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Re: Carmen Puffy, Etc...

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Dear Carmen,

I agree with you this disease does seem to be so diverse. I believe that it

effects our entire body in one way or another. I wish you were feeling

better. I know you don't like the Pred. but if your feeling bad you may

have to up your dose. For quite awhile the Pred. was the only thing that

seemed to help me.

I have been on Enbrel now for over 2 years. I believe it is the best

medicine I have been on. It has helped with my joint pain and stiffness. I

haven't had any noticeable side effects from either med. Even though it

helps it doesn't seem to quite do the trick in controlling my disease. I

believe the Plaquenil helps me a little but only when combined with other

meds.

I am currently on just the Enbrel and Plaquenil because my body can no

longer tolerate a lot of the meds. The meds either don't help at all or I

end up having side effects from them.

If memory serves me correctly both of these meds took a long time before

they started working. I didn't think the Plaquenil helped at all until I

stopped taking it for awhile. That is when I noticed a difference in my

stiffness and pain.

Probably when you are totally off the Pred. you won't be so puffy. I am not

on Pred. but I seem to be losing quite a bit of my hair as well. I believe

my hair loss is from the disease or who knows it may be from the meds. The

Mtx also made me sick when I was on it. I was on the pill form. The

injections seem more tolerable and people seem to have less side effects.

Thanks for sharing and comparing notes so to speak. I hope the Enbrel

starts helping you soon. I pray you start feeling better very soon. Let me

know how you are doing.

Love,

jatw@...

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