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The disease, prednisone, mtx and arava have resulted in a lot of hair loss

for me. I have been taking 2000-3000 mg of biotin a day (it is a vitamin) and

I think it has helped areat deal.

I got out of the hospital on Weds. with my new shoulder. i'm doing as well as

is possible, but this disease sure ain't for sissies!

Wishing better days ahead to all.

marcia

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I had a lot of hair falling out at the beginning and during a flare. When I

started on MTX (which is usually known to make hair fall out), my hair STOPPED

falling out. I just recently got over a flare (without MTX) and am now going

into another flare, but this time my hair is falling out again. I guess I gage

that when my hair falls out it usually means my sed rate is higher (therefore,

Stills is more active). I told my doctors this and nothing seemed to sink in

about it. My gosh, sometimes I shed more than by two cats combined! (However,

it does seem to grow back to normal thickness when you're feeling better!).

Just my 2 cents!

Jul

(lilac_rose@...)

Hair loss

My hair has been really thinning out. Is it possible to have a noticable

amount of hair loss as a result of the on-set of this illness or being on

prednisone?

Thanks,

Eleanor

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  • 4 months later...
Guest guest

I actually was on NO prednisone with I started losing hair... my flare up

was over although I still needed mtx, vioxx and remicade.

I never notice hair loss with mtx when i started it in July, just after the

engagement, new house, remicade and loss/new job. I will try massaging my

scalp. I also will try increasing folic acid. Good suggestions.

Luckily, I live in Arizona and it is super hot and having less hair is

actually a nice thing (I am trying to find the good in these trying times!)

Thanks for the advice and God bless-

Amber

Re: Reminder - Chat

Hi a:

I doubt that you are doing anything wrong but the Monday and

Thursday night chats are at a set time which is 9 pm Eastern, 8pm Central

time and 6pm Pacific time. I forget which time zone you are in but you can

adjust accordingly? Take care now and be PAIN FREE!

We Will Win

Love Y'all

Bob & Carole

Please visit the Stills Disease web site

www.stillsdisease.org

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Guest guest

I actually was on NO prednisone with I started losing hair... my flare up

was over although I still needed mtx, vioxx and remicade.

I never notice hair loss with mtx when i started it in July, just after the

engagement, new house, remicade and loss/new job. I will try massaging my

scalp. I also will try increasing folic acid. Good suggestions.

Luckily, I live in Arizona and it is super hot and having less hair is

actually a nice thing (I am trying to find the good in these trying times!)

Thanks for the advice and God bless-

Amber

Re: Reminder - Chat

Hi a:

I doubt that you are doing anything wrong but the Monday and

Thursday night chats are at a set time which is 9 pm Eastern, 8pm Central

time and 6pm Pacific time. I forget which time zone you are in but you can

adjust accordingly? Take care now and be PAIN FREE!

We Will Win

Love Y'all

Bob & Carole

Please visit the Stills Disease web site

www.stillsdisease.org

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