighten her periods, but normally they don't like

to start

> those

> > until the girls has had her period for 2 yrs.

> >

> > Have any of you used oral contraceptives with your girls and at

what age?

> >

> > Any suggestions or info would help so much!

> >

> > Jill

> > (never a dull moment in Illinois, but I am sure ready for one!!)

> >

> >

> >

[Guest guest]

Hi Liz, I have nothing against Birth Control pills for the reasons that you

are using them for. Yes, they help many women and girls (whether autistic

or not), but I chose NOT to use them on as she is semi-verbal and we

really wouldn't know how she is reacting to them. She is worse WHEN having

periods, so we are going to let the situation ride out for the time being.

There are many low dose BCP and they may help her.

The doctors DO NOT know why she is late or irregular now, all tests were

negative, and like I mentioned in another post her weight could be a factor.

She does not look obese by any means, just like a large built girl. We are

working on more exercise.

Thank you for sharing your views. You are doing what's best for YOUR

daughter. I wish you all well, and thank you for sharing your story.

Re: Puberty and Oral Contraceptives

> >

> >

> > > My personal opinion is that there are many medical risks

> involved with

> > going on " the pill " for all of us, and I wouldn't subject my

> daughter to

> > those without there being a reason other than to keep her periods

> at bay. I

> > could see it if menstruation was a real nightmare for her--causing

> > meltdowns, for instance, or to help even out a totally

> unpredictable

> > cycle--but even then I think I'd try to make my daughter see that

> it's a

> > natural part of being a woman. There's a lot to be said for (the

> newest

> > version of) natural family planning even when it isn't used for

> birth

> > control--it let's women know about their entire cycle, not just

> the week of

> > their period. It can give the girls a way to determine when they

> can expect

> > their periods so they have time to be prepared and feel more " in

> control "

> > over their bodies. Plus, it helps them recognize why they feel so

> > different--physically and emotionally--at different stages of

> their cycle.

> > >

> > >

> > > jillplato@a... wrote:

> > > Dear Listmates:

> > >

> > > Hi! I have a 13 yr old daughter with autism. She started her

> first

> > period

> > > Father's Day, and has been having a period every 3 weeks. The

> first one

> > was

> > > light, but since then they have been pretty heavy. We have been

> working

> > with

> > > her to wear her pad, but she often wants to sneak and remove

> it...a big

> > > challenge.

> > >

> > > When I spoke to her pediatrician in July, we discussed oral

> contraceptives

> > to

> > > regulate and lighten her periods, but normally they don't like

> to start

> > those

> > > until the girls has had her period for 2 yrs.

> > >

> > > Have any of you used oral contraceptives with your girls and at

> what age?

> > >

> > > Any suggestions or info would help so much!

> > >

> > > Jill

> > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > >

> > >

> > >

[Guest guest]

Hi Liz, I have nothing against Birth Control pills for the reasons that you

are using them for. Yes, they help many women and girls (whether autistic

or not), but I chose NOT to use them on as she is semi-verbal and we

really wouldn't know how she is reacting to them. She is worse WHEN having

periods, so we are going to let the situation ride out for the time being.

There are many low dose BCP and they may help her.

The doctors DO NOT know why she is late or irregular now, all tests were

negative, and like I mentioned in another post her weight could be a factor.

She does not look obese by any means, just like a large built girl. We are

working on more exercise.

Thank you for sharing your views. You are doing what's best for YOUR

daughter. I wish you all well, and thank you for sharing your story.

Re: Puberty and Oral Contraceptives

> >

> >

> > > My personal opinion is that there are many medical risks

> involved with

> > going on " the pill " for all of us, and I wouldn't subject my

> daughter to

> > those without there being a reason other than to keep her periods

> at bay. I

> > could see it if menstruation was a real nightmare for her--causing

> > meltdowns, for instance, or to help even out a totally

> unpredictable

> > cycle--but even then I think I'd try to make my daughter see that

> it's a

> > natural part of being a woman. There's a lot to be said for (the

> newest

> > version of) natural family planning even when it isn't used for

> birth

> > control--it let's women know about their entire cycle, not just

> the week of

> > their period. It can give the girls a way to determine when they

> can expect

> > their periods so they have time to be prepared and feel more " in

> control "

> > over their bodies. Plus, it helps them recognize why they feel so

> > different--physically and emotionally--at different stages of

> their cycle.

> > >

> > >

> > > jillplato@a... wrote:

> > > Dear Listmates:

> > >

> > > Hi! I have a 13 yr old daughter with autism. She started her

> first

> > period

> > > Father's Day, and has been having a period every 3 weeks. The

> first one

> > was

> > > light, but since then they have been pretty heavy. We have been

> working

> > with

> > > her to wear her pad, but she often wants to sneak and remove

> it...a big

> > > challenge.

> > >

> > > When I spoke to her pediatrician in July, we discussed oral

> contraceptives

> > to

> > > regulate and lighten her periods, but normally they don't like

> to start

> > those

> > > until the girls has had her period for 2 yrs.

> > >

> > > Have any of you used oral contraceptives with your girls and at

> what age?

> > >

> > > Any suggestions or info would help so much!

> > >

> > > Jill

> > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > >

> > >

> > >

[Guest guest]

:

I have posted before that my daugher, (11 yrs old) has had periods

for over one year. She has been diagnosed with polycystic ovarian

disease/syndrome, PCOS, I've seen it listed both ways. This condition causes

the irregular periods and makes the body insulin resistant which causes the

person to gain even more weight. is on Metformin for this condition.

We also have placed her on the birth control pill, Seasonale, for the irregular

periods. Seasonale allows a person who is taking it to only have 4 periods per

year.

Just posting as an FYI to all whose daughters have irregular periods, please ask

the dr to check for PCOS.

Vickie

Re: Puberty and Oral Contraceptives

> >

> >

> > > My personal opinion is that there are many medical risks

> involved with

> > going on " the pill " for all of us, and I wouldn't subject my

> daughter to

> > those without there being a reason other than to keep her periods

> at bay. I

> > could see it if menstruation was a real nightmare for her--causing

> > meltdowns, for instance, or to help even out a totally

> unpredictable

> > cycle--but even then I think I'd try to make my daughter see that

> it's a

> > natural part of being a woman. There's a lot to be said for (the

> newest

> > version of) natural family planning even when it isn't used for

> birth

> > control--it let's women know about their entire cycle, not just

> the week of

> > their period. It can give the girls a way to determine when they

> can expect

> > their periods so they have time to be prepared and feel more " in

> control "

> > over their bodies. Plus, it helps them recognize why they feel so

> > different--physically and emotionally--at different stages of

> their cycle.

> > >

> > >

> > > jillplato@a... wrote:

> > > Dear Listmates:

> > >

> > > Hi! I have a 13 yr old daughter with autism. She started her

> first

> > period

> > > Father's Day, and has been having a period every 3 weeks. The

> first one

> > was

> > > light, but since then they have been pretty heavy. We have been

> working

> > with

> > > her to wear her pad, but she often wants to sneak and remove

> it...a big

> > > challenge.

> > >

> > > When I spoke to her pediatrician in July, we discussed oral

> contraceptives

> > to

> > > regulate and lighten her periods, but normally they don't like

> to start

> > those

> > > until the girls has had her period for 2 yrs.

> > >

> > > Have any of you used oral contraceptives with your girls and at

> what age?

> > >

> > > Any suggestions or info would help so much!

> > >

> > > Jill

> > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > >

> > >

> > >

[Guest guest]

:

I have posted before that my daugher, (11 yrs old) has had periods

for over one year. She has been diagnosed with polycystic ovarian

disease/syndrome, PCOS, I've seen it listed both ways. This condition causes

the irregular periods and makes the body insulin resistant which causes the

person to gain even more weight. is on Metformin for this condition.

We also have placed her on the birth control pill, Seasonale, for the irregular

periods. Seasonale allows a person who is taking it to only have 4 periods per

year.

Just posting as an FYI to all whose daughters have irregular periods, please ask

the dr to check for PCOS.

Vickie

Re: Puberty and Oral Contraceptives

> >

> >

> > > My personal opinion is that there are many medical risks

> involved with

> > going on " the pill " for all of us, and I wouldn't subject my

> daughter to

> > those without there being a reason other than to keep her periods

> at bay. I

> > could see it if menstruation was a real nightmare for her--causing

> > meltdowns, for instance, or to help even out a totally

> unpredictable

> > cycle--but even then I think I'd try to make my daughter see that

> it's a

> > natural part of being a woman. There's a lot to be said for (the

> newest

> > version of) natural family planning even when it isn't used for

> birth

> > control--it let's women know about their entire cycle, not just

> the week of

> > their period. It can give the girls a way to determine when they

> can expect

> > their periods so they have time to be prepared and feel more " in

> control "

> > over their bodies. Plus, it helps them recognize why they feel so

> > different--physically and emotionally--at different stages of

> their cycle.

> > >

> > >

> > > jillplato@a... wrote:

> > > Dear Listmates:

> > >

> > > Hi! I have a 13 yr old daughter with autism. She started her

> first

> > period

> > > Father's Day, and has been having a period every 3 weeks. The

> first one

> > was

> > > light, but since then they have been pretty heavy. We have been

> working

> > with

> > > her to wear her pad, but she often wants to sneak and remove

> it...a big

> > > challenge.

> > >

> > > When I spoke to her pediatrician in July, we discussed oral

> contraceptives

> > to

> > > regulate and lighten her periods, but normally they don't like

> to start

> > those

> > > until the girls has had her period for 2 yrs.

> > >

> > > Have any of you used oral contraceptives with your girls and at

> what age?

> > >

> > > Any suggestions or info would help so much!

> > >

> > > Jill

> > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > >

> > >

> > >

[Guest guest]

:

I have posted before that my daugher, (11 yrs old) has had periods

for over one year. She has been diagnosed with polycystic ovarian

disease/syndrome, PCOS, I've seen it listed both ways. This condition causes

the irregular periods and makes the body insulin resistant which causes the

person to gain even more weight. is on Metformin for this condition.

We also have placed her on the birth control pill, Seasonale, for the irregular

periods. Seasonale allows a person who is taking it to only have 4 periods per

year.

Just posting as an FYI to all whose daughters have irregular periods, please ask

the dr to check for PCOS.

Vickie

Re: Puberty and Oral Contraceptives

> >

> >

> > > My personal opinion is that there are many medical risks

> involved with

> > going on " the pill " for all of us, and I wouldn't subject my

> daughter to

> > those without there being a reason other than to keep her periods

> at bay. I

> > could see it if menstruation was a real nightmare for her--causing

> > meltdowns, for instance, or to help even out a totally

> unpredictable

> > cycle--but even then I think I'd try to make my daughter see that

> it's a

> > natural part of being a woman. There's a lot to be said for (the

> newest

> > version of) natural family planning even when it isn't used for

> birth

> > control--it let's women know about their entire cycle, not just

> the week of

> > their period. It can give the girls a way to determine when they

> can expect

> > their periods so they have time to be prepared and feel more " in

> control "

> > over their bodies. Plus, it helps them recognize why they feel so

> > different--physically and emotionally--at different stages of

> their cycle.

> > >

> > >

> > > jillplato@a... wrote:

> > > Dear Listmates:

> > >

> > > Hi! I have a 13 yr old daughter with autism. She started her

> first

> > period

> > > Father's Day, and has been having a period every 3 weeks. The

> first one

> > was

> > > light, but since then they have been pretty heavy. We have been

> working

> > with

> > > her to wear her pad, but she often wants to sneak and remove

> it...a big

> > > challenge.

> > >

> > > When I spoke to her pediatrician in July, we discussed oral

> contraceptives

> > to

> > > regulate and lighten her periods, but normally they don't like

> to start

> > those

> > > until the girls has had her period for 2 yrs.

> > >

> > > Have any of you used oral contraceptives with your girls and at

> what age?

> > >

> > > Any suggestions or info would help so much!

> > >

> > > Jill

> > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > >

> > >

> > >

[Guest guest]

Hi Vickie

My daughter was tested for PCOS, that was what I thought she had. She

had ultrasounds, lots of blood work, including thyroid, and hormone levels.

We had her glucose tested, as there are diabetes on both sides of family,

mainly type 2, but since type 2 is on the rise with younger children we did

that too. All her tests were negative.

I had TWO gynos check her out, as well as two urologists, and after

testing with what they THOUGHT was a urethral diverticulitis, tests showed

she didn't have that either!!

Thanks for writing, I appreciate you sharing your family business with

me, and the others on this board. Continued good health for your daughter.

Re: Puberty and Oral Contraceptives

> > >

> > >

> > > > My personal opinion is that there are many medical risks

> > involved with

> > > going on " the pill " for all of us, and I wouldn't subject my

> > daughter to

> > > those without there being a reason other than to keep her periods

> > at bay. I

> > > could see it if menstruation was a real nightmare for her--causing

> > > meltdowns, for instance, or to help even out a totally

> > unpredictable

> > > cycle--but even then I think I'd try to make my daughter see that

> > it's a

> > > natural part of being a woman. There's a lot to be said for (the

> > newest

> > > version of) natural family planning even when it isn't used for

> > birth

> > > control--it let's women know about their entire cycle, not just

> > the week of

> > > their period. It can give the girls a way to determine when they

> > can expect

> > > their periods so they have time to be prepared and feel more " in

> > control "

> > > over their bodies. Plus, it helps them recognize why they feel so

> > > different--physically and emotionally--at different stages of

> > their cycle.

> > > >

> > > >

> > > > jillplato@a... wrote:

> > > > Dear Listmates:

> > > >

> > > > Hi! I have a 13 yr old daughter with autism. She started her

> > first

> > > period

> > > > Father's Day, and has been having a period every 3 weeks. The

> > first one

> > > was

> > > > light, but since then they have been pretty heavy. We have been

> > working

> > > with

> > > > her to wear her pad, but she often wants to sneak and remove

> > it...a big

> > > > challenge.

> > > >

> > > > When I spoke to her pediatrician in July, we discussed oral

> > contraceptives

> > > to

> > > > regulate and lighten her periods, but normally they don't like

> > to start

> > > those

> > > > until the girls has had her period for 2 yrs.

> > > >

> > > > Have any of you used oral contraceptives with your girls and at

> > what age?

> > > >

> > > > Any suggestions or info would help so much!

> > > >

> > > > Jill

> > > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > > >

> > > >

> > > >

[Guest guest]

Hi Vickie

My daughter was tested for PCOS, that was what I thought she had. She

had ultrasounds, lots of blood work, including thyroid, and hormone levels.

We had her glucose tested, as there are diabetes on both sides of family,

mainly type 2, but since type 2 is on the rise with younger children we did

that too. All her tests were negative.

I had TWO gynos check her out, as well as two urologists, and after

testing with what they THOUGHT was a urethral diverticulitis, tests showed

she didn't have that either!!

Thanks for writing, I appreciate you sharing your family business with

me, and the others on this board. Continued good health for your daughter.

Re: Puberty and Oral Contraceptives

> > >

> > >

> > > > My personal opinion is that there are many medical risks

> > involved with

> > > going on " the pill " for all of us, and I wouldn't subject my

> > daughter to

> > > those without there being a reason other than to keep her periods

> > at bay. I

> > > could see it if menstruation was a real nightmare for her--causing

> > > meltdowns, for instance, or to help even out a totally

> > unpredictable

> > > cycle--but even then I think I'd try to make my daughter see that

> > it's a

> > > natural part of being a woman. There's a lot to be said for (the

> > newest

> > > version of) natural family planning even when it isn't used for

> > birth

> > > control--it let's women know about their entire cycle, not just

> > the week of

> > > their period. It can give the girls a way to determine when they

> > can expect

> > > their periods so they have time to be prepared and feel more " in

> > control "

> > > over their bodies. Plus, it helps them recognize why they feel so

> > > different--physically and emotionally--at different stages of

> > their cycle.

> > > >

> > > >

> > > > jillplato@a... wrote:

> > > > Dear Listmates:

> > > >

> > > > Hi! I have a 13 yr old daughter with autism. She started her

> > first

> > > period

> > > > Father's Day, and has been having a period every 3 weeks. The

> > first one

> > > was

> > > > light, but since then they have been pretty heavy. We have been

> > working

> > > with

> > > > her to wear her pad, but she often wants to sneak and remove

> > it...a big

> > > > challenge.

> > > >

> > > > When I spoke to her pediatrician in July, we discussed oral

> > contraceptives

> > > to

> > > > regulate and lighten her periods, but normally they don't like

> > to start

> > > those

> > > > until the girls has had her period for 2 yrs.

> > > >

> > > > Have any of you used oral contraceptives with your girls and at

> > what age?

> > > >

> > > > Any suggestions or info would help so much!

> > > >

> > > > Jill

> > > > (never a dull moment in Illinois, but I am sure ready for one!!)

> > > >

> > > >

> > > >

[Guest guest]

I have to second that. PLEASE have your doctor check for PCOS. My daughter

hasn't hit puberty yet but I have PCOS myself along with endometriosis, which

can also cause irregular periods, wicked mood swings, and really nasty periods

with bad cramps and clots. My mother was told over and over that my periods

would straighten themselves out, that there was no need to be concered, and that

the pain I was having was " painful ovulation " and I'd outgrow it.

I was 22 when the endometriosis was diagnosed, but since at that time I wasn't

looking to have children my doctor did nothing and basically told me deal with

it. When I was 27 I got married and I knew having kids could be difficult.

After 3 years of trying and different tests, all the fertility doctors were

pretty grim on the chances I'd ever have children. They said if I had been

treated back when I was diagnosed, things wouldnt be as bad. They even went as

far as to say without a surrogate, impossible and even with one they couldnt

guarantee the child could be mine genetically. In my case these " experts " were

wrong, but I suffered all those years when something could have been done a lot

sooner.

Toni Wells

http://designs.merlins-avalon.com

Re: Re: Puberty and Oral Contraceptives

:

I have posted before that my daugher, (11 yrs old) has had periods

for over one year. She has been diagnosed with polycystic ovarian

disease/syndrome, PCOS, I've seen it listed both ways. This condition causes

the irregular periods and makes the body insulin resistant which causes the

person to gain even more weight. is on Metformin for this condition.

We also have placed her on the birth control pill, Seasonale, for the irregular

periods. Seasonale allows a person who is taking it to only have 4 periods per

year.

Just posting as an FYI to all whose daughters have irregular periods, please ask

the dr to check for PCOS.

Vickie