update

[Guest guest]

Hello gang,

Well I made it through Christmas. Yahoo!! The kids had a great time. I even

made a killin' this year. LOL!! My husband or was that Santa was good to me. We

have been having fun with the kids out for Christmas break. With Christmas and

New Years on Tuesday my husbands work schedule is all messed up. He gets Sunday,

half of Monday, Tuesday, Thursday (normal day off), both weeks. So we are

spending a lot of catch up time together. The kids go back to school January 2nd

and then the craziness begins. I start watching my sister-in-laws two month old

baby on the 7th of January. She is so good. I have spent lots of time with her

the last week and look forward to taking care of her. Yes I will still have my

sisters four kids so I will have my hands full. If you don't hear from me in a

while it is because the little buggers tied me up and put me in the closet.

LOL!!

My health is ok. I am off the pred. Yipee!! I don't know how long this will

last because I can feel the old pain coming back. I do not want to have to go

back on it, so I will fight it all the way. One morning this week I woke up and

my right elbow was almost locked. The pain was deep and hot. Yesterday I woke up

and my wrist was almost locked. Yes I know get back on the pred. No fevers! That

is a plus. I know that I will always deal with pain so I can handle this, it is

the fevers I will take the pred for.

After all of this fighting to get Medicaid and finally getting it was taken

away from me. They paid all my back bills. Everything. I am even getting a

$300.00 check from one place. It seems that to qualify me from August 99 to

December 01 the gal handling my case, well she lied. Little did I know. I was

just happy to get it. My case was turned over to the lead man and he found the

errors. He sent me a letter on December 12. I got it yesterday. So I called all

mad and ready to take his head off. I did for a little while. He told me that he

needed to call someone and then he would call me back. While I was waiting it

occurred to me that if my Medicaid ends next week then I will have no coverage

for my third Remicade on January 10. I called the doctor and they can not move

the infusion up but they can move it back. It will be Feb 7. My Medicare kicks

in Feb 1. Well he called back and told me that I could take the office to a fair

hearing. He asked if I did not to mention the back benefits. If I did I would

have to pay the state back. Holy cow. Do you have any idea how much they paid

out for me. Do you know how far in debt we would be if they did that. Well I am

sure most of you do. He told me if I kept quiet they would not do anything about

making me pay back benefits. But that I was no longer eligible. Know what I want

to know is how much of this is him helping us out or him trying to keep from

getting in trouble with the state. More for him not getting into trouble I

think. My husband feels we should get a lawyer but if we do then we will be

responsible to pay back thousands of dollars. I was doing what I was told. It

is there job not mine. The guy from the state called me again a today and told

me that I do qualify for a state program that pays all of what Medicare will not

pay. All but the medication. I have a question with Remicade, will I have to pay

for it or is it covered by Medicare? God I hope so. If this falls through then

I will give up. I will go back to hurting all the time, and only taking pred. It

is all I can afford. I will just have to do what the old timers did back a

hundred years ago. Suffer. That is all that is left for me.

All I need is my family, you guys, and a soft place to lay down. Take care

all,

Do you ICQ? I do! My number is 145599444. Drop me a note:)

~~I HOPE YOU DANCE~~

crimsons@...